Hey everyone,

Well I am 51 yrs young-ha ha  and am going thru the same thing.  I am so fustrated.  I have had arthritis in my lower spine for 4yrs and now its in my neck.  However, I awoke one day 9wks ago with sneezing,runny nose..two days later I came down with swelling,pain severe in my knees. Said allergy arthritis..ok then within two more days my arms began turning red I started burning and little dots popped up..My doctor took One test said no RA come take cortisone shot?  I didn't go.  It then went in my eyes and they burned severly for 3days and then my hands. Joint pain,burning,peeling,swelling.I cried and cried..then the muscle pain started.  I went back sed rate ok.. My wbc is high and monocytes high along with platelets but he looked at me and said arthiritis.  I told him I just didnt believe it.  That this is something that is taking a course.  Now I am waiting on adrenal gland test.  Personal I don't think it will be abnormal.  I truly think I either inhaled an allergen or a fungus or it is my immune system.  This has been the worst 9wks of my life! I am 51 and have been thru alot and these doctors just think they know all.  I am on a downward slide of this but when I get up I cant even bend my knees and my arms. Its horrible' Hope to talk to you guys soon.  I have decided if these gland testing comes back normal I am going to an allergist/immunologist and see if he will take me seriously..Ive been in this body too long not to know something is wrong...Love to you all and hope everyone finds relief and a good Doctor.  D

Dear Dazzel60,

     I know exactly what u r feeling. I am there and it is utter "H" on Earth.  Why can't the doctors just listen to us. They think they know it all and don't give us the respect we need and deserve. THIS PAIN isn't anything to sneeze at! This is hard and the pain is 24/7.

     This all started with me after a neck surgery on my C5-C6(ACD & F spinal diskectomy). My right arm bi-cep muscle started to burn and I went back to see the Neurosurgen that did my surgery. He ask me where the brunt of my pain was and I told him that my arm burned. He said that it was my C5..how? He put me on Lyrica, in which I didn't take for a yr. bc I didn't want to have to add anything to the pain medicine he had already prescribing, as well. I can say that I was always the kind that didn't like to even take a motrin for a headache, but after that pain kicks ur butt real good and it takes over, then yes, u will take the medicine prescribed.

     I do have to advise others of this important fact of something I wouldn't do ever again that could have added to what I am dealing with now. I must advise everyone out there to NOT have the nerve blocks, no matter what kind of pain u r dealing with. I was hit by one, I think in my nerve fibers surrounding my spinal cord and I wonder, if it isn't the cause of most of it, but with the pain ALL over, l donno what is going on exactly, but do know that the pain can be absolutely unbearable.:(

     I started having places come up on me like little tiny pimples with redness, swelling and burning pain come up on me to and other places that like someone took a knife and slashed me really good. After, I started taking the Lyrica all sorts of things started happening to me(this is a BAD medicine to have to take). I started swelling and my sed rate did get up to 55 and was seen by many Neurologists, bc I was balling up in a fetal position and wreathing around in bed like someone was torturing me. I literally felt like I was dying and it wouldn't end.

    Now, I am in bed, most of my day. At the least, I spend 80-90% of my time having to stay there bc, I can't use my muscles at all, to do anything hardly, but lay here and try to research my symptoms bc it sure doesn't look like the Doctors are doing much to find it. All they do is like to cover it up. It is hard for me to even type, but daggomit, I have got to do something or I will lose my mind. I am in such misery that I burn like I am constantly using all of my muscles. I feel like they are continuously working out and I don't have to do anyting. It feels, like I have been in the Gym, but NOO..If, I even try to use them, they cramp,burn, ache and will be more sore, it will feel like I have been beat with a baseball bat or even so bad that I feel that I have been run over by a truck. ..SO WRONG.I have even had times to where my leg will lock in a bent position and I scream to pull it back out or to straighten it.

    I truly believe that no one(docs, that is) wants to find the answer. They stick "Fibro" on us and send us on our merry..yeah...Away.They honestly feel that we are going to be satisfied with that diagnosis, but we know there is something far worse going on in there!! I have been diagnosed with Arthitis, as well.(Spondylosis and DDD of cervical,lumbar & Hip/joint). 

    I used to do anything I wanted to, but it has taken my life from me and I know it is hard on our family to truly understand the misery that we go through every single day, but it is VERY REAL and VERY HARD to go through and to not have someone to comfort us. If I didn't have my mom/dad...and a wonderful hubby, it would truly be unbearable. I am greatful so much to my son Bryan, who has helped me get through so many hard times. I love him so much and I do thank him. I must say that The Lord has been there for me at all times and He carries me most of the way. If I didn't have Him...I don't think I would have made it through this, at all.

     I pray that He will take this from us and let us have some of our life back. I hope so much that I can at least find what this has and that it is currable..mostly. I sure don't want to live like this...for I don't think that I can do it. I am strong, but this PAIN is so bad that I actually feel like it is going to kill me.

