Sunday, April 20, 2014

Saturday, April 11, 2009 bzerm01, Community Member, asks

Q: Has anyone ever had a spinal nerve stimulator implant?

 

I want to know if this procedure is worth trying. It is called a spinal stimulator implant. It stimulates the nerves and is supposed to block the pain signals. Thank you

If you have been through this treatment, what are your results?

Thank you

Answer This
Answers (83)
Karen Lee Richards, Health Guide
4/12/09 3:12am

We have a new thread in our forum where a lady who has a neurostimulator implant has offered to answer questions about it.  You can check it out here:  http://forums.healthcentral.com/discussion/chronic-pain/forums/a/tpc/f/7251032/m/13310024

 

(Note:  If you've never been to the forum before, you'll have to register separately from your registration here on ChronicPainConnection.  You can, however, use the same e-mail address and password if you like to make it easier to remember.)

Reply
TamiO, Community Member
4/22/09 11:13am

Just had one place in on Friday, getting it removed today.  I have not noticed much difference in the pain with the stimulator on.  This was the last thing to try and help me with severe nerve pain--was hoping to cut down on medication with this device...but it didn't work for me.

Reply
Annie, Community Member
10/16/09 3:39pm

This disturbs me deeply. My mother suffers from back pain, and has gone through the mill of painkillers. About seven years ago, they put a morhine pump in her back, and that took most of the pain away for six years, and she was able to cut back on the oral meds. Unfortunately, the tube where the medicine comes from grew a cyst there, pushing against the nerves in her spine and causing loss of leg function. When it was finally found and removed, the result was lasting nerve pain shooting down her legs and permanent damage to the fuctionality of the leg. Lately, she has been considering a nerve stimulator, and it saddens me that it did not work for you. The likelyhood of it working for her as well suddenly seems slim.

Reply
bzerm01, Community Member
10/19/09 1:17pm

The stimulator has helped much of my pain.

I have had the stimulator implanted permanently for 3 months and have been able to stop my fentanyl patch totally. For the past 3 weeks I have had some new pain begin in my feet from my neuropathy and I have an appointment with my pain Doctor but I am still not in nearly as much pain as before the implant, so everyone is different with these stimulators. I would say to have your mother try the implant trial for herself as that is the only way she can tell for sure if it will help her.

Reply
Viviane, Community Member
2/10/11 8:54pm

Hi there....i did find a new Pain Dr. here in Arizona, and next week i'll have the last of 3 injections, and if still no relief from this pudendal pain, we will go to Plan B, the nerve stimulator, and i'm hoping it woks for me. Will let u know, Sincerely, Viviane

Reply
Mrs T, Community Member
9/18/12 11:34am

I have had injections for 6 years..so you are going to have one put in after just 3? I don't get that..Are you just wanting surgery, I would wait as long as i could befor they cut me. Now after going thru 20 yrs of pain i think i'll try the unit..but not after only 3 injections

Reply
crazyarky, Community Member
2/12/14 5:15pm

I have had two Laminectomies, three Epidural Steroid Injections and a Sacral Injection and they put the neurostimulator trial in me after that, but I could not stand the "tens unit" type feeling and what makes me mad is they told me it doesn't feell like the tens unit!  Waste of money for me. 

Reply
aBonjour, Community Member
4/10/14 5:55pm

You were misled. It is different for every person, because it floats some what in the spinal fluid. Problem is the workers who advised you (or me) don't have one, and yours would be different anyhow.

Reply
Sandra Blankenship, Community Member
1/12/13 10:43pm

What type of injections are you having? The nerve stimulator did not help me. I wish you all the lick and thanks for keeping me in mind. Sandra

Reply
stacey1030, Community Member
7/ 1/13 2:17pm

I also went from 6 shots to a surgeon. The surgeon discovered that my bulging disc had ruptured!!!!! Pain management is all about the almighty dollar! I would try a second opinion before tring the stim wire.

Reply
Robert, Community Member
11/27/12 8:24pm

I'm very happy you've found pain relief from the stimulater implant.

I've had problems with my lower back since involved in a T-bone accident in 1989.

After 6 procedures, including too much titanium in both my back and neck, and more than 25 steroid injections, I'm still looking for relief.

I'm having the stimulator implant procedure in 2 weeks.

 

I've spoke with my Doctor about the fact many folks online have had bad experiences with implant device. He said those who have had the stimulator implant and had problems have found a place to complain. (the internet) However, he also said those who have had the implant and things are going well, rarely go online to say it.

Seems to make sence to me. 

 

My best to you and all those who suffer with back pain.

Reply
MsVita, Community Member
12/13/12 11:09am

I had my nerve stimulator installed on 4/10 and I’m not taking it out it stops my pain from 20-60%, and I’ve been able to cut back on Medicine. Started in Dec. 2005, I was having trouble sitting, chiropractor adjustments were not helping any more. Crodozoine Shots x-rays I was sent to local Pain Management there I several selective nerve blocks, at one point they wanted to take out my tail bone. After second opinion finding out it wasn’t the tail bone. I was sent to Pain Management in Bay area of Northern CA, Sept 2007. They did several more selective nerve blocks, 200 miles each way. I had to ride laying down my left side hurt so badly. I spent two years in bed because the pain radiated down both of my legs. October 2008 I was sent to another facility for a High Field MR on the left third sacral nerve. There they found a tumor on the root…inside sacral bone, and non removable, non malignant. After meeting with Nero surgeon, and radiologist I had 3 radiation treatments on the cyber knife, 1hr each for 3 concessive days. First day of radiation I got up and pain in my legs was gone. It was great, after that and 3 months on and off of steroid medicine I had to go back to the selective nerve blocks to help manage pain from radiation. Then finally in 2010 I got the nerve stimulator. Had to have 5 yr battery replaced in Feb. 2011 with 10yr battery, which I have to charge occasionally…if I let in run out of battery I have to go back to bay area and be “jump started like they do a heart” then lay there for 4 hrs while it charges. Not bad now I have several Channels: A,B,C,D,E,F,G 5 of them run on low current and have 4 settings apiece, 1 with 4 settings and 1 with 2 settings use a lot of battery. I use to charge every 10-14 days now every 2-3 months. I have mine adjusted to what the stimulator is capable of, can only have it tweaked. I’m supposed to have it adjusted every year after surgery. Per Nero Surgeon: “Because of tumor, that was size of a large raspberry, gold dollar coin around, now shrunk to size of a small green grape. And is non removable I will be in pain the rest of my life, can’t bend, twist, turn, reach. I was most likely born with the tumor, a lot of people are and some have more than one, I must have done something to irritate to it and make it start growing. TOTALLY LIFE CHANGING! Glad to see your going to be getting the nerve stimulator. Now I have Ischia bursitis, back of Pelvic Bone, the bottom of it, the bones you sit on and it feels like I am sitting on 2 soft balls. The Nerve Stimulator controls some of the Ischia pain but when it get to be so much pain and the stimulator bounces off the bone that’s when it is time for steroid injections. Yesterday 12.12.12 I had another round of them, totaling 6, I am praying it helps this time; it’s the 4th this year. Needless to say I hope it was the end of this life and the beginning of a new life.

 

Hope your surgery's went well and the stimulator is doing it's job, if not call you expert controller of the unit installed and have them tweak it!  Good Luck!!!

Reply
Sandra Blankenship, Community Member
1/12/13 10:39pm

I'm so happy that it worked for you. It didn't help me. Ihave had 5 spine surgerys and have an implanted pain pump for the nerve damage on my left side. If you have a great doctor please let me know. I woudl love to find another doctor that could help me. Thanks sandra

 

Reply
rs4646, Community Member
1/19/10 11:15am

I have a spinal stimulator and it works wonderful for my sciatica nerve pain,i still have low back pain but as long as my stimulator is on i have no nerve pain, which i never thought would be possible.

Reply
debbie, Community Member
6/26/11 10:56pm

i have sciatica nerve pain , how is the stimulator working for you ?

Reply
24/7, Community Member
7/14/11 8:33pm

had permanent implant in 9/09,6weeks post-op change in lumbar stimulation began to fail,surgeon who did implant said problem was program of neostimulator,thoracic pain began refused to any testing,x-ray of spine nothing,pain in thoracic area increased to inflamming 5 months post-op emergency operation to remove spinal cord stimuator found electrode lead paddle migrated behind bone into spinal canal 16 months later 80 mg oxycontin 3x daily, +percocet 15mg 3x daily monthlly trigger point injections in thoracic unable to sit back in chair,lay on my back beside other nerve damage to many to mention,and all other meds to many to list,i would not recommend SPS,do to fact if complications develope getting approval to remove device is difficult.

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dellyson, Community Member
7/30/11 12:10pm

Did you have any other problems like dizziness and numbness of face with your simulator?  I had one put in in 1999, could not have MRI with mine in...removed this week...surgery was horrible...dr at duke put paddle in backwards to get it to work......just wondering if you had any other numbness or problems.....

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myvoice, Community Member
9/26/11 8:30pm

i have had the implant and the problem that i have is before the implant i had pain in my right and left arm and hands and the implant hasn't cured it totally but i can see a improvement but the worst thing is and the doctor says they never heard of it but i have read the same problem by someone else on a forum since the implant i have started having bad pains in my neck and in my head at times hurts so bad that i wish i had a saw to cut it off so some may think am i trading a pain for a pain i say i don't really no but the only thing they could come up with is that the lead or leads is touching a nerve that sends signals to my head and that might be what's happening so i don't no and i still pushing them to find out but they can only do c-scan and xray mri is not a option anymore so i don't no what to do sorry if my response didn't anwser your question but i wish you better luck on you proceedor

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michael, Community Member
1/ 4/12 2:37pm

I had the same problem only i thought i was having a stroke would not use stimulator till I got it checked out too afraid, What had happened my right stimuator wire had moved up close to my head and i believe was touching a nerve, had to have outpatient surgery to pull the wire down where it was supposed to be. I felt immeadiate relief.

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Janedoe, Community Member
4/16/12 4:09pm

I hear you talking, I had a SNS in 2010 and have nothing but pain from it a headach so bad I could just shot myself. I have had NO relief from this. Good luck

Reply
Hoping4today, Community Member
9/17/12 11:05pm
I had my stimulator implanted for the same arm issues and ended up with extreme pain between my shoulders and neck... So painful that I feel cutting it out. My ct scan didn't give me any concrete reason for the pain but it is over the top. I am now a year and a half post op and no better . Please let me know if you come up with a cure and the doctor who helps you . I need relief and not sure what to do next!! My atom was implanted at shanda in Florida . Someone needs find answers. Reply
jenna, Community Member
1/16/12 10:46pm

had sps implanted 9 mos. ago-doesnt work, had lumbar pain but dr. put hardware up too high in thoracic area. Been in terrible pain since day one. No dr. wants to touch anothers mistake--just found a surgeon to remove it , I hope he doesnt make it worse,says there is no guarantees--wish i had not ever done this!

Reply
Tony A Brumley, Community Member
1/17/12 4:57pm

I  hate to hear that the Stimulator  did not work for you !

I had mine implanted 6 weeks ago , and so far I don't have anything but

praises. I am a 57 year old male that had failed back surgery . 3 Level Lumbar Fusion. Been  able to get off the strong pain meds, take over the counter daily.

I have had to have stimulator adjusted one time so far. That is all it took.

I can walk all the way thru the grocery now. without the asistance of a shopping buggy to lean on.

I went from only being able to walk 2 blocks , to a mile on some days.

Anyone that is considering this, its worth a shoot. The best part is that you get to do aTrial and see if it helps.

Iwish all of you that are in chronic pain the best, Been there, done that.

Reply
yvonne, Community Member
3/20/12 3:52am

My partner is considering having  a stimulator fitted after two fushions and pain now like a red hot knife in his back. His pain is worse in the lower back can you tell me where your pain is please. Just find it hard to make a decision as there are so many negatives with this procedure, but feel we have no where else to go now.

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Steve, Community Member
5/27/12 4:58am

hi.Had trial done six weeks ago. When leads were going in about six inches felt awful pain in spine near shoulder blades.Could not lay back in the chair.Massive burning pain since. I have been told by GP I must have nerve damage from the leads when they pushed them in. Doctor that did the trial denies that this is the problem. I will not go thru with the permenant one even tho it did give me relief. Ask your doctor what are the chances of this happening. Good Luck.

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Krissy, Community Member
5/31/12 12:55pm
I also had the trial done up thru my neck. And have been in pain between my shoulder blades. I go in for MRI today to find out what's causing it. Reply
Steve, Community Member
5/27/12 4:58am

hi.Had trial done six weeks ago. When leads were going in about six inches felt awful pain in spine near shoulder blades.Could not lay back in the chair.Massive burning pain since. I have been told by GP I must have nerve damage from the leads when they pushed them in. Doctor that did the trial denies that this is the problem. I will not go thru with the permenant one even tho it did give me relief. Ask your doctor what are the chances of this happening. Good Luck.

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butterflyangel, Community Member
7/10/12 5:18pm

is it still working good for you??? In 2006 I was diagnosed with Degenerative disc disease and was told there was nothing that could fix it other than lifestyle modifications, i.e loose weight, stop smoking ect. & the Dr. warned me that I could end up in a wheel chair by the time I hit 40. I thought my positive attitude was enough to cure it so I walked out of his office and rearranged my priorities. I went back to school and I was gonna live life to the fullest!! I took every course I could take and then entered the Nursing program and with only a few semesters away from graduation my back and legs gave out. Went back to the same Dr. (4 yrs later) and the MRI confirmed exactly what he told me in 2006, my back was alot worse and the pain was now debilitating. The Dr. once again said he could not "fix" my back but he could do a fusion & it may improve the quality of my life.  Soooo, Dec 20th 2010 I had the surgery, waited the 18 months recovery and not only am I in more pain but I have nerve damage, nerve death, arthritis and on some days its all i can do to walk across the floor. My Dr now says the stimulator is my last option and wants me to do a trial to see if it works on me before doing an actual implant. Could you please tell me what the trial was like. Im so tired of the pain and Im ready to start living again. ~butterflyangel~

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Tony A Brumley, Community Member
7/10/12 5:51pm

I truly am sorry that you are not doing well. I can relate with everything you are going thru.As far as the trial its not bad at all. They give you a local, and install the wire leads in your back above the pain area. the leads will connect to a unit that hangs on your belt. usually for a week. you should get atleast 50%

pain relief , if not they wont do the permenant one. I have gotten used to the stimulation and it doesnt help as much as it did at first, But Im better than I was without it. I do not require as much pain meds as I did before it was put in.

 You will no right away , with the trial if its gonna help or not.

The sensation is much like that of a tense unit only much deeper than any topical

unit you have had. I have had my permanent adjusted several times, they can chane the sensations, the areas that you feel it in, and the intesatiy.

 Hang in there I know how depressing constant pain can be. you are not alone.

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MKE1067, Community Member
8/27/12 2:10pm

Hi Butterfly Angel.  Hope you are feeling somewhat okay with all the weather going on.  Not sure where you are but I am in Florida and the rain makes my back that much worse.  Long story short.  14 years of fusions, and other major surgeries.  I had to go to 7 doctors in the beginning before anyone would believe me and then it was almost too late--I almost ended up in a wheelchair.  Anyway, I finally got sick of living in lala land on all the opioids and wanted my SELF back.  1.5 years ago I had the medtronic nerve stimulator inserted permanently in my thoracic 7 vertebrae.  Previously did the trial and also had it inserted lower on my hip which did not give good coverage.  The one 1.5 years ago is the paddle.  It gives great coverage.  Off all meds but ibuprofen and an occasional 1/2 of a Lortab.  I do still have some pain but it is nothing like before.  The main problem I am experiencing and it is probably due to the paddly hitting on a nerve but my upper thighs have a burning sensation at times.  I have been very active lately though.  The last one had to be inserted by a neurosurgeon and it was the most painful surgery out of any I have ever had.  BUT it was well worth it.  I'm back to being me now.  I have all the things you listed in initial post as well.  The arthritis and many, many adhesions/scar tissue are some of the worst problems too.  Stretching, exercise and massage help tremendously.  I truly, truly wish you the best.  It was a terrible and long road but I finally found some sort of relief and pray you do too.  Please let me know how you are or if you have any questions.  Take care.

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Hurting, Community Member
7/ 1/12 10:55pm
How are you now? I am going July 30 for the trial... Reply
Jlskelly, Community Member
2/12/12 1:16am
I'm so sorry this happened to you. How are you doing now? Reply
Steve, Community Member
6/ 8/12 6:14am

Luckily pain subsiding.Was real worried I had another problem.It was caused by the lead.Thanks.

Reply
Hurting, Community Member
7/ 1/12 10:58pm
Steve how r u now? I am going for the trial on July 30 Reply
Jlskelly, Community Member
2/12/12 1:14am
Hi. I see that your post is two years old. Is it still working for you. Are you able to work? Reply
bzerm01, Community Member
4/ 2/12 10:25pm

I have had to have my stim adjusted several times over the last 2 1/2 years, but I have been able to work part time. I have recently started a new job in fact and am excited about that. Of course I still have limitations and my feet still burn at times. 

I have been able to stay free of any type of narcotic pain meds since 

August of 2009 and my mind is a lot clearer because of it.

I would recommend the stimulator to anyone who is dealing with unrelenting pain. My choices were this stimulator or a morphine pump. I didn't want to go through life dependant upon drugs. So this was my real only option..  

