Thank You !,

Now if I can get the Neurologist to understand, He don't think it is MS. I have never had the IV treatment of steroids but I would just bet if I did and was put on a medication for it after figuring out what kind I would have out of all the diffrent kinds of MS, I bet I would be pain free and low tremors too and then just maybe I could work again?!.. What kind of tremor do you have?

Thankfully, I dont have tremors that much but when I do it is mostly in my hands.  It is very frustrating to have all of those symptoms and go to the neurologist and he has a hard time making a diagnosis.  I have met many people in the same boat.  Have you had a recent MRI?  How about a spinal tap and Visual Evoked Response?  All of these tests are vital in making a correct diagnosis.  I go to a group of neurologists at the University that actually specialize in MS and its treatment.  Stick with it - hopefully they can come up with a diagnosis and treatment plan for you.  If it is MS, Im afraid you will never be completey pain free - but the can make it manageable.  There are so many new treatments.  If I can be of any help or support please let me know.   I also take Betaseron injections every other nite to help lessen the frequency of MS exacerbations

Unfortuntley I don't have any Health insurance,waiting for my hearing on SSDI,and waiting on 2ed answer from first appeal in medicaid ,But this is my 4 time trying for medicaid,I have been before there Judges 3 times already, I am the poster person for our Family services office for the most deniles 9x counting all the appeals and hearings and this is my last try,it is getting to stressful. Indiana system is bad all around.

The only MRI's I had was last year one on Lumbar no dye, 2ed on Brain w&wo contrast dye BUT when that lady put the dye in she went clear threw my blood vessle and out the skin on the outher side of the vein,she was wipeing something off my arm so I don't know if it was dye or blood since I had the head cage on I couldn't see untill it was done and I was at home, I did tell the Dr. but nothing was done about it.

No My Neuroligest hasn't offered a E.V.P. or spinal tap and neather has my my reg.Dr., After my last trip to the ER with the ungodly pain I had issues with my eye site,it was like everything was so far away so I was able to see the eye Dr.and he had me see the specialist because he thought he seen some inflamation on my left eye nerve, even the specialist suggested I have the spinal tap done to check the spinal fluid pressure which still wasn't done,my vision is better but it took a long while. so that was that and I wait and suffer. My tremors have progressed, first it was only my head then my torso and now moveing into my hands too.

Thank you for shareing with me!!!

Seeker1

I am so sorry for the added stressors of having to "work the system" and try to find out what youre diagnosed with along with just generally feeling bad.  I was fortunate enough to get my disability the first time - and I had a great neurologist that knew all the ins and outs of the disability system.  (That was when I lived in Tennessee)  If I were you and I know you are tired of hearing people say that to you - but - if you are anywhere close to the University of Indianna Medical Center  (I think they have a campus in Indianapolis, I may be wrong about the town).  When I first started my nursing career I had to go to different campuses and train.  But that was back just a few years.....   Anyway, I would go to the University and get an appointment with their Neurology Department.  I bet they have doctors who specialize in MS like mine does.  They will take their time, do the tests and you will walk out with a diagnosis.  You have to have a VER and a spinal tap.... No definitive diagnosis can be made without those two tests.  Plus getting an updated MRI, both head, cervical and lumbar spine with contrast is an absolute must.  The University system could also help with the Medicaid situation and assist in dictating special letters to disability.   It would be much quicker and I think you would get more attentive, specialized care.  It is of great benefit to have the cervical spine MRI because lesions can show up on the spine - I had two on my cervical spine and did not know it. 

Dont mean to ramble on.  I just dont want you to give up.  Keep your chin up and go out there and demand the tests and find out what your diagnosis is.  I will really be interested in hearing the outcome.

You definitely need to be undergoing some type of treatment with the tremors progressing.  I just dont like for people to suffer.   That was one reason I became a nurse.     Have you ever contacted the MS society and received any information from them?  They may also be able to help in some way.  Let me hear how you are doing! 

My PCP sent me down there to a Dr.R. Pfeiffer M.D. Neuroligy of IU Medical Group at Clarian North in Carmel for a 2ed opinion.

She was very negative and said I wouldn't have reacted to the Steroid that fast and I wouldn't have came out of it like I did,I tried to explain that it was a straight shot of Medrol 80mg (no drip) and it all came back, it didn't go away for months!, it just took the edge off, but again she dismissed it, what made me upset was she stated she called in to question the placebo effect/somatization( Malingerer) and she questioned my weakness.OMGoodness I was so upset spending $300+ for that visit, she did see a Virchow-robin space in my right frontal lobe on the axial Flair images. And in her final assmentCheck for Possible Fibromyalgia,Wilson's Disease,and something with the thyroid.

 I have contacted the MS Society too they said it sounded like MS to them, I can ask my PCP if he wants another MRI and I can get free ones threw them, I just have to print out the forms and call and talk with the person who handles the applications for MRI's. Oh my oldest and youngest Daughters are CNA's, now my youngest works for the DNR of Indiana and the oldest works for a home health care place out of Warsaw,IN. My only kids due to Endrometreosis,I had a total Hystro in 2000.( So Sorry about my spelling it has gotten worse too)

Shame, Shame, Shame on that doctor!  You know we are referred to "specialists" when the primary care doctor needs their assistance to diagnose and treat.  Most often times it is with a difficult to diagnose disease.  I know this trip to the doctor and the outcome of the visit makes you want to just scream.... But please do not give up.  There is someone there who will listen and get the testing done.  As I said before a spinal tap, MRI and visual evoked response testing is absolutely essential in making a diagnosis.

Keep your chin up!  You will feel better.