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Thursday, November, 26, 2009
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don't label me!

carolinajewel03
carolinajewel03
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carolinajewel03 is grateful for some help

DDD, fusion surgey C7-C6, C6-C5, C5-C4. Blown disks L5-L4...

09/12/08
carolinajewel03
Topics:Chronic PainDDD

I can understand some doctors being afraid to write a script for peracets or hydrocodone, due to the uprise on "pill seekers" If I walk into a dr office, I say oh oh help me I am in so much severe pain in my back...but all the MRI's, Cat scans, X-rays come back showing nothing wrong, then I can see why one would have worries. What I don't understand is my Doctor was like OMG no wonder ur in so much pain, u have this DDD and 2 blown disks in lumbar, and already had spinal fusion for C6-C7, C6-C5, C5-C4 w/plates failed back surgery, still suffer with my neck, perminate nerve damage. I have astopenia, I can't walk 10 feet anymore, I am getting a wheelchair, due to lower back L5, L4 S1...and they inform me last week the will no longer write narcotic pain relievers... Surprised....I am 43 yr old, I don't care it I get hooked on meds, all I want is to stop suffering. if I were a dog they would have done put someone in jail for letting it suffer, but they r fine with letting humans suffer. I feel like if the doctors has the proof on someone and knows for a fact this person is suffering, then they should know I am not a "pill seeker" I am in chronic 24/7 pain. I don't run from this dr to that dr....I just need some relief...For pete sake why do u think people stopped caring? Why r they labeling everyone as a drug or pill head, when the proof is in the pudding so to speak. Does anyone out there still care?

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Answers (7)
Rayne
Rayne
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Rayne is Taking It Easy
2 yg 4 this qulity of life!Left job.2 demanding,2 sick & tired

I'm new....maybe later =)

Friday, September 12, 2008

Hi there~

 

People w/ chronic pain and people hooked on prescription meds are both at an epidemic proportion. Unfortunately the people hooked, using pills for recrecreational use, are making life hell for people suffering life us. I've been to more Dr's than ever in my life because they're too afraid to rx pain meds to the wrong people, get sued or lose their license to practice. I can't tell you how many times I've been in the ER, at 4:00AM, in horrible pain, only to be labeled a drug seeker! As if I'd choose 4:00 AM to try and "score some pills". I've come in w/ a thick folder of records and radiology reports, proof that I have chronic pain and been labeled. I'm sure most of the people posting on the site can relate. One of the more stupid comments I heard lately was that I was "too young to be on pain medications,". I'm 40. I guess he wanted me to wait in agony until I was "old enough" to not suffer. What we're going threw in not fair, but I hope it makes you fel a little better that there're millions of us going hearing the same BS and experiencing the less than human treatment.

 

Hang in there!

Rayne
Rayne
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Rayne is Taking It Easy
2 yg 4 this qulity of life!Left job.2 demanding,2 sick & tired

I'm new....maybe later =)

Friday, September 12, 2008

Oops, i hope you can understand what I just wrote....I hit send before I could edit some of the errors. Oh well....

Morgan
Morgan
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Morgan is finally "living". My RND is in remission!
I have RND (reflex neurovascular dystrophy)

My journey through pain began in September of 2007. I went for...

Friday, September 12, 2008

  I understand. Though I'm only 16 I've had my share of problems. I know how it feels to be told that there is nothing wrong. There are some good meds out there that are non adicting drugs. Iknow how it stinks to be in pain 24/7. I haven't had any relief either. It stinks to have your life taken away from you. I really hope that you can find something to help you soon!

                                                 Wishes of good health,

                                                       Morgan

Beatingthepain
Friday, September 12, 2008

Carolina,

I want to encourage you to not give up. I also had to go through so much just to find a doc who took me seriously. Even though I had been given so many tests, seen so many docs, I knew that I hurt, and didn't let the docs decide my fate for me. When I finally found an anesthesiologist who took a second look, I had been to about six different pain clinics. I had been told that I was a drug seeker many times before that. It took an MRI (the first in about three years) of the lower back, to illustrate the problem with my L5-S1 disc, which had ruptured and disitegrated (SP?), causing the crushing and stabbing pain in my legs, butt, and groin. After this doc found the problem, I had surgery to fuse and replace the defective part of my lower back, but the pain never actually went away. I am still battling the pain, now nearly three years after the operation. The docs say I have 'failed back syndrome', which is a mythical name for a package of symptoms that happens quite a lot after fusion surgeries like mine. After researching my 'condition', I discovered that the name 'failed back syndrome' actually isn't a real and accepted diagnosis by the American Medical Association.

I urge you to keep trying to find out what is currently happening to your back, don't let fearful doctors dictate how you live. Do understand, though, that there are those who will choose to err on the side of caution, and that is fine, but educate yourself, understand your illness(s) more than your doctors do, as this is the deciding factor on how your life will play out from now on. Your knowledge will help you in your search for the right doctor.

I wish you luck and strength on the path you walk. Keep us in the loop, ok?

jcup4u
Saturday, September 13, 2008

i understand.. drs don't want 2 b responsible nor caring.. they seem 2 b n it just 4 the money now days.. they do surgeries saying u must have this surgery, then after u have the surgery and they get their money, they no longer care anything about u..i can name a few drs who i know r very much like that.. i don't blame the 1's who suffer, i blame the drs who don't care.. hang n there, don't give up. there has 2 b at least 1 good dr who cares , maybe u can find that dr.

jcup4u
Saturday, September 13, 2008
a lot of people including drs see people who suffer with clonic pain and even n wheelchairs as weak and even useless. i have been suffering n pain 4 many years and i can tell u people like us r the strong 1's. never let a dr make u feel bad b/c u may need pain medicines.. remember u r the strong 1, not them. never let them make u feel useless and weak, b/c the hell u go tho has made u stronger than u will ever know. Gbu
Scooter
Scooter
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Scooter is in lots of pain

I've had chronic pain since 1999. I've had five low back surgeries...

Sunday, September 14, 2008

Oh my gosh, how can that doctor be so heartless? You need to keep trying to find a good pain management doctor. I waited for over a year in severe pain before I ever went to a doctor because I knew I would be labled as a drug seeker. I worked for over 20 years as a secretary in the ER so I knew it would happen. The first doctor I went to told me there was nothing wrong with me. He told me the MRI was normal. Well, my sister worked in the x-ray department at the hospital and she had them read the MRI. I had surgery within a week. The jerk doctor came up to me at work and was very snotty to me when he asked how my back was. You should have seen the look on his face when I told him I had had one back surgery and was already scheduled for the second. I've had five surgeries on my back so far. I often wonder if the first doctor had done his job right would I have had to have five surgeries. Would I be in chronic pain now if he wouldn't have labled me as a drug seeker? I thank God all the time I found a good pain management doctor. Don't give up. You don't deserve to hurt. You deserve pain medications.

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This video explains where back pain stems from by taking you through the anatomy of the back. 

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