Reply
Hurting, Community Member
7/ 1/12 10:53pm
How is it doing now a year later? I have a trial date July 30! Reply
Charlene wimberly, Community Member
9/28/11 10:53pm
T feel like that. I have Ben thru so much trying to elevate pain in left hip, leg and got. So far the trial worked wonderful. The first implant was not done at SHands and had severe complications by what I believe a more than confident doctor...maybe a God complex. Since then I had done at SHands and has not been turned on until 11th this month and I believe it is going to work murices. Will keep you posted or call me 850-227-4239. My name is charlene. Reply
Tony, Community Member
5/ 8/12 7:15am

I have been suffering with cronic lower back pain since 2002, and have been seeing a pain management doctor for 4 years. He is really great and he really cares unlike most doctors, I have been taking shots in my back in 5 different locations, and have been staying medicated to reduce my pain just to be able to function. He told me about the spinal nerve stimulator, and since then I have talked to several of the people that he has installed one on, and I have not found anyone yet that was'ent totaly excited with the results. I think that it has to do with the doctor that does the implant and the after care that you do after the surgery. He did tell me that when the probes are installed the spine that he stitches the probes in place (most doctors do not do this), because twisting and bending will pull the probes out of there place and the results are drasticly reduced. Im hooked and am going to give it a try, he does temperally install it with the unit itself outside so that it can be fine tuned for maxamum proformance. And if it dosent help 50% or more it can be easily removed and you dont have to dish out all that money, and carry around something that doesent work. So far he has not had to remove any of them.

 

Reply
MsVita, Community Member
12/13/12 11:04am

I had my nerve stimulator installed on 4/10 and I’m not taking it out it stops my pain from 20-60%, and I’ve been able to cut back on Medicine.  Started in Dec. 2005, I was having trouble sitting, chiropractor adjustments were not helping any more.  Crodozoine Shots x-rays I was sent to local Pain Management there I several selective nerve blocks, at one point they wanted to take out my tail bone. After second opinion finding out it wasn’t the tail bone.  I was sent to Pain Management in Bay area of Northern CA, Sept 2007.  They did several more selective nerve blocks, 200 miles each way.  I had to ride laying down my left side hurt so badly.  I spent two years in bed because the pain radiated down both of my legs.  October 2008 I was sent to another facility for a High Field MR on the left third sacral nerve.  There they found a tumor on the root…inside sacral bone, and non removable, non malignant.  After meeting with Nero surgeon, and radiologist I had 3 radiation treatments on the cyber knife, 1hr each for 3 concessive days.  First day of radiation I got up and pain in my legs was gone.  It was great, after that and 3 months on and off of steroid medicine I had to go back to the selective nerve blocks to help manage pain from radiation. Then finally in 2010 I got the nerve stimulator.  Had to have 5 yr battery replaced in Feb. 2011 with 10yr battery, which I have to charge occasionally…if I let in run out of battery I have to go back to bay area and be “jump started like they do a heart”  then lay there for 4 hrs while it charges.  Not bad now I have several Channels: A,B,C,D,E,F,G 5 of them run on low current and have 4 settings apiece, 1 with 4 settings and 1 with 2 settings use a lot of battery.  I use to charge every 10-14 days now every 2-3 months.  I have mine adjusted to what the stimulator is capable of, can only have it tweaked.  I’m supposed to have it adjusted every year after surgery.  Per Nero Surgeon: “Because of tumor, that was size of a large raspberry, gold dollar coin around, now shrunk to size of a small green grape. And is non removable I will be in pain the rest of my life, can’t bend, twist, turn, reach.  I was most likely born with the tumor, a lot of people are and some have more than one, I must have done something to irritate to it and make it start growing.  TOTALLY LIFE CHANGING!  Glad to see someone else it getting relief from the nerve stimulator.  Now Have Ischia bursitis, back of Pelvic Bone, the bottom of it, the bones you sit on and it feels like I am sitting on 2 soft balls. The Nerve Stimulator controls some of the Ischia pain but when it get to be so much pain and the stimulator bounces off the bone that’s when it is time for steroid injections.  Yesterday 12.12.12 I had another round of them, totaling 6, I am praying it helps this time; it’s the 4th this year.  Needless to say I hope it was the end of this life and the beginning of a new life.

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TinaLouise38, Community Member
5/11/12 11:14pm
This past week I had the trial stimulator put in around my neck to see if it would help with my nerve damage pain in my left arm and it worked for me. As long as it helps 50% or more it is worth it to help decrease the pain meds. I am now looking into having it implanted. Good luck to your Mom. The trial is worth it to see if it will even help her. Reply
kartz, Community Member
1/10/13 10:32am

I'm looking at having a stimulator trial for left arm nerve pain.  what caused yours?  Mine is from shoulder surgery that the surgeon says he stirred up a bees nest with my nerves.  I sure wish he hadn't.  I'm hoping I have as much relief from my trial as you did.

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John, Community Member
5/20/13 12:26pm

Hello, I have chronic pain from nerve damage that was a result of herniated disks in my neck. I had the surgery about 13 yrs ago . I have 6 vertebrae fused with 2 titanuin rods in my neck., The pain I experiience is peripheral neurothopy basically burning and tingling in my hands and feet and pain in my neck in the back which shoots downward when the pain is real bad. I am on Lyrica and take Percaocet when needed , usually when I get home from work or if I do too much work around the house.  My Pain management docs I see have the nerve stimulator as an option and I finally decide to go for the trial because I know it helps some people and some it doesn't. The problem is my insurance provider , Aetna denied the procedure stating it is considered experimental. My doctor doesn't understand this because he has done many of these and said the Medicare covers this and usually what Medicare covers the insurance providers follow suit. Has anyone else have this happen? I did write a letter to them and appealed their decision , but it was still denied. I have can submitted a second appeal which I am in the process of doing. Any thoughts?

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Sandra Blankenship, Community Member
1/12/13 10:37pm

I'm sorry! I leave my in so if they ever find something great for tte pain I am ready. I also tried the nerve stimulator it didn't work either. I tried the one you were outside and the implanted one. I wish I had something to tell you, but I don't. I am living in a hell of pain 24/7. I have breakthrough medication that will let me take a shower. I have been dealing with this for 6 years. My life has sstopped as I knew it. I have 3 grown kids and 3 grandchildren. I can't help them any. I'm at a loss of what to do. I am only 57 and I have always had a fun life. We traveled went on fishing trips, snow boarding, skiing. My husband of 27 years is my ock. I don't know what to do with out him. We struggled the last 4 years getting out last daughter through college. My pump refill is 20,000.00 every 2 months and i had 9 spinal blocks just ot keep tha use of  my left leg. i will contact you right away if iI ever hear of anything new. All m prayers. Sandra

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lovelyles, Community Member
5/25/10 12:31pm

So, you were allowed to get it taken out?

 

My fiancee has had one put in October 2009 and we are still fighting with the doctor who put it in to take it out? What should we do!!

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bob, Community Member
12/14/10 3:06am

fight for your rights . Keep on pesting the doctor to take it out if you don't fell comfee with it in.

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Bcg, Community Member
2/12/11 6:36pm

What problems is your fiancé experiencing with the neurostimulator? I had my stimulator implanted May of 2009. It has partially helped. However, I have discovered that I am very sensitive to other electrical devices and the electrical interference. My nerves become very painful and I experience a lot of muscle tension. I have an appointment at Mayo Clinic to discuss removing the stimulator.

 

Is anyone familiar with the removal procedure of the stimulator and have any concerns or advice?

 

Thank you and best wishes.

Reply
Robinson.Jennifer2, Community Member
5/26/11 3:29am

hi. im supposed to have the 1wk trial for the surgically implanted nerve stimulator in a month or so. u spoke of sensitivity to electronic devices & interference. Severe nerve n muscle pain n tension bc of this. Would u mind explaining what kinds of other electronic devices do this, and what kind of interference, what happens exactly? Im sorry if I'm being too personal. I just want to make an informed decision. I have 2 kids under 5 so I need to be out of pain n I've exhausted all the shots, phy therapy, chiropractors, & meds. Still on meds, hoping to feel closer to my real age of 29 soon. Lol. Accidents I was in has destroyed my hips, low n mid back, nerves, neck, n anything connected to them. Hope u feel better soon. And thanks.

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michelerae53, Community Member
11/ 4/11 6:27pm

I see by the date on this that it was a while back and I wonder if you got the trial and if it helped you.  I have fibromyalgia, lupus, diabetic neuropathy and degenerative discs throughout my spine. I have been on pain meds for years and as my problems worsen so does the pain levels.  I don't want to take more medication and last month had the trial stimulator placed for my lower part of my body.  I am afraid of the upper one because of heart problems.  The relief was amazing!! I go on the 29th for the permanent placement and I can't wait.  I have read a lot online and I also have a lot of faith in my doctor.  someone from Medtronics will also be in the surgery with my doctor so that is added reassurance for me.  Hopefully everything goes well.  I hope yours did also. 

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michelerae53, Community Member
12/ 6/11 2:04pm

Well, It has been a week simce my implant.  On Friday had followup and they said incisions looked fine. Today I  had second followup and was told that I have a "cluster" (shatever that is) infection at the battery site. They won't turn stimulator on until the staples are removed and now I don't know when because of the infection.  This worries me because I know MRSA is contacted in hospital surgerys and if this might be a prelude to it.  On my second round of antibiotics now. Levofloxacin 500 mg.  Sure hope it clears up.

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MrsMoto, Community Member
12/ 6/11 4:42pm

First of all, good luck on your infection and I really hope that you get well quickly!!

I am in the middle of my trial with scs as we speak and, for the most part, I am hopeful that this is going to be a positive thing for me.  I am having a pretty significant problem with my ribs and back hurting especially when I turn stim up on one specific program.  Hoping that this can be corrected with programming?  Understanding by reading these forums that this happens quite often and has something to do with the bandwidth and programming issues (hopefully).

My question to you is:  What was it like when they took your trial out?  Just an office procedure or mini-surgery?  Guess I just flat forgot to ask the Dr. :)

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Steph, Community Member
2/17/12 6:22pm

hi just to say I am 30 yrs old and every avenue has been exhausted and this is the conclusion we have arrived at....I am still researching as it has only been mentioned today 4 years after starting with a catalogue of spine problems and trying the usual opiates,physio and witch doctory (i joke) have you had the trial? did you find it beneficial? I would love to chat and get your take on it all ,I also have a little boy Jack who is 4 and I would love to get back to some kind of NORMAL life and not just an existence....good luck and hope we can chat  Steph xx

 

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Hurting, Community Member
7/ 1/12 10:52pm
Did you ever get the stimulator? I am supposed to have the trial July 30 and after 4 back surgeries a double fusion all failed with severe sciatic nerve pain down the leg n toes and high meds for a few years I am fed up because meds don't work anymore! If u got it is it working? I'm sort of freaked by all these comments and yet another surgery! Thanks! Reply
Charlene wimberly, Community Member
9/28/11 11:00pm
They had to remove my first almost immediately once put in because od pralayzes. It is now back in and I hope it works well. Charlene Reply
bzerm01, Community Member
10/22/12 9:36am

Charlene, I have had mine for 3 1/2 years and if I had been parayzed from it I wouldn't have had it replaced. I cant understand how you could let them do it again... Two weeks ago I had my generator (battery pack) relocated higher and a little deeper into my buttocks since it was hurting. After 3 1/2 years the Neurosurgen finally listened when i said it was pinching and realized it was pointing out and I was sitting on it which is not supposed to be. The Medtronic Rep was there and she said it couldn't be too deep either since it is a rechargable battery, so anyway the surgery went well and my stitches came out last Thursday and I am on the road again. Now we are looking at my neck and a myelogram next. ouch

My stim works...

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bzerm01, Community Member
10/22/12 9:43am

Charlene, I have had mine for 3 1/2 years and if I had been parayzed from it I wouldn't have had it replaced. I cant understand how you could let them do it again... Two weeks ago I had my generator (battery pack) relocated higher and a little deeper into my buttocks since it was hurting. After 3 1/2 years the Neurosurgen finally listened when i said it was pinching and realized it was pointing out and I was sitting on it which is not supposed to be. The Medtronic Rep was there and she said it couldn't be too deep either since it is a rechargable battery, so anyway the surgery went well and my stitches came out last Thursday and I am on the road again. Now we are looking at my neck and a myelogram next. ouch

My stim works...

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bzerm01, Community Member
10/22/12 9:44am

Charlene, I have had mine for 3 1/2 years and if I had been parayzed from it I wouldn't have had it replaced. I cant understand how you could let them do it again... Two weeks ago I had my generator (battery pack) relocated higher and a little deeper into my buttocks since it was hurting. After 3 1/2 years the Neurosurgen finally listened when i said it was pinching and realized it was pointing out and I was sitting on it which is not supposed to be. The Medtronic Rep was there and she said it couldn't be too deep either since it is a rechargable battery, so anyway the surgery went well and my stitches came out last Thursday and I am on the road again. Now we are looking at my neck and a myelogram next. ouch

My stim works...

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bzerm01, Community Member
10/22/12 9:44am

Charlene, I have had mine for 3 1/2 years and if I had been parayzed from it I wouldn't have had it replaced. I cant understand how you could let them do it again... Two weeks ago I had my generator (battery pack) relocated higher and a little deeper into my buttocks since it was hurting. After 3 1/2 years the Neurosurgen finally listened when i said it was pinching and realized it was pointing out and I was sitting on it which is not supposed to be. The Medtronic Rep was there and she said it couldn't be too deep either since it is a rechargable battery, so anyway the surgery went well and my stitches came out last Thursday and I am on the road again. Now we are looking at my neck and a myelogram next. ouch

My stim works...

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gie rogers, Community Member
3/23/11 12:07pm

My husband suffers from chronic back and legg pain, due to a auto accident in 2006. He had failed back surgery in 2006. He has been on uncountable pain med's for the past 5 years. He had a spinal stimulator implant last Oct. The trial is only for 5 days, which isn't nearly enough time to know if the device will work for you. I say this because the insert of the trial stimulator causes pain itself which last for three to five days. It's hard to determine if you are feeling less pain due to the healing of the trial impalnt area or if the device is really working to help the chronic pain. My husband has had the implant for 5 months now, with no relief at all. In fact the area where they implanted the battery pack remains sore to the touch, which makes sitting, laying on your back, and riding in an auto unbearable. He has had the stimulator reprogramed many, many times and still not the least bit of relief. Since my husband has had the implant I have been doing lot's of research (which i would state to anyone, please do your own research before having the implant) The doctors are just like used car salesmen, they will tell you what ever they feel you need to hear to make a sale. In my husbands case the implant has only added to his chronic pain. And if you want to have the device removed all i can say is good luck.

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walker, Community Member
5/31/11 12:09pm

I had the stimulator put in about 6 yrs ago.  When we did the trial run for 3 days to see if it would help, I was pain FREE!!  Then, we did the one that the device is put in the spine, I had it removed after a month.  The leads had moved so it did not work for me.  I was told that if I put the permanant one in that it could not be removed from the spine.  Now I have muscle spasms on both sides where they cut the leads.  I went back to my surgeon about 6 mths ago because the spasms have gotten to be more often and he tells me now that it can be removed so that means another surgery and out of work for 4-6 wks.  Needless to say, it did not work for me.  Again, everyone's body is different.  Good Luck to those that try it and I hope it works.  Like I said, the trial was great and it was the best 3 days I had had in a long time.

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darnme2000, Community Member
2/17/12 10:37pm

Just wondering how you are doing now. I had a Neurostimulator implant in May of 2011 for low back pain. The incision was made at T-11 and the bottom of the probe is at about T-7.  Since then I have pain in the muscles on both sides of the implant site when I stand for just a few minutes. The pain ramps up to the point I have to sit. In 30 to 45 minutes it calms back down to tolerable levels. But it is the same scenerio everytime I try to stand and walk about. I dont really feel what I call Spasms. Is more like tightening of the muscles across the span of the back. But sounds similar to what you had happen. I'm also wondering if anyone else has had the same issues. I did not have any pain in the mid back up until the implant was done. Am thinking about having it removed.

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Joann, Community Member
3/14/12 5:30pm

 I had mine jan 2010, for low back pai and leg pain it relieves that. now i have alot of pain in the thoracic area were they put the paddle constant pulling and tugging. so bad somedays . i wish i never had it done just created a problem i didnt have before. doc said if he removes it it probaly wont help. havent worked in 2 years. now unemployment is out its scarry to go out and try to work cant imagine i wwill b e able to do it too much pain waiting for social security that could take forever!!!!

 

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hnm, Community Member
4/ 3/12 8:57pm

If you are totally disable and not able to work.....social security takes 6months! If you want a fast process, provided all ur medical records with ur application! Do not have SSA requires medical records, it will take longer....Hope this helps!!!! Good luck!!!! 