     Take care out there Dazzel60 and of course that goes for ALL of u guys, who are suffering and I pray that it be The Lords will that we are comforted and hopefully, we can find a way...back to our lives again, soon. God Bless always.:)))<3 skeet65

I let my dr keep me on bed rest for 5 years after my first big onset and I couldn't walk without severe pain. I felt like the longer I stayed in bed the worse it got. SO as painful as it was I made myself get up and stretch and yes, it felt like I was in dance school again times 20! But it did seem to ease up a bit. Have you had your potassium checked by chance? I had to start taking some potatssium suppliments and it did help with the cramps. Some of the meds I was on was sucking out all of my potassium. Or getting too much potassium will do it too. Once you get those horrible paralizing charlie horses it kinda leaves you with the feel of severely pulled muscles for weeks. The potassium helps. Try eating like at least 2 bannanas a day and some vitimin D. It helped me. If adding potassium causes you to hurt more, then find out what you eat normally that has potassium and cut back. I hope this little bit helps. I know its so frusterating. I am right there with you. Yes, the drs are just numb to the world and dont help like they should. Its sad that we are just slapped with a label and herded out. I personally think that Fibro is going to be the next disease that is severly over diagnosed and hiding something much worse. :(

AMEN TO THAT SISTER..I HURT SO BAD NOW, IT IS LIKE THE FLU THEN SOME DAYS I MAY NOT BUT IT WILL LAST FOR DAYS AND IT HURTS...YOU CANT GET UP, YOU CANT WALK GOOD, I AM 49 AND TRYING TO GET SOME DOC TO LISTEN...I HAVE BEEN TO PAIN MANGEMENT NO HELP, REBLITION,SHOTS IN BACK, MED AFTER MED, SAID I HAVE ARTHIS, FIBORMIALGIA, BUT I HAVE HAD 3 BACK SURGERYS IN 1YR 2000, BRAIN ANUERSMY,2007, I WILL BE GOING TO ANYOTHER SPINE DOC. SOON...WHAT CAN IT BE? HELP THE PAIN IS TO MUCH

I let my dr keep me on bed rest for 5 years after my first big onset and I couldn't walk without severe pain. I felt like the longer I stayed in bed the worse it got. SO as painful as it was I made myself get up and stretch and yes, it felt like I was in dance school again times 20! But it did seem to ease up a bit. Have you had your potassium checked by chance? I had to start taking some potatssium suppliments and it did help with the cramps. Some of the meds I was on was sucking out all of my potassium. Or getting too much potassium will do it too. Once you get those horrible paralizing charlie horses it kinda leaves you with the feel of severely pulled muscles for weeks. The potassium helps. Try eating like at least 2 bannanas a day and some vitimin D. It helped me. If adding potassium causes you to hurt more, then find out what you eat normally that has potassium and cut back. I hope this little bit helps. I know its so frusterating. I am right there with you. Yes, the drs are just numb to the world and dont help like they should. Its sad that we are just slapped with a label and herded out. I personally think that Fibro is going to be the next disease that is severly over diagnosed and hiding something much worse. :(

I let my dr keep me on bed rest for 5 years after my first big onset and I couldn't walk without severe pain. I felt like the longer I stayed in bed the worse it got. SO as painful as it was I made myself get up and stretch and yes, it felt like I was in dance school again times 20! But it did seem to ease up a bit. Have you had your potassium checked by chance? I had to start taking some potatssium suppliments and it did help with the cramps. Some of the meds I was on was sucking out all of my potassium. Or getting too much potassium will do it too. Once you get those horrible paralizing charlie horses it kinda leaves you with the feel of severely pulled muscles for weeks. The potassium helps. Try eating like at least 2 bannanas a day and some vitimin D. It helped me. If adding potassium causes you to hurt more, then find out what you eat normally that has potassium and cut back. I hope this little bit helps. I know its so frusterating. I am right there with you. Yes, the drs are just numb to the world and dont help like they should. Its sad that we are just slapped with a label and herded out. I personally think that Fibro is going to be the next disease that is severly over diagnosed and hiding something much worse. :(

I let my dr keep me on bed rest for 5 years after my first big onset and I couldn't walk without severe pain. I felt like the longer I stayed in bed the worse it got. SO as painful as it was I made myself get up and stretch and yes, it felt like I was in dance school again times 20! But it did seem to ease up a bit. Have you had your potassium checked by chance? I had to start taking some potatssium suppliments and it did help with the cramps. Some of the meds I was on was sucking out all of my potassium. Or getting too much potassium will do it too. Once you get those horrible paralizing charlie horses it kinda leaves you with the feel of severely pulled muscles for weeks. The potassium helps. Try eating like at least 2 bannanas a day and some vitimin D. It helped me. If adding potassium causes you to hurt more, then find out what you eat normally that has potassium and cut back. I hope this little bit helps. I know its so frusterating. I am right there with you. Yes, the drs are just numb to the world and dont help like they should. Its sad that we are just slapped with a label and herded out. I personally think that Fibro is going to be the next disease that is severly over diagnosed and hiding something much worse. :(

I just woke up and could hardly pull myself out of bed, literally! This has been slowly progressing over years.  The past year has been the worse.  I have been diagnosed with a pinched nerve in my spine at L4 and L5 and received steroid injections with some relief at the time but that can't be causing all this pain. The pain from lying on a joint at night is like a knife.  It takes forcing myself to move to get up.  My knees hurt, my fingers hurt, and now its my shoulders. I am an RN, ALL THIS FROM A NERVE IN MY BACK?  It doesn't make sense. I've seen an orthopedic doc, a rheumatologist and just had nine pages of lab work done, nothing.  I also had a very low Vit D and was treated.  Now that is normal but no lasting change in the pain.  I was interested in the fact you had the purpura or bleeding under the skin, not like a bruise, more like a blister.  I've had that too.  I was told it was due to the nsaids I was taking.  Haven't taken any for months but still has the purpura.  I have no diagnosis,  but an going to a pain management doc.  They are treating the pain like it is all from this nerve in my back.  He says it is probably in my neck also so is treating me for this.  I believe thats crap but no one can find a cause. I am in my 50's but like hell. The fatigue, depression etc is just an added bonus.  Feel like a junkie and no one can help.  I need to work or starve and this is getting harder and harder to do.  Thanks for listening.  You're probably the only one.

