Thursday, September 18, 2008 hurting36, Community Member, asks

Q: have 3 bulging discs in lower back and degenerative disc disease,and I'm only 36.Been to pain specia

Been to pain specialist 3 times for injections with no good results.Tired of the chronic pain.Have had bladder accidents in last 2 weeks,what am I to do?See my pain specialist tomorrow for cosultation.  HELP!!!

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Answers (7)
carolinajewel03, Community Member
9/18/08 9:03pm

I really just have a comment to you, I have read so many post on here, about DDD and ruptured disc...how so many people suffer from chronic pain. I had a doctor to tell me last week that even tho I had spinal fusion w/plates on C4 thru C7 and L5, L4, S1 are ruptured and I DDD in them, that it does not cause pain, I need to see a shrink for my pain, cause it was in my head. I will be in a wheel chair within weeks due to the pain.

I ware a diaper 24/7 cause I can't control my bladder. I also am going to visit a pain management center tomorrow. If you would have talked to me a week ago, I had high hopes, couldn't wait to go to the pain center, now I feel like I have lost my hope, or my will I guess. Some people get lucky to find the right Dr. I on the other had has not been so lucky. They will say OMG u have this and that wrong with u, no wonder u can't walk, there's nothing I can do for u, BYE, BYE...My family doc did give me peracets for 4 months, now she can no longer give them to me, cause her malpractice insurance will double if she write narcotic scripts for over 6 months to her patients. I sit up all night dreading to go to bed, cause I know in the morning will be another 9 pain level until I can get some meds in me to atleast make the pain a 7 or 8. So all I do is sit and think about everything, I did blame the doctors for being so uncaring and heartless, but now I blame other people, I blame the "pill heads" "crack heads" or who ever goes into a doctors office pretending to be in all this pain just to get high. People that has no shame, no pride that can go and put on a show to get scripts for nothing but getting themselves stoned. So now I don't feel anger toward doctors anymore. You, me and hundreds of other people has to suffer until we find that right doctor that will say she has so much proof, with MRI's and did all the injections tried everything to help her, that didn't help any, epiduril made me worse for about a week. Please write me about what happen at ur appointment tomorrow, my appointment is a 10:30 in the morning, I will do the same....Sorry this was so long, sometimes, I throw myself a pity parties, and brought you in it.  Good luck...pwb

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Raevyn, Community Member
11/ 1/12 8:00am

I'm so sorry to hear that a physician told you that DDD does not cause pain and that it was all in your head.  I'm not a nurse, physician, or any other type of licensed medical professional.  But from my experiences, both from working in an orthopedists office (spinal specialist) and my own back problems, but I believe DDD does cause pain and from all the patients we had seen w/ the same dx.  I have 2-level disc disease with some spurring and a little spondylosis (where the vertebra slip forward on one another).  I would think that your bladder problems and most of the pain are related to the ruptured discs L4-L5, L5-S1, but that's hopefully for your doctors to find and treat.  

 

I had/have similar symptoms after a L5-S1 disc rupture.  It was a big disc and I lost all bowel/bladder control (now that's a scary feeling) and sensation down both my legs as well as nerve function (I can't stand on my toes) and any feeling in my saddle area (there's a fun day, trying to put a tampon in when you can't feel where it's supposed to go).  I was pain-free for a while after the initial operation (diskectomy L5-S1), but it took a while to gain the ability to hold my bladder again (its still weak and when I gotta go, I gotta go) and to walk half way decently.  I still have a limp and no balance.  

 

But now, 6 years after the surgery, I am in chronic pain 24/7.  I am taking Oxycontin for round the clock pain and morphine for break through pain.  This controls my pain to a certain degree.  I had to quit work (was let go) because of my back, I can't tolerate sitting for very long, standing for any amt of time or walking.  I spent my lunch breaks sleeping, I'd come home and go to bed for a few hours, make dinner (thank the lord my kids were older and hubby was home) and go back to bed.  I spent more time sleeping than awake. 

 

All of this prattling for my little pitty party I guess.  But I really hope the pain mgmt guys were able to help you out and get you some relief and maybe some hope. I realize this is probably a month late, but it pains me to see people get bad advice and see people in pain and need help but don't know where to go or what to do.  I don't know all the answers but like to help out where I can.  You didnt mention if you had seen an orthopedist or neurosurgeon before going to pain mgmt.  Their treatment styles vary greatly. 