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Micki fowler, Community Member
3/26/12 10:14am
Omg....I am only six weeks post implant surgery and I have not had one good day since my surgery...I am soooooo angry, depressed and pissed that I am seconds from calling my Dr. And begging him to take it out....I now have pain where I did not have it before and the only relief I get is if I take pain medicine which I was hoping the surgery was going to eliminate the pills.....I am only taking one 5mg. A day because I refuse to get soooooo damn addicted to these pills that the rest of the day I am suffering...so to answer your question, yes yes yes I am now worse than before....M Reply
Bcg, Community Member
4/24/13 3:47pm
I just had my Medtronic's stimulator removed yesterday at Mayo Clinic after four years of nerve and muscle problems that began the first day after the stimulator was implanted. The stimulator implant surgery was done at another hospital, by a different doctor. At the time I had severe lower back and leg pain. Yesterday the doctor only removed the battery pack. It was done as an out patient procedure. The actual surgery took about one hour and went very well. I have not taken any of the pain meds the doctor sent home with me (oxycodone). I feel fine and have not experienced any of the nerve pain I dealt with for the past four years. The doctor did not attempt to remove any of the wires at this time because of the possible risks working in and around the spinal canal. If I do any problems in the future, the wires can be removed, but the neurosurgeon stated that it would be a much more involved procedure with a greater chance of permanent damage to my system. Note: When I had the stimulator originally implanted the Medtronic's representative assured me that the stimulator and wires could easily be removed. According to all of the back surgeons I have seen in the past two years, the removal procedure is "NOT" simple. Because of the scar tissue that has formed around the wires and the delicacy of the wires, plus the location of the wires around the spine it is very difficult to remove the wires without the wires breaking and the surgeon having to make several in-scions to remove all of the pieces. One doctor said the surgery can become a "fishing expedition" to find all of the parts of the wires and paddles. As far as the problems caused by the stimulator, the doctors had several theories. The two most common were that because my battery pack was the rechargeable type it may have caused my nervous system to be effected by electric and electromagnetic waves from surrounding devices causing painful nerve sensitivity and/or my body rejected the device, similar to an organ rejection. Some research is also supporting the second theory. Keep in mind that my experience is only one example. My one week trial with the temporary stimulator was wonderful and worked well. However in retrospect, I wish I had made the trip to Mayo three years ago instead of waiting this long to have it removed. I would like to mention another option you might consider that helped me tremendously. After attending a three week chronic pain management clinic at The Mayo hospital 18 months ago, I have been able to taper of all of my pain meds, including daily doses of morphine and oxycodone. Since that time I have been able to manage the chronic back pain without the use of any prescription drugs or the stimulator. Many credible hospitals and clinics offer similar programs. I would research one near you and find one that has shown a high success rate such as Mayo Clinic in Rochester, Minnesota. I live in Maine, so I didn't just pick The closest place. Unfortunately not everyone of having the good fortune of being able to travel with severe pain. I do hope you find some relief soon. You will be in my prayers. Best wishes. Reply
Hope, Community Member
1/19/13 7:15pm

Hi. I am sorry that you too are having these symptoms. I had my stim. implanted in my upper body c4-c7 neck for crps in right arm pain. I have similar muscular issues and can even have hard spasms and the pain worsens throughouit the day.  The pain is intense and keeps me from doing much of anything. I am ready to explore removing it. I would like to find someone who actually went through the process of taking it out and if the pain subsides.  This is so debilitating nd I can't think of lliving another year with this.  Please let me know if you come across anyone who has had it removed.  Can I ask what type of stim yours is? Mine is a St.Judes.  I can only have hope that we will find answers to this madness.  

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

ve the same muscle problems .I have been struggling for the the past 2 years and am ready to have it taken out. I was hoping to find someone that went through the removal process.  

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jenna, Community Member
1/17/12 7:28pm

keep searching for a good neurosurgen or ask your pain dr for help-my dr that put it in retired, but knew he messed up and i told him my next step was a good attorney, which i intend to folow up on too, but for now i am in so much pain i just want it out. ended up in hosp. few weeks ago, and drs. there agreed it should come out-saw a heart dr today and sps is causing heart spasms because of where herdware is implanted--I found a good surgeon but he"s out of st. vincent hosp. in cleve.don"t give up-it"s your body, you have the right to have it removed!!

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MsVita, Community Member
12/13/12 8:39am

I feel you didn't give the nerve stimulator time to work. Your body had to heal from the installation of the nerve stimulator. I had one for the pain from a tumor attached to my left third sacral nerve in April 2010. It took a few weeks of heavy meds, then cut back original which was an outrageous amount. 6 months later I have cut out two pills, working on decreasing another, dropped two. Plus cut my pain from 100% to 0%, 40% & 60% at times. Still having trouble sitting but getting steroid injections for them, last one done on 12.12.12, hoping for a great outcome. Have Ischia bursitis, back of Pelvic Bone, the bottom of it the ones you sit on and it feels like I am sitting on 2 soft balls. The nerve Stimulator controls some of the Ischia pain but when it bounces off the bone it is time for steroid injections. I had my first battery replaced in 9 months, had the 10yr chargeable one installed...that took about 6 months to heal and the Nerve Stimulator helped some during that time. It also can only control what it is set for, needs adjustments 1 week to 10 days after surgery and in 1 month 3 month, 6 months, year, as needed. The nerve Stimulator controls some of the Ischia pain but when bounces off the bone it is time for steroid injections. I would recommend you retry it and give your body time to heal, have controller adjusted as needed after 1st year's schedule. I have Channels: a,b,c,d,e,f,g...majority have 4 controllable lines and 1 has two. The 4 are set so they don't eat up the battery; the other two will use a lot of battery. My charging system was every 10 to 14 days, now it has been 2-3 months depending on usage. My unit is very seldom turned off, it so only 4-6 hr at a time, has been off possibly 6-8 times. If you do redo this make sure you get along with the programmer, if not call maker of the model and request another. The programmer has to understand you personal need. Good Luck

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Sandra Blankenship, Community Member
1/12/13 10:27pm

I am so sorry that the pump didn't help. I have had 5 spine surgerys and they have tried a lot of things in my pump but I get little relief.  I keep mine in just in case I find something wonderful for my pain. If you ever find a great docotr that can help you please let me know. Sandra

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Kissimmee, Community Member
10/19/09 12:43am

I had one placed, about three weeks ago, i do get relief from it, just the healing of surgery sucks.. pretty harse.. but after a good week and a half pain comes down.. it shouldnt be that bad , i didnt get my meds approved by insurance after surgery only a small dose of perkacet. but overall healling and feeling good , It does help.

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pain stinks, Community Member
3/30/10 9:08pm

The surgery to put the the implant in was bad?  Asking because my doctor is suggesting I do the trial and if that works to have the implant done.   The nurse acted like it was a "no big deal" type surgery....guess it depends on if you're on the OR table or not.  Did you do the trial before actually getting the implant?  Is it still working for you...Sure hope so!

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ltodd, Community Member
3/31/10 7:17am

The surgery itself wasn't bad at all because you don't feel anything. It does not take that long and in my case there were no problems at all. The recovery from surgery however is a BIG hassel. For 3 months you are very limited to what you can do and you are also very sore. It took me about a month to really want to get up and do much because of the open wound in your back. After not being able to wash my hair or do much else by myself the implant was TOTALLY worth it. I've had great reps from the company to help me along the way. My pain is covered day to day about 95% and when I work hard about 80%. I was hoping when I had the surgery that I would be able to go to the mall and walk around. Now I can do so much more then I thought I would be able to.

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txdeadhead, Community Member
4/ 8/12 4:46pm

I am glad I read your opinion.  Four days ago I had the leads implanted, and cried and yelled the whole time.  The pain was worse than a tubal ligation, a cardiac catheterization, and having half the bones in my body broken at once (car wreck).  I am not a sissy, I'm a biker.  The doc kept yelling for more morphine.  My discs are all gone, so the fools were pierceing vertebrae, just trying to make it work.  I am currently walking around with two battery cables dangling behind me and in enough pain to barely sit long enough to write this.  I have been suffering from chronic, intractable back pain for about 8 years, and my pain management doctor quit, and it's impossible to find another in Texas, so I thought I'd try this.  After the implant, the doctor and nurses disappeared and I was left with the rep from St. Jude who informed me to come back in a few days because he figured out the correct place to put the leads.  Like I'm going through that again, and another trial period. I'm glad I read everybody's stuff, because I would never have believed you couldn't get the crap REMOVED.  So, I will, before it's too late.  Thanks to you all.

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rdelarosa, Community Member
4/20/12 9:25am

Hi there I saw your post and was glad I read it because my pain management doc told me to start thinking about the spinal nerve stimulator. He told me that it was my next and only option. But after reading tons of horror stories I dont think I really want to get it done. And I have only read very few positive results, then also reading how hard they make it to get it removed is scary. The docs make it sound like if you want to remove it no big deal, but it seems like it is. I am sorry your experience was so awful. I also noticed you said you live in Texas and haven't been able to find a pain management doctor. I too live in Texas and have a very, very good pain management doc. He really does try to help and the biggest thing is he listens. I have friends that have other pain management docs and there always complaining. My doc is very compassionate and carring have been with him for almost 2 yrs now. Well long story short, was wondering what part of Texas because if your in San Antonio where I am I could give you some different names for a couple of pain docs. Or maybe I could possibly ask my doc if he knows anyone in your area. I just know without my pm I couldn't have made it this far! Wish you all the best and hope you may start to feel better soon. Let me know if I can help you in amy way. God bless!!  

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G24man, Community Member
7/28/10 4:33pm

My surgery included 2 incisions that were closed with a total of 38 staples. I would suggest that you get stitches in the spine incision & they will probably push hard for the staples near the waist where the control box goes since they will be afraid that your pants or a belt would tear any stitches. I asked for stitches in my spine, but he put in staples anyway. They really hurt when you want to sit up or even lie on your back. I have had 8 surgeries & the most pain was in the upper back with the staples, by far.

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LADY IN PAIN, Community Member
12/19/10 3:19pm

I HAD A TRIAL TEST BEFORE MY INPLANT.  DURING THE TRIAL I ENDED UP WITH MY LEFT LEG GETTING STABBED IN A NERVE FROM A PART OF THE EQUIPMENT.  IT WAS A LONG PIECE THAT LOOKED LIKE A KNITTING NEEDLE AND WAS INSERTED IN MY BACK.   THE TRIAL ONLY LASTED ONE DAY. BECAUSE OF SEVERE LEG PAIN, THEY REMOVED THE TRIAL DEVICE.  I CAN STILL REACH OVER TO THE AFFECTED LEG AND FEEL THE EXACT SPOT. THEN  REFERRED  TO A SURGEON, GOT THE IMPLANT, THREE DAYS AFTER THE IMPLANT, I WAS PARALYZED. MY SPINAL CORD WAS SEVERED FROM BUE TO CLOT. THE TIP OF THE STIMULATOR WAS LOCATED ON MY SPINAL CORD AND UNDER THE SPINAL CORD WAS A BLOOD CLOT.  THAT WAS ONE YEAR AGO AND I AM NOW WALKING AGAIN, BUT STILL USE A CANE AND HAVE CRONIC PAIN.  NOT SURE IF THE CLOT WAS FROM THE TRIAL WHERE THE DEVICE WENT RIGHT INTO A NERVE IN MY LEFT LEG.  I HAVE A GUT FEELING THAT COULD HAVE CAUSED THE BLOOD CLOT.

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Marie Helene, Community Member
1/30/11 5:57pm

Yes, I did the trial, and what a difference in my pain level! I had a great week with the trial stimulator, just had to be careful with the wires.

I would not have believed it, but I was able to do those things by myself that I had not been able to do....... like sweeping my kitchen floor. Needless to say, sleeping was like a dream! I rested all night. Bad time came when they pulled out the stimulator, and the pain returned full force. However, two weeks later I have had mine implanted last Tuesday. The surgery was not rough, the recovery is a bit iffy, I am experiencing muscle spasms that are not easy to live with.

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EvaS, Community Member
3/26/11 12:34am

I had the trial period and it was wonderful with a major reduction in the amount of pain.

Now the permanent stimulator is implanted (2 weeks) and am having horrible muscle spasms down my thighs to my knees and sometimes cannot stand or walk. I have had to crawl to the bathroom. I tried turning the stimulator off for a day and the muscle spasms eased a bit but not much.

The stimulator was adjusted earlier this week and it is a bit better, but still have sudden muscle spasms so bad that I cry out.

Has anyone else experienced muscle spasm problems?  Do they ease up?  The Company Rep said the spasms are rare, but wasn't much help with information.  If it just takes a while for my body to get used to the electrical stimulation, then I will live with the muscle pain.  it is great to have the nerve pain eased, but am afraid the muscle spasms might be permanent.

Any advice or help will be greatly appreciated. 

Thanks in advance and I am really glad that this device seems to have helped so many people.

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angel99mom, Community Member
9/22/11 3:38pm

Hi, Linda here and I was wondering how you are doing after about 8 months?  My Neurosurgeon is suggesting I go see the pain management doctor regarding one of these.  Your response would be appreciated.  Thank you,.

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Rhonda, Community Member
12/ 5/13 2:33pm

HI I just had the nerostimulator implanted 2 weeks ago and so far I can't complain it seems to be doing what it supose to do. The only thing I have noticed tho is the massive muscle spasms in my back and my right leg. I will need to have it reprogramed at my next visit. My surgeon was able to include  my tailbone where most of my pain is from.That spot was NOT a good idea the pain is so much worse with the stimulator. But on the other hand the stimulator is helping my lower back and hips and legs to a good level. The thing I hate is if you cough or sneeze and you have it on high you will get zapped. All and all I feel better than I did before the implant which in my case is a plus. I am hoping for more relief once I am totally healed. I am sorry to hear so many of you are not finding this device helpful but with any surgery everyone reacts differently. I was near wheelchair bound before this surgery and now am able to walk without assistance not a long distance yet but I'm happy with what I feel so far.

 

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lilsquirt1971, Community Member
3/25/11 3:43pm

I had the trial nervestimulation pump put in it really did hurt on the healing, couldnt move for the first 3 or 4 days. I agreed to get the permanent one put in, I was on moraphine,  hydros for pain since the pumps been in my back i have stoped the hydros I still take the moraphine every once in a while. I do still have alittle pain but no where as much. Dont get it put into your stomach because thats where I got mine put in at and it has flipped and i cant charge it so they are gonna take it out and put it in the side of my back. People has different thoughts on this and different reselts i myself love it.

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Hurting, Community Member
7/ 1/12 11:06pm
Did you get it? Is it working?? Reply
Fred, Community Member
10/23/09 6:44pm

I am very familiar with these devices as I work in this field.  To answer your question - is it worth trying, I'd say yes it is.  This therapy has been around for about 30 years, and uses very similar technology to cardiac pacemakers.  For some patients the results are life-changing.  It is unfortuate that not all therapies work for all patients though.  With this therapy, the doctor can adjust it and target it to specific spots, and patients can tell almost immediately if it's working properly, as opposed to drugs that have delay-effect and leave you guessing.  Some of the stimulators allow patients to make small adjustments too. Stimulators can be programmed to adjust for time-of-day (for example, sleeping or laying-down) also.

Best of luck in your treatment.

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greenweanie, Community Member
11/10/09 5:36pm

I have had the trial spinal nerve stimulator and for me it did not work on the nerve.  It did help with the muscle spasms in my back but I opted to not have a permanent one implanted as it did not work on the nerve.  If you can get a doctor to prescribe a TENS unit for you it will give you some relief on the muscles only.  Different things work for different people.  If you do try it and decide it does not work for you please, please TURN THE MACHINE OFF before they remove the trial implant.  They did not tell me this info and thought I would die before the doctor pulled live wires from my spine.

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bzerm01, Community Member
11/14/09 5:02pm

I am not sure where you went to have your trial done but the nurse asked me if I turned mine off before she would prep me to have mine removed. Sorry to hear you wenIt is a wonder the Dr didn't get zapped from the wires also. Too bad he didn't.

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Serenity brez, Community Member
6/ 8/10 1:06am

Cry OMG they didn't check first!!! You poor thing. Sounds like you hired the Borg to disconnect from the hive (sorry star track flash back). I am looking into this procedure myself. I have CRPS  and life sucks! Am in constant ungodly pain waivering between 7+ to a 9+. I also have lumbar spineal pain, muscle spasms, artophy going down my left leg,knee, calf, weakness, and floopy foot. The knee was damaged and I'm not a canadate for knee replacement due to the CRPS in my left lower extremidy. I have tried nerve blocks and even criogenic frozen rods, they stick down into the knee, under the cap, and in areas all around the knee. These were scary because they'd wake me up in the middle to see how it was going. The nurse actually pulled on a rod to "show me" my meat (her words) was frozen solid to it...shutters. Any way, am wishing everyone at least tries the trial and sees if it will work for you. I don't know about you but I have been living and dealing with this for 7 1/7 yrs steadly dygressing in activities and quality of life.  Sorry spelling isn't perfect but pain is way high. G'nite

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susan, Community Member
7/21/10 11:30pm

yes had my first in 2005 fell and had the wires sticking out the back of my neck ( mine is for cervical) in 2008 again moved and fell wires out my neck Christmas eve. sand at Christmas Mass before going to ER to have fixed ended up with infection had to have unit removed for 6 months to ensure infection gone. had dorsal implanted no more paddles to come out Thur skin. in July 2009 well again fell and was having a black hole effect were I was not getting pain coverage in my c 1/2 area so just got out of surgery Friday July 8 2010 was it worth it?? maybe for someone who doesn't have it in the neck with all the movement and the injury that occurs on just daily use let alone damage when falling or regular activity  but as for me I would not have had it done had I not have been my last chance and I will not fix it again I can not take the pain again. but for the people who have it in legs etc they seem very happy.

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Serenity brez, Community Member
6/ 8/10 1:06am

Cry OMG they didn't check first!!! You poor thing. Sounds like you hired the Borg to disconnect from the hive (sorry star track flash back). I am looking into this procedure myself. I have CRPS  and life sucks! Am in constant ungodly pain waivering between 7+ to a 9+. I also have lumbar spineal pain, muscle spasms, artophy going down my left leg,knee, calf, weakness, and floopy foot. The knee was damaged and I'm not a canadate for knee replacement due to the CRPS in my left lower extremidy. I have tried nerve blocks and even criogenic frozen rods, they stick down into the knee, under the cap, and in areas all around the knee. These were scary because they'd wake me up in the middle to see how it was going. The nurse actually pulled on a rod to "show me" my meat (her words) was frozen solid to it...shutters. Any way, am wishing everyone at least tries the trial and sees if it will work for you. I don't know about you but I have been living and dealing with this for 7 1/7 yrs steadly dygressing in activities and quality of life.  Sorry spelling isn't perfect but pain is way high. G'nite

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Stacy, Community Member
6/28/10 5:05pm

I have the spinal nerve stimulator and it works to mask my pain for periods of time, however, if the activity is walking (say shopping at Target), I have to shut it off after about 30 minutes because I get uncontrolable heat/sweat flashes.  While it works to mask the pain, I continue to take 63 pills and a fentanyl patch weekly to control my chronic pain after having lumbar fusion in April 2007.  My leg pain started 6 weeks after surgery, was hospitalized with no conclusion of what created the problem.  Since I have gained 30 pounds while taking Lyrica (12 weeks), that is now the only thing my rheumotologist focuses on.  Going back to ortho and see if I can get some help from a doctor who cares.  Anyone out there have these issues: still have severe lower back pain; radiating pain from left hip over thigh into knee down shin, while in reclining position or laying on my side?  I would recommend the neurostimular to everyone just as long as they understand it will mask the pain during activity, it does not take the pain away once it is shut off.