Maybe you should try a Lyme literate doctor.  If there is any possibility at all that you have been exposed to Lyme disease through a tick bite or mosquito bite, then see a doctor who is not afraid to talk about Lyme.  Your symptoms sound exactly like my husband's.  Don't let anyone tell you that you had to have the bulls-eye rash;that only occurs in about half the people infected.  My husband is now being treated for Lyme Disease and he is finally getting better.  Fortunately, he has only been troubled with this since the first of November, 2011, unlike many who go for years without an answer to their health issues.  My husband is also taking mega-doses of vitamin C.  He started that on Monday and believes it is also helping him to feel better.  A couple of websites you might want to check out are:  http://lymeproject.com and lymediseaseassociation.org.  I hope you find some answers.  As the wife of a very active, strong, and vital man who suddenly came down with your symptoms, I fully understand your frustration.  I hope you feel better soon.  

Maybe you should try a Lyme literate doctor.  If there is any possibility at all that you have been exposed to Lyme disease through a tick bite or mosquito bite, then see a doctor who is not afraid to talk about Lyme.  Your symptoms sound exactly like my husband's.  Don't let anyone tell you that you had to have the bulls-eye rash;that only occurs in about half the people infected.  My husband is now being treated for Lyme Disease and he is finally getting better.  Fortunately, he has only been troubled with this since the first of November, 2011, unlike many who go for years without an answer to their health issues.  My husband is also taking mega-doses of vitamin C.  He started that on Monday and believes it is also helping him to feel better.  A couple of websites you might want to check out are:  http://lymeproject.com and lymediseaseassociation.org.  I hope you find some answers.  As the wife of a very active, strong, and vital man who suddenly came down with your symptoms, I fully understand your frustration.  I hope you feel better soon.  

I have fibromyalgia and Sciatica. I have pain from my neck to the bottoms of my feet. The fibromyalgia has gotten worse over the years. Now my doctor diagnosed it as severe fibromyalgia. Fibromyalgia causes painful swelling of the muscels and connecting tissue. everything hurts. My hands, feet and so on. when I get up I can hardly walk because of the pain. It minimizes after a little while. I have stiffness, fatigue, popping joints. My symptoms started when I was 35 years old. I didn't know what it was then but I really did hurt. Like I said, its worse now. It is very dibilitating. I have good days rarely. I hurt so bad sometimes that it brings tears to my eyes. Yes, I also have depression. I tried Lyrica and I had an allergic reaction. I tried Cymbalta. I had bad side effects. They have me going to Physical Therapy and all it does is make it worse. The only thing that I found that helps is taking hot showers and resting alot. On my good days, I try and get some walking and stretch exercises in. It dosn't fix it but it helps. I try not to over do because if I do then I am down for 2 or three days. All I can say is, your symptoms are those of Fibromyalgia.  As for medication, I am on antidepressants and for pain I take aleve. I wish I could have something stronger but they wont prescribe it because those kinds of meds are addicting. I hope I helped you. You can get fibromyalgia at any age.

Hi, I am exactly undergoing the same things you had mentioned, did you find any relief..whatever was in my mind you had posted it..I am really tired of all these lab test. I tried Cymbalta gave very bad side effects. really scared to try any new medication. Can you please tell if you find any alternatives?? Thank you soo much, getting very tired, and very depressed.

Jesus is listening,ask him to come into your life and start reading the Bible, He will help you Signed Someone else that is listening

I'm here too!!! I have all you described and some!!! I left my pain-mngm. Quack after one year and 2 surgeries, and on a high pain medicine dependency dose. I have a SCS (spinal cord stimulator) that didn't do anything (ever), and is now in a way of my getting MRI done, so my new doctor could figure out what is really wrong with me... Meanwhile, every day is another challange, I am feeling worse with an alarming speed, and at this point I'm truly afraid. The pain is everywhere: all joints, including fingers, toes, etc., muscle cramps and spasm, I've started dropping objects (pens, forks, etc.,), no feeling in my feet at all (except for severe shooting, burning, electric shock like pains, where I simply scream like a dying animal). If I do sleep, it's sitting upright on a couch, walking with a cane - it's a good day, and I'm only 43, fromerly active, health person... I need high doses of pain medication, and I am faced with a constant problems with pharmacysts and an insurance, where, somehow, these people are all trying to be a "police" and tell me how much and when I should take my medication, where is my medication  is like an oxygen for me... 1 hour in "my shoes", not even a day, 1 hour - I would like to see how any of them would be able to "hang on, and wait couple of days until we figure it out"... I am an invalid!!!!!!!! ...not a dealer, or a junkie... 

I called e.m.t. the other day,i was having all over muscle cramps.

