Friday, October 31, 2014

Monday, September 22, 2008 ElemenTeri, Community Member, asks

Q: need a chat,desperately!!

I really need to chat with someone who understands that this pain is more that I can contend with.  I just don't want to live with it anymore.  No one in my world understands and I cry and cry...I can't find a CHAT room that actually talks with people who are having pain issues.  Is anyone out there for me?  I feel like something bad is impending.  Please help if you can Cry

 

Thanks,

Teri C

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Answers (25)
Scooter, Community Member
9/22/08 2:46pm

I would love to chat with you. We are all going through the same thing. We are all here for you. Don't give up. You have found the right place.

Reply
carolinajewel03, Community Member
9/22/08 9:20am

you have came to the right place, the friends in here are wonderful.

tell me alittle more on whats wrong with u, I see u put pain pump in ur category, do u have the pain pump now? I will be waiting for ur response...ASAP!!!!

Reply
medina247, Community Member
9/22/08 11:18pm

I am currently going through the same thing..in fact this has even put me in the hospital not to long ago. I have been going through this for about a year now and sometimes cant even bare the pain! Every day it is painful but sometimes more than others and to ease the pain for a little I bought this stuff called TIGER BALM EXTRA STRENGTH..it relieves the pain for a while but then comes right back. I was told when I went to the hospital that it was a lumbar strain in which the doctor might be correct but my the symptoms of what I am feeling are similiar to yours and sometimes I cant even stand or lay down..the pain is unbareable and I recommend you see a doctor or even more a chiropractor?

Reply
GATHICATX, Community Member
9/23/08 7:27am

HELLO THERE..I TOO HAVE CHRONIC PAIN SINCE A MAJOR TRAUMATIC AUTO ACCIDENT, WHERE I BROKE MY SPINE I 3 PARTS, LEGS,NECK,HEAD, ARMS,JAW,TEETH, YOU NAME ITS BROKEN...SINCE 1991 I HAVE BEEN IN PAIN 24/7...I KNOW THE FEELING OF FEELING USELESS, SUICIDAL, TRIED IT 3X..MY HEALTH HAS BEEN DETERIOTING EVER SINCE...NOW IAM 54, ALMOST BED RIDDEN..MOST OF THE DAYS...I HAVE TRIED ALL THE MEDICATIONS AND REMEDIES AND ALTERNATIVE MEDICINE..THAT IS KNOWN TO MAN.....BUT WILL ALL THE MEDICATIONS IVE ADDED MORE ILLNESSES TO MY LIST...DEPRESSION...CONSTIPATION, BLOATING, CHRONIC FATIGUE,STOMACH CRAMPS, HEADACHES, WEIGHT GAIN, NIGHT SWEATS, AND THE AWFUL TIMES I HAD TO DETOX FROM METHADONE..MORPHINE, HYDROCODONE,OXY-CONTIN..TOO NAME A FEW...ITS A ROUGH RIDE..AND ONLY THE STRONG IN SPIRIT SURVIVE.....IAM AT HOME NOW..I CHAT WITH PEOPLE ALL OVER THE WORLD THAT ARE LESS, LIKE, AND MORE THAN ME....THATS ALL WE CAN DO..COPE AND FIND A GOOD DR THAT WILL BE ABLE TO KEEP US  FROM SUFFERING AT LEAST LESS PAIN...HOPE THIS HELPS..MY STORY IS TOO LONG TO TELL..BUT.. AT THE END...THIS IS MY ADVICE...GET SOME MEDICATIONS.THAT TREAT CHRONIC PAIN...GET SOME MENTAL HELP OR SOME ANTIDEPRESSENTS...YES..THEY DO HELP..SOME PEOPLE THAT ARE LIKE YOU...WETHER A CLUB, CHAT ROOM, FRIENDS OR GO TO A BIG HOSPITAL, THEY HAVE INFORMATION WHERE YOU CAN GO AND GET ASSISTANCE...DONT BE A VICTIM..BE BRAVE...GET ALL THE INFORMATION OF WHAT IS YOUR ILLNESS...GET INFORMED..STAY ON TOP OF NEW MEDICATIONS..ETC..

 

THE WORS THING YOU CAN DO IS FEEL SORRY FOR YOURSELF...STOP BEING THE VICTIM..DO SOMETHING FOR YOURSELF..ACCEPT THE WAYS THINGS ARE NOW...AND ADAPT TO THE CHANGES...DONT DESPAIR..GET HELP.....WE ARE HERE FOR A REASON...

FIND SOME MEANING TO YOUR LIFE AS IS.....

 

AND LIVE ONE DAY AT A TIME...REGARDLESS OF HOW YOU FEEL....

 

ITS HARD, BUT AS YOU ACCEPT IT..DEAL WITH IT AND GET HELP...IT WILL ONLY BECOME BEARABLE..AND THATS A BETTER WAY TO LIVE WITH WHAT WE GO THRU...EVERYDAY...

 

TAKE CARE...AND MAY DESTINY SHOW YOU THE WAY...

 

SILVIA IN SAN DIEGO..CALIFORNIA

Reply
SHASHACK, Community Member
12/22/10 6:30am

Hi Silvia and other pain suffers,

I know what pain means to!  I was injuried on the job twice as a US Mail carrier for 14 years and it has been a rough ride,

everyone is different, but the best medication for me is Oxycodone 15mg., that was given to me by a pain doctor.

I have 2 ruptured disc and 1 bldg disc., and it has caused pain through my back, hips, tailbone, legs, knees, feet and my neck brothers me also!

I should have just said that I hurt all over.

I had surgery 3 months after I fell, but I got the wrong doctor!

He was an Orthopedic surgeon and a big joke!

Never ASSUME because he is a doctor that he knows all and when he tells you that he can remove almost 80% of the pain, don't believe him!