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bzerm01, Community Member
7/28/10 8:12pm

I find that I was having more pain in my feet and I thought my stimulator wasn't helping me and even thought that maybe it was making matters worse. So I called my Dr and the nurse set up an appointment with a medtronics rep and she adjusted my setting so that I get more stimulation to my lower legs and feet than my thigh and hip area and this is helping me. I no longer feel the need to turn my stimulator off while walking or riding my bike and it is helping my pain more, at least for now. 

 

I also gained weight while taking Lyrica for fibromyalgia and had to discontinue it. I also had fusion surgery of my back, actually a thoraco-lumbar laminectomy of the T12-L4 with 2 metal rods and 10 screws in January 2007 and had been on Fentanyl patches and since having the spinal stimulator implanted i have been able to discontinue using any narcotic pain medicines. 

I still have severe pain at times, but I try to tolerate it as much as possible. 

 

My pain now is mostly in my upper thoracic area and rib cage and the stimulator doesn't touch that pain. I know it is very hard to live with the pain but I am trying to go without the pain meds since I found that I was having memory problems when I was on the narcotics. 

 

I started taking savella for fibromyalgia 4 weeks ago and it is helping me. I find that is doesn't seem to make me want to eat a lot. I haven't noticed the weight gain that i had from lyrica and i want to do more than I have in a long time. i feel much better than i have in years actually since taking savella. This is just something that i have found to be helpful for me. 

 

I hope you get some help with your pain. I am also taking Neurontin for help with my Neuropathy and this is something I started taking 2 weeks ago. 

 

Good luck. 

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susan, Community Member
7/29/10 1:24am

Hi I am going to speak to my DR about the Savella I am on the fentyal patches and have other for "break Thur" pain well that is an all the time thing anymore I have had many problem with the stimulator screwing up and it has also help so I would say at this time I am at a 20 to 30 percent a fan of Strongest when I first had it in I was in Love the doors of Heaven had opened but we just can't get that kind of coverage now maybe it is the damage from all of the surgeries or is it a game that my body has figured out but I know I was at the point of using my gun in 2005  when the first implant was done. I just had another adjustment made and for those who are considering having this done PLEASE HAVE SOMEONE WITH YOU FOR THE WEEK FOLLOWING YOUR SURGERY YOU WILL THANK ME!! The pain is bad and you have to force yourself to move and with help you can move. and live God bless and take care My meds have started to hit and maybe I can sleep some tonight,

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Shell, Community Member
3/ 8/11 12:48am

I also was on Lyrica for fibromylagia and I had such terrible side effects and like you said it caused me major weight gain like also cymbalta caused major weight gain. I was on Cymbalta after four years then my dr wearned me off and went on Savella just recently and it so much better for my fibromyalgia pain and have actually been loosing weight without trying as  I am not so hungry like I was on Cymbalta and LyricaTongue out.  I have a fusion at c4-5 and ended up with perpherial nerve damage in my arms and legs.  I having pain in my limbs, my fingers are all curled up and my fingers are blue most of the time with my feet and toes discolored due to circulation problems.  I had the trial nerve stim and it did help somewhat with the limb pain and it considerably help with my circulation as my hands, feet and toes turned back to normal color and once the stimulator was removed went back to the same problems i had before.  I talked to my dr and having the spinal nerve stimulator perm. inplanted.  Wish me luck!  Cool

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gary l, Community Member
8/12/11 12:49am

ive had 3 major back surgeries with the screws the rods and the cages  and my left leg has femoral nerve neuropathy and very painful ive been in pain management for 3 yrs now a surgery a year now they want to implant the stimulator, has anyone had this many surgeries and had this stimulator impanted ? if so, please let me know if it helped, im very hesitant to have this done, i hear pros and cons on this matter, if anyone has any suggestions please inform me because u would be doing me a huge favor by doing so

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steph, Community Member
9/22/11 4:45pm

i am in the same boat as u im waiting to see if im able to get the nerve stimulator, but im scared it wont work for me, and make me worse, i have had a total of 8 back surgeries but anything i post i get no response from anyone so i don't now what to do im scared of anymore surgeries, but if this will get me off some meds im willing to try it.

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Helped, Community Member
11/29/09 8:28pm

I had a Spinal Cord Stimulator implanted in my face for atypical trigeminal neuralgia almost 2 years ago. It's working great. I still take a minimal amount of pain medicine, but nothing compared to what I had before.

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kingstew, Community Member
1/11/10 6:10pm

Did you try other things like the gasserion block?  I did and it made my pain worse.  Your the first person I found with the atypical version that tried the stimulator.  How bad was your pain?  For example I am taking 120mg daily of oxycontin and up to 120mg of oxycodone daily.  I have been reluctant to try the stimulator because the same place that screwed up the gasserion block would be the ones who do the stimulator.  Please let me know. 

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csowens, Community Member
12/14/10 6:17pm

Did you end up having the surgery? Please, please, please tell me that you found somewhere else to do the implant, rather than the same place that did the gasserion block!

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jasonryan, Community Member
12/12/11 11:44am

I'm not being a smart alec by saying this, but you say that you are on 120 mg of oxycontin and up to 120 mg of oxycodone daily.  Oxycontin and oxycodone are the same exact drug, oxycontin is just the name brand for oxycodone. So are you saying that you are on 120 mg of oxycontin (extended release) and on the oxycodone (instant release) for break-through pain? 

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cavcojoe, Community Member
12/ 2/09 3:20pm

I am having one put in on the 7th of December. The reason I am trying this is because I have been threw all other options. I have a lot of respect for the Doctors that I have been treating me. I have taking more pain meds then any 5 people should. The thing is when you are dealing with pain on the level that you are thinking of a stimulator being put in your body there is alot more thing to look at.  When you have pain you try to take pain meds to get some releif. In my case I have taking everything under the sun to try to get some relief and it has came down to this is the only other option I have. I am not just excited about the pain releif I am excited about less pain meds. As a person with the cronic pain we have to look at we are not the only person that the pain effects. Our families go threw a lot of pain but in a differant way. As a dad, husband, brother and son I would do anything to improve my families life. I know that there are risk but the benifits out way the risk. I would be happy to keep you posted on my implaint I am going to keep a journal on the surgery. The hard thing right now is the wait but it's right around the corner.

 

Thanks Man in pain.

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trika3000, Community Member
12/13/09 12:26pm

i would love to know how this went for you - just a few days after the surgery... my wife needs this done and we are in the process of finding a doctor to do it on Medicaid, and this is the last option for her as well.  hope you've already noticed some relief (?) and your recovery goes well - very true about the family experiencing this alongside their loved one, when you care so deeply it's difficult to see a person in so much continuous pain...

Thanks, married to a woman in pain 

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DeSalvo, Community Member
1/11/10 12:36pm

I too would like to know what your results you've had.  I hope they were excellent for you.   We are debating this stimulator as I type this.  What you wrote hit home exactly.  I would do anything to help my father.

 

Daughter of a man in pain :(

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vikingmom01, Community Member
5/ 2/10 10:36pm

I am reading your post quite a while after you wrote it...your situation sounds so much like my Mom's...she had back surgery in 1999...metal rods and screws in her back...and she has lived with chronic pain since then.  She has run the gambit of pain clinics and pain medications.  She's done hydrocodone, morphine, oxycotin...you name it.  Nothing helps. Now the pain doctor wants her to try the nuerostimulator....she already tried the TENS several years ago, so it's hard for her to get excited about this.  She's 82, and I worry about all the restrictions and the programming that goes along with the neurostimulator.

 

So, now I am wondering how you are doing?  Did the stimulator help your pain and limit your pain meds? 

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Jeweler, Community Member
1/10/10 10:35am

Yes, it is most definitely worth trying. Not everyone gets relief from a spinal nerve stimulator,but most do. Before I had mine implanted 3 years ago, the pain was so severe that I couldn't walk. I am by no means pain free, and I still need occasional nerve blocks, but I can walk and move around without the pain spikes sending me to the floor. The surgery is pretty much painless, and the stimulator is turned on and adjusted before you come completely out from under the anesthetic. Even if you only get a little pain relief, you won't be sorry you had it done.

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JLE, Community Member
1/22/10 12:12am

my husband just had this done this week and they damaged a nerve when inserting the implant and now he can barely walk. just use a tens unit when faced with pain.

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Marcia, Community Member
4/26/10 12:54pm

i had a stim implanted in rt. buttock.  Now just a few months later, pain is deep behind the main unit. They said piriformis muscle in but. so painful,  worse than the back pain I had before.  they want to move to my stomach. I think I just gonna say take it out!!!!!    Can you tell me where yours was implanted and which nerve and where nerve damage occurred????  Feel bad for u.  I/m in bed alot.  Very frustated, and can't find anyone with negative results, until this website.  Metronic doesn't want to tell you everything before its put it?    Do you agree?

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Maureen, Community Member
11/17/11 11:52am

I have had 2 spinal cord stimulators implanted. I was injured at work lifting a pt and trapped my sciatic nerve in the piraformis muscle. Subsequently had to have the piraformis muscle on the left taken out.  This exposes the sciatic nerve to everything as there is no long anything but tissue to protect it. So i had the first implant done and it became infected within 3 months- I was hospitalized for 31 days ended up with numerous GI issues that became permanent nad eventually had the device removed. In december I had a serious of nerve resections, then a peripheral implant done in April..In august I had the spinal implant done and am running with 18 leads from T12 to S1. I am out of the wheelchair for most of the time except walking distances and have returned to work a few hours per week. I am having an issue with the bone where they did the laminotomy and still have muscles spasms for which I take 1/2 a valium at night. This is an individual choice..howver for me it was the right choice.

 

Maureen

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susaninpain, Community Member
11/13/11 3:09am

could you please contact me?  i had a similar result and am researching nerve damage done by these stimulators and would like to talk to you about your results. 

Moderator's Note; Please do not post personal information such as email addresses and phone numbers.

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Marcia, Community Member
1/25/10 10:10pm

I have had 2 cervical fusions, & 2 lumbar fusions, with rods, plates, screws, from L2 to S1.  first lumbar 2006, did not work at all, then major surgery that took 8hrs in 2008.  After suffering after that surgery, and still not helping, kept complaining of back pain, and neurosurgeon & pain Management, with several nevre root injections and Epideral steroild injections, they decided upon  a neurostimulator.  Have been through so much. so much pain, so many surgeries and injections. I agreed to implanted neruostimulator in my left buttocks. leads up through spinal fluid to thoracic, and lumbar. Very painful after that surgery.  Pain in thoracic for 10 weeks because of leads.  anyway,  pain came back after l6 week in low back where generator for stim implanted.  So much pain, I can't deal very well.  In bed, 20 hrs. a day.  Stabbing. throbbing, pain in but, hip, down to knee and sometimes ankle.  Hurts when I cough, sneeze, etc.  Goin back to neurosurgeon, thursday, 28th of Jan.  Going to meet and discuss other options, like replace all of it and implant in different area., Stomach?????   I feel like l'm sitting of this generator and pressing on nerves, etc. I don't know. They did CAT scan, and tech said he would call surgeon, immediately.  Can't have MRI's anymore, because of the stim.   Know somethings very wrong.   Please, please, please, anyone with same kind of problem, let me Know.  Very depressing, do not want another surgery!!!!!!!

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bzerm01, Community Member
1/25/10 10:38pm

Marcia,

I can relate to the pain in the buttocks area where the generator is implanted.

i have mine in my right buttocks and I went back to ask what could be done and they suggested physical therapy but it didn't help.

I am not sure what to do either as i don't want another surgery either. I had 5 laminectomies from my T-12 to my L4 and have metal rods, screws and all and still have a lot of pain too. I had the stim implanted June 30, 2009 and it helped me for my legs and hip pain but it is now hurting me where the generator battery pack is located. I wish they wouldn't have implanted it in my buttocks a s it hurts to sit on it.

I hope you get some relief and please let me know what you find out.

 

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CHERYL, Community Member
6/15/10 6:59pm

TRY JESUS HE IS THE ANSWER

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jennamarie, Community Member
6/23/10 2:47pm

I truly believe that God is all .......and most powerful.....BUT THAT COMMENT IS RUDE   You OBVIOUSLY are NOT one of us that deal DAILY...minute by minute with the pain!!!     I pray ALL of the time,  what has happened to our bodys God did NOT do!!!   HE has put us here to do what we will with our bodies and then answer at the end....he can NOT help this pain...as I believe we have in a way done alot of it to ourselves...one little example:   All of the presertives in our foods that WE as humans have created for convenience and the all mighty dollar!!    Trust me...this is ONLY one of my examples...I have had 19 years as to ask why.....pray as hard as anyone....and no matter the reason  I AM ETERNALLY GRATEFUL TO GOD FOR THIS LIFE ..NO MATTER HOW DAMAGED!!!

 

BUT you most certainly sounded judgemental.....in the bible "JUDGE YE' AND YE' SHALL BE JUDGED!!!    Maybe I am speaking out of turn when I say I am close to positive WE ALL have been praying....God also gaves us the tools for these caring doctors who are TRYING to help us through our pain!!!! 

 

Pain is the issue here...I Thank God for the instruments he has given us to help us cope with the pain....that is so debilitating....humiliating at times..and to be just so so bad all you can do is cry!!  Then one more day passes..and we are still here to see our families and friends who loves us and are there for us as this what we need..........NOT someone who is NOT in our shoes and looks down their noses' at us as if!!!!!!!!!!!!!!!!!!

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bzerm01, Community Member
9/ 4/10 11:11pm

 

I have a deep faith in God and believe Jesus died for my my sins, but I also believe God has put Drs on this earth for a reason. I have lived through a lot of pain over the years and I have survived much. God has been there for me through all of it. I do pray daily for God to get me through each day. I consider myself a spiritual person. However, no amount of spirituality can remove the pain of neuropathy and the chronic pain that soars through my body from my failed back surgery syndrome and osteoporosis, scoliosis, spinal stenosis, arthritis, fibromylagia, and other musculo-skeletal problems and neurological problems I suffer. I too agree that the comment from Cheryl above sounded rude but possibly was not thought out. 

 

 I would like to think that she wasn't meaning to be rude but was trying to be helpful. However, it came out sounding rude. I would hope that this is the case. I am trying to deal with my pain one day at a time and the spinal stimulator was one of my last resorts after using narcotics for many years and dealing with memory loss and other side effects that were not pleasant. 

 

I was able to get totally off the narcotics by having this implant and now I am in pain but I am not having to turn to narcotics to deal with the pain anyway. Instead I turn up my stimulator when my feet start to burn or my legs hurt. I do have pain in my arms and upper back that is not covered by the stimulator but with the stimulator covering more than 50 % of my pain I can aleviate the other pain with the use of non narcotic medications.  Today I live with pain in my life every day but at least I can think and remember and I am alive. 

 

I have a head on my shoulders. I am more alert and my mind is not foggy from the narcotics.   I think the stimulator has helped in ways that are hard to calculate. 

 

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Amy000, Community Member
10/ 9/10 10:51pm

Trust the Lord and lean not on your own understanding.  Thank the Lord for giving mankind healing knowledge and technology.

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csowens, Community Member
12/14/10 6:24pm

My husband is a believer, and he loves and trusts the Lord with all of his heart. I am deeply offended and saddened by your comment. Jesus is the one helping him get through this. But, the Lord does let us endure things. If you were the one with the nerve pain, I don't think you would have said that. I'm the helpless wife, standing by, watching my husband go through his pain. I too am a believer. Never once would I dare to utter what you stated. The pain is real, the pain ruins people's lives, and I have to stand back and watch it. We draw our strength from the Lord, but do not expect the Lord to remove all of our earthly trials.

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tstan, Community Member
8/23/11 8:48pm

I don't think you took that the right way it was not offensive at all. thank the lord for guiding our medical professionals and giving them this ability and knowlege is what I believe this person was saying.

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Melissa, Community Member
12/28/10 4:45pm

No one should just "try" Jesus. He is the answer, but when He doesn't heal your pain what should you do? Just forget Him because you're not healed? Not a good comment.

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roxy, Community Member
5/ 7/12 6:14pm

yes i agree with youSmile

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moose, Community Member
3/22/10 9:01pm

I have it!! It helps me 100 percent more with than without. Before I couldn't hardly do house work, mow the yard, walk my dogs. Now I can do that and more. I would ask your neurosurgeon to use surgicial wires instead of the regular wires, they work best for me. I hurt my back in 1996 and I have had 4 back surgeries and the nerve stimulator by far has worked the best. Also research your Dr. before having this procedure done. Make sure he has done many implants and he is certified and all that. You don't want just anyone cutting on your back!!!

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gallahan42, Community Member
3/24/10 7:11am

I have secondary progressive ms.  I have had the trial for the stimulstor.  Satisfied with it except that it did not cover ankles and feet.  Going to have the implant within a week after I see the neurologist.

 

I currently have a Baclofen Pump which does nothing.  It's supposed to put muscle relaxers in legs so not stiff, but doesn't work.

