I am 19 years old and have spina bifida myelomeningocele. This has started giving me severe shooting nerve pains starting at middle of my right buttock. It stays there mostly, but sometimes it will also go down the back of my right thigh. I've tried hot baths and these will help while I'm in there, but then the pain will start right back up as soon as I'm out. Before a couple weeks ago, I was on Neurotin (gabapentin) 900 mg in morning, 1,200 mg in afternoon, 900 mg evening. I also take methadone (15 mg every six hours), Baclofen (10 mg 3x day), Flexeril (10mg 1-2x day) ,and hydrocodone/apap (5-325mg 1-2 tablets every six to eight hours as needed). Since last week I've been taken off everything but the Baclofen and Flexeril, and I've been switched to Lyrica (25 mg 3x day) and morphine sulfate extended-release (30 mg 2x day). Is there anything more than can be done about this pain?
I wish I could help but this is way beyond me.
I encourage you to see your specialist and keep after them until you get some relief. If that requires, at some point, getting another opinion, then do that.
When you switch medications sometimes you have an adverse effect as your body gets used to the drug, which goes away later. That's something to keep in mind. It does sound like you're having some kind of nerve involvement (shooting pain and numbness are often signs of nerve pain), and that could be from something in your back. Only your doctor will know for sure.
Here are some links on nerve pain and on your pain meds that you might find useful:
What Can Be Done for Nerve Pain?
Let’s Talk Pain Meds
What You Didn’t Know About Pain Meds
i see a pain management doc 1x a month and will be again next wednesday but just wanted to see if anyone knows what i could do till then ya know? but thanks for trying!