My surgery was on a Monday, I was taken in the OR, but NO doctor and I had not seen him even before the surgery that morning.

Never trust any doctor, unless he has given you enough reason to believe other wise.

Again, Here I was in the OR, and NO doctor!  I layed there as the tex's get all the TOOLS ready for my surgery and put on their music.

The doctor that was suppose to put me to sleep ask the other OR staff if they had seen the DOCTOR?

NO, one says, so I say, IF the Doctor is not here yet you are not putting me to sleep!

Around 45 minutes later, my doctor shows up in the OR with his Street clothes!  The doctor why was I not asleep?

I spoke up and said, Because you were not here!  He said, well I am here now and l said, are you going to take care of me?  He said, Yes, and he looked over at the GOOD-Night doctor and he put the gas mask on my face and told me to count backwards from 100, and I remembering getting to 99!

The next thing I remember was waking up in recovery by someone calling my name over and over telling me to wake up!

I was taken to my room and they out the bed beside the one in the room where I would be staying. I was told to sit-up and scoot myself over to the other bed. I told them that my back was hurting real bad, so they given me a Orange pill, I ASSUMED was for pain. 

WELL, When I raised up I was sick as a dog and I throwed up the pain pill. I was given a nasuea shot with pain medicine in it.

I was told that I would go home the next day, BUT..I got an infection so they would keep me another day.

The insession was only about 3 inches long, but the bad thing is..I still was in pain, He said to give it a few weeks. I ask him the same thing a few weeks later, and he said, well, sometimes it works and sometimes it doesn't!

I ask him did he replace the disc that was gone in my back at L5/S1, and his response was, Oh...I just trim the disc!

My employer went with me to the doctor everytime that I did.

I was watched by the employer from the day I was injuired, until the day I was no longer able to work. After surgery, the harassed my doctor from day one. After my back surgery, they sent someone with me on every visit and asked him when was I able to come back to work doing anything? He was strong in the beginning and he wouldt not let them push him around, and he said,  the only way she can work is if you have a bed for her to lay down in!

But after a few months he gave in and said I could go back to work.

The doctor cut out my pain medicine and left me with only muscle relaxers. I went to work and I was in so much pain that I went to my regular doctor and he put me back on the pain medicine. After almost 7 months I lost the feelings in my legs.

Those months of working in pain made my back worse.

It took me 3 years for my employer to put me on disability because I worked for the government.

Now, I still have the Ruptured disc at L5, S1, and Bludged at Tll & T12 and narrowing of the spine on the left side. My Back, hips, legs, knees, feet, upper back, neck and sometimes I have sharp pain that feels like my heart beating in my back and radiates up my spine into the top of my head so bad it takes my breath!

 

let me give you words of advise!  GET a GREAT PAIN DOCTOR!

Someone that believes you and ALWAYS keep your records, Xrays, MRI'S, and written reports from all of your doctors.

 

I was put on Methadone for pain at a Pain Center for Chronic Back Pain!

 

I moved out and was referred to another doctor, but this doctor wanted his own test!  NO,NO,NO!

If he doesn't believe your records...LEAVE!

If you want to have a Newer-Up to date MRI, THAN DO IT!-

                      (NEVER-NEVER-NEVER, HAVE A (SPINAL-TAP)!

                                  OR CALLED A (MYELOGRAM)

It took 4 people to hold me down when they put a needle into my spine

and drawed SPINAL FLUID out and when they took the needle out, the PRESURE PAIN was so bad it took my breath!

              (NEVER HAVE A NERVE TEST ON YOUR LEGS AND FEET)!

I had a nerve test and I still have pain where they put needles in my legs

and feet with and run a ELECTRICAL SHOCKS, OR WHAT EVER THEY CIALL IT in my legs and feet that brought blood and hurt like the devil!

I went back for my monthly appointment and I was told that the NEW Doctor that I had just done all these test for had took off and left the country!

I was given a New doctor there, and the first thing he told me was that HE DID NOT PERSCRIBE "METHEDONE"!

HE SAID THAT HE WOULD GIVE ME 30 PILLS AND THAT I SHOULD USE THESE TO (WEAN) MYSELF OFF OF THE METHEDONE

HE GAVE ME MUSCLE RELAXERS AND I WAS TREATED LIKE A DRUG ADDICT !

                 HE TREATED ME LIKE IT WAS ALL IN MY HEAD!

I came home and layed down on the couch and I thought that I was going to die from pain, and die from the withdraws!

I went to the Hospotal and told the doctor there what was goin on, and he ask me what DRUG was I trying to get off of?

I gave him the doctors name in the town where I was from, but he didn't call him, he just called the Idiot doctor that put me into the worst withdraws that I have ever had in my life! The only thing he would give me was muscle relaxers. 

He did give me a name of a pain doctor, and I called him but he could not see me for 2 weeks because I was new patient and I needed my records from the first doctor.

I came back home and layed back on the couch and I prayed to the LORD to give me streingh to get through this and tell me what to do. I was so mentaly out of it, and my friend came over to see about me and she was a nurse, so she called the doctor that stopped my med's cold turkey and she told him that she was a nurse and how dangerous it was on my heart and if i died, she would testify that he was the cause of it!

He told her to bring me to the Hospital and he would have a prescription waiting on me in the ER and to get a NEW Doctor, because this was the last time he was going to see me!

 

I started see this new doctor 2 weeks later, and he ask me if I wanted him to put me back on the "METHADONE"?  I said, NO!!

Because I almost died trying to wean myself off that medication and that was the roughest medication that I have ever seen in the world.

I have been seeing this doctor for almost 10 years now and Thank God and thanks to the NEW Younger doctor, that was just starting out and I was only number 6 of the total amount of patients that he had in his New Practice! 