 

Docotor told me not to expect 100% recovery, but about 50%.  I will be happy with that.  The pain goes all the way doewn the leg from the knee down.  Much worse in the right leg then the left, but both painful.  I have had chemo, morphine (had seizure), steriods and pain killers and nothing works.  I sure hope this does.

 

 

 

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Jean, Community Member
4/13/10 10:08pm

I have had the Medtronic Nerve Implant for a year, its given me back my life...I had been on the Fentanyl patch, most oral pain medication, and injections. I am not on any  pain medications..

I have had 3 back surgeries, which lasted about a year.

I can do most anything, with out pain, other then normal pain when you do more then a person should do.

I charge my battery most every day, easy to do, sit and read a book and charge the battery...

As I said earlier, its given me my life back... 

 

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luv2embroider, Community Member
12/29/10 9:20pm

I have the ANS which was implanted 4/22/10.  I am quite a different person with my ANS.  I can now get out and walk about a mile each day.  Prior to the implant, I was needing to use a power scooter to get around.  It's very exciting that I can get out and about with much less (about 60%) pain. 

I'm confused though why you charge your battery "most every day".  I charge weekly.  My battery indicator reads about 25-40% battery life remaining. 

I'm also wondering what the difference is with the medtronic generators vs the ANS products.  I have a friend who has a medtronic and he told me that his generator would never have to be replaced.  I was told to expect my battery to replaced every 3-5 yrs.

I'm also wondering if anyone has had issues with migrations and poor placement of the generator needing to be relocated.

Has anyone had issues with their implants following weight loss?  I'm confused if weight loss will lead to needing to relocate the lead because they "migrate" with weight loss. 

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joey, Community Member
12/30/10 7:00pm

i go in tue.1/4/11 for my trial,mine will be placed in neck due to my pain is in my arm.i have RSD /Lymphedema.i hope it works

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pauline, Community Member
1/13/11 8:33pm

Hi Joey, i was just reading ur post and by now u should have had ur stimulator put in for the RSD. I also have been diagnosed with RSD for the pain i suffer in my right knee following a knee surgery i had 2 years ago. I am wondering how it has worked for u as far as the RSD goes. My dr has suggested that i also have 1 implanted. i did try the trial and although there was an awful lot of pain in my back, it did seem to work some for the knee. However, after reading some of these posts, I am petrified to have it done and winde up with even more pain in different areas of my body or GOD forbid being paralyzed. I go tomorrow to discuss with my dr and I am really on the fence as 2 what road 2 take. Please let me know how u made out.

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michelerae53, Community Member
11/ 4/11 7:28pm

I am have the Medtronics stimulator implanted on the 20th and hope it is as successful as yours.  Thankfully I have lost most of the weight I needed to. have lost 65 pounds with only another 10 to go so hopefully will not have any migration issues.  Mine will be in the love handle area and not in the stomach which is good because of the looser skin in that area, or so I am told.  Please wish me luck.  If I could I would have a total body stimulator because of all my issues but will be content to get some lower body relief.  I hope you continue to be helped by yours.

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jacque, Community Member
9/ 8/11 5:05pm

I am considering having the trial then the implant. None of these reviews sound promising except yours. Was this outpatient surgery? Did you have staples or stitches? Also, sound like if it does not work it is hard to get approval from your insurance company to get it removed.

 

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Jean, Community Member
9/ 9/11 9:52am

Yes, I have wonderful luck with my implant..medtronic nerve stimulator, must have had stitches, had no problem with the surgery, I was awake though it, so they could tell where to set it.. I think maybe I was in the hosptial for about 4 hours, had no problem with recovery, my big surprise was getting into the car and it didn't hurt...no big recovery period for me..and my age is 78, have had this for 21/2 years...

good luck

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Marcia, Community Member
4/26/10 12:38pm

i had this device implanted in july, 2009.  I was desperate to have help with my chronic back pain. Surgeon said try it, it's your last hope.   I've had 4 major back surgerys. I'm 58.  First one cervical when I was 35.  Second, cervical, I was 45.  Next Lumbar surgery in 2006.   complete failed surgery,  pain got worse.  2nd lumbar surgery, fused from L2 to S1.  some better, but not great.   Time and pain it got worse,   then neurostimulator.  Trial  first.  I was allergic to tape on back, so I had to have it removed in 2 days. they said make a decesion, if you want perm. one implanted.  I did.  It took 2-3 months for pain in thoracic to go away.  my stim is implanted(the generator) in rt. buttock.  I'ts very noticable in tighter clothing. then in goes up thru dorsal spine column. After pain in thoracic went away, I started having pain in deep muscle tissue in but. Surgeon said, probably piriformis muscle.  Medtronic people did not say much.  Anyway, now just recently, after horrible pain in but, down thigh, to knee.  So painful. Sent me to physical therapy, and no help.  Now medtronic rep said could be caused from stim, because of the positioning of it.  Can't even stand to touch the area.  Crazy, and painful.  I'm so frustated.  They are now talking about taking it out and replace this device in my stomach.  I'm going to say, just take out.  I think for me, I would and wish I never had done it.  Too late now.  Another surgery, just what I did not want!!!!  Wish you all the best.   Email me, there's not alot of people to talk to

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Godezzofdreams, Community Member
4/28/10 10:31am

Anything for chronic pain is just about worth trying. However mine never worked for me. I am not sure if this was out of the normal range of pain. I have had 7 surgeries. This by far was the worst. Something happened to my other hip during the surgery. The pain was unreal. They sent me home, I should of never been allowed to leave that day. I blame the doctor and he was reported, my daughter did it. I have never  seen her fly into action like this. the doctor "ducked" me for 3 months, and I finally just left the practice. I am on medicare and the doctor told me the hospital had already lost enough money on me. If I wasn't Catholic, and this was a Catholic hospital, i would of sued.

On a brighter note, my sister had one put in, and for the post part it works for her. I am looking for a doctor currently to remove it. I refuse to go back to the same doctor. I slept with a stuffed lamb for weeks. the only way I went to sleep was out of sheer exhaustion. Please let me make this clear, I have had back problems for 27 years, and can handle more than my share of pain.

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mustardseed5, Community Member
5/ 8/10 1:34pm

I just had the scs implant last Thursday and I'm very happy with it. I would recommend anyone with pain to get one. They are very expensive so you might have to fight w/your insurance company. I had too fight for 2 years before I got mine. Good Luck

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lovelyles, Community Member
5/25/10 12:28pm

My fiancee had a neurostimulator put in on October 2009, she used it for about a week, and the device started causing her more pain and more pain. Since then we have been fighting with doctors to set up a appointment to get it taken out. But, she has been getting thrown around to 3 to 4 different doctors. Come to find out it NOT SI joint problems, she has teathered spinal cord syndrom and bursitis! Tell me about a really bad misdiagnosis... But at this moment as I am writing this, we are fighting with the surgon who put it in, to take it out. When at the point of getting it put in, the doctor told her that if she wanted it taken out, or if the device is causing her more pain, she can get it taken out. Now the doctor is calling all the other doctors to see if they want it taken out. Which I think is B.S! So, if they dont take it out, we are going to sue them. So personally, what I think... DO NOT GET IT DONE!!!!

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gncrzy, Community Member
6/ 3/10 12:26am

Hi I am new to all this well kind of but I got hurt 2/14/07 at work I fell and messed up my low back.Well on 6/5/08 I got my first operation and WOW what A ride it lasted 12 hours and in hospital for 10 days.Then the DR decided to remove all the hardwear on 12/11/08 because he thoght it was casusing me problems well after that my pain got worse really bad low back and right leg and foot pain I take 7.5-350 percoste 8 a day and 3 oxycoten 20mg aday and lyrica 3 aday and need sleeeping pills to sleep every night I even had to have an EMG of my back and leg and foot just to prove I had pain. Now I want to try A SCS I am really getting tieded of all this pain and taking these pills I am only 47 and on disabilty and was forced to retier. I finally have an APPT for 7/8/10 to see if this new DOC will install A SCS I need to try something this pain really drains meCry

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leslove, Community Member
6/ 3/10 12:34pm

I wouldnt do it. Personally.. Seeing what my love goes through everyday, is something I wouldnt wish on my worst enemy..

 

She is getting it removed Friday June 4th, after we threatened a law suit against the doctor who put it in..

 

Trust me, I wouldnt do it!!!

 

But thats my opinion.. I wouldnt do it. But then it might work for you...

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gncrzy, Community Member
6/ 3/10 7:45pm

Hi let me ask you what kind of pain did she have and how long did she have the pain before she tryed the SCS. Why would they not take it out with out a threat????

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Julie, Community Member
6/16/10 11:28am

I just began having a trial stimulator put in this Monday, June 14th.  I have had CRPS in my right foot for over two years following a broken 5th metatarsal.  I have been on multiple narcotics and prior to the trial I was on 60mg MScontin 3x/day which wasn't even touching my pain.  After having the trial stimulator in, I have to say that my pain that wasn't covered by the MScontin is now covered.  They were able to put a retrograde electrode that isolated my right foot only.  It feels like a mild tingling sensation.  I walked over 1.5 miles yesterday with hardly any pain for the first time in years!!  They also put in another electrode so I could try and see which on works better for me.  When I turn that one on, I feel tingling all through my right leg and my left. It doesn't feel good!! The stimulator allows you to try different programs and intensities in stimulation.  I can't wait to get my permanent stimulator.  I get this one out on Friday.  Hope this helps!! I've almost forgotten that I have pain in my foot.  I have also slept through the night for two nights now.  That is something I haven't done in ages!! 

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gncrzy, Community Member
6/16/10 5:16pm

Wow that sounds good I have sleeping problems also I have to take sleeping meds every night but the pain stills wakes me. Well let me ask you how long did it take the DOC to install it????? did you get to go home the same day or have to stay over night?????? and what did you feel like after the procedure. I am just trying to find things out to no what to expect I do have A appointment on july 8 to see if they will let me try one I hope they do I am really getting sick of this pain day in and day out.

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Julie, Community Member
6/21/10 11:21am

It took about 1.5 hours for them to put the electrodes into my back, but they put two electrodes in, not one so I could find out which one worked better for me. I got to go home the same day they put it in and after a good nap that afternoon, I was walking around and my foot felt awesome. I have remained on the same pain medication, which prior to the trial was at about a 7 and now with the stimulator my pain is down to a 2!!! I haven't had this little pain in over 2 years. I am getting it out today and bringing my cane with me. I am sooo bummed out!!! It will take about 4 weeks before I can get a permanent stimulator. After the procedure the only pain I really had was in my back. It was pretty painful for about 2 days, but now after 7 days I have very little back pain. Mostly irritation from the dressing they put on. I hope u get to try one, it is most successful for limb pain and it has worked a miracle on me. Let me know if u get scheduled for a trial. I would be glad to help u with any other questions you may have.

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gncrzy, Community Member
6/21/10 10:00pm

Hi again wow that sounds great. I hope that I get to try one. The pain in my right leg and foot is so bad I just cant stand it at times. I just want to get away from taking all these pain killers :(

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roxy, Community Member
5/ 7/12 6:35pm

Hi i am scheduled to get the trial in the morning,5/8/2012, would like to no if the procedure is painful?/

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G24man, Community Member
7/28/10 4:23pm

Hi,

 

     Yes, I have the spinal cord stimulator implanted. I have had trouble with it since it was put in. I had the test implant for 2 weeks & had several issues with it, including the loss of sensation with even the slightest movements sometimes. For every issue I had, I was told by my pain Dr. that the issue would go away with implantation. It has been 3 years & I still experience those same issues. I feel like I was lied to & that the Dr. told me these things because he was getting paid by the implant company for each patient who had the machine implanted. Whether it is true or not, that is how I feel.

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KATHY, Community Member
8/11/10 5:58pm

I HAD A FRIEND WHO JUST HAD IT DONE LAST WEEK AND SHE HAD TO HAVE IT REMOVED. IT WAS CAUSING HER MORE PAIN WHEN SHE HAD IT ON AND WHEN SHE TURNED IT OFF SHE HAD STARTED GETTING CHEST PAINS

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momof5, Community Member
8/21/10 1:16pm

Did they say what caused the Chest pain??

 

Can anyone explain to me what the difference is in the electroides that go into your spine..i finally got approval from insurance company.. Can anyone go over what to expect with Trial during the week its in...Nurse seems to act like its no biggie, i have 4 kids and 3 dogs..am i gonna be laid up or will i be able to do anything...?  Also alot of people have problems with it in their bottom, should i ask for itto be in my stomach?  all of this scares me but after all i have been through i can handle one week to see if i can get relief..

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gncrzy, Community Member
9/ 9/10 8:57pm

Hi

 I just had the temporary stimulator put in last Thursday it worked great. I have had 2 Failed back surgerys.I now have server low back pain with the pain down my right leg and foot.The stimulator took away 80% of my pain. The only problem was that it quit working after day 3.And also the nurses acted like no problem to me also you DO have to be awake during the temporary procedure the rep with the company does the adjusting of the thing.when they took mine out I kept it so if you would like to see what it looks like let me know

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wolfdream, Community Member
9/ 1/10 1:29am

I see this is an old post but hoping someone can give me some feedback. I have the trial stimulator (for 8 days now, have it for 14 total) and I have been miserable with back pain where they put the leads in. I was wondering if anyone else has had this issue?

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gncrzy, Community Member
9/ 9/10 9:00pm
Hi YES I did to.I have had mine taken out now for 2 days and it still hurts. Reply
wolfdream, Community Member
9/ 9/10 9:49pm

Really? Mine has been out for 2 days as well and still having issues. What did you decide as far as getting the perm stim?

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gncrzy, Community Member
9/ 9/10 9:54pm

Hi

 I am going to get the permant stimulator.Sounds like it will 2-2 1/2 months.Where did they put yours. Mine they put it just up from center of my back.

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wolfdream, Community Member
9/ 9/10 10:19pm

I have to wait a month to get mine. Then yeah it sounds like a very long down time after that. I sure hope it's worth it. They put mine way low in my back, just above my butt lol ( the nurse yelled at the dr not to put it in my tattoo). It's for my leg, I have RSD. The trial only gave me about 50-60% reduced pain as the leads moved so much. I am not thrilled about having the size of that battery placed in but I guess what do ya do. I take it yours is for back pain or something else?

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gncrzy, Community Member
9/ 9/10 10:38pm
Hi Yes I have had 2 fail back surgery's now I have low back pain with pain down my right leg into my foot.I got hurt at work so this is all WC. I am now permanently disabled and had to retire. When I had the temp stimulator in the only thing I didn't like was I was getting A bad tingling in my goring area so the rep said the permanent one would not do that then he messed with it and then he got it in my butt then it felt like my underwear and pants were waded up in my crack lololol well any way the rep said it would not do that either I told him I hope NOT. Its hell getting old how old are you i am 48 male I glad my kids are all over 18 well I guess the youngest is 18.We have A grandson and he is 2 and I cant even pick him up. Reply
wolfdream, Community Member
9/ 9/10 10:52pm

LMAO! Yeah I know nothing like have certain parts vibrating huh? Too funny! I couldn't turn the settings up very high as it irritated my pain more. But it did help with the aching and burning pain I get. And I didn't seem to get the cramps and spasms as often. It still blows my mind how something like that helps pain. I just turned 36 Tuesday and I have two girls. One is 12 and the other is 8 so thankfully they are able to do pretty much for themselves and can help me a little. But it doesn't make it easy when they are in so many activities. Ive been suffering for about 3yrs since my car accident. Just a little cut on my ankle and a tiny fracture in my foot and here I am. Haven't been able to work since but don't qualify for disability. All in all I still consider myself lucky. I could have been much worse off for as bad as the accident was. Completely totaled out my Trailblazer. Smacked right into a tree and bounced off so hard and spun around, ended up on the road going in the same direction I was headed. I hit ice and just lost it on my way to work so it was just me. The seatbelt cut my neck, they told me I was lucky it didn't cut my head right off. I thought I was fine and didn't even think the truck looked "that" bad. I mean I had seen worse but inside was a mess. Completely shifted the entire front end over and smushed the pedals.

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gncrzy, Community Member
9/ 9/10 11:06pm

Hi

 yea it sounds like it could have been alot worse.Is your work still holding your job?? you should be able to get disability I get it I know it was not easy they make it hard I think they do that so people will just say forget it then.They tuned me down the first time then I hired an attorney then I started getting it.I NOTICE out of all this medical crap you really have to pry info out of doctors to get all my questions answered . What company was your stimulator ??? Smile

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wolfdream, Community Member
9/ 9/10 11:11pm

Nope they only held my job for like 5 months or w/e they legally could. They still ask if I am coming back. I wish! Can't lift crap let alone go back to nurse aid. Yep they turned me down once and I have appealed but not heard anything. I think what is partially hurting me is I take online classes. I couldn't get any answers from Dr.'s for over a year and then they still didn't know what to do with me. It's ridiculous. Mine is from Medtronic.

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gncrzy, Community Member
9/ 9/10 11:19pm

So you have no income at all ?????? mine was medtronics also. I know when I got hurt at work I was getting WC checks then all of a sudden they shut them off I didnt know what I was going to do.

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sherrebevineau, Community Member
9/12/11 11:14pm

get a good lawyer .

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Jean, Community Member
9/23/10 11:52am

I had the nerve implant for back and leg pain...

Had the implant March 2009, works wonders, I have not had any pain medication since then...very little pain..

My surgery was with out pain, think maybe I was in recovery for about 3 hours and then came home, which was a 90 mile drive...both the test one and the permanent  one caused me no trouble...

Hope that it works for everyone that has back, leg pain.

