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  • mcpax December 31, 2013
    mcpax
    December 31, 2013

    I am so very glad to have found this site - like so many of you I thought I was the only one with this problem.  My pain is in my thumbs, sometimes only one but mostly in both and it's excrutiating.  I'm 64 yrs old and this started about 10 yrs ago and only when I feel a bladder infection coming on.  I have learned through trial and error that if I increase my water intake the symptoms go away within 24 hrs.  I always started laughing when I would think about telling my doctor because I was sure he would think it was time to have me commited (ha ha).  I still haven't told him.  The only out of the ordinary medical issue I've had in the past 15 yrs is breast cancer in 2000 - at that time I had chemo and radiation but that shouldn't have anything to do with this issue.  Iwill be following this thread closely as there must be an answer out there somewhere.

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    • Barbara Kay
      October 19, 2014
      Barbara Kay
      October 19, 2014

      mcpax, I'm so happy you found this thread. While each one of us experience a different sort of pain it still comes back to pain in our fingers while urinating with a bladder infection. I've always heard that one letter written by an individual really represents 100 people with the same issue who just didn't bother to write. So thank you and and all the others who took the time. Maybe if each of us would print-out all these posts and show them to our doctors we could get some kind of answer. It's such a curious symptom, that's for sure! 

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    • jeantweedy
      March 15, 2016
      jeantweedy
      March 15, 2016
      Oh my gosh! I thought perhaps I had dementia and I was the only one out there with this problem. I just found out that I have lichen sclerosus et atrophicus which ladies of a certain age contract. The pain in my fingers is as bad as when I urniate. Finally left a message for my ob/gyn and the tech thought I was nuts. She said she had never heard of it and did I want a nurse to call me. Well sure! Damn it hurts! I do not have a UTI only the condition. READ MORE
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  • Einar November 19, 2014
    Einar
    November 19, 2014
    I have the exact same pain. So weird. I thought I was the only one, and actually joke about it. But there you go, I am not alone, and no joke. Have anybody had any answers? READ MORE
    • Anaphylaxis
      April 15, 2016
      Anaphylaxis
      April 15, 2016
      I too thought I was the only one--I always know it's a UTI when I get the excruciating pain in my hands. My hands actually shake. And my doctor definitely had never heard of it. I just wonder what the connection would be. READ MORE
    • Anaphylaxis
      April 15, 2016
      Anaphylaxis
      April 15, 2016
      With mine the pain shoots down from the wrists to the tips of the fingers like some kind of wildfire.... READ MORE
    • topsyt
      August 21, 2016
      topsyt
      August 21, 2016
      I am 67 and I told my doctor about my arms and fingers pain and he more or less laughed at me. I was so angry that I googled it and was relieved to find I was not alone with this pain when I have a UTI. Wish there were some answers. READ MORE
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  • Pat
    Pat
    August 06, 2011
    Pat
    Pat
    August 06, 2011

    Oh my gosh!  I always thought I was the only person in the world with this!  I have never found an answer nor has any doctor ever been able to answer this for me, but I have the exact same thing happen.  I see it has been over a year since  you posted the question.  Have you learned anything new about this?

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    • Barbara Kay
      August 07, 2011
      Barbara Kay
      August 07, 2011
      Wow! Maybe we are the only 2 people in the world! I've asked a family doctor and a pain specialist and they both acted like I was crazy. But it's REAL. Maybe if we keep asking and posting we'll find more people or find a doctor who has heard about it. Do you have arthritis in general or any other conditions? I do have osteoarthritis but it doesn't cause pain in my fingers. They ONLY hurt when I have a bladder infection and then only when urinating. My e-mail address is astrocats@gmail.com and my name is Barbara. I suppose this is open to the public. If you contact me then we can at least keep your info confidential. READ MORE
    • Madkitty
      September 25, 2011
      Madkitty
      September 25, 2011

      I am glad to find this thread. My mother has suffered with hand pain when she has a bladder infection for many years now.  The urologist has no answer except "referred pain".  However this time, her urine came back negative for bacteria, yet she is still having the severe hand pain during the end of urination.  She has a bladder interstim implant (Jan 2011) but had this pattern of hand pain long before that. Why isn't there an urologist SOMEWHERE who knows what causes this, and better yet, what to do about it.  This is so frustrating, and at her age, 86, is very discouraging.  Why would the hand pain only happen during the last part of urination, and never any other time?

