• mmtermite mmtermite
    January 07, 2010
    Does anyone else have problems taking Lyrica?
    mmtermite mmtermite
    January 07, 2010

    Until last week I had been taking Lyrica.  I was nauseated almost all day, had even more back pain, and the worst bad attitude I've had in a long time.  The doc pulled me off it right away.  Has this happened to anyone else?  He first put me on a trial of a drug called Savell which seemed to really work.  It did until my insurance company said they would only cover Lyrica combined with Cymbalta.  Has anyone else been taking Savella?  If so, have you had any side effects?  I feel much better now that I don't feel like I've had the flu for the last 4 weeks.  Any feed back would be GREATLY APPRECIATED.

     

     

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  • Diana January 08, 2010
    Diana
    January 08, 2010

    My mom is now CRAZY due to LYRICA!!!!! Im not sure how long its gonna stay in her system but this has been the worst thing ever!!!!!!! She talks crazy stuff ...off the wall crap...she has fell..well Ive lost count .....Im just not sure how long it will stay in her system....She was taking 100 mg 4 x a day!! which is wayyyyyy tooo much and took her off them yesterday!!! Do you know anything more???? I beginning to think I will never get her back!!!

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    • mmtermite
      January 09, 2010
      mmtermite
      January 09, 2010

      I seemed to feel better almost immediately.  It seemed in my case, everyone is different, that I felt more like myself in a couple of days.  Is your mother elderly?  It seems as though medications have more severe side effects the older you are.  I would absolutely get in touch with the doctor, even if it just to let him/her know that she has stopped taking them.  I was started at 50mg 4x a day and he increased it to 100 mg 4x a day.  Hope this helps.

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    • Diana
      January 10, 2010
      Diana
      January 10, 2010

      Thank you so much for your response....Yes,I took her to Dr beause I was so freaked out and she told me to stop the Lyrica...Mom is 65 and she started feeling some better yesterday ( Sat-1-9) and she stopped taking them on Thursday (1-07) so about 2 days is what it took to just TAME this craziness!!! Still not there yet but my (and Mom's)road is gettin smoother as each hour goes by....Hope you are doing good as I have never heard of the med you r taking....Sorry. THANKS AGAIN for your advice!!!!! I WILL NEVER ADVISE ANYONE TO TAKE LYRICA....or NEURORONTIN!!!!!

      Diana

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  • Caroll January 24, 2010
    Caroll
    January 24, 2010

    I took lyrica and it felt like the flu. I also got blissters that left scars on my face. it was terrible I hope ur better!

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  • sacdp29 January 21, 2010
    sacdp29
    January 21, 2010

    I am on Lyrica now.  75 mg. twice a day.  It does seem to help me somewhat.  But I've noticed that any medication is just a temporary help.  Everyone is different, I've learned, with medication.  What helps one doesn't help another.  But I also take other meds at bedtime too. 

     

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  • Linda  January 08, 2010
    Linda
    January 08, 2010

    hi mm,

     I must start off by saying you have quite the sense of humor, i read your "about me" and had some chuckles, but this room is certainly not for my amusement, it is for my SANITYYYYYYYYY,, well whats left of it.. I was recently diagnosed with the lovely F.M. and also a messed up back, discs-n-stuff like that (not that i suffer or anything) Yell,, lol. To answer your question, yes i tried lyrica, savella and cymbalta. Lyrica made me feel like i could jump out a window and fly around without touching the ground, cymbalta allowed me to have several imaginary friends, and savella allowed me to feel that i could jump out a window WITH my imaginary friends,,, ahhhhhhhhh,,, and people wonder why we are nuckin futs? Then came Gabapentin (nuerontin) and discovered that was not the best thing either (trust me). Now i am taking nothing for the F.M., I see doctor RHEUMO who has a personality like a wet mop in a couple of weeks, listening to him is like watching paint dry. So your not alone "mm" They did not work for me eithier. I hope you have a low pain day.     Linda