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ROY JONES, Community Member
9/27/10 7:41pm

I have a neurostimulator implant for severe pain following a motorbike accident.Although there has been problems along the way,i have no regrets.I have side effects of electric shocks when coughing,sneezing,moving suddenly, or lying down,however its still worth having it done as i was on two opiates and drug out of my skull!Yes,its major surgery and yes there are risks,there also seem to be a variety of ways of providing the stimulation.There are at present only three centres in the uk that provides scs (spinal cord stimulation).I was operated on at the Walton centre at Fizakerley, Liverpool,this being the nearest centre to Derby.But its given me a new lease on life.Hope this helps Roy Jones, Derby U.K. 

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my fathers son, Community Member
9/28/10 9:08pm

My father (79) has chronic back pain and has been treated for a couple of years at various pain clinics. Recently they recommended the Spinal stimulator. We agreed to the trial, and they began getting authorization from the gods. 

 

In speaking with my wife, she reminded me of a friend who gradually lost the use of both hands and both legs, which was caused by the implant which apparently caused scar tissue and nerve damage. She recently underwent 14 hrs of surgery to remove the stimulator and clean up the mess, of course at her expense and the insurance company's expense.

 

Another lady was paralyzed by similar complications due to the implant. We have not heard from her in some time.

 

Another gentleman, similar situation, currently waiting for surgery to have the stimulator removed see what can be done for the damage.

 

Needless to say, we will not encourage my father to proceed with this until we can find that this information is misleading or false, or some assurance that it is safe and worth the initial pain.

 

On another note, pain management clinics seemed to have popped up like mushrooms over the past few years. I have yet to hear that any patient has gained anything more than the family doctor or other specific practices could prescribe. The pain management clinics seem to be a false hope for most. Or at most, manage prescribed narcotics to a higher dosage to allow a little more tolerance of the pain

 

What the pain management physician told me;

  The nerves send signals to the brain that something is wrong. Similar to a check engine light. In daddy's case, and apparently so many others, nothing can be done to resolve the problem short of risky surgery with uncertain results. So we know there is a problem, we can't fix it, so we don't need the check engine light to remind us. So they were going to attempt to block the nerves and stop the pain, similar to cutting the check engine light off to stop reminding us of a problem we know we can't fix.

  Well that sounded very promising to me. I went home and told my wife who suffers due to a broken back, nuts and bolts, etc. She too had some promise.

 

   But it did not work. 1 year of treatment. No success. The family doctor referred us to another "pain management clinic". After two visits, the prescribed treatment in detail, to be carried out by the same doctor we saw previously, which had already exhausted everything the second doctor prescribed. So then, came the suggestion for the stimulator, or surgery.

 

  To the neurologists and neurosurgeons, I can only imagine how complex the nervous system is, and how difficult it is to repair it or alter it. My hat is off to you. But if this practice is aware of the more severe problems, resulting from any type of surgery, wouldn't you let us know? Something more than, "with any surgery associated with the spine, there are always risks"?

 

  I would be very pleased if anyone could prove these claims to be false, so hopefully dad could improve quality of life before it is over.

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Jean, Community Member
9/29/10 12:08am

I had a Medtronic Nerve Stimulator implanted March 2009, it has worked wonders for me... the surgery was very easy, with in a couple hours I was on my way home..and in no pain...what a surprise I could get in a car with being in pain.

Its worth the try, it has given me back my life.

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Gina, Community Member
10/ 7/10 3:12pm

Hi.  I'm so glad I found this site.  I've been searching for all experiences with spinal stimulators, not just the success stories.  I want and need to know.  I am having a trial stimulator placed next Tuesday.  I will be 50 in 3 weeks and have been suffering from chronic pain due to untreated childhood lumbar scoliosis since I was 40.  My curve is 48 degrees which is moderate but not severe. I've seen a surgeon but he does not recommend fusion or rods for my condition because the prognosis for pain relief is poor. I take 1 Lyrica and 3 hydrocodone a day and really want to get off all meds.  The Medtronic is my last and only hope.  I've tried all non-surgical treatments and the pain is getting worse. I have prayed this stimulator will take the pain away and I can get off these pills.  I still work fulltime but sitting, standing, walking for long periods brings nothing but pain and exhaustion.  At the end of my day, I have little energy or tolerance for anything but my yoga exercises, a hot bath and 8 hours in bed, IF I can sleep. My life is still pretty active but it's hard to fully enjoy things when you're sleepy from pain pills and still in pain, waiting to pop the next...YUK.  I hate being in pain.  Hope this works.

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James Lee, Community Member
10/15/10 4:15pm

I have a Medtronic spinal cord stimulator and I have Many good things to say about it. I had a 37-year-old spinal fusion that failed. I was in excruciating pain, after giving up on getting any surgeon to repair the back, I went to a pain specialist. His comment after seeing the MRI and Ex-ray, was no surgeon is going to work on that back but I can fix it so you wont give a dam. After trying pain relief shots ( that is demanded before Medicare would pay on the stimulator) he had the stimulator installed temporarily for a three day trill, with the cords coming out of the back with the remote wired so I could adjust it. I could completely relive the pain and could walk with out any pain.

I had a model 37712 Medtronic spinal stimulator installed Feb. 29 2008 It works perfect, there is nothing showing (all under the skin), and a remote to put in my pocket.

The battery can be recharged at home and I do it twice a month. All I have to do is put the pre charged charger in bed and lay on it (so the charger is directly under the Stimulator), I can holed the remote control to see what condition the battery is in and start the charge. I normally go to sleep before it is charged (it takes about 1 Hr. for a full charge). When it is charged, it automatically turns off, when I get up I plug the charger into the wall socket to be recharged for the next time (it is plugged in all the time until I want to use it).

I have many adjustments available, one for night or day. I can add pain relief to any place lower than behind the heart and each side separate. Once I had a broken leg and turned it to that leg and walked in to the Dr. office & told him I thought I had a broken leg, he smiled and sent me to ex-ray. I held my leg up so the foot hung down, the Dr read the ex-ray and apologized to me for thinking, I wasn't hurting so how could I have a broken bone, the Ex-ray showed a ¼" between the bones. I also use it to relieve knee pain. It has been a very successful.

James Lee

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Gina, Community Member
10/26/10 11:46am

BE PREPARED:  this will be a detailed and cumbersome read so, here goes.

I had the trial Medtronic stimulator implanted one week ago today and had the wires removed yesterday. I was told taking the wires out would not be painful...LIARS. It felt the same as having a lumbar puncture while awake. I was also told I would have no pain and very little discomfort after the procedure. NOT.  I'll go into that later. 

 My conclusion however is, it did help some but not completely.  I was disappointed.  I was sold a bill of goods by my PMD and the Medtronic rep that I would be pain free and wouldn't need to take pain meds anymore. I've also read success stories from people and watched the DVD that came with the trial device and I thought, why didn't it work that well for me???  I thought this was THE answer!  I really only got 30% relief from it but I told my doctor and the PA yesterday that I got 50%.  Why?  Because to me, some pain relief is better than none and I'll take any relief I can.  I had to say 50% relief or insurance will not approve it.  During my 5 day trial period, I did find that I was able to stand for longer periods of time which was GOOD!  I did finally get fatigued and ached to the point I had to pop and hydroES and lay down for a few minutes.  The day after the trial was put in, I was told I could return to work and do all normal activities except bending, twisting and lifting. The drive to work was EXCRUTIATING.  Pain a 10.  Not only did I have my usual pain because I had to keep the unit turned off but I was having severe pain and muscle spasms due to the wires, running the entire length of my spine!  I had to pull over and wipe the sweat from my face and stop shaking.  I took two Advil and a pain pill which I had in my purse, just to make it to work.  That first day back at work was HORRIBLE.  The stimulator did not cover the area I needed either.  I was beginning to doubt I wanted to have the permanent.  Then, the rep met me at the PMD's office to adjust the settings.  My PMD was not there.  Go figure!  Where was he?  On a vacation, sailing in the Carribean!  Yah...that's right.  He left the day after he did my procedure.  Only his assistant, a PA, who is very inept and limited, was taking his calls.  The Medtronic rep became my lifeline.  If I had a problem, I called him.  He did manage to get me some coverage of my painful areas and by Saturday and Sunday, I became "close friends" with my trial device.  I even nicknamed him Buzz.  Any time the severe pain came on, I would adjust the buttons on my unit and say, "Buzz Lightyear to the rescue!".  That part was great. Did I still have to take pain meds?  Yes but not as often and when I did take them, they relieved the pain far better along with the stimulator than by themselves.  Now for the down side of the trial which you will need to know if you are thinking of doing this.  You cannot take a bath or wash your hair.  You can't BEND over the sink to brush your teeth or wash your face.  You have to squat gently and even then, it's difficult to get aimed over the sink. Washcloth P-T-A's do not refresh or cleanse a dirty body like a bath or shower. (Don't ask me to decode that acronym.  It's vulgar).  You will have what feels like a giant pillow taped to your back with a tender, painful lump under it that will remind you it's there, every time you sit back in a chair or car seat and every time someone touches you on the back.  One night, I was sleeping with Hans, my German Shepherd and he must have had a nightmare and kicked me right in the back! Mercy...pain like you wouldn't believe.  Poor Hans.  He licked me and barked he was sorry.  I of course forgave him.  Be aware that you will be shackled to an 8 oz. unit that comes with a flimsy clip you will have to wear around a sturdy belt to walk around with it. Wires emerging from the unit that lead to your back, will be left dangling dangerously at your hip, waiting to be caught on a door or hooked out by some other means.  Tape them to your body.  Use duck tape if you have to.  Mind you, if you are a man the belt clip is no problem.  But if you are a woman, you will have problems.  The clip finally broke on my unit so, my friend went out and bought me a fanny pack to put it in.  Much better.  Sleeping with Buzz was no picnic: like having a husband in bed only not as soft and doesn't snore. I rolled over on the unit multiple times and even with the tape, awoke to find wires tangled and disconnected from thrashing in my sleep.  I had to turn the buzzing off at night too because it became erratic and annoying.  I kept being awakened by "jolts" of current even with it turned on the lowest bar.  I probably averaged 10 hours of sleep in 5 days.  Not to mention, pain and soreness prevented me from laying on my back.  It was hard to get comfortable. Another problem I had was itching under the dressing.  It was soiled by bleeding.  My friend who is a surgeon changed the dressing for me after the 3rd day.  My doctor's office couldn't be reached.  So, with the trial out of my body, I have returned to my original pain level and have decided to go with the permanent implant to help with the pain.  I have lowered my expectations to include that I may have to take pain medications still; just less often and with greater efficacy.  There are some concerns: how to cope with the restrictions for three months, then the trials of having a foreign object implanted into my butt and the horror stories I have read about it not functioning after a while and also tolerance to the buzzing over a period of time. The PA was there at my follow-up yesterday to answer my questions and I was told by him that I would be given a return to work release 4 days after the implant and that it would be okay to drive and resume my regular duties since I am a nurse who works in a clinic.  He said the unit will cover most if not all of my pain and that I should return to work on the 4th day with little or no discomfort since it is a "minor outpatient procedure". He was very nonchalant about the recovery.  Once approved and healing takes place in the area where my wires were, I will have my permanent placed.  I was given a 2-4 week time frame.

I do worry.  I'd be lying if I said I was 100% confident that this will all be easy.  I certainly wasn't pain-free and comfortable during the trial. Unlike most who recieve a SCS, I have never had a back surgery so, this is all new to me.  How will I feel? Also, I asked the PA about returning to ballet and yoga after the 3 months and he said, I'd be fine because the scar tissue will have formed. I've read conflicting reports that once you have these leads placed, you can never put demands on your body with demanding and intense movements such as back arching, splits, jumping and drastic bending and twisting of the torso which are all the movements I wish to be doing again but couldn't because of my pain.  Will I dance again?  I do wonder...  I hope Mr. Physician Asst. is right. I do have doubts but I also have hope and a little hope and a little relief are better than none at all. 

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Peggy, Community Member
11/ 7/10 8:39pm

I read your post and felt like I should weigh in on this.  I had a neurostimulator implanted in my spine in 2003 for chronic ankle pain from a MVA .  I did not enjoy the "trial" time at all but was able to get up and out there and walk.  That was my instructions in order to know if it would help me when I was up on my feet and walking.  When I went in for the evaluation of the trial I had to be honest I didn't know if it was helping me or not.  The Dr. said how would you feel if I removed it then?  I thought about it and said I think I want to have it implanted.  That was 7 years ago.  I have not had any awkward moments.  I sleep on my stomach( was told not too) but don't know i'm doing it until I wake up.  I don't carry my stimulator control around my neck.  I set it for the strength I need when I am active and walking.  I just drop it in my purse and go on with my business.  I have not regretted this decision at all.  I had my ankle fused last year because of severe arthritis.  I am not going to have the implant removed.I suffered with chronic pain for over 20yrs. Did Acupuncture, pain management etc., The stimulator was a blessing and I am so glad I did it.  Just to remove that constant signal to my brain was worth it.  Did it remove it completely?  Some days yes, some days no. But overall well worth it...Good Luck.I ride bikes, swim, walk, yoga, dance.  I live a normal life.

 

 

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Gina, Community Member
11/ 8/10 12:29pm

Thanks for your encouraging post, Peggy.  It gave me hope that I will dance again and go back to a normal life. I'm looking forward to having mine put in. Pain is unbearable...meds do not help.  I just got approved for the permanent and am waiting for them to find which hospital is in network so they can do the procedure. 

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VLR, Community Member
11/ 8/10 9:46pm

Yes, I had the procedure done in April 2010 and it has worked a miracle in my life. I had a herniated disc in my neck which pinched the peripheral nerve in my neck; I had no feeling in my hands, was in constant intense pain, and I went through the trial and although it didn't work perfectly, it did the job.  However I've had much better results with the permanent implant and with the ability to adjust the unit I feel very confident that this will serve to keep me off the pain medications for many years to come.

 

 

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lee4163, Community Member
11/26/10 6:51pm

i had it and it worked for 20 days then it apparently failed

 

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Joanne Zielke, Community Member
12/ 3/10 6:51am

I had the spinal nerve stimulator implanted 2 weeks ago. I wish I had gone to this site before surgery. The pain from the incision in my back was unbearable...could not even get into or out of bed without help for 5 days. For the trial I was told I would be "drowsy and sedated but awake". What an absolute lie!!!! I told them at the hospital and Dr.s office that the anesthesiologist had better stay away from me for ANY procedure, he was useless and a disgrace to his profession and his oath of "do no harm". It was like being hit with a cattle prod over and over again for an hour and a half. The 5 day test gave me a lot of relief, did not have to take pain meds during the day, only 1 in the morning and another before bed. I decided to go ahead with the implant and it is NOT doing what it should to take away the pain. If I stand for more than 10 minutes the pain starts up and continues to get worse. The Medronics "salesman" can't seem to get a program working that gives me any help. He seems pissed off that I'm am so unhappy with this implant. I believe either the implant was placed in the wrong area in my spine or the programming is being done wrong. Why did the test go so well and after going through all the agony of this surgery I am not getting help with the pain?

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bzerm01, Community Member
12/ 4/10 11:09pm

I would call the medtronic tech again and have them try to program it differently. 

I know it has taken many different adjustments to get mine working and it still doesn't take all of my pain away but it does help most of it.  I will say that it has helped me get off of narcotics completely. I had my stimulator implanted on June 30 2009 and I have been free of any narcotic pain medicines since August 2009. I was using Fentynl patches prior to the implant so I have been helped by the medtronic stimulator. 

  I do have to have it adjusted at times as my pain changes. I get to where it feels like it isn't working for me any more and I think it should be removed but the medtronic tech changes the several modes and stuff and I do have 2 different programs to use on mine and one works for my upper legs and the other for my feet and below my knees.  This was changed the last time the tech set it up since I was having more burning pain in my feet from my neuropathy.. 

 

I so hope you find more relief and can get the tech to help you get it set up and programmed right since this can be a great tool and has helped me to maintain a drug free life. Good luck... 

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Recent implant, Community Member
12/24/10 10:59am

In November 2010 I had a trial neurostimulator  procedure and on December 20th I had a permanent stimulator implanted. I am still recovering from the incisions done during the implant surgery(outpatient).  Last night was the first full night of using the device all night.  This morning when I got out of bed I realized that I could stand upright without severe pain.

 

I'll be happy to answer your questions.  My situation for the last ten years has been a series of three neck and back surgeries, including a spinal fusion from L5 to S1.  I have been taking Dilaudid and methadone for chronic back pain for about 12-18 months.  I have become overweight by 25-30 lbs because of not being very active or being able to go to my fitness center.  Car trips of more than an hour are not possible.

 

Today I am very optimistic about the future.

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SmilePlenty, Community Member
1/10/11 9:02am

Just had permanent neurostim put in on Dec 6...4 days ago. Had auto injury in 2007 and was left with lumbar pain and neuropathy down R leg. Tried every non-invasive treatment...eventually getting lumbar fusion L5-S1. Pain intensified and loss function of right foot with hypersensitivty to airflow. I suffered 17 mo post op while having EMG's (yea) and my neurosurgeon told me it was inflammation. Trying to return to my career as an RN i sought help from the top RSD doctor in this country. He took one look at an old post-op xray I brought to the apt and he asked me to see another neurosurgeon as he pointed and said," that screw is into the nerveroot area" My original surgeon da ordered the xray to confirm fusion and placement...huh.  In the last four months I've had myelogram leading to hardware removal R side (could move toes that eve) then a trial neurostimulator implanted for 5 days. Good result for me. Then upon my begging (related to persistant back pain where remaining hardware was ..I'm 5'3" 115lb) I had L  side screws/rods removed. Then probably too soon....2 1/2 weeks later I had Permanent Neurostimulator placed. WOW ...ok I'm saying UNCLE! Haven't toyed with any setting as I will meet several times with co. representative as I heal. The surgery is no joke. Generator is in my L butt cheek and surgical site at thoracic region. U will need support system. I can't to diddly. Sitting ouch, walking ouch, getting out of bed...well u know. It's early... I must obey the restrictions to assure good permanent placement. I'm a doer. tuff. Am praying 2011 is year to get back to work..narcotic free and w/out the tens unit I wore everyday. No one will know I have this except those @ the airport hoping not to be held for possible "bomb" in my bottom cavity LOL. 