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    • Pat
      Pat
      September 25, 2011
      Pat
      Pat
      September 25, 2011

      Glad to know that Barbara and I are not the only ones!  But I am sorry to say that every doctor I have mentioned this to has looked at me like I was crazy... I was never even given an answer of "referred pain" as your mother was.  For me I had bladder infections over and over again and finally a urologist did a repair on me

      1 1/2 years ago because I was not ever emptying my bladder all the way...now I do not get infections anymore.  The hand pain was always the first sign of an infection for me and so if I feel any pain in my hands at all when I use the bathroom, I drink lots and lots of water to flush it out before it can take hold. Good luck finding an answer, and if and when you do,  please repost... I'd really like to hear!Cool

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    • Madkitty
      September 25, 2011
      Madkitty
      September 25, 2011

      What kind of repair did you have? My mom has a neurogenic bladder from spinal stenosis and spinal nerve compression, and also has a 750 cc. size bladder!  She was still holding 250 cc. after voiding as much as she could.  So she does harbor constant bladder infections, but don't know if she could withstand a major surgery at her age.  Anesthesia just makes her NUTS and we have to deal with major dementia problems for weeks with even just a small amount of it.  She has always known she was getting an infection because of the appearance of the hand pain, but even on Cipro this time, the pain continues for the past 10 days.  Will call in the a.m. to urologist and get A PLAN.  She did see small "black seeds" in the toilet after urination, and needs to be checked for kidney/bladder stones. Maybe that is causing the pain instead of an infection.  No one wants to really deal with the elderly, though.  How sad.

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    • Pat
      Pat
      September 25, 2011
      Pat
      Pat
      September 25, 2011

      I gave birth to 2 large babies, one 8 lbs 11 oz and ther other 9 lbs 1 oz, both of which had larger chests than their heads so they were difficult.  The second child, instead of coming from the top of his head, had his head tilted back so he was coming face first, which is an even bigger circumfrence.  The doctor cut me very radically and while 2 nurses, one one either side of me, pushed down on the top, the doctor reached his finger up past the cervix to turn my son's head. This was done during contractions and was hugely painful.... I had no pain killers.  It took 5 tries but the doctor was successful.  The doctor who did my repair said I should have had a c-section...  So my urologist, (a woman) repaired me in 2 places with mesh slings.  This hold things back in place where they were before I had my kids so that now I fully empty my bladder when I urinate.  I have never heard of the "black seeds" your mom is seeing. I hope this helps to shed some light to the doctor why your mom is suffering with this problem.  Let me know...

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    • Madkitty
      September 25, 2011
      Madkitty
      September 25, 2011

      My mom's problems are damaged nerve related, and there is nothing that will make the nerves to her bladder come back.  The implant (similar to a pacemaker only for the bladder) is supposed to stimulate the bladder nerves and provoke urination, but she still retains a great deal of urine after she goes to the bathroom. I am thinking the "seeds" could be kidney/bladder stones that could be formed due to the infection.  But with a negative urine culture, I know they are going to tell me she doesn't have an infection, but there IS a problem. How frustrating to deal with this over and over again.  She has been on low dose Macrobid for months now to try and prevent an infection, but obviously it isn't working now.  She has become resistant to the drugs, and is allergic to all the others that are left.  The hand pain is just weird, but present, none the less.

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    • Tammy
      September 02, 2013
      Tammy
      September 02, 2013

      This is my frist UTI in years and never ever had this pain in my hands. i runs up my wrist and thumb straight to the nails. There has to be a reason if many of us suffer with this. please any answers????

       

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    • Terry
      November 02, 2013
      Terry
      November 02, 2013

      I have been dealing with this for years! So glad I found this thread! My pain is mainly in my thumbs. I also had preterm labor and delivery with all 3 of my children and I beleive that not emptying my bladder completely was the reason for this.

      I can usually fight the UTIs with cranberry capsules if I catch it fast and be aggressive, (6 capsules with a full glass of water every hour) sometimes for 2 days until I get complete relief. Sometimes end up going to the doctor.

      I'm very curious as to the surgery you had. It may be what I need.

      Thanks, Terry

      BTW Does anyone know if any doctors ever read this site?

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    • Terry
      November 02, 2013
      Terry
      November 02, 2013

      That is exactly when my pain comes!