Again, Get you a Great Doctor that BELIEVES You, and it maybe hard at first to find the right pain medicine for you, but when you do, take it like it says and do not over take!

If it's not enough, tell the doctor, but first give it time!

Don't take medicine from anyone else, because you are digging a bigger hole for yourself!

I have been around medicine enough to help you with alot of your problems if you need help, but I am not a doctor, I have just been through more than you ever want to imagine.

Let me tell you of a few medicines that me help you with your back pain, if you have the Ruptured disc at L5 and S1 and bludged disc at T11 - T12  like  I do!

        THESE PAIN MEDICATIONS COME IN THESE DOSES, THE TOP ONE

        HAS HELP ME MORE THAN OTHERS, BUT EVERONE IS DIFFERENT!

                   (OXYCODONE) - 5mg., 10mg., 15mg. to 30mg.

                  

                  (PERCOCET) 5/325mg., 10/325mg.

                                       The first 10/is oxycodone/

                                       The second /325 mg.dose is Tylenol

  Pain medicine makes me sick, so I have to take 1/2 tablet of (Dramaine) for Nausea (if) your pain medication makes you sick.

                            (ZANAFLEX) 2MG. OR 4MG.

Also, if you have problems sleeping as I do, because I have to take a 2 mg. and I am asleep in less than 30 minutes. You may want to ask your doctor about this Muscle relaxer, because it is better than a sleeping medication and it helps your pain and restless legs.

                             (DURAGESIC PAIN PATCH)

DURAGESIC PACTCH COMES IN SEVERAL DIFFERENT MCG/H

ALSO KNOWN AS (FENTANYL TRANSDERMAL SYSTEM)* But I find that this one doesn't help and not as strong as the (Duragesic Pain Patch)

I  take the 75mcg/h  and have used the 100mcg/h.

you can put this pain patch on your arm, I put mine on my stomach mostly in the summer when I wear short sleave shirts.

                               (NEURONTIN) ALSO KNOW AS GABAPENTIN

I take this for leg pain/ restless legs, and this has really helped me!

I take 3 a day, I have been taken a 300mg. three times a day, but if you have never taken this, you will need to start off with a small dose like

100mg cap.

This has really brothered me to have to take so much medication, but the way I look at it, I would rather have a better quality of life, than be bed bound!

                  (WHEN YOU DON'T NEED YOUR PAIN MEDICATIONS)!

                                               (VALUIM)

 PLUS, THIS IS THE BEST MEDICATION FOR NERVES WHEN YOU JUST NEED THAT LITTLE  SOMETHING GETS YOU UPSSET, THIS IS A ROOT,

                                    (THE VALERIAN ROOT)!

               * NO MORE PAIN, BUT THE BODY THINKS YOU NEED IT!

* FOR THOSE THAT HAVE FOUND THEY ARE NOT IN PAIN AS MUCH AS YOU WERE, AND YOU WOULD LIKE TO TRY TO WEAN YOURSELFS OFF OF PAIN MEDICATION, THE MEDICINE THAT YOU WILL NEED IS (VALIUM)!

THIS MEDICATION IS A GREAT HELP FOR WITHDRAWLS, BUT NOT TO

BE TAKEN ENOUGH TO GET HOOKED ON THIS AS WELL!

I HOPE THAT ALL OF YOU THAT ARE IN PAIN, WILL FINE WHAT YOU NEED TO HELP YOU WITH THE PAIN AND GET ALL YOU NEED OUT OF LIFE.

THE MOST WONDERFUL PHYSICIAN IS OUR LORD AND SAVIOR, HE KNOWS OUR EVERY NEED, AND HE PUT ALL THE THINGS THAT WILL HEAL US ON THIS EARTH AND HAS BLESSED THE PEOPLE AND GAVE THEM THE KNOWLEGE TO FINE A ROOT, BARK, BERRY, SEA WEED, MOSS, AND MILLIONS OF THINGS GOD HAS PUT ON THIS EARTH TO HEAL US.

I PRAY THAT ONE DAY GOD WILL LEAD US A HEALER OF CANCER!

THE AMERICAN INDIANS ALSO HAVE THEIR MEDICINES THAT HAVE

BEEN KNOW TO HEAL PEOPLE. PRAYER IS WHAT WE ALL NEED,

AND IF THERE ARE THOSE OUT THERE THAT HAVE THOUGHT ABOUT

TAKING YOUR LIFE BECAUSE OF PAIN, I BEG YOU TO HAND IF OVER TO THE LORD, BECAUSE HE WILL COME INTO YOUR HEART AND HE WILL SHOW YOU ALL YOU NEED TO GET THROUGH YOUR PROBLEMS, NO MATTER WHAT THEY ARE.

I PRAY THAT GOD WILL BLESS YOU AND IF YOU NEED ME JUST TO TALK, PLEASE SEE MY EMAIL BELOW. 

ROSE OF SHARON     

From The Carolinas                        

Reply
KiraLea, Community Member
3/ 1/11 9:42pm

I know back pain! I have 13 ruptured discs- zero nucleous left in any! I also fractured T10 and completely severed the supraspinatus tendon in my Right shoulder! I had 5 discs in my neck fused- from C3-C7 and $20,000- of Titanium in my neck as well! There is nothing they can do for the 3 in my Thoracic but they want to do another fusion from L1 all the way down to S1- with cages and rods but I will not do it! I am only 2years into this nightmare and from what I've read here I can tell you the best tool we all have is our Spirit! I know what pain is man- there is not a second I don't feel it or a square inch on my body not affected! I can barely walk now - but I am grateful for what I can still do instead of what I can't! I was fortunate with paper-work! My case was so strong there really was no argument about my injuries (Workers Comp)- Of course I have days when I struggle- but I will never say 'I can't'- I WILL find another way to make sure my Spirit not only stays high but rises!