             

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wendykot, Community Member
1/25/11 2:26pm

i have had a stimulator since 06 and at first it was okay now its working its way closer to the skin and you can see it.If i sit in a chair i have to move often as it hurts the entire way around it. Just get a good doctor and you should be okay. It works for me and takes away the pain if it was just placed correctly i would be better. And you can try different settings for yourself also. But be warned it hurts like HELL to have the surgery 2 weeks down time for me (i do have rsd )through my entire body maybe it will okay for you

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Marie Helene, Community Member
1/30/11 6:15pm

I think you should try it.......that is the beauty of the spinal stimulator. You can wear it temporarily for a week and see if it helps you or not.

During the trial period a small slit is made into your epidural space and the leads from the stimulator are inserted. They will be free floating during the week and are attached to you with two sutures. You will have an outside battery/synchronizer pack that connects to the leads. In addition you will have a handheld regulator with which you can up or down the stimulation, according to your need. You hold it over the synchronizer and once synchronize with the leads in your back, can make changes.

I loved being able to try this before I committed to having it implanted. Where in medicine do you get the chance to do this? So........my advice, if you live with chronic pain like I did, give it a try. Nothing ventured, nothing gained, right?

I had my permanent implant on Tuesday. So far so good.

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clair, Community Member
2/10/11 9:07pm

hi guys

i had a 5 level lumbar operation nearly a year ago, since surgrey i have become worse, you name the drug ive been on it!! been on oxynorm for 17 months now and has no effect on my pain.

i currently tried an epidrual inject which failed :((

surely this implant will help??? i have appointment friday with my pain clinic and will ask to trial the implant....

cant take much more :((

good luck to you all xx 

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stewartreb, Community Member
4/16/11 9:29pm

I have a Spinal Cord Stimulator (SCS) that is wrapped around only one nerve that affects my left SI Joint.  I had too much scar tissue from previous spinal surgeries to place my SCS in my spinal column where it is really the most beneficial.  But, I could not imagine my pain levels today with having that implant.  It does not completely fix the pain but it makes it tolerable.  I was able to hold off the use of narcotic pain meeds for about 5 years after having this implant.  My spine is so screwed up as a result of severe scoliosis that I suffered as an adult.  I had scoliosis as an adolescent but when my growth spurt was over the curvature did not stop like it does for the majority of people.  So, I have suffered through 25 years of pain and 13 spinal surgeries.  I could go on and on about the junk I have been through but I bet you could as well.

 

Good Luck!

stewartreb

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Diana L., Community Member
4/26/11 11:51am

I just had one put in.  I don't know where you are doing this but ask a lot of questions!  I am seriously thinking about having it taken out.  Where I had mine done, they actually wake you up half way through the surgery to ask you if you can feel the stimulation and they adjust it which is excruciating pain.  I don't want to scare you but explore all options before you do this.  If you have never had an external one, maybe try that.  I had that done at the Chiropractor office and it always made my muscle much worse before they got better.

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Mingogal, Community Member
5/27/11 10:26pm

I had a trial spinal nerve stimulator the middle of May. I had the lead wires inserted with the control on the outside. The ANS company representative had me to come bakc two days later. I was not having any success. What it was doing was sending stimulation to both legs just from the knees down. The pain that I am having is on the left lower back and down the back of the leg that stops at the back of the knee. They took the wires out two days later, and told me that I was not a good candidate because i have had two back surgies. Now i still have the same chronic back pain plus something from the stimulator has caused the upper part of my back to hurt like a piercing pain, plus my knees now hurt from the stimulator where it was too strong. I did not have any pain on the right side- NOW I do.

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javaliz59, Community Member
5/31/11 10:20pm

Yes, I have had my Neurostimulator in place for 5 years now for treatment of cervical pain C6 to C3.  I am 51 y/o with severe osteoporosis in my spine as result of undiagnosed/untreated Celiac disease for 30+ years.  The wires run from my implanted generator in my right hip up my spine to C6 to C3.               In answer to your question, my Neurostimulator has been life changing.  It does not treat the pain nor cure what caused it.  Rather it tricks the body so you don't feel the pain.  For example, when you stub your toe, you feel the pain in your toe, but actually your brain felt the pain.  Pain receptors send the pain stimulus from your toe to your brain and then back again.  It's like a complete pathway.  The Neurostimulator works like an external TENS unit.  It "ties up" the first part of that pathway, much like a phone line (without call waiting of course).  So when your Neurostimulator is on, it keeps that pathway tied up so the pain can't get through.  This is an oversimplified explanantion, but hopefully explains why it works.  I understand it works better for some than others.  If you're thinking about it, I would advise trying a TENS unit first.  If you get good relief, you may be a candidate.  I would strongly advise a referral to a Pain Management Specialist that's experienced with Neurostimulators.  Good luck and hang in there. 

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javaliz59, Community Member
5/31/11 10:50pm

I forgot to mention that the actual implantation is v-e-r-y uncomfortable. My first procedure was in May 2006 and they had a very difficult time fitting the disc between my cervical vertebra as they're compressed together.  Two surgeons, alot of pushing, you get the picture.  And yes, they wake you up half way through the surgery to test the placement of the leads.  Here's the lowdown: 1. It's probably good I didn't know the extent of what I was in for ahead of time (I may have chickened out), 2. unfortunately I remember it (seriously, if any anesthesiologists are reading this, I have one word: Versed),  3. If I could have reached the doctor, I would have decked him.  4. would I do it again?  yes, one painful procedure = 5 years of relative relief.  Three days after the procedure, my stimulator stopped working.  X-rays revealed that the leads had worked themselves loose.  Fortunately for me, it was at the site of my generator and not in my cervical spine, so that was a relatively easy fix.  ***Once you have your Neurostim placed, remember, no more MRI's (self explanatory) and no more quick trips through airport security.  You will be getting up close and personal with airport security.  Also:  let your family, friends and co-workers know about your neurostimulator.  Should you ever have a medical emergency and EMS is called, and your Neurostim is turned on, it looks just like Atrial Fib on an EKG!  yikes!! Surprised**** P.S.  The internal batteries in the generator seem to last around 5 years depending on use.  My battery finally died and I've been without my Neurostim for 5 weeks now.  I'm really missing it!  I'm getting my new battery tomorrow (along with cervical facets, etc) and will be very glad to have my old friend back.   

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DISNEY44, Community Member
8/10/12 10:14am

Hi there i am Debs from Eastbourne, in England, i am44 this month, and i have severe chronic pain, i have just had Spinal Probe injections into the bottom of my lumber spine, i am in agony, and the day before my operation which was the 7th August, my back clicked and i couldnt walk, i was told i would be put out, but infact i felt the whole experience, which wasnt pleasant. i have 2 slipped discs L4 AND L5, have had chronic pain in my legs for over 10 years, have taken a high dosage of painkillers, i have now got morphine patches on now, and gone up my 5mg to 10mg, because the pain is bad, have had 2 hot water bottles around my back, not sleeping. I am on Tramadol, pregabalin, solpado, with codeine in too. This isnt backache like when u have done the gardening, this is constant pain. I have never heard of this what u have had, was it worth it, like i say just to have nopain for 1 day would be good.

 

I had morphine in my leg once when i had another operation, it was the best thing in the world, they wont give it to me telling me i am too young to have it.

 

Any advice give it to me, i would be very grateful

 

thanks  debs

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DISNEY44, Community Member
8/10/12 10:14am

Hi there i am Debs from Eastbourne, in England, i am44 this month, and i have severe chronic pain, i have just had Spinal Probe injections into the bottom of my lumber spine, i am in agony, and the day before my operation which was the 7th August, my back clicked and i couldnt walk, i was told i would be put out, but infact i felt the whole experience, which wasnt pleasant. i have 2 slipped discs L4 AND L5, have had chronic pain in my legs for over 10 years, have taken a high dosage of painkillers, i have now got morphine patches on now, and gone up my 5mg to 10mg, because the pain is bad, have had 2 hot water bottles around my back, not sleeping. I am on Tramadol, pregabalin, solpado, with codeine in too. This isnt backache like when u have done the gardening, this is constant pain. I have never heard of this what u have had, was it worth it, like i say just to have nopain for 1 day would be good.

 

I had morphine in my leg once when i had another operation, it was the best thing in the world, they wont give it to me telling me i am too young to have it.

 

Any advice give it to me, i would be very grateful

 

thanks  debs

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shemylifeforever09, Community Member
7/23/11 5:03am

yes,my wife has had this implant and it has been revised twice. the implant area is always hurting her and it feels like its gonna rip through her skin,she says that this procedure was the worst mistake she has ever made. she suffers from DDD and narrowing of the spine.shes always in conatsnt pain mostly from this implant,besides the every day pain of these two diseases. please think long and hard about this proceedure before going for it. i am a loving husband who has watched my wifes condition deteriorate rapidly since this proceedure was done on jan 17 2011, pleases do some research before jumping into a life of unbearable pain, thank you 

shes 

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WASHITA, Community Member
9/ 5/11 2:07pm

HAS ANYONE EVER HAD AN S.S.I. INSTALLED AT TEXAS TECH INTERNATIONAL PAIN CLINIC IN LUBBOCK TEXAS? IF SO, HOW WAS THE OUTCOME? PLEASE LET ME KNOW ASAP.I AM PLANNING ON HAVING THE IMPLANT DONE IN THE NEAR FUTURE.  THANKS FOR YOUR TIME AND INFORMATION. 

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WASHITA, Community Member
9/ 5/11 3:59pm

HAS ANYONE HAD THE A SPINAL NERVE STIMULATOR IMPLANT DONE AT TEXAS TECH UNIVERSITY INTERNATIONAL PAIN CLINIC ?  I WOULD APPRECIATE YOUR FEEDBACK ABOUT YOUR IMPROVEMENT{ IF ANY}. I AM CONSIDERING HAVING AN IMPLANT IN THE NEAR FUTURE. THANKS FOR YOUR INFO.

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sherrebevineau, Community Member
9/12/11 10:47pm

i can say this about mine when it works it works ,but i am about to have my second revision they seem to brake every two years .now they will use micro chips instead of the leads .

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gncrzy, Community Member
9/12/11 11:24pm

I have had one as of last October. I have chonice low back pain with right leg pain and top of right foot pain. The stimulator does cover up some of the pain so yes it does help BUT it does nothing for my low back. Also before you get the implant you will have to go thought A screening prosses first.

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Debbbie, Community Member
9/13/11 12:19pm

I have this spinal stimulator and have had it for 9 years. I had severe back pain and was on so much pain medication. I had the unit put in and within a couple weeks I was able to cut the amount of meds i took in half. My pain was so bad I thought I would have to go to using a wheel chair before long.  After having this done I was amazed the difference it made . I was even able to go bike riding with my kids, and work in my yard and garden. I  have never had any side  effects. It works great to control the pain. I have recommended it to several others and stand by it 100%.  I tell everyone who says they have back pain they should try it because of the sucess I have had. I don't know what I would do with out it.

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Ellie, Community Member
5/ 3/12 10:20pm
Hi Debbie, I am going to have the "trial" of a St Jude stimulator in about 3 weeks. After reading all the reviews, I am terrified!! My doc said it may not work on me or maybe 30%. From my shoulder blades to the bottom of my butt, I have chronic nerve pain constantly. I always feel like I am laying in a tub of boiling water. I have to lay on ice packs all day. I have no quality of life. I need open back spine surgery L4 to S1. I had laser spine surgery last March which made my pain worse as well as draining my savings acct ($15,000). I do not want to have open back surgery. I am currently going twice a week pool PT to build my core strength. NO pain meds, narcotics, fentanyl patches, etc. work on me because I have gastroparesis (my stomach does not work). How are you doing? What brand stimulator do you have? Were the procedures painful? Please tell me more. Reply
Charlene wimberly, Community Member
9/28/11 10:46pm
I had one implanted in North Florida Medical in Gainesville Florida back inMay/2011.all went bad. I has a hemotomia and pressure started on spine and paralyzed me until removed...same day. I just went in SHands Hospital in Gainesville and all went according to procedure. You get what you pay for but I did not know better. I will go back the 11th of October to have turned on and I am certain all will g Be wonderful. No worries. Make sure you have Dr. Kelley Foote at SHands UF Florida in Gainesville. BIG DIFFERENCE! He comes very highly recommended as he did Michael J fox stimulator for his Parkinson's disease. You will be in good hands and they understand pain and will keep you comfortable. You may contact me at 850-27-4230! Carlene Reply
Richard, Community Member
9/29/11 3:49pm

I had one implanted in 2001. Mine has been great. I had the pain down my right leg. It got rid of the pain 90%. I could walk and felt good again. At first I kept it turned on all day, then I found a few hours would get rid of the pain. 10 years and the battery is still working. I figure any time I may have to have the replacement surgery as the battery will run out. I have a friend who had one and said it did not help him, so he had it removed. So you never know, but it is worth a try if you have this type pain. .

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kathy, Community Member
11/ 7/11 12:52pm

yes,i just went thru the 5 day trial with the stimulator worked great on my leggs the sensation it gives off makes the pain go away. i would highly recomend it for pain works great.

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hahn, Community Member
11/29/11 7:19pm

I had one about five years ago. It didn't work right for me. I had chronic neck pain and arm pain. I don't know what went wrong but it stimulated my legs not my arms. It was removed the same day. After all the meds I have taken  for my pain I might give the stimulator another try.

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Anna, Community Member
12/ 9/11 5:52pm

Yes, I have a neurostimulator inplant on 11.16.2011 and so far not working as well as I would like, yet, but I think it may in time,time heals remembe, but it has not been that long, I have two leads(wires) in the epidural space of my spine L4 to L9 for lower back pain, then on the left side of my buttocks the stimulator, I feel massaging motion and stimulation  in place of the pain until I try to cook and stand for periods of time.I pray that that it gets better.I want to say I actually have  great doctor that cares and listens, Saint Jude medical reprograms if ever I need it to make it more confortable for me, so yes I will recommend highly.

 

God Bless!!

Anna,GA

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kingstew, Community Member
12/13/11 6:55pm

Thanks for your reply. I had forgot about this posting as I had the stimulator installed over a year ago.  It is a cranial neurostimulator that actually goes inside my head with the electrodes stimulating the brain.  It is a fairly new procedure. I actually had it done twice as the first time the electrodes were not placed correctly.  So far no settings have worked.  Anyway, just in case anyone else sees my original question please know I have had my procedure done.  Also, if anyone else is thinking of having my type of stimulator installed please feel free to reply to me and ask me your questions.

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S Miller, Community Member
1/ 8/12 3:26pm

I have had an internal spinal stimulator implant since 09/1997 and have received significant pain relief from the device since. I have had more than 6 back surgeries with significant neuropathy in both legs. Although I do still use various pain medications to supplement the device, my usage is a lot less and my quality of life had improved significantly. As I have read many responses to this question it seems to me that those that have the implant inserted have either misunderstood the function of the device or were misled. The stimulator implant does not eliminate any pain experienced, rather it works to create a stimulated sensation that is more comfortable than your pain sensation and you focus on that instead of your pain. Having had the implant since 1997, I can say that this is definately so for me, as It allows me to carry on with many things in life that I would not be able to do if I just had my nerve pain to focus on. Yes there are risks and unless you have the version where you recharge nightly with a plug-in device worn like a belt, you will have to have the battery replaced (surgery) every 3-5 years. I have had 4 battery replacements since I had my device implanted in 09/1997 and the latest one (last week) lasted me almost 7 years. Good Luck!

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zeeus, Community Member
2/29/12 6:14pm

i had a stimulator put in jul/2011 st.jude medical was the permant  one.once   put in the stimulator would not reach my lower back where the main pain is.

note-before you do anything demand to see what they are installing too inclued every thing& explain  any differences the temporay&permanant.they put mine in the wrong place & told me i would have to have another operation at my exspence of course.now i have a peice of junk in my back not any good to any one

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Liz, Community Member
3/14/12 11:53am

hello, I had the spinal stimulator trial yesterday, a little more pain than I expepted,although the pain in my legs have subsided I dont feel and relief from my back yet. Im thinking its becauce of the surgery site is so tender. my husband says ive got to give it a few days, I supposse hes right. I let you know how Im doing in a week weather Im going to make it perment.

 

 

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twania daniels, Community Member
4/ 2/12 5:31pm

If I would've know then what I know now I would have done this a long time ago.

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Adam K, Community Member
4/21/12 12:17am
I have had my stim for over a year now and not happy not only has the pain not got better at all but new pains in groin when I use it and now it has stopped working all together. Six surgerys this was last straw and not one I would try again if I could go back I am 35 and with 3 boys I will try anything to make it to play with my kids but so far NOTHING so my vote is DON'T BOTHER Reply
bzerm01, Community Member
4/23/12 9:35am

Adam, Have you tried having your stim adjusted. It sounds like you need an adjustment if you are having pain in the groin when it is turned on. I have had mine adjusted many times. I used to have pain in my right lower abdomen and that is not where the stim was supposed to go but when they put the leads in there are many leads and the specialists can set the stim to work for the correct areas of your body. I have a medtronic stim and all I have to do is contact a medtronic rep or my pain clinic and they will come and adjust mine so it works better. Good luck. 