 

Let us know how that apt went.  I would be interested to see what they said.

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jcup4u, Community Member
9/18/08 9:36pm

talk with ur dr or pain clinic and tell them nothing is working and u r wasting ur time and money, only 2 keep suffering and getting worse. i have heard wonderful things about scs.. i am going 2 have that done very soon. the dr who is doing mine says he can promise it will reduce my pain by 50% and some people even have zero pain after having it done. listen u can't give up hope.. try this or at least check n2 it.. i'll b praying 4 u. Gbu-bye 4 now

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jcup4u, Community Member
9/18/08 9:36pm

talk with ur dr or pain clinic and tell them nothing is working and u r wasting ur time and money, only 2 keep suffering and getting worse. i have heard wonderful things about scs.. i am going 2 have that done very soon. the dr who is doing mine says he can promise it will reduce my pain by 50% and some people even have zero pain after having it done. listen u can't give up hope.. try this or at least check n2 it.. i'll b praying 4 u. Gbu-bye 4 now

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jcup4u, Community Member
9/18/08 9:36pm

talk with ur dr or pain clinic and tell them nothing is working and u r wasting ur time and money, only 2 keep suffering and getting worse. i have heard wonderful things about scs.. i am going 2 have that done very soon. the dr who is doing mine says he can promise it will reduce my pain by 50% and some people even have zero pain after having it done. listen u can't give up hope.. try this or at least check n2 it.. i'll b praying 4 u. Gbu-bye 4 now

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jcup4u, Community Member
9/18/08 10:54pm
scs is spinal cord stimulation therapy. ask ur dr about it.. it has helped millions with pain.. Reply
Joanna, Community Member
8/12/10 5:25am

Dear Hurting, I have spoken with you before and you were the one who turned me on to allsup. Did yours ever go through? I am sorry to hear of your troubles. I have the bladder problems also. Seems to happen with lower back problems. So far I haven't gone to a urologist, (too embarassed, but I know if I'm going to get any help I'll have to. I hope you have good news tomorrow. God Bless you.

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hurting36, Community Member
8/12/10 6:22pm

I am glad to say that I was awarded, on the record, didnt even have to go before judge! So, I can definitely highly reccommend Allsup, they did eberything they said they would, I left the house once! Had another injection today, a little sore, but it had been awhile, and nothing seems to help, so gave it a "shot", pardon the pun, and going to gastreonoligist, on the 23rd, I cant take it anymore, when you can read the imprints on your pills, floating in the toilet, all pride is out the window, no wonder, no pain relief! I hope you have good luck, I've had a little, and my prayers are with you!

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Tired of Tears, Community Member
1/10/13 6:48pm
Tired of Tears I've had DDD in my neck, and lower back for about 6 years now. I too wear a "big girl" diaper due to urinary incontinence. The first "pain management" dr I seen had me on huge doses of morphine ir, morphine er, and eventually added fentanyl patches. From there I ended up in a rehab facility because of the large amounts of narcotics. 3 years ago, I started with a new pain management clinic. They started out with Percocet, from there, tizanadine and baclofen were added in. About a year ago, we were doing steroid epidurals every 2 weeks, then the neck epidurals every 2 weeks. Switching back and forth since then. Within this time frame, I had also had a heart attack, and 2 TIA's. I have also been admitted for pnuemonia. (Where I am currently). I cannot lie on my back, sit, or walk for any period of time. Now I am back on the OxyContin 3-4 times daily. Every time I go to a hospital or even my primary care, they take ALWAYS take my pain medication away, telling me I don't need them. So, I sit here, and cry my eyes out because I have been added to the national narcartics drug seekers list. Like the previous comments, thank you to the crack heads, drug seekers, and meth-heads for pain I endure 24/7. Trying for a medical "green" card now, but for those of you who use the green, we know that it's for break-through pain. I don't know what to do. I guess me and my "big girl" pampers will continue to look for an answer. There are others of us out here, in pain, in tears, and in embarrassment, we feel for you. Please answer back with any suggestions. God Bless. Reply
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By hurting36, Community Member— Last Modified: 01/10/13, First Published: 09/18/08