Out Of Options, Please Help, I Really Need It : (

So it's been a struggle with pain almost my entire life, I have muscle pains, HORRIBLE burning feet and strange feelings throughout my body.

I've had so many tests done: Evoked Response, EMG/NCV, Cervical MRI, Brain MRI, Several Labs, and and EKG

I've been referred to a Neurosurgeon and he said he's "proplexed", he's found Hypoesthesia in my feet and no reflexes in my hands.  He thought something Cervical and found a bulging disc and lordosis of cervical spine is reversing, he said this isn't the cause.  Now he's having me repeat the 3,000 dollar EMG/NCV and isn't seeing me again for 2 1/2 months. 

I need some advice, I feel he has no idea whats wrong and isn't too concerned to find out.  What should I do?  What would you do?

Thanks for any advice,

Josh