Are there any pain treatments for Ehlers-Danlos that work? Any cures?
My 28-year-old nephew has been suffering for about 7 years; misdiagnosed, undiagnosed, but now everything points to Ehlers-Danlos syndrome.
Drugs have done nothing but make him need more drugs. He's had physical therapy, chiropractic therapy, massage therapy, traction, and acupuncture. Nothing has worked, and the acupuncture treatment he had was very painful.
Anyone have anything that works, or know of any studies which he could be considered for? As he is too old for his mom's health insurance and is unable to work, he has no medical insurance and no income, and has been turned down for medicaid (although an appeal is pending).
We're looking for something in the Detroit area, if possible.