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Wednesday, November, 11, 2009
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Swollen ankles and feet, redness of the skin (ankle to half way of the shin bone) extreme burning

Alicja
Alicja
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Anesthesia awareness survivor.. Ps. the movie "awake" - did NOT do...

11/11/08
Alicja
Topics:legs painswollenburningredness

Swollen ankles and feet, redness of the skin (ankle to half way of the shin bone) extreme burning while exposed to any heat source (sun, blanket), rapid weight gain 60Lbs in less than a year, constant fatigue, the symptoms started while back after working on my computer through the night, I went to the bathroom and discovered that y legs are at least double the normal size… drastic hair loss fallow – about 1/3 of my hair was lost in a matter of two weeks. Each of my doctors run bunch of standard blood work tests for various things and they all came out NORMAL…

That is a very good thing; however I don't feel good... I hide away my legs from sun or heat, even if my feet are freezing (my skin burns terribly ankle to half of my shin bone and few people/doctors mistook the redness for a sunburn).

Does anyone have any idea or suggestions, please help

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Answers (4)
Cort
Cort
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Runs the Phoenix RIsing website (phoenix-cfs.org) on CFS/FM and p

I have had CFS/FM for over twenty years. I have a BA in philosophy...

Tuesday, November 11, 2008

Wow! Thats really something. You obviously have a rare and unusual disorder.  I'm just taking a stab in the dark but the National Institutes of Health does contain an "Office of Rare Diseases". They provide link to the National Organization for Rare Disorders.  If you look on the right hand side of the page you'll find a contact number. Perhaps someone there might have an idea of what you have - its worth a try. 

 

http://www.rarediseases.org/

 

Good luck! 

 

 

arleenmo
Wednesday, November 12, 2008

Alicja,

 

Have you seen a physician yet?  If not, you should make an appointment immediately for help with this.  Trust me.  I am an RN.

 

Arleen

arleenmo
Wednesday, November 12, 2008

Oops, I didn't see the entire complaint until after my answer was posted.

 

Have you specifically seen a cardiologist?  The swelling, weight gain, fatigue could all suggest a heart problem.

pdxchrissy
Tuesday, April 14, 2009

I came across your question and was shocked.  The same thing is happening to me.  I went to a clinic and was told several things.  For one, the swelling and redness for me was caused by cellulitis.  Painful and feels like sunburn.  I gained weight, hair thinned and I'm exhausted.  I was sent in the direction of a cardiologist, immuneologist, and given antibiotics.  I have no medical insurance so I didn't follow through.  But, and I don't want to sound like a quack, I started using colloidal silver in cool compresses on my legs and it helped tremendously.  You may want to look in that direction.  Did you have a significant loss of any kind prior to the events?  My age is 57, single, female and live alone in the Pacific NW.  More data for you.  My heart goes out to you.  This all started one night when I stayed up forever on my computer.  Very strange.

 

Chris

re: Swollen ankles and feet, redness of the skin (ankle to half way of the shin bone) extreme burning
trouble
Monday, September 28, 2009 at 05:18 PM

I had the same issues that you mention. Spent at least 5 years seeing doctors. Finally found a doctor that put the puzzle together.  I was 50 years old and my problem was a serious drop in my testosterone level. I am on testosterone replacement via injection and I feel like the world is right once again. However, I am a male. I think the same issue can affect either sex.

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