To give you back ground i have ddd degerative disk disease,bulgging disk,and pinched nerves in lower back that control my bladder,ive had gastric bypass,i have vitamin d defency,and carpel tunnel in both hands,degenerated cartiledge in my right knee..im33&mom of3. When e.m.s. was called i was cramping so bad my husband was panicking i was screaming louder than when i gave birth.i couldnt walk to our truck.I had pain meds and muscle relaxers so by the time ems got there i let them check my b.p.168/110and let my husband take me to our dr.who pulled blood .I had had my stiches removed the same day from carpel tunnel surgery. drs office said i had sugar in my urine,but today dr said white count was16,000 and a1cwas normal.I have emince bone and joint pain,i was told due to vitamin d defency,i hope for answrrs soon.

must add my urilogist sent me to my neurologist,they had thought m.s.back in 2010..,after a brain and lower back mri half my problems were found...im so tired and week,physical theropy said my right side was50%weeker and im right handed..lol my right leg isnt wanting to unlock,muscle is so tight..prayers please

Hi, this is what my older sister has been experiencing since she was 9 yrs. old.  She is now 65.  What she found out is food, vit suppliments, nutrition mixtures plus gluton, and milk allergies.  She developed an over active immune system which has disolved and atrophied most glands and organs including the brain which has big holes in it.  She finally found a terrific Dr. that is giving her cancer meds which seem to be the treatment so far.  They found that her body, even her sweat was disolving her.  My uncle had something like it also, now my daughter that is 45 is experiencing some of the symptoms. Their skin is very fragile and tears easily.  I found that in my case, getting off or lowering medication combinations and stopping all vitamin and nutritional shakes and energy drinks, plus no wheat products has gotten rid of most problems. I found out that by the time I took my vit. suppliments, protein and energy drinks anded to the fortified foods I consumed I was in toxic levels. Everytime you take meds. foods and combinations you can overdose your body. Read and research everything, and when you get a new RX, eventho you think it should be ok, research it out to the fullest. Don't let the Dr.s give you an RX unless you start at the lowest possible dose, then slowly increase with your Dr.s knowing your plan. MORE IS NOT BETTER.  If you discontinue a med then start back on it, do so at the lowest level again. In 2000 my neurologist and another Dr. had me on 23 pills a day, now I'm down to about 3 1/2 to 4 a day and the symptoms of MS and Parkinson's, severe jerking, severe pain, nightmares, daily suicidal desires (the Neurontin) have totally gone away.  My prayers for all of you is to be able to find what is causing the pain and problems and get the relief you need.  I will say that my faith in my Lord and His Son Jesus was the only thing that kept me going.

I don't begin to know what you have but I am very sorry for your pain. My 25 year old daughter has been hit with this pain for the last two years and we have been trying desparately to diagnose it. When you talked about skin that tears easily, I thought that I should write you and tell you to look into Ehlers-Danlos Syndrome which might fit. There are different types of Ehlers-Danlos. I believe that my daughter's is Type III Joint Hypermobility. Ehlers-Danlos is a genetic disorder which is why so many family members may be experiencing the pain. Good luck.

oh tht sounds really severe!  used to get leg cramps and tok mgnesium for them. my symptoms were far milder would wake up with hands like claws general tiredness joints etc.  thankfully never severe. i decided to look at website with alternative treatments nd dvice from other sufferers who were managing their condition and i changed my diet and started doing yoga or relaxation techniques..most f pain is fear of pain and tension on top of the inflamation. it helped me cmpletely reverse what was happening over a ew months however ive let  lot ofdiet slide and symptoms re returning so i m going back on the diet again. i think i read it from patrick holford..who is considered  quack in mainstream but i found a lot of it made sense about your nerves cheilds breking down and since it helped and did no harm its  probably worth looking into. i also fund cabbage juice really helped wtih swelling of joints...considering teh severity you might need a lot! but it cnt do  any harm to try i hope you can get ut of ebd and get moving ecuase that will help as well if the muscles build up the toxins ti gets worse. movement and massage stretching etc can relly help. i know a lady who has to do a lot of excersise every day or her bdy seizes up i dont know what she has but if seh doesnt keep moving her muscles lock up. magnesium relaxes teh muscles too. hope that helps some and really hope you get out tehre treat yourself to some nice experiences and nice people to support you:) 

Hello.  I have had muscle pain and joint pain off and on for the last 3-4 months.  It has been accompanied by severe fatigue as well.  I am a chiropractor that practices functional medicine.  I know that my immune system is so compromised.  I am doing a leaky gut protocal to help balance my immune sytem and decrease the inflammation.  I practice with an integrative medical doctor and have seen him as a patient.  He is not concerned because the pain comes and goes every 3-4 weeks, but the fatigue has been more consistent.  My next step is to have another CBC w/diff, a Lyme's panel, RA screening and perhaps an enterovirus screening.  As I have been practicing for more than 12 yeasrs and I am confident I am following the best autoimmune/inflammation protocal, it is still frustrating and scary!  Just turned 40 and I feel like I am much older at times.  N