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    • aremjay51
      April 25, 2016
      aremjay51
      April 25, 2016
      I have posted on this thread, but just to say I haven't had any babies, as my wife contributes them all, but I still have bladder issues needing intermittent catheterisation. I went for a cystoscope to check for any issues and although I had peed before the procedure the camera couldn't see through the 'debris' as the urologist called it. I had not fully voided my bladder apparently so the doc attached a catheter and urine bag. We were waiting twenty minutes for my bladder to void. I filled five two litre bags (I had half a litre of sterile water to wash out the debris added) I lost two and a half stone ( almost ten kilos) and had to be admitted to a ward as I was in danger of going into toxic shock, or at least my kidneys were. I was the same weight for years before this, so have no idea whether my enormous bladder(imagine the old children's hopper toy) developed quickly or not. I still get pain in my fingers and down my arms with a UTI. READ MORE
    • BB123456
      October 11, 2016
      BB123456
      October 11, 2016
      I also thought that I was the only person to suffer from this hand pain sensation, my doctor looked at me as if I was mad when I mentioned it. It is a useful 'early warning sign' before any other symptoms of the bladder/UTI become apparent. I also have difficulty with bladder control when I have these infections. I haven't had any children or any operations, but do suffer from severe constipation from time to time and wonder if this somehow affects my bladder etc.? READ MORE
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  • Godall November 04, 2013
    Godall
    November 04, 2013

    A male, I will turn 55 this year. I, too, experience pain in both hands while  voiding, particularly after having to hold back a urination. For me, however, the pain or ache is in my finger tips, seemingly radiating from my fingernails, and then radiates into my hands if I've had to hold for a while. I have had back pain issues in the past, but nothing permanent. Interesting to know others experience something similar; I've kept this issue to myself except for telling my wife, and I only recently inquired of friends who can't relate at all. But,, I've often wondered about the neurological connection and what other conditions might be related to it.

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  • Willow October 28, 2012
    Willow
    October 28, 2012

    I am 68 and had probably 3 bladder infections in my life until about 1 year ago. They began less frequent, now they are about once a month for about 6 mos. My bladder has dropped considerably. The pain in my hands are overwhelming when I void. None of my doctors can answer for me either. Going to a urologist again to see what they can do to repair my bladder. Yes they do tend to dismiss things the older you get, but I am determined..Glad to know I'm not the only one with the hand problem, however I hate to think of you all going through it too.. If I find out anything I will post. I also have lower back problems.   

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  • Jamesbroden December 23, 2015
    Jamesbroden
    December 23, 2015
    I too have joint pain. My situation does not seem as dire but perhaps worth mentioning. I have no bladder infection. My pain is in the knuckles of both hands and only comes when I have reached maximum bladder capacily - like stuck in traffic. As soon as I consciously have to force the muscles to hold, the ache comes in the knuckles - nowhere else. And there is no pain when I finally get to release it. I'm a male of 60 years. I just need to stay out of traffic. READ MORE
  • UTI
    UTI
    November 17, 2015
    UTI
    UTI
    November 17, 2015
    I, too, have had this unusual symptom of tingling, burning in the hands when I've had a UTI or bladder infection. When I first experienced the painful sensation in the arms and especially the hands with UTIs many years ago I remember thinking it was similar to the feeling of an organism, but on the painful side of the extreme feeling. With my current UTI the pain radiating in the chest, down the arms and hands (like others, upon voiding and ceasing as soon as done voiding) is excruciating. By the way, I've found relief from the other "traditional" [burning during urination, lower stomach (?) pain] UTI symptoms by taking pyridium. Pyridium doesn't seem to help the chest and arm pain. When I saw the OB/GYN today for the UTI and mentioned the chest, arm, hand pain, tingling, burning he laughed and said he'd never heard of this. Needless to say, he therefore did not address that pain. (He did prescribe an antibiotic, so this will all be moot in a few days....until the next UTI with these "mystery symptoms.") Would love to have a medical explanation for something I've experienced for decades that doctors seem to never have heard of. Thank you. READ MORE
  • Shale May 31, 2012
    Shale
    May 31, 2012

    I noticed most of the answers were from women,  I am a 78 year old male and I have experienced hand pain when urinating for nearly thirty years.  It occures mostly when I have waited too long or had a problem getting to a bathroom.

    There seems to be not difinitive answer from the doctors I have seen. One was a uroligist and he couldn't even make a guess.

    I have back problems and I see a doctor who is a back specialist and he suggested there may be a possibility my bladder could be putting pressure on my back and causing thereby pinching nerves that go to my hands.

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    • John
      August 07, 2012
      John
      August 07, 2012

      I am a 67 year old male and have the exact same issues as Shale, i.e., when I have waited a little too long.  I feel the pain, in the four knuckle joints on each hand and only in those joints.  So far the remainder of the hand and my thumbs are not affected by this phenomenon.  I too have asked my urologist, but he has never even ventured a guess. 