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    • Diana
      January 08, 2010
      Diana
      January 08, 2010
      Linda...u remember how long the side effects from Lyrica lasted?? READ MORE
    • Linda
      January 10, 2010
      Linda
      January 10, 2010

      I am sorry i dont remember............ it was not that long, because i did not take the medication that long, i took myself off of it as soon as i started feeling the way i did, but PLEASE DO NOT EVER TAKE YOURSELF OFF OF MEDICATION, ALWAYS GO THRU A MEDICAL PERSON, Have you ever dropped Karen a line??  she is soooooo helpful, she is a sweetheart, i know she is very busy, but i think if you dropped her an e-mail she would answer you, and be veryyy veryy helpful.

        you do have to remember EVERYBODY is different when it comes to medications, just like what works for one person may not work for another, same as coming off of a drug, what worked and how long it took will not be the same as you as it was with someone else,. 

        I hope someone has the answer for you, in the mean time, keep your head up as best as you can. we all care about one another in health central.  please keep me posted and let me know how you are doing, Linda

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    • Diana
      January 12, 2010
      Diana
      January 12, 2010

      Linda

      Thank you so much for your reply...Mom is doing much better now...It took 2-3 days for her to get back to earth!!! The doc took her off..AT MY INSISTANCE...I thnk my comment came out wrong and sounded like I did it but her dr was aware... This is a great website as Ive never visited before but will be back. Everyone is soooo nice and helpful. Keep us in your prayers...

      Thanks again,

      Diana

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    • Linda
      January 12, 2010
      Linda
      January 12, 2010

      Hi Diana,

        I am so glad to hear that your mom is doing better,,, it is such an aweful thing to watch a person coming off of a new medication, I told my Doctor that all though Cymbalta, Lyrica and Savella may work for some people, it does not work for everyone, also to her that i honestly believe these three medications are STILL TO NEW, to dub them the greatest thing, I am however very happy that some people can take the medication and that it does help them.

       I sent you an e-mail to your name it should be in your messages to be read , but i dont think you have it set up???

          well Diana, keep in touch .. hope you have a low pain day,,,, Linda

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    • skeetelmore65
      January 14, 2010
      skeetelmore65
      January 14, 2010

      Hey Linda,

           I take or should I say I took the 150mg. until a couple a days ago. The doc finally lowered my dosage bc I have put on 80lbs. and can't breath. I look like I'm due..seriously. I am taking the 75mg. now and the day after I started taking them the worst thing happened. I woke up that morning with the worst headache and my veins in my head..esp. on top of my head I couldn't even touch bc it hurt. I even hurt on the left side of my head(right on the temple) I can't even touch it...scary...I even hurt all over. My veins in my legs ohhhh... I am so sore all over. I wondered if this is normal. I felt like this was some sort of withdrawal or something. I hurt underneath my left breast though..like I was having a heartattack. I was going to call 911,but waited and just took my 75mg. Lyrica and layed back with a rag(cold) on my head. I was scared, but after a little while things began to get a little better. I still can't lay all the way down now and I wonder why. If I lay completely flat now the veins in my head start up again. I am still scared and wonder if I should go to the ER. They won't do anything 'cause I live in such a small town. I will check back 2morrow and see if anyone has any advice for me or if you know what is going on. Thanks for any info you can offer. I pray that you get better. I have Fibro and back and neck issues. Take care and always..GOD BLESS..Karen

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    • Linda
      January 16, 2010
      Linda
      January 16, 2010

      Hi Karen,

       i am so sorrry to hear about what you are going through!!! small town or big town, I would go to the hospital, when you went from 150mgs to half of what your used to, it does sound like withdraw symptoms, were you sweating at all? hot and cold? What pain medications are you on?. The Lyrica might have been working for you dispite the weight gain, and all of a sudden your body was saying,hellllloooo where is the rest of it???? I appologize that i am just getting to your message now, I hope someone wrote back to you with suggestions, I had almost the sameee exact thing happen to me new years eve into new years day, all i felt was like i was going thru a withdrawal. I wont get into to much detail now, but i was scared chit!!!! Karen please keep me posted, what did you end up doing?? i think your doctor should have went down gradually, i think from 150mgs to 125 to 100 then to 50 then to 25. Personaly i think she took you off it wayyy too much too fast.. keep in touch, Linda

           ps) I am leaving for florida Sunday, i will have access to a computer, so i will check my mail and see how you are doing. I got to get away...........mentaly and physicaly!!! and away from this cold weather in New England,,, brrrr....  take care              Linda