Momadoc, I thank u for giving me the test I need to have done. My last CBC was done June of this yr. and it showed I was Vitamin D deficient(level 19), pre-diabetic and my Cholesterol was elevated more than I like to see. Yes, it is very scary when most of the time, we can't do anything. My muscles hurt so bad that I have got to do something. I tried to reach, while in the bed mind u, to clean up my side table some. I couldn't do it, it wouldn't let me. First, it bothered me to just lean on my left elbow, but then it got to where the muscles in my arm just wouldn't let me reach IT would ache so bad that I would have to stop...in the middle of what I was trying to do. I couldn't finish it and I don't understand. I wad told by a friend of mine(Chiro) that from a surgery I had in '06(C5-C6 spinal diskectomy ACD & F) that I had a nerve that was placed into an opening and I had a screw that went through the plates...and it was put right on top of a nerve. I truly believe this Doc, he told me that he had so many hours of Neuropathy and he seemed sure that if I didn't get it off of the nerve, I would lose the use of my arm and leg muscles. It has been since '08, since he told me that and he was right, I am losing them and I can't get the NS (Doc that did my surgery) to take a good look in there. I mean, I wouldn't mind if he got a camera and looked inside. I have got to have something done and NOW, that Doc won't even see me anymore. I don't know what to do??..just sit...no lay here and wither away? I am scared and can't get anything done, it is like no one is listening to me anymore. What do u do then, when it seems u aren't being heard and need help? :((

I know this could possible that it is a autoimmune response, but his words keep echoing in my mind and I have so many symptoms that it makes sense too. So, what in the world should I do? What would u do? Melisa, momadoc and I know I am bad at names, but there was someone else, I am sorry. I have that symptom too..memory be-gone..:(

Take care everyone and I am so sorry that my posts seem to always be so long. I just am frustrated @ this and want some life that I can enjoy with my boys. I have to fight, we all do. Keep ur chin up guys, we'll make it.:))<3 Karen 

I am a chiro too like your friend.  Your D is too low.  It should be closer to 60.  It seems that if the plates are pressing on the nerve at C5/C6 that you would get localized problems along that dermatome, into your arm.  If it is compressing your spinal cord, that would present a different situation.  Sounds like you need to see another neurologist.  As your friend told you, there could be problems casued by the surgery, but I can not emphasize finding a new neurologist.  There have been case studies that have shown gluten causing lesions in the brain causing neuro symptoms.  Celiac can affect the brain, not just the gut.  Other inflammatory foods and your body's response to everyday exposures in the envirnoment can cause an imbalance with your immune system.  This can be explored with a functional medicine doctor while you are working with your neurologist.  

As far as myself, I just had a tooth extracted yesteday from a root canal that failed.  I kept saying something did not feel right since last April when I had the work done.  Viral symptoms every month.  Well it turns out the dentist left an instrument in my tooth that was poking out of the root into the tissue.  Well that could cause chronic inflammation, infection, and/or an auto-immune reaction. Once I heal form my surgery I will get blood work and begin the auto-immune program again.  I tried it last week, but I was not feeling better and my tooth really started to bother me.  My priority was to remove the tooth ASAP.

Again, everything I mentioned above can be explored with a functional medicine doctor.  You can contact Apex Energetics and ask for a referral for a doctor that has trained with Dr. Kharazzian's seminars.  Tell them Dr. Nicole Wallace from Torrance, CA referred you.  That is me.  

I will keep you posted on my recovery.  I wish you the best and hope you find the support you need.  

did you uncover?  i'm curious.  i believe the main source of constant bombardment.  thanx bridgett

About 2 weeks following a flu vaccination in mid October, 2011, my husband had a sudden and severe onset of pain in his knees followed by extreme fatigue.  The pain has migrated to most of his joints and the fatigue is overwhelming.  Less than 3 weeks before this hit him, he was a cemetery caretaker and used every muscle and joint in his body to do his work, with little pain.  Today, he is a virtual invalid.  He had all the blood work, including the test for Lyme disease, and the only abnormal result was his rheumatoid factor.  Without any xrays or further investigation, his doctor labeled him with degenerative joint disease.  I didn't know that would "attack" one in such a manner.  He is currently trying homeopathic supplements.  We shall see how that goes.  It is very difficult to watch such a vital human being suddenly become almost bedridden.     

Dear Worried Wife

I had this same thing happen to me in August of 2010 but it was after getting a shot.   I woke up with flu like symptoms and it progressed rapidly within two weeks from my hips to my knees (which both swelled 3 times the normal size) into my muscles my back, my neck and all over pain in my joints. This lasted about 4 months. Toward the later time I could barely walk, I used a can and my doctor worried I was headed for a wheel chair.  I was terrified.  I had every test, xray, ctscan, MRI and physical therapy, saw specialists and there was anything that could be determined as to what was wrong with me. 

It didn't get  better until my physical therapist recommended Cranial Sacral Therapy.   It saved me it took an addtional  3 months to get rid of the pain entirely  but the progress was amazing. Finally the pain is gone. 

Occasionally I have a flair in my neck and I now have severe creptis in my neck and my knees and one knee is now totally bone on bone.  I don't know what it was that caused this and now we, myself, the doctors and therapist chalk it up to an autoimmune response.   I have synthetic injections in my left knee every 10 months in order to live without pain.  Although my life is not what it used to be, I can no longer walk miles, bend my knees as before but compared to where I was I am significantly better.   I also have a pretty physical job and sometimes its tough to do but I get through.   I try to stay as active as possible, stretch often and if I see any sign of stiffness returning I am right back to my therapist for another session of CST.   Only certain therapists are trained to do it but it is painless and easy.  I relate it to acupunture without needles.  You can look it up on line and get great information and even some videos are on youtube showing how it is done.   There are some I found that seem a bit more exaggerated then others but know it works and I wouldn't be where I am today if I didn't give it a shot.  P.S.  this all started on my 47th Birthday I turn 49 this summer.