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  • aremjay51 April 25, 2016
    aremjay51
    April 25, 2016
    No idea why, but I get the same thing. I have had regular UTIs. I have MS and thought I had crossed wires with some nerve damage but apparently it seems fairly common, or at least we are not the only ones. I can feel that I have an UTI developing now, down to the gripes in my bladder and shooting pains down my arms and fingers. My doc prescribed a prophylactic dose of antibiotics to help control the frequency. Occasionally these don't prevent an attack. I have an atonic bladder and have to use a catheter intermittently, but four times a day is pretty average, so infections are hard to prevent no matter how hygienic my routines are. READ MORE
  • Judy December 09, 2013
    Judy
    December 09, 2013

    I guess we are never alone in this world with our troubles.  Somebody else, somewhere, usually has had whatever we are concerned about.  You stories are totally familiar to me.  I had UTI alot while young.  For me, "alot" meant every couple of months.  Fast forward some 20+ years, and I had a bladder suspension.  It was wonderful and I got to stop wearing pads!  I could sneeze or laugh without a urine incident. But, after about 15 years, I believe it fell back down.  I started having urine events right away.  Not nearly as bad as before, so maybe only part fell, but that memorable first event after the 15 years, was unlike any other.  My urine burst out like a broken dam.  After that, I started having bladder infections again.  Not really too often, but they were back in my life again!  And, this time I eperienced the finger pain.  It is short lived, so not a huge problem on it's own.  I is definately not like arthritic pain.  I always felt it was nerve pain.  I mentioned these things to my good doctor, but he didn't seem to relate.  I am so grateful for your stories.  You have allowed me to get a much better grasp of my situation.  I, too, have had previous back injuries.  I am going to request an appointment to see my doctor about this problem ONLY !   Not mention it as a kind of aside comment.  I plan to bring YOUR  messages with pertinent info highlighted.  I will have notes with me to keep me on topic.  If I get anywhere with this, I will report back.  Good Luck to you all and my your holidays be joyful. 

     

    Moderator's note: Please do not post personal contact information. HealthCentral members can contact each other through their personal profiles.

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    • chickybaby
      December 24, 2013
      chickybaby
      December 24, 2013

      I have had terrible pain in my hand joints with bladder infections, too, and only when urinating.  Glad to see I'm not the only one.  I have had it since I was a teenager,before I ever had babies.  I've never told a doctor because it sounded so crazy.  It would be nice to know why this happens.

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  • Madkitty November 02, 2013
    Madkitty
    November 02, 2013

    It has been over 2 yrs. since I initially posted about my mom, and sadly, she passed away this past March, from a med. she was given in a rehab center. 72 hrs. after the 3rd dose, it destroyed all her platelets, and she bled to death in 8 days.  She had UTI's up to the very day she died, and continued to have the severe pain that got worse.  It would start in both shoulders, and radiate down her arm to her hands and fingers.

    I am a Physical Therapist, and I too, don't see how the two could be connected.  The nerves to the bladder are low lumbar and sacral, and the nerves to the upper extremities originate in the cervical and upper thoracic spine.  They just don't overlap.

    With that said, I had a hysterectomy at age 29, and to this day, there is a place on the scar I can rub against, and I get a sharp pain in the top of one shoulder.  Go figure!  I also remember that after that surgery, and again after a gall bladder removal, the pain in both shoulders was almost as bad as the incision.  I am assuming it was air with the gall bladder, but don't see a connection with the hysterectomy.  I think I am just "hard wired" weird.

    You can search the internet, and never find this addressed.  I am wondering if a good chinese acupuncturist could shed some light on this?  Maybe there is some connection using the "meridians" of that system?  Just a thought.

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  • annie October 30, 2013
    annie
    October 30, 2013

    I wish I had an answer but don't. I am glad to know I'm not the only one with this crazy symptom. I've always had frequent UTIs, worse after nerve damage during a hysterectomy almost 20 years ago. I've gotten very good at self-treatment, but my current UTI is one of the worst I've had. This is the first time that I have experienced the finger pain; deep throbbing pain in only the fingers that comes suddenly as the burning/pressure/urge of urination peaks, then fades fairly quickly when urination stops. I thought I was nuts! There are nerves that lead to the bladder in the lower back............  I still don't get the connection though.

     

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  • MsRozBuck October 16, 2013
    MsRozBuck
    October 16, 2013

    My whole family thinks I'm crazy but I have the same problem. Anytime I get a UTI or I have to use the bathroom really bad I have severe joint pain in my hands. This didn't start until AFTER I had a c-section with my first child and it was worse after the second c-section. My mother in law has her BSN and told me there is no possible way the two could be linked.

    So happy I'm not the only one.

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