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sidtoe, Community Member
4/25/12 4:00pm

Now we are looking at an implant.  Can any one tell me what kind of recovery time we are talking. What are the limitations and for how long. Four grandchildern keep you moving and I don't want to miss one single minute of it,

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Bri, Community Member
5/ 1/12 9:29am

I am on trial day 6 and this stimulator is not doing the trick for me!!! It is a wonderful oppertunity to be able to test drive it before committing, however. It may work for some, but I am not the one!

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Nan, Community Member
5/ 2/12 10:49pm

Hi, I just found your message. Did you ever get the Neurostimulator implant? I got mines almost 3 weeks ago and it's heaven for me. It does take time to recuperate from the surgery but, it's worth it. I used to have alot of pain under my feets and throughout my both legs and my lower back and have been feeling better since i had that done. Hope that you decided to have it done. If not, go for it. I did and I don't regret it. Have a nice evening. NanLaughing

 

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louie, Community Member
5/10/12 9:22am

Had mine put in just before christmas was the worst thing i ever did,does nothing at all for the pain,was a 30,000$ mistake,the recovery process was very painful,6months later if you touch it very hard or bump it on anything it hurts like hell, very touchy and they dont put the unit in your back like a lot of these adds say they put it in your butt and you get a very ugly scar. Am waiting to see the removel adds on tv where the lawyers talk about sueing drs. so i can get on the list !!!!:(  Louie

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wayne, Community Member
7/16/12 7:20pm

I had a back stemulator put in back in Aug.12,2011. I was released from the hospital knowing that the unit did not work. I called back up the Dr. Yamanchillis office to let them know that it dose not work. Well the girl that ansrewed the phone was his assistent. So when i started to tell her about what the stemulator was doing and needs to get me back in for sergery to make it right. She toll me that in this office isn't the way they do things. i have to wait until the follow-up oppointment. I also called St. judes the org. that owns the unit. I seen two people from the place and they too could see that it was not working right. I had two stems in my upper back and the one on my right never worked from day one. well now conitue too my next problem with this unit. The battery that was suppose to be placed in my left buttocks in two weeks started riding up on my pelvic girth causing even more pain. I could not get the office to call me back with my problem untel i got ahold of the insurance company and got them involve. At that time is when they made me an apointment on july 2,2012 to have this unit removed. I went through alot of pain before anyone would hear me. I now need a good lawyer here in Delaware. Can anyone help me?

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Paul, Community Member
7/29/12 1:37pm

I just received one thursday, it's like a tens unit except it's internal I am still feeling pain due to the surgery itself, as for the pain I usally feel from my back and that runs through my entire right leg, It seems to have helped somewhat .. I am on a week trial to see if it helps the doctors want to know that it has help 50 percent before they go ahead with the permanent implant. I'll share the results at the end of the week to let you know. your doctor should have informed you that you can get the implant on a trial basis for a week to see if it works in getting rid of your pain

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Brian, Community Member
8/ 8/12 4:37pm

Hell My name is Brian best

 I have had the spinal nerve stimulator inplanted I would lokve to speek with you if you wish about this procedure, there are complications and relults. I would be able to explain mre in detail over a phone or confrence call to fully explain what  has happend and before you make a final decision and get frustrated. here is my number (813)994-0295 feel free to call me anytime before 10pm est.. thank you. also if you know anyone else that is interested please have them call me..there are some do's and don'ts that you need to know that the reps and doctors don't let their patence know,,,

 

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DISNEY44, Community Member
8/10/12 9:57am

Hi there my name is Debs from Eastbourne in England, i am 44 this month, and i suffer with severe chronic pain in my legs, this is constant pain every single second of the day, even my doctor said yesterday, your body gets used to these tablets after a while, i said i appreciate that, but i cant get up without them, i am no on patches on my skin. I have 2 slipped Discs L4 AND L5,

 

I was speaking to a consultant, i said i know i am been cheeky do u know anyone who deals with pain, i have had this over 10 years, and i am sick and tired of been told to go away and live with it, its not right to live with so much pain, he said my best pal, he a surgeon too, so this is how it all started.

 

I had spinal probe injections in my back i wasnt asleep, i felt them go in, i am in pain, i only had them done on Tuesday, i have just looked at the date u sent this it was 2009, have u had any luck. love debs

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tania, Community Member
9/ 4/12 5:36am

It is my understanding that the cords go into the intervertebral spaces, with 2 leads on each side of the spine.  My doctor did not explain it to me (maybe he did in Korean).  Fortunatinely, I can read, but he didn't tell me we were going to do the procedure.  Never told me, never asked my permission.  I have virtually no intervertebral space, so I can only assume he was trying to put the leads thru the GD bone!  I have been through many horrible procedures, and this tops it.  The doc kept yelling  "more morphine"  "more valium" to cover his his incompetence.  Believe me, I am NOT a sissy.  I walked around all weekend with 2 wires bouncing against my butt till I could get back to the office.  Medicare was $25,000 for this fiasco, while I SHOULD HAVE BEEN PAID.

Tania Elliott

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

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scrappyj, Community Member
9/17/12 6:15am

I had mine put in six years ago and it has been a good trhing for me it has helped with the leg pain . I am having the one that is there took out and a new one put in because one side has stop working if I get the releave from this one like I did the first one  I will be very happy. I would tell anyone to at least try it

 

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NEKOLE, Community Member
9/21/12 11:19pm

YES I DID MINE AT WEST JEFFERSON HOSPITAL IN NEW ORLEANS LA JAN 16TH OF 2012 DR ERICH RICHETER WAS THE DOCTOR AND YES IT IS WELL WORTH IT . I WAS HAVEING HEADACHES SO BAD THAT I WOULD BE BLIND AND PARALIZED MULTIPLE TIMES A YEAR , THE ONLY DRAW BACK FOR ME IS THAT THEY BUT MY BATTERY PACK IN MY UPPER CHEST  I SHOULD HAVE BUT IT IN MY LOWER BACK INSTEAD, IF YOU WOULD LIKE MORE INFO YOU ARE MORE THAN WELCOME TO CONTACT ME AT BYNEKOLE@AOL.COM

BEST OF LUCK TO YOU

 

 

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NEKOLE, Community Member
9/21/12 11:19pm

YES I DID MINE AT WEST JEFFERSON HOSPITAL IN NEW ORLEANS LA JAN 16TH OF 2012 DR ERICH RICHETER WAS THE DOCTOR AND YES IT IS WELL WORTH IT . I WAS HAVEING HEADACHES SO BAD THAT I WOULD BE BLIND AND PARALIZED MULTIPLE TIMES A YEAR , THE ONLY DRAW BACK FOR ME IS THAT THEY BUT MY BATTERY PACK IN MY UPPER CHEST  I SHOULD HAVE BUT IT IN MY LOWER BACK INSTEAD, IF YOU WOULD LIKE MORE INFO YOU ARE MORE THAN WELCOME TO CONTACT ME AT BYNEKOLE@AOL.COM

BEST OF LUCK TO YOU

 

 

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Karebear, Community Member
10/27/12 9:53am

Hi I'm Karen, I have a Dr appt on Oct 30th to start to discuss this stimutlator. So I read everyone's answer's, but my question is they told me it would not help my back pain. They said it would only help my leg pain, but not my nerve damage in my feet. I have had 3 terrible back surergies all in same area l4 l5/s1. Also many knee surgies. I have lots of hip problems or if it is just due to all the pain I have. So I guess Is this thing even worth bothering with or should I just stay on all this damn meds. I guess I am asking you all since my husband doesn't know what I am talking about since he doesn't have any pain. I am also 35 yrs old. I am sick of this pain. So by the way the drs weren't clear on telling me I needed to speak to a skrink either and it would take 2-4 months before I would even have this done. Can anyone help me?

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Tk, Community Member
12/14/12 3:04pm
I just had mine put in Thursday it work great so far the trial was easy and painless I was awake for the hole thing the only sucky thing is all the tape holding my Leeds to my back Reply
scarlettsdad, Community Member
12/29/12 8:55pm

Unfortunately I haven't had much luck with my lumbar spinal stimulator so far.  My pain management doctor said this was the last thing to try for my chronic pain so I said let's do it.  The first implant in September was a dud--it kept saying the battery needed to be charged.  Only the second time this has happened with the company (St. Jude).  So I had to have that battery removed in October in a second surgery went went fairly smoothly as far as surgeries go, but in November I had to go through airport security and even though I showed them my card and said I'd prefer to be wanded they literally pushed me through the body scanner saying, "We do this all the time."  Two days later I start getting excrutiating pains over my battery area.  When I got back home the battery tested fine, so it's not known if the scanner affected it or not.  Only answer was to remove THAT battery and try it in a different area away from the nerves in my back which are sensitive.  So yesterday I had surgery #3, with the new battery placed in my front abdominal area instead of my hip.  I haven't been able to try it out yet since I'm still too sore from the operation.  But if this one doesn't work, the surgeon says three strikes and you're out--but since he also agreed that this is the last and best chance for reducing my pain, he wanted to try one more time.  I would say my situation has probably been pretty unusual, but it does give one pause.  I've heard about a lot of people who have gotten great relief from the stimulator, but so far I've only gotten additional pain from  it. Frown

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dee dee, Community Member
12/30/12 10:35pm

 

my 83 year old mother that has had spinal fusions had one implanted 6 months ago and it has helped her tremendously. i say go for it.

 

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Ron, Community Member
1/10/13 11:24am
Yes I have had the neurostimulator for over 2years now. It does make a difference in the pain level I feel now. But It DOES NOT make it all feel better. I have to turn mine up to such a high level before it will block all the pain. At this high of a level, it does put a lot of restrictions on what you can do as far as daily functioning. It doesn't feel like a gentle massage like they tell you. It feels like a form of shock therapy. Which it really is. I have learned to live with feeling this sensation instead of the chronic pain I felt before. I personally like mine NOW. it takes a while to get it tuned into the right area before you can begin to feel a decrease in pain. You must be patient and stay on your doctor to get it adjusted right. It can make a difference in your life. But remember. It doesn't fix anything. It only masks the pain. You will need to adjust it for everything you do. From lying flat on your back while taking a soak in a bath. to sitting up in your car seat to drive. They tell you to turn it off while driving. But I have to leave mine on all the time despite what they say. Good luck to you and I hope you find relief. It's a sad world with out relief. Ron Reply
Sandra Blankenship, Community Member
1/12/13 10:24pm

I have had 5 spine surgerys and I also have nerve damage to the left leg. Ihave a implanted pain pump. They have tried about everything in my pump form Priailit to morphone. They are trying opana in y pump now. Dr. James  at the Cr\arolina Pain Center, said that I am the first person in the world to try this drug in a pain pump. I can't tell the difference in ly pain level. I wish I could go to a doctor and he runs his own MRI"S and CT"S  scans and try to help me and not go by what other doctors say. I have lover back pain where is feels that my back is going ot break in half and the leg pain is so bad.  I can only tell you to keep trying there has to be something out there to help us. If you do please keep me in mind. My prayers are with you and your monther. Sandra Blankenship

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Tony A Brumley, Community Member
1/13/13 12:17pm

Sandra I Like Ron had the Nerve Stimulator put in about 1 year ago . Worked great for a short time. I agree with basically what Ron told you. I can not recomend the Stimulator.

 Still on pain pills and in pain most of the time. Spend a lot of time lying down.

Constant pain can really take its  toll on you physically and mentally cant it.

 I have had two back surgerys, last one was a three level lumbar fusion. So I can relate to what you are going thru. Hang in there Girl, You are not alone. There are those of us that know what you are going thru. Tony Brumley

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Sandra Blankenship, Community Member
1/12/13 10:24pm

I have had 5 spine surgerys and I also have nerve damage to the left leg. Ihave a implanted pain pump. They have tried about everything in my pump form Priailit to morphone. They are trying opana in y pump now. Dr. James  at the Cr\arolina Pain Center, said that I am the first person in the world to try this drug in a pain pump. I can't tell the difference in ly pain level. I wish I could go to a doctor and he runs his own MRI"S and CT"S  scans and try to help me and not go by what other doctors say. I have lover back pain where is feels that my back is going ot break in half and the leg pain is so bad.  I can only tell you to keep trying there has to be something out there to help us. If you do please keep me in mind. My prayers are with you and your monther. Sandra Blankenship

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Sandra Blankenship, Community Member
1/12/13 10:41pm

With all the hardware in my back it was major surgery for me to have it put in and took out. I hope it helps your mother. Sandra

 

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SPYDERGT, Community Member
1/14/13 5:13pm

I had the neurostimulator implant in November 2009.  I am a medical transcriptionist, so I am a production typist.  I do not notice that it helps me and it cost my insurance company $30,000.  I am having mine taken out because I can't get an MRI for my back problems. So this helps. 

 

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SPYDERGT, Community Member
1/14/13 5:13pm

I had the neurostimulator implant in November 2009.  I am a medical transcriptionist, so I am a production typist.  I do not notice that it helps me and it cost my insurance company $30,000.  I am having mine taken out because I can't get an MRI for my back problems. So this helps. 

 

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Sandra Blankenship, Community Member
1/17/13 2:05pm

I'm walking om thin ice here!! When I'm honest and to the point some get affended.  Some people have good luck with this type of stimulator. I on the other hand,  It caused me more harm. I got an infection, within 3 weeks I was back in surgery and on deaths bed. I was in the hospital for a long time. I came home on iv's and under infective diease center! It took 6 months to get on my feet good! Best of luck!

 

 

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Sandra Blankenship, Community Member
1/17/13 2:09pm

Yes I have. I got an infection and in 3 weeks was back in surgery and about died. Research, Research, Research

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Deedman, Community Member
5/13/13 8:31pm

Deedman,

   I have a stimulator implant and I would suggest that it be done. Although I am having trouble with my unit I am trying to get it replaced. I have a short in my back and it shocks me if I move the wrong way while it is on. It also has come on with the magnetic strip from the freezer doors at Walmart and I have had it turn itself on as I was walking througha security check at a department store.( I was walking in so I turned around to get my remote and turn it off.) There is a small motherboard inside the battery that can malfunction causing problems. Usually the manufacters will make it right. After all, it is man made so there will be mistakes. Dispite everything I have gone through with my stimulator I am looking forward to having the new one installed. It is far better that having to take narcotics for the pain.

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KATHLEEN, Community Member
5/14/13 11:44am

Yes,  have an implant in my right top of my butt and the wires go up my back into my head. It worked for six months and stopped, now I have wires coming out of my head and scar tissue on my neck that hurts like the migraine pain. I need to have it removed. It feels strange all over my head when I lay down. Don't do it is my advice. I have heard of a lot of people with corrouded wires and they have them replaced. I want this out. My migraines are back and just as bad as before. This is a sickening feeling I can't even explain.

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Joce, Community Member
11/28/13 1:15pm

I had the stimuler implanted 9/12 and have gotten a lot of relief from my back pain (2 previous back surgeries).  The only problem I have is the techs can not set the programs to where my right leg does not tingle all the time- this tends to make me unstable on my feet.....but no pain unless I overdo when working around the house.  I turn it off at night so stimulation does not bother my sleep.  Mine is a Boston Scientfic and was implanted by a neurosurgeon  Right now I am having pain under the stimulator - Dr. feels I tore the scar tissue loose from the stimultor when I overstressed while exercising. It is gradulatly getting better as it heals, but stilll no pain in the usual area across back and into right thigh.  Wish I had done this a long time ago,

 

 

  

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jayne isaacs, Community Member
12/ 6/13 2:48am

read up on this anywhere u can! i wish i would have researched it more! BUT some people it has helped but unfortunetly I am not 1 of them. I am going to hosp. 12/9 to have a revision on the battery pack that was placed in my belly. df. has told me it wasnt placed deep enough? !! Since i have had it i have had unbareable stomach cramps like labor, thought i was also going thru menopause. after i ahve spent 3 hrs, reading the few pros and the many cons i am having it removed. but tha call is yours to make please research extensively! 

good luck,

jayne in ohio

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Still in Agony, Community Member
12/ 6/13 1:20pm

DON'T DO IT! I had one implanted in my neck recently and have been in agony ever since. Try Lidocaine or Ketamine infusions first. I wasn't told it would entail a 3 level laminectomy and have been having constant neck pain, shoulder pain, back pain, arm pain and daily heaadaches ever since. My nerve pain is now worse and apparently has spread to other parts of my body. I'm planning to have it removed - although the damage to me neck is not irreversible. Representatives from the companies come on to these forums and try to tell you how wonderful these devices are. Don't be fooled. The device apparently isn't even approved for cervical placement. Now the only thing that may help me is fusion but my doctor doesn't recommend that drastic step because of the limitations and complications that may result - and the fact that he can't guarantee I will get any relief once my neck is fused. I'm now trying to get into the pain management doctor in Philadelphia who offers the Lidocaine and Ketamine treatments - there's a two year waiting list! Good luck.

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Still in Agony, Community Member
12/ 6/13 1:25pm

Oops. The damage to my neck is irreversible.

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aBonjour, Community Member
4/10/14 5:49pm

I am L2 ASIA B, 10/2004, with no pain for my first two years, until nerves regenerated in my legs, feet, and my rump. Then it ramped up into extreme nueropathic pain. "On a scale of 1 to 10, aboout 30-35." I am thankful for my Stim, as it cuts off about 50% of my pain. Sealed  Side effect is that when on, where my terminal strip floats, it also reaches muscle control nerves, and tenses up my muscles, making them hard to walk (Yes, I have recovered enough that I now can walk short distances [in & out stores, church, etc.] with fore-arm crutches and AFO's.) I turn it off when I am ready to get up and ambulate, then back on when I sit.

 

50% is a LOT. It is not all, but it does help a good deal. Difficulty is that no one really knows where it will position once they place it and stitch you back up.

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By bzerm01, Community Member— Last Modified: 04/17/14, First Published: 04/11/09