Hope it helps

Thank you for your suggestion.  My husband is now being treated for Lyme Disease.  He started on oral antibiotics a couple of weeks ago.  He is getting better, but has a long way to go.  His fatigue has decreased, and a great deal of the pain is transient, moving from one joint to another and light, sometimes, while extreme at others. The doctor just increased his antibiotic dosage, so we are hoping he will be much better very soon.  We really thougt it was the flu vaccination, at first.  Then, we asked a doctor if present antibodies for Lyme was enough to show that he, in fact, had been infected (even though the lab didn't consider his test positive).  It was at that point that the doctor started the antibiotics.  I think we could have dealt with a stroke or heart attack better than this sudden onset of debilitating fatigue and pain for a man who was very strong and active.  At least we would have had a point to start recovery.  I hope you remain optimistic and continue to heal. 

He completed a 4 month regimen of Doxycycline, and he self-treated with Tincture of Teasel as recommended by an herbalist's article in a health newsletter.  As often as he felt up to it, we created a sauna in the shower and heat treated the little buggers.  (They don't like heat.)  We also got a weight machine and, as soon as he felt up to it, we worked out for a couple months, which helped rebuild his muscle strength.  He is no longer a 90 lb. weakling, and he feels well most of the time.  Due to his age and the overuse and abuse of his body, he still has his aches and pains, but the severe knee pain, extreme fatigue, and muscle and body aches have improved drastically.  In our area, we have recently heard of several people having tick-borne diseases, including Lyme.  Now, West Nile is wreaking havoc.  It's a good thing the government outlawed all those pesticides because they caused cancer in California.  I'm sure many people have been saved from that only to succumb to another disease.  Thank you for asking about him. 

I have  MAC lung infection right now and am fighting symptoms of a similar manner.  Might want to investigate that.  It is caused from inhaling Non TB Microbes usually related to peat, water being sprayed etc...  the other suggestion comes from experience also: if he has has any kind of injury: thorn, cut, etc... there is a fungal infection called" sporotrichosis that I had from a rosebush thorn pricking me.  None of my joints worked before it was over with, and all I needed was a strong antifungal orally.  the MAC infection causes severe joint pain and fatigue, but by the time I got a doctor to listen and test for it I was severely compromised.  I had to lie about y age just so they wouldn't write it off as menopause! truly! good luck... I am still struggling and initially I was an outdoor instructor, an artist, and a mom.  I barely can get through the day.

I have  MAC lung infection right now and am fighting symptoms of a similar manner.  Might want to investigate that.  It is caused from inhaling Non TB Microbes usually related to peat, water being sprayed etc...  the other suggestion comes from experience also: if he has has any kind of injury: thorn, cut, etc... there is a fungal infection called" sporotrichosis that I had from a rosebush thorn pricking me.  None of my joints worked before it was over with, and all I needed was a strong antifungal orally.  the MAC infection causes severe joint pain and fatigue, but by the time I got a doctor to listen and test for it I was severely compromised.  I had to lie about y age just so they wouldn't write it off as menopause! truly! good luck... I am still struggling and initially I was an outdoor instructor, an artist, and a mom.  I barely can get through the day.

My husband is finally feeling better.  He is on his second 30-day regimen of oral antibiotics.  I think the warm temperatures have helped, too.  He is not completely healed, but he has fewer bad days, lately.  He stopped losing weight and began to rebound a tad, also.  He still has some healing to do, but at least he makes it through the day much better now.  A fungal infection would have been very likely for my husband.  We cleared some land of trees and brush and under them was damp leaves and bird droppings.  He wouldn't wear a mask to filter the small dust out.  But, he had multiple tick bites, as well, and his Lyme test showed antibodies for it, though they weren't as high a number as to register positive (which I don't understand).  He has increased his vitamin C intake to support his immune system and that has helped.  I hope you recover very soon.  The type of illness that you and my husband, and many others, suffer from is frustrating for those with the illness and those who love and care for you.  It's hard to find a place to start the healing process.

About 2 weeks following a flu vaccination in mid October, 2011, my husband had a sudden and severe onset of pain in his knees followed by extreme fatigue.  The pain has migrated to most of his joints and the fatigue is overwhelming.  Less than 3 weeks before this hit him, he was a cemetery caretaker and used every muscle and joint in his body to do his work, with little pain.  Today, he is a virtual invalid.  He had all the blood work, including the test for Lyme disease, and the only abnormal result was his rheumatoid factor.  Without any xrays or further investigation, his doctor labeled him with degenerative joint disease.  I didn't know that would "attack" one in such a manner.  He is currently trying homeopathic supplements.  We shall see how that goes.  It is very difficult to watch such a vital human being suddenly become almost bedridden.     

