I was first diagnosed with causalgia (RSDS/CRPS) way back in 1988, before they had any idea what to call it & absolutelyknowing nothing on how to treat it. I had Dr.'s coming in my room, telling me I was rewriting the medical text books, how encouraging that made me feel. Mind you, this was before there was a MRI unit available at every local hospital, I had been having s nearly kicked me in the headome lower back pain & spasms for a couple of months, after injuring myself working as a greenskeeper at our local golf course.
A surgeon had ordered for me to have a myleogram done, where dye is injected into your spinal column, so the injury shows up better on x-ray. As the radiologist was inserting the 2nd needle to inject the dye, the 1st needle which removed spinal fluid to make room for the dye was still in spinal column, he missed with the 2nd needle & hit a periphial nerve that runs down my left leg.
I thought I knew what pain was until that happened, as I was lying flat on my stomach, it felt as if my left leg had kicked me in the head & a lightening bolt shot down my leg. I remember vomitting, heard the nurse say, "We're losing him, we're losing him" & was I went into shock & passed out, waking up back in my hospital room screaming that my left leg was on fire.
I was then rushed by ambulance for a 3 hour drive to the Mayo Clinic in Minnesota, where I was an inpatient for over a month. Ten years later of being in constant pain & numerous hospital stays & seeing nearly 15 doctors, I found one who sent me to a Pain Management Clinic, where I stayed for 45 days & was sent home taking 200 mg's of Morphine ER, 3x's a day, 8 mg's of Hydromorphone, up to 3x's a day for "breakthrough pain," 1 mg of Klonopin, 3x's a day & have been switching from different antidepressants & now another 10 years later, I've been able to decrease the dosage of the pain meds nearly in half from where I started.
I do stay as active as possible, but like many have said, my wife left me, many of my so-called good friends have disappeared from the map. It's a hidious disorder to have & wouldn't wish it on my worst enemy, although I'd like to have everyone have this disorder for just one day, for many just to experience it & for others to shut their damn mouths from whispering, "He doesn't look sick or in pain" & to just mind their damn business.
To everyone with RSDS, never give up, keep searching for the right doctor & keep as active as possible.................................