 

 

 

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Andrea, Community Member
5/ 8/12 8:54pm

Sealed Better stay on this site.I've been dealing with my problem since I was 8 yrs old.I am now 46.that I believe makes me having spent some 80% of my life in Chronic Pain.I've counceled others most of my life on how to "cope' but we all lose faith at times.The hardest thing is that I trust no one anymore;and the onlyone who really cares about it really ,is me.{Can't talk about with anyone anyways,because you will leave yourself open to get robbed) I am once again going through a "Doctor change" because after 12 yrs of trusting the same Dr. that "convinced me:after already going through the withdrawal process more times than I can count ( Dr's love to test how suicidal you are} that Just take the med's and stop torturing yourself,you need to accept you will be on those meds the rest of your life.Well I gave in,and trusted;I even warned him I would not go through the withdrawals again.He stopped my insurance,and now I do not exist.So wee ones in pain,you are in for a long ride,full of dissapointment.Be careful of trusting those pain Dr's,they do not care about you,they care about the money,and whether or not you will "play" with his licence.I have never been "addicted to pain meds like some have" only physically addicted.I've tried my whole life not to take them.So go find GOD.I guarentee you all if you do not find strenth in GOD you will not make it.

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shay, Community Member
10/ 4/11 4:30pm

your words mean a lot to me. I can't accept these opiates. just can not. I detoxed for 10 days, and thought I was dying and wanted to. How do I live, how

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Andrea, Community Member
5/ 8/12 8:57pm

Still with us Shay ??

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Andrea, Community Member
5/ 8/12 8:22pm

Is there anyone still on this site ?

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nancy8, Community Member
7/17/12 5:59am

I also was in a terrible accident, recently a lady ran a red light going 50 mph, I had the green turning light it also with everything else caused a stroke, i never abused any meds, and all of a sudden m dr.  took my meds away, simpke you think to another dr ? ha the med they have had me on was nubain, i got tired of the pills getting stronger and  stronger. Mississippi

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rockabillychick, Community Member
9/29/08 12:34pm

I know how you feel, i spend many days wishing for it all to end in whatever way it takes.  It is a hard road for all of us with chronic pain, the mental effects are concidered secondary far to often.  i asked to see a councelor at my pain clinic and it is far to expensive even with my insurance.  our pain docs do what they can but sometimes it is just not enough, meds are kept at a minimal dose, pain exhuasts us, if you have kids like i do you start feeling guilt that you can not do things with them, that you can not make money all the while you are spending more and more on medical care.  no one who is not in this place can really understand it, but there are alot of people on this site who can. 

i do my best to take each day at a time, sometimes each hour or each minute.  there have been a few times where i have literally hit a wall and can not move with out screaming, i hate it but my husband can not help me so he takes me to ER and they do what they can,  honestly those few minutes there where you are treated with strong meds and the nurses are caring for you are priceless.  the last time i had to go i just wanted to stay there and have a break from the pain for a few hours, maybe get some real sleep- LOL!  when i am at home i do my best to be that nurse for myself and do my best to make everything literally comfortable, clean soft sheets, tasty food (and yes i have gained weight!), a good book, help in and out of a hot bath (thank god for someone who can get you out of the tub- LOL!), funny movies (that is one of my favorite).

even with all that sometimes we have to cry and cry and cry somemore. 

i would love to chat with you.  there are many times where i feel exactly the way you do in your message.  today i am seeing my surgeon to hopefully get my fusion scheduled.  i am desperate for any relief it may bring. 

do you have a pump?  i would love to hear if it has helped at all, i hate taking pills so much, my stomach burns 24/7 from taking pills for so long. 

i have had many suicidal thoughts myself, i have 2 daughters that make me stick around through more then i have ever thought possible. 

let me know how you are doing and always feel free to write to me, i am home full time and check my messages a few times a day- it brightens my day to get a message.

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cbear, Community Member
7/13/09 2:06am

hi. i didnt c a date so i hope u wrote this not too long ago. im about at the end of my rope. like u, if it werent 4 my husband and daughter, im not sure i would still be here. i feel so worthless. i am in bed most of the time. i joke that my drs. appts. r my social life, but its not far from the truth. im down to only 1 friend and a few family members that i do anything with. i dont understand why drs. r so limited to prescribing pain meds as long as the patient legitimately needs them and goes to frequent drs. appts. to check bloodwork and such. if the people who are in the fda had chrnic debillitating pain, i think their voted were be very different.

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ElemenTeri, Community Member
10/ 9/09 12:47pm

I would tell you get a pain doctor.  I am with a facility that doesn't let me see my pain doctor so I had to go to the board and get special permission.   He gives me my pain pills every month.  He does urine tests to ensure that we aren't abusing the drugs.  W/O the pain pills some of my worst days would be unbearable.  Ask about getting to a pain specialist.   If they are true SPECIALIST (not like a pain clinic or an anestheisologist) there should be no issue.

 

I hope you find the help you need!

 

Teri C

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Marissa, Community Member
2/ 7/12 3:15pm

Hello, my fellow sufferer. I was looking for a pain chat room and am glad I've found it.  I can't identify with any of my friends because they don't suffer pain.  I don't like to burden them with my troubles as I like to forget them when I'm with them.  Often, though, such as this week, I don't have the wherewithall to even want to go out.  I too have children (2 girls & two boys) that keep me from taking my life.  My husband has been very supportive these last 6 years of my pain struggle but I think he's done.  I've been drifting from him, not he from me.  But I have no strength left in me to continue the fight.  Everything you mentioned resonates with me.  I stopped going to doctors because they never did anything for me other than order tests, some extremely painful ones (needles and shocks on my legs). Chiropractors haven't been able to help either.  Sometimes I resent their false promises only to get money.  We've spent alot on me.  I make only withdrawals and no deposits into our account.  So I've stopped going to anyone.  I adjust myself and take pain medicine.  My back is distorted now, I hve developed scoliosis and have atrophied muscles on my right side. It is good to talk to others who can understand my emotions.  I would welcome your visits.