would like to add that the test for confirmation of MAC lung infection is a CT scan that can show granulomas in the lungs similar to TB and also a culture taken from inside the lungs.  Both of these confirmed my initial illness and glad for it as I was dropping weight and literally dying before my own eyes. It is crucial to get the correct antibiotic chemotherapy or you will not get well and can not recover.  a good site to go to for answers is: <http://books.google.com/books?id=5zd_W_PUwvYC&pg=PA832&lpg=PA832&dq=side+effects+of+chemotherapy+for+MAC&source=bl&ots=SUAlyv3PaE&sig=mABgsHbWr4Qg93Sc7nSaaqvtvAs&hl=en&ei=juFdTdrTKoP98AaG05mKDA&sa=X&oi=book_result&ct=result&resnum=6&ved=0CEQQ6AEwBQ#v=onepage&q=side%20effects%20of%20chemotherapy%20for%20MAC&f=false>

and also: http://maclungdisease.org/  this one contains really accurate information and you can call the center

good luck

In December of 2010, my husband had an x-ray of his lungs.  He had been exposed to asbestos the previous year, so he was getting a yearly lung check.  They did find granulomas in his lungs but said it was nothing to worry about.  We had another doctor to look at the report, and he looked at my husband like he was crazy and reiterated that there was nothing there to worry about.  He didn't look at the x-ray, just the report.  I am going to check out the link.  We may have been barking up the wrong tree all along.  Thank you.

In response to Worried wife;   I'm not sure about that, but wish you much luck indeed. I feel so much for your husband and your family.

I just want to let you know that I'm (sorry, not NOW !), I WAS a totally fit person...on no medication whatsoever.... till I had the flu injection (against my wishes, but I had to have one for entry into the US)...and ever since then I have had incredible joint and muscle pains that go from one part of my body to the other, together with a lot of fatigue.   I tried accupuncture (that is my normal 'medication', should I need it), it hasn't worked. I am about to go today to get homeopathic medication to cope with all this, as well as try some other natural means to get my body over this crisis....and crisis it certainly is.   My symptoms started within 4 hours of the injection, (I had to go to bed for 24 hrs after the injection as the pain was so bad )and  my symptoms have included extreme dizzy spells two weeks after.   I had the injection about at the end of November, so that means I'm into month six now.   The pain is terrible and I too have a high pain threshold.   This whole thing need some serious investigation by the authorities.  I will let you know what I am trying and IF anything begins to make me better.   It is as if my body is into 'fight' mode....

we'll see what happens in the next two weeks, & I'll post again.   

I have had muscle and joint  ain on and off also since July ( 5 months) I have had all of the screenings you  spoke about as well as many many others  They only abnormal results were my liver enzymes both in the high 400s  -alternting with normal as my joint pain comes and goes.  Just curious.  Did you have any luck with a diagnosis?  I have not? Am getting very frustrated and tired.  I wish it was all inmy head.  Have resorted to asking docs if it coulod be psychological  I'll take any diagnosis as long as they can help me with some resolution.

I have had muscle and joint  ain on and off also since July ( 5 months) I have had all of the screenings you  spoke about as well as many many others  They only abnormal results were my liver enzymes both in the high 400s  -alternting with normal as my joint pain comes and goes.  Just curious.  Did you have any luck with a diagnosis?  I have not? Am getting very frustrated and tired.  I wish it was all inmy head.  Have resorted to asking docs if it coulod be psychological  I'll take any diagnosis as long as they can help me with some resolution.

I am 41 years old, I have been going thru hell for 2 and a half years now. It started with pain in my hips and then it got carzy. Loss of continence, dizziness, pain everywhere, stiffness, bruising, swelling, hair loss, exaustion. I have now been diagnosed with RA, anemic, b12 deficient and fibromialgia. I think all this is leading to something even more serious. Because now, I have been experiencing severe itching, headaches, muscle and joint pain. If I sit down just to eat for a few minutes Im in trouble when its time to stand up.Im exausted all the time, I am just worn out. I know they are missing something that will solve it all. But when??????

keep saying they are missing something lol.  I am in the fight of  my life trying to get anyone to help diagnose similar symptoms.  I cant take the pain and I have an extremely high pain threshold...life did the natural childbirth thing in four hours...I can hardly move.  I was treated for  MAC lung infection and just finished the treatment one  year later... still not better and now everything hurts when I move.  honestly. doctors say its because of my age so I lied about that to get someone to look deeper and see if it might be something outside of the box, which it was.  But not well yet and thought I would be by now. I am a fighter but geeze I wish my doctor would treat this like: if you discover and treat me successfully I will give you a million dollars.  I am certain the answer would NOT be fibromyalgia!

i know its been a while but i just read this my doc rumatologist says fibromyalgia is a secondary dieses you are right there is something else the first cause.  Press the doctor for another answer

Been working with neurologist, orthopedist, rhematologist and family doctor.  Was first told I needed TWO hip operations. Next was medicine for arthritis (cppd) then shots (steroids )for pain.  Finally after I searched symptoms on internet for many hours and checked everything on Chronic Myofascial Pain.  I kept telling everyone  muscles hurt not my joints.  If you want to check a good source and almost a text  book order Fibromgia & Chronic Myofacial Pain.  It is with a PT and no surgery.  Find one that identifies himself or herself as acquainted with the treatment.  It is the first help I've seen for 2 1/2 years.

BJ

My wife has has these pains and fatique for several years. She is 47. The pain got so bad she went to the ER and they did a MRI and found what they believe is boan cancer. Get tested to rule this out. I want to save everyone from what she is going through.

hi all..