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    • skeetelmore65
      January 18, 2010
      skeetelmore65
      January 18, 2010

      Hey Linda,

           I am glad to hear from u. I need someone to talk @ this with. It will be a wk. Tues. that I switched over to the 75mg. and I have got to tell u that it was tough and I still have these burning sensations all over my body. I don't have a descent doc. and I hate to say that,but it is true. He,the last two visits has had to make an emergency trip to the ER and I caught him the first time in a lie. It was to me. Any doc that will stay around for 45min. to an hour b4 going to an emergency wasn't much of a doc or was he just telling me he didn't want to see me anymore. He had told me the visit b4 that if I needed any meds just to leave it at the counter and he would fill it for me. Does that make sense? I need to see him now more than ever with what is going on in my body. I have a new doc I am going to see Fri. He is an internist. I think that might be a good thing anyway. I have so many internal things going on and I am so scared. I am making it on the 75's but still am taking 3 a day,in which I am only cutting 75mg. off a day. Believe it or not, I feel as if I am losing some, but the scales are reading more. It doesn't make sense. I am taking the Foresemide(Lasix),that is for fluid retention. It seems to be making my ankles smaller,but I have this bunch of veins that seem to be accumulating in one spot on each side of my feet. It looks strange. I am still having pain in my chest some. I just pray that The Lord will carry me through until I can get the right kind of help.I feel this new doc will put me in the hospital Fri.,I don't know for sure,I just feel it. It is strange that I had this bone scan done last month...right when my old doc decided to leave me hanging.It showed and this was told to me by the nurse practictioner..that is when I caught him. I wanted to see my weight and he was sneaking into their little cubby hole that they hang in. I just went right up to him and said. Do u really think that I should start on 600mg. of Neurontin. THis is when I wasn't sure of what to do. I didn't get to talk to him and she wrote it out. I just didn't want to take basically the same med.,afterall they really are. I just wanted to get off of it completely and asked for a lower dose of Lyrica. They are so messed up over there,so unorganized. I sure could use a good prayer from u as well. I know I am strong and am a fighter...just believe in my God and know the strength of a fervant prayer. I am still smoking too. I tried to quit the other day and picked a bad one to start with...the day I suppose to change my patch(Fentanyl). Yeah, I take really bad med. and hate it. I wished I didn't have to take a thing. Flush it all and get up and live my life, but unfortunately it doesn't work that way.

           I want to give u my blog so u can read a little @ my life and also someway to give u my email. I would love to keep in touch. U seem to be a wonderful person. I can just feel it. I love that and hopefully we can keep in touch so u can tell me @ urself and see if there is anything that I can do for u. I want to thank u for listening to me and if u think of anything I am here, but if my comp. seems to want to act up and sometimes it likes to...maybe we can still find a way to communicate.. Hey, You take care and thanks again...and always  GOD BLESS... Karen

      http://skeetelmore65.blogspot.com     please leave a comment. sometimes it's stuborn and u have to be persistant to get it to post. I would love to hear from u and I will check later..U have a good one...Smile

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    • linda delles
      October 10, 2010
      linda delles
      October 10, 2010

      im on lyrica and im trying to take myself off of it i feel flu like symtoms sweats headaches and itching so bad i want to tear my skin off what should i do because it sure didnt help the pain  thank you linda

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  • motelcat February 06, 2010
    motelcat
    February 06, 2010

    mm my problem is I may have glacoma now from lyrica. i have to see a glacoma doctor in 3 weeks to see if i will have to have eye sugery or eye drop meds for the rest of my life. hope your feeling better.