Love,

Marissa 

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Andrea, Community Member
5/ 8/12 9:17pm

STAY AWAY FROM CHRIROPRACTORS FOR GOD SAKES !!!!

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chezovitch, Community Member
12/ 2/08 12:42am

I know it's been a while, but I have just seen this. I live in London, UK, have chronic pain from diabetic neuropathy which is controlled (!) with meds. I am also a 3rd year degree student at university (I am 49) I am chonically TIRED TIRED TIRED! can sleep 18 hours sometimes, heavy, dully, fuzzy, forgetful, dizzy, all those things, and people just do not understand. I have one friend with chronic pain but she has such energy. She is an actress and swims every day.I can't even get out of bed sometimes, crawl to the toilet then go back. But you can talk to people here - they are really helpful. Try it and see! Good luck and love to you.

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edith, Community Member
5/25/09 1:08am

hi teri i also need someone to chat with i  ALSO AM GOING thru the same and no one has msg me please msg me so we can chat i need a friend. edith 

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ElemenTeri, Community Member
5/25/09 4:03am

Hey. I posted this about a year ago and my pain is getting better daily.  I had to finally up my anti-depressant (120mg Cymbalta/day) and my suicide feelings are gone and I am seeing more joy in my day than I normally do.  If there is something I can do for you, let me know.  It is 1:02am now in WA, USA and I need to sleep.  I'll check back tomorrow.

 

Teri C

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cbear, Community Member
7/13/09 1:51am

i just joined this site today, sunday july, 2009. i know exactly how u feel. i wish i could reach u somehow. i am desparate for support and friends who understand.( most dont). if u ever read this or anyone else who feels the same, please contact me. cbear

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ElemenTeri, Community Member
7/13/09 2:03am

I am much better now since I got my pain pump.  I am not great, but better.  If you need to talk you can always email me at teachingteri@gmail.com.  I don't know if I can help but I will always listen.

 

Teri C

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martibb, Community Member
9/ 3/09 2:04am

If you need to vent and talk just drop me a line at grandmabee50@yahoo.com.   I have lived with chronic issues and with the people who think just because they have an occassional pain they know how I feel.  It is the occassional I would give anything for instead of a constant drain on my physical and mental abilities.   I just started at another pain management place and I already need to have a talk with my treating  Dr and the assistant that everyone sees at first.  She was condesending and rude and she even threatened me a little because I did not bring my meds in.  I was suppose to listen to a tape the first time I went but it was broken and she told me I had listened to it.  At first I thought my head injury was causing a short term memory problem but after talking to my dr. and my husband was informed that it was broken and I had not been able to hear it.   Just one of my peeves at the moment .  How long has this been going on and do you take anything for the depression.  I have been only many  and none really make a differance except amitriptyline which helps me sleep.  As I said as you can see I need to vent also and sometimes it does help to find one who understands.  Hope you find what you need and drop a chat anytime you want.  some days I may not get on the laptop but I will always reply even if it may be late.  take care marti

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AlwaysHurting, Community Member
10/ 8/09 11:50pm

Hi my Name is Megan and I too have had a lot of problems even though I am young.  I am almost 24 years old and have been in 2 wrecks.  The first was very bad and then I have had a lot of complications after my daughters birth.  I have had 5 surgeries since I have had her, and still need to have more.  I know how it is to feel all alone.  I am a stay at home mom, and for awhile I was very very depressed.  I still am, not as bad, but there are days that I feel like no one knows how it feels to not even be able to take care of your child because you are in so much pain.  Physically, emotionally, and mentally.  Please write me back if you want.  It would be nice to be able to hear your story.  I hope that everything gets better if not. 

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ElemenTeri, Community Member
10/ 9/09 12:40pm

Hi Megan,

 

It took me a year of being in constant agony before this forum told me about the intrathecal pump.  I had the surgery for the implant and it has been night and day since the surgery.  I am on cymbalta 120mg a day and my pump gives me sufentynal.  I still have rough days but nowhere NEAR what I had before the pump.  I thank God that I can walk again and the pain I experience always stays at a minimum.

 

I understand your plight.  Keep fighting.  Get/Stay on an anti-depressant.  If it isn't working UP your dose!!   That's what made the difference to me.  If you need to talk find a therapist, a friend or come here.   It's all the tools I use and I know that my quality of life is much better.    I pray for only good days for you are to come.

 

Teri C

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AlwaysHurting, Community Member
10/ 9/09 2:24pm

Thank you for your advice. It is nice to have somebody there to talk to and know what your going through.  I am glad that everything is better for you.  I hope that it will be soon for me as well, especially for my daughters sake.  If you would like to talk more then reply back and maybe we can just get each others email acct or something.

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AlwaysHurting, Community Member
10/ 9/09 2:37pm

Teri,

 

Thank you for your comments, I really appreciate it.  Im glad that you are doing better.  I am really really ready to start feeling better too, especially for my daughters sake.  It kills me to not be able to do everything that I want to do with her.  If you would like to keep writing back then maybe we can just exchange email address' or something.  Thanks again, and good luck with everything!

