I have a Hemangioma after having back surger in 1999. I had a micro disectomy on L4 after the surgery I was in so much pain I was throwing up and have been in pain ever since. It feels like a burning stabing pain but also down my legs. Sometimes I will lose my gate to walk a little but I have not lost any reflex. I am now having seizure. I am 36 YEARS old. My doctor says it's not from that but when its that time of the month its worse I feel like I am being eatin alive. One otho DR said endometriosis but the GYNO DR said NO its my back the Hemangioma. I have had gastric bye pass and can't have cemo I get sick from most med and am on pain pills now. The say in ln my MRI its not on a nerve but it is in the bone, He said it can't cause my pain. What do U think?
I'm not an expert on hemangiomas, but from what I've read, they're not usually painful. If your pain began immediately after surgery and has continued ever since, it seems more likely that it may somehow be related to something done during the surgical procedure. Have you been back to the neurosurgeon who performed your surgery and does he have any suggestions? Has anyone been able to identify why you're having seizures? If you're not getting any help from your current doctors, it may be time to see a new neurosurgeon. Someone needs to give you some answers.
Yes, I have a hemangeoma on my chin and lower lip and it can cause pain but very seldom for me.