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  • Joy
    Joy
    June 24, 2010
    Joy
    Joy
    June 24, 2010

    June 24, 2010.  Wow you had a hard time with Lyrica.  LYRICA IS A VERY BAD DRUG IF YOUR DOCTOR DOESN'T KNOW ABOUT IT'S SIDE EFFECTS WITH OTHER MEDS....  I was prescribed Lyrica because of Fibro.  I also was on pain management drugs.  LYRICA REACTION:  I ended up with a HIGH followed by hallucinations and finally a four hour bout of amnesia in which I visited my hairdresser and made an appointment; drove my car, wrecked it and ended up in the hospital emergency room.  I didn't remember ANY OF IT! The hospital and police thought I was drunk at 11 AM in the morning.  I saw two neurologists and they said it isn't uncommon for amnesia patients to be abe to driVe a car AND NOT KNOW IT.  DUH!  LYRICA IS BAD STUFF!  I WALK IN THE POOL 3 X A WEEK AND I CAN SAY IT WORKS BETTER THAN LYRICA!

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  • Seeking Help September 03, 2011
    Seeking Help
    September 03, 2011

    I have an AVM.  I was born with this, and it was first found in an MRI 13 years ago.  While testing for my symptoms of facial pain (Neuralgia - They didn't know it at the time) 2-1/2 years ago, I had another MRI.  These results were compared to the MRI from 13 years ago, and they found that the AVM had grown from 2cm to 2.3cm x 1.2 cm, and had hemorrhaged. (I had an event 3 years ago when this happened, and a small stroke).   I was alone and confused when it happened.  I got severe spins and puked like I was drunk, and it happened suddenly.  It was really scary.  I fell asleep for an unknown amount of time and half my face sagged for a week.  I was also very slow for the first week.

    I have 2 conditions that I have been dealing with, and am on medication for


    1.  Arteriovenous Malformation (AVM)

    2.  Glossopharyngeal Neuralgia

     

    I have read that the AVM can provoke Neuralgia.  I do not know if that is the case for me or not.

     

    I am on 150mg of Lyrica (pregabalin) 2 x daily for the Neuralgia pain. 

    I am on 5 mg Imipramamine 1 x daily, for the head pains associated with having this mass in my head. 

    Both meds are very strong.  If I forget to take a dose, I can suffer for 2 to 3 days with something similar in feeling to a hang over.

    I have seen a neuro surgeon, and I was told there is 100% risk of complication if surgery is performed for either (both) conditions.  I still see my neurologist on a regular basis, and saw him a week ago, last.

     

    I've been on these meds for approx 2-1/2 years.  They were hard to get used to, and did make the pain far less than it would be without.  I've been asking for 2 years to get off of the drugs, and have tried acupuncture, as well as a bad, expensive experience with a quack that did electro-acupuncture, and prescribed Borax, Iodine, Magnesium, and something he called Remedy (water in a bottle the he says he agitated to a particular frequency)

    I'm a 53 year old, male professional, with 37 years in my profession.  I'm struggling with the symptoms of the conditions, and the side effects of the meds, and it seems to be getting worse, creating a higher dependency on the drugs I want to get off.  It's a horrible, vicious circle.

     

    My memory and my vision have been dramatically affected, and are getting worse.   I'm now recognizing episodes of behavioral, and emotional problems.  I feel as if I am losing my sanity at times.

     

    My neurologist, who cannot think of any alternative treatment for me, wanted to refer me to someone who could administer stronger drugs.  I expressed that I so not want to do that, as I have been trying to get off of medications.

     

    I feel that it is becoming increasingly difficult to perform my job as a professional.  My personal life has been heavily impacted.  I have no social life, and have lost my ability to live normally.  I alerted both of my now adult, kids 2 nights ago of where I'm at today, explaining everything, and indicating that I need help and that I am reaching out for that help now, to them. 

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