 

Megan

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smileawhile, Community Member
2/12/10 11:45am

would like to talk with someone with success withintrathecal pump.  planning implant next month.  quite afraid  want to know about mobility issues, side effect issues  etc. please write back  woud also like to correspond via personal email with someone if posssible

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BobinmidMO, Community Member
2/25/10 9:34am

Pain can be managed, but it takes both a great doctor and a patient who is willing to do whatever it takes - and at times it's going to blow your mind.  Regarding an Intrathecal Morphine Pump, I got my first one 6 years ago, and then had it replaced it out last year when the battery died.  During those weeks when my first pump wasn't working any more, the pain loads increased to levels that made me sure I was going to loose my mind, but then we finally got my latest model installed.

 

My pump does not get rid of "all" my pain, but is just part of my pain care.  In addition I'm also on OxyContin and OxyIR, just so I don't go crazy.  Up till last year I was also taking Morphine sulphate, but then we increased my pump dosage so I was able to go back down to just 3 types of opiods each day.

 

Please don't give up, whatever you do.  I still have pain, even with all the medications I'm on, but now I don't totally loose my mind like I use too.  But beware, if you get a pump, there can be changes you might not enjoy such as the location.  Mine is right on my waist, which now makes wearing pants a real problem.  There's also the spot where it was sewn in the spine.  That area is sore quite a bit of the time and there is a lump on my back.  Take care and I wish you the best of luck.

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alterbridgefan47, Community Member
3/22/10 9:15pm

Hunny, I know exactally how you feel :*(

I've been in chronic/accute pain for over a year and yesterday I was in such bad pain that I was in tears all day long. It's so so so so frustrating. I used my estim all day. Thank God for that machine. I know you wrote this 2 years ago but I still understand where you are coming from. Feeling all alone and feeling that noone understands the pain. The spasams I was having yesterday were breath taking. And I take it out on everybody I love and end up being a B**** but I can't help it. I've gained about 20 lbs from my injury. I got in a car accdent in November of 08 and am still recovering. I have a cervical spine injury. Last Monday, somebody clipped my car but bad enough to make everytime 10 times more inflamed. I'm gonna go for a trigger point injection. Hang in there.

Pam

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shawnyangel, Community Member
3/ 9/11 3:14pm

Hello, I noticed that all these posts are pretty old, but I am hoping some of you still visit this site. I have been in pain for about 2 years now and I have tried almost everything, I have an apt in about 2 weeks to go to the pain clinic now that they have told me I have Chronic Neck and Back pain. I have been in bed for the past 4 days and have not even been able to get to work. I am depressed, crying all the time and my meds are no longer working. I have tried telling my Dr. that they no longer help my pain and her solution was to prescribe me Motrin and stop the Percocet. I am confused, I dont know why she would take the meds away instead of trying something stronger and at the risk of not wanting to sound like a drug addict I didnt speak up. I am at a loss, I dont know how to ask for help without sounding like its not real pain. I am a 33 single mother and I find it hard to keep up with my daily routine which is important since I have to take care of my 7 year old, the poor thing is only used to his mom telling him she cant play because it hurts. I did a quick search today to try and find others going thru the same thing as me. Any suggestions, I am tired and depressed and I need to go back to work even though it hurts.

 

thanks,

Shawna

San Diego

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ElemenTeri, Community Member
3/13/11 4:23pm

Hey!

I would say get to a pain specialist.  They understand pain in ways "normal" docs cannot.  I would ask about spinal stimulators or an intrathecal pump.  I have the pump and since it's implantation in 2007 I am mostly pain free.  I say mostly because the pump tells the legs they don't have pain and I don't feel any of the side affects of narcotics.  BUT my own movement everyday causes pain at night for which I take three, 15mg of Oxycodone.  I have to be very strict with my pills and my doctor does urine tests to show we aren't drug abusers and also has to give me injections.   But until you see a pain specialists, just the medications will make you tolerant and have to go higher and higher in perscription strength, never truly getting relief.

 

It was a life saver.  The pump is made by medtronic if you want to look up info on it!

 

Here's to your recovery!

Teri C

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mopop0724, Community Member
3/11/11 8:48pm

YellThis is the way I feel most of the time anymore. My name is Tina and I am 55 yrs old and have spent the last 15 yrs in pain from waist down. No car crash or fall or anything I could blame it on. Nothing but going to the snow and watching my husband and the dog play in the snow while I leaned up against the truck to feel the cold air and smell the pine trees. Went to move and heard about 3 or 4 popps. Just like you pop your fingers or hands in winter when they hurt putting on your gloves. That was at 2 pm by the time we made the hour ride off the hill and he took the kids to play in the snow, we live in the desert so we do not get much of it. I went to lay down before dinner. About 11 pm  made it to the bathroom did my business and had to crawl back from the toilet on my hands and knees. My husband dialed 911 for me and of course the only night it snowed I got to travel for 80 miles in an ambulance with snow chains on. I felt every bump.  When we got to the hospital in Las Vegas,NV all the Dr in ER did say to me was loose some weight and this will go away. He was way wrong. I have DEGENERATIVE DISC DISEASE and it is never getting better or going away.  my pain started on 1-17-1997 at 2pm and has not stopped since. Not even with all the morphine you could put in a pump after fusion surgery L3 to s-1. Pain with every step. My mother is 81 and still alive with 5 nylon discs in her spine that should have come out in 1969. They are still there and she is more active than I am everyday.So I am going with her outlook on life. The only help you find is at the end of your two arms so just help yourself everyday get thru the day anyway you can and pray for relief. My mother also told me pray for what you need not what you want. He can fulfill your needs not your wants.  Why do wo all think we need so many things to clutter up our life. PRAY FOR PEACE AND PAINFREE!!!Tina

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me194, Community Member
4/25/12 2:09pm

please read, my previous post I answered for another in pain. Check out si-bone.com. I have degenerative disc, herniated disc.... you name it, it seems to be in my chart somewhere. I didn't think anything would work until I found my current doctor and this outpatient surgery treatment. It changed my life. What you describe sounds familiar to me, please, please check this out. If nothing else at worse you've just wasted a little time at best you could be pain free, or at least pain tolerable. This is a new proceedure...they don't have any long term data to give you on this but it has worked for me. Maybe it would work for you to. You may even be able to be more active and enjoy playing with your kids without worring about movement that could cause a spasm or more pain. Please just look, that's all I am asking. No one should have to live in pain.

