There are lots of things people try - some of which work for some and not for others. Pacing is kind of the universally effective therapy...it refers to not overdoing it and winding up in a crash and trying to keep within your 'energy envelope'.
Some people find that sleep enhancers such as Klonopin and Xyrem help. Others have found antivirals can be helpful. Some people use immunomodulators to good effect. Others have found hormonal supplementation can help. People who experience dizziness can be assisted by fludrocortizone and/or beta blockers. Some patients have found that heart-rate monitored exercise and activity levels can allow some recovery to occur. Others find that meditative exercises can be helpful. There is no magic bullet but there are lots of options.
You might want to check out this site http://forums.phoenixrising.me/ for the latest information on CFS and the Forum to discuss different treatments. Good luck!
Cort gave you a lot of information. I'll give you some specifics from my experiences but remember we are ALL different. I had been seriously sleep deprived for 10 years. I tried Ambien first because the doctor I was going to thought my problems were mostly psychological. But I gave her a short description of the medication that I'd printed out for her and she consent to let me try and wrote a prescription for 5g. It worked but 10mg worked better.
That made a huge difference in how felt. Then years later when I finally saw a doctor who studies about ME/CFS, he got me on Ultram for my fibro pain (I have combo of ME/CFS & Fibro). That helped me as well. Then I later went to an ME/CFS specialist to prescribed klonopin since I had a history of anxiety attacks. Since take klonopin/clonazepam, I don't have to worry about anxiety attacks. It also stopped my restless leg syndrome.
I used to suffer from horrible stomach spasms and for that I was given an antispasmodic that worked beautifully.
And as Cort says, pacing is so VERY important. This is central in Dr. Lapp's practice (my doctor) that even thought we have options to help us feel better, we MUST pace ourselves otherwise, we will not be able to be as healthy otherwise.
One very important drug that only a few can afford - ampligen - seems to help a great deal in those who are severely afflicted with this disease. I don't take it but I know several people who do.
I just tried to reply but got an error. Check Dr. Lapp's web site at www.drlapp.net .
Is your doc cooperative and knowledgeable? Let me know what part of the country you are in.
I take Provigil which is a stimulant "AWAKE" medicine but it seems to help a lot with daytime fatigue and sleepiness, too. You'll probably have to tell your doctor that you have daytime sleepiness in order to get your insurance to pay for it, because just saying fatigue may not qualify (even though it works great for CFS). Try Googling Provigil and Fibromyalgia, or Provigil and CFS, and you'll get more information. Good Luck!!
I was discussing this very subject with my support group this morning, we have all been horrified at hearing of new members being put on some seriously strong drugs for this condition, those of us who have had cfs and fibro for years have found things that help are ensureing you get good sleep at night, gentle exercise when you can, a healthy diet and not pushing yourself or getting to stressed out about anything in your life, medications for us are limited to anti depressents and pain killers of various strengths as and when needed most of which are over the counter.
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