 

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sarah, Community Member
6/ 9/11 7:24pm

i feel exactly as you feel x

 

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VERONICA YOUNG, Community Member
7/11/11 7:55pm

I HAVE LIVE WITH FIBROMYALGIA FOR 13 YEARS.  IT'S BEEN ONE OF THE HARDEST AND DESPERATE ORDEALS ESPECIALLY RAISING MY DAUGHTER.  AFTER BEEING DIAGNOSED AND ALL ALL THE PHARMACUTICAL POKE AT ME I   HAD A CAR ACCIDENT WHERE A 16 YR OLD IN HER 1ST NEW CAR PULLOUT FROM A STOP SIGN WITH ME GOING 45 MILES AN HOUR.  IT TOTALED MY HONDA PRELUDE AND ME,  ONE MONTH LATER ON SEPT. 11, 2000 I  HAD A HEART ATTACK AT 46 YEARS OLD WITH ONE VESSEL 97% BLOCKAGE. THE FOLLOWING MONDAY I WAS IN SURGURY AND THE PHYSICIAN RIPE MY ARTERY AND PUT 3 STENTS BACK TO BACK.  IT TOOK ME EIGHT YEARS TO RECOVER.  I WENT BACK TO WORK AT A MAJOR DEPARTMENT STORE FOR TWO PLUS YEARS EVEN THOUGH I STILL SUFFERED WITH WEAKNESS AND FIBROMYALGIA PAIN.  ON JUNE 13, 2010 I SELL LAT OF MY BACK FROM A PUDDLE OF H2O UNDER A GROCERY CART.  NOW I HAVE HERIATED AND BULGING IN THE NECK,UPPER BACK, MID AND LOWER BACK WITH NERVES BEING PINCHED IN BOTH HIPS AND DOWN MY RT SHOULDER AND RT LEG AND FOOT.  I' SO SICK OF DEALING WITH WORKMAN'S COMP AND THE DOCTOR I HAVE WHO BASELY DOES NOT A WHOLE LOT.  THE SURG THER SAID TO COME BACK TO HIM IF THE PROCEDURES DO NOT WORK WHICH THEY DON'T.  I WANT TO BE REPAIRED NOT TREATED BECAUSED THAT IS JUST THE YOYO EFFECT AND I'M SO TIRED BOTH MENTALLY AND PHYSICALLY JUST LIKE YOU TERI I CRY/WON'T TO THROW MY MEDS ALL OVER THE HOUSE AND SCREAM.  PAIN IS SO CONSUMING/SO MENTALLY EXHAULTING/CAN MAKE YOU CRAZY AND THAT'S NOT EVEN THE EFFECTS OF THE MEDS.  THE QUALITY OF LIFE SUCKS MOST OF THE TIME.THEN THE SUN COMES OUT EVERY ONCE IN AWHILE AND YOU SAY I SURE MISS ME.THAT IS'NT THE SURFACE WHEN YOU ARE IN A RELATIONSHIP. THANK GOD ABOVE I CAN COUNT ON HIM TO TAKE ME TO ALL MY OFFICE VISITS.  NEXT MONTH I WILL HAVE A BREAST REDUCTION TO A SMALL C OR LARGE B TO LIFT SOME OF THE PRESSUE OFF MY SHOULDERS, NECK AND SPINE.  I'M PRAYING IT WORKES.  ONCE A LAB TECH, MED TECH, DIALYSIS TECH AND WHEN I'M PAIN FREE AN ICD CODER.

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shay, Community Member
10/ 4/11 4:38pm

I know your pain and feelings. For all our sakes just keep chating, typing what ever you need to do. I myself feel desperate now. Don't know how to handle it.

Did a terrible thing. Tried to come off opiates without telling family doctor. I promised the other doctor not to tell. He is or was kinda a friend. His menthod scared me so bad I thought I was dying so I got back on pain meds. They are not working anymore. Can't live with myself knowing what is happening to body

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Andrea, Community Member
5/ 8/12 9:13pm

Still here ?

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chris, Community Member
10/18/11 7:57pm

Hello, My name is Chris , I'm from central FL. curently. Moved here to get out of Ohio winters because snow was some times more than I could bare!

   Latly the worst problem I'm having now is that recent changes in Fl law &, practices have caught me in a viod where you can't find Meds. or pharmices to fill them . I've been a law abiding person my hole life , but after some 4 surguries that have all failed &, 12 years of battling pain that would kill a lesser person I was able to find a regament of meds &, exercise that was allowing me tolive a some what normal life , last year FL. changed many laws & have wreacked my life . More than 1 night I've been sitting in my bed with a gun in my mouth wondering why to go on . If not for being a good Christian that tells me "IT" is the only unforgivable sin, I'd not be typing to you today. This is unfair, to be made to suffer for things outside my control.

 

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me194, Community Member
4/25/12 1:29pm

I've tried to answer this twice already so if you see this post more than one I am sorry.

 

I have suffered from back pain for over 10 years. I lost hope, and my job.

 

Things are looking up though. I think some of you should check out a website called si-bone.com. and get evaulated.

 

I would go into more details about my round about route to find this proceedure but am unsure if this will post either and I am tired of writing the same story over and over. Lets just say I have had most every type of drug, physical therapy and back injections you can have. I was told there was nothing to be done by a supposed specialist because nothing was really that wrong

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Andrea, Community Member
5/ 8/12 9:23pm

Is this site still active ?

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me194, Community Member
5/10/12 1:43am

Oh yes it is! Try this link http://si-bone.com/about/ 

Do yourself a favor and check it out.

My Doctor is the best!!!! Dr. Cummings at Community Hospital East, Indianapolis IN, 1400 Ritter Drive.

If you live out of state you might try to find someone local. But I recommend Dr Cummings, with 5 stars. He has been training the guys at John Hopkins and has developed a few advance techniques to advance this proceedure even further. He is down to earth and easy to talk to. He doesn't think you are crazy and before I even had a chance to really get into details he listed EVERY symptom I've had. He really understands! He truely does, he even has done the proceedure on one of his nurses in his office. They both chuckled when they told me after her recovery she did cartwheels down the office hallway just because she could.

Listen I have truely been there. I have been to numerous neurosurgeons and pain doctors. I've had every conventual proceedure there is to correct this nothing worked. Until now. I can't promise any miracles for you, but hopefully if this is the condition you have I can offer you hope.

My condition is/was severe enough that I will need to have the other side done. Honestly I can't wait. My pain has been cut in half. If I have the otherside done I hope to be pain free or at least close to it. I know that pain is hard to describe but I liken my previous pain to jumping off mount everest, now, I'm just jumping off a sky scraper. It has made that big of difference. I even have recovered the feeling in my right leg!!!! You would have to had laughed at the phone call I made to my father when I called to tell him. Apparently I was so excited I was screaming into the phone....and my father who is hard of hearing had to tell me to talk softer because he couldn't understand me because I was so loud.... anyways you get the point. Please check out the website. I think it will be worth your time. Please keep in mind I rarely if ever recommend anyone. So for me to tell you about this is a big deal. It is outpatient surgery, you will go home the same day, walking. You will be restricted for a while with a walker (I cheated on this one and used a cane) no driving, no lifting over 10 pounds etc.. but basicly you will be sore but functioning. Good luck If you need any more info let me know.

 

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me194, Community Member
4/25/12 1:49pm

ALRIGHT, NOW THAT HALF OF THIS MESSAGE HAS BEEN POSTED I WILL TRY TO FINISH...(tried to answer several times)

 

Please check out a website called si-bone.com. I had this outpatient surgery and walked out the same day. It has changed my life. Find a doctor and please get evaulated. I know that living in constant pain is not living. I lost hope and my job. I had doctors tell me that there is nothing they can do or that nothing was wrong. I had every type of medication, physical therapy, patch and back injection you can think of.  I have been there.

This outpatient surgery has saved and changed my life. My doctor has definately made my hero's list. I know this will not work for everone here due to the different conditions everyone has but maybe if I can help just one person here avoid some of the expensive potholes I had to go though to get where I am now, it will be worth it. Keep in mind that my neurosurgeon was shocked and a little upset that neither the mri or back xrays I had showed how bad my condition really was.  I may have to have the otherside done as well now that he is truely aware of how severe my condition is but let me say, I'm ready! I already have some feeling back in my right leg and my pain has been cut dramaticly. I am not dragging or swinging my leg. I can bend over further and climb stairs better. If the next surgery is as successful, I should be pain free or close to it. Look out world if that is the case. I have a bucket list and plan to complete it...pain free!

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Andrea, Community Member
5/ 8/12 8:18pm

Cry Did anyone answer you ???? I'm there too

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Jennie, Community Member
7/19/12 8:03pm

Im in the same boat as you are. I hate it and even dread life sometimes. I feel that i get the brush off by my doctor and family. My family seems to just ignor me and my compaints because it never ends. Im only 36 yrs. old but have been in cronic pain for 20 years. Im allerigic to most pain killers. Xannax is my frind because I can drug myself into a sleep and not feel anything. I want a life, to play with my children 12, 13, and twins 13 months old. This is no life and unfair to my family.

 

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TeriC, Community Member
7/19/12 8:36pm
I am amazed you've been dealing with it foe 20yrs and continued to have children, and THEN end up w/twins. I am now 44 and can barely take care of myself. I use Xanex as well to a great extent. I have been put on a new pain killer called Nucynta. It's 100mg tabs 6 times a day. I am a teacher and cannot take any meds while working. That being said, I did have an int.rathecal pump implanted and while not perfect has given me at least more time as an able bodied human. I also recently had a neurostimulator implanted and that's also helped and I CAN use that during work hours. I don't know if any of these solutions will help but most were made possible from my pain doctor here in Seattle. I wish you the best and let me know if u need any other help. Others can empathize but for the ost part they will continue to not understand and make u feel like YOU r the problem, not the pain. Regards, TeriC Reply
Jennie, Community Member
7/19/12 10:42pm

Thank you so much! I have marfan Syndrom and my bones dont stay in place. Im very thankful for our older childern and my husban for all the help with the twins. I do most of our play time on the floor due to the pain. Im afraid of any surgery at this time untill the babys are older so I can have recovery time. The pump sounds awesome. I will ask my doctor about it next Tuesday at my apt. Tank you again! Also the twins were not planed! Big wonderful blessed suprise to each and every one of us.lol

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Pale Shadow, Community Member
12/27/12 9:35am

I totally understand.  When I wake up in the morning it starts and does not ease up till the afternoon/  It eules my life. I am trying to work aroung it but it is difficult.

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Pale Shadow, Community Member
12/27/12 9:35am

I totally understand.  When I wake up in the morning it starts and does not ease up till the afternoon/  It eules my life. I am trying to work aroung it but it is difficult.

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Sunni, Community Member
12/28/12 1:29am
Teri hi I am Sunni nice to kinda meet you what kind of pain are you having Reply
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By ElemenTeri, Community Member— Last Modified: 05/04/14, First Published: 09/22/08