I suffered the same. Stiff and pain all over. My wife had to lift me out of bed and put me in a hot bath. It started in my feet and went all over my body. 26 years old I lost my job house and wife all within a year due to this problem. Doctors could not help me I had all the tests. I think they thought I was a fake. It lasted for 18 months and then one day I woke up with no syptoms it was as quick as that every thing was normal. The only problem I have now is flexability is not as it should be and if I get stress I find a few days later my feet and toes go stiff and are painful. This only lasts a couple of days though. I have been told that chemicals from the brain during stress or depression can cause these effects with some people. Also I was told an infection in the nerve system could have been the cause. 10 years on now and I have a normal life it was all so strange and scary. A shame to hear similar stories I thought I was alone

oh my god, I have the same symptoms with extreme fatigue that is dibilitating,even burning behind my eyes, all over my body, even in my head. All of this started after a partial abdominal hysterectomy. They left my ovaries, fallopian tubes and cervix. No one can find out what is wrong, and I have flare ups that are aweful, make me scared to be home alone with my kids, can barely get up because I cant even hold my arms up very long and they start burning so bad that I have to put them down, almost like when you workout and you use weights and when you do a certain amount of reps your muscle will start to burn and you have to stop. although I havent dont anything, all the muscles in my body just feel soo fatigued. If you ever need to talk, call me 720-288-9321 My name is Jan, I am married and have 2 kids. I have been dealing with this for almost 2 years now and its sooo scary every time I get it. Hope you feel better!!!

Oh, Jan.  You describe my symptoms exactly.  Mine started with an out of the blue bout of pancreatitis.  The docs never figured out why I had it, and Ive never had it since.  After that, I had severe all over burning pain, muscle pain, bone pain, extreme fatigue. weird reactions to things.  Ive had so many nights that I call my "nights of hell" that Ive gone to the ER knowing that something had to be horribly horribly wrong where my body was burning and aching all over and my arms, legs, hand and feet felt like the bones were literally shattering, my muscles twitching and drawing up.  Im a really strong chick, with a high tolerance for pain. I had all my children completely natural... but this thing is almost unbearable. Trying to rest actually makes the pain and burning worse, its as if it intensifies. 

Now, six years later, the pain is on a slow burn very day, there is so much fatigue, but I have to keep going.  I see a rheumatlogist, neurologist, endocrinologist and a primary physician.  They call this a "lupus like" illness and throw steroids and pain meds at it.  Neither of them helps at all, so I dont take either of them.  I also have developed a high intolerance for almost all medications, preservatives, etc... My ANA is sky high, but everything else is normal.  Ive been like this for 6 years, and it hasnt gotten better.  The hard part is I have 4 children, and work an hour from my home.  Im the primary breadwinner in our home, so I have to be there for my family.  Some days its all I can do to get through the day, and collapse when I get home, only to sleep in painful fits until the next morning and do it again.

I do understand.  There are others out there who experience this, and you are not alone.  I pray that eventually someone will figure out what this is and we can have our lives back.  

Jan -

you describe my symptoms to a T. I have been searching for anyone else who might experience what I do.  Have been having extreme muscle burning/fatigue since the birth of my daughter in 2006.  The episodes come after I have the flu or some sort of illness.  The symptoms last for 8 days and I may go months without an episode.  What are you doing to treat your symptoms and have you found a doctor that has provided any sort of explanation?

-Amy

I didnt get sick until after my partial Hysto either! Now I am sick as hell and my bady is degenerating so bad now that the drs said I had the insides of a 65 year old woman when I was 28! My hysto was at 23 or 24 and I am 33 now. Now I have all sorts of issues. My outsides look younger than they are... Its just my insides... I think all of this is really too much of a coincedence. One thing I have seen everyone has in common is a major surgery or spinal problems. That seems to be everyones starting point of illness too! Hmmm. I need to research diseases caused by surgerys?? Please feel free to email me and I will gladly swap contact info with you. I think we all need to work together to get answers. daisiesNdenim@gmail.com

OMG!!!! I found a site when I was researching diseases caused by surgery and stumbled on something that actually fits me perfectly from my asthma, to my guts, fatigue, passing out and pain!!! Even my back issues.... Check this site out and see if it help you at all? I am going to have my dr check me for it immediately!
http://www.netdoctor.co.uk/diseases/facts/hypoadrenalism.htm

It's so reassuring to read everyone's comments.  My now 8 year old son and myself have had these symptoms since September 2008.  One of his specialists actually said "it's a virus, but it's gone now, only your brain doesn't think it has."  You know, it's strange enough having something that changes your life so much without the added bafflement to doctors comments.  What you have written above not only made me laugh (because I refuse to be labeled with such ridiculous diagnosis and comments - especially of the phycological kind), but I feel them drawing me into it and I'm kicking and screaming in my head, "No way.  Just research properly, diagnose accurately and then treat us.", but it has also given me an added boost to my confidence in continuing to say to them, what I have repeatedly said to them from the beginning, "Something is causing this."  Yes, I have symptoms because of it, but they are not the cause.  And it really needs fixing, so therefore, please find what is causing it.  But they are not even looking anymore, we are just left.

I have had the same. Started as forearm aches when using computer at work, and neck, shoulder tension..became progressively worse. I began to feel like my muscles were shortening as i slept. I have gone to many specialists-- having MRIs next week of cervical and thoracic spine. I am unable to maintain a "hold" on items, picking up, etc. although my strength is normal for muscle testing. My ROM is limited in neck, some shoulder. Pain changes..but always present to some degree. I am receiving PT for trigger points, myofacial release- which helps some. I am worried about losing more strength and function..I am single and live in the country- need to shovel, carry wood, etc. Have never had any issues in the past and I am 53. Did have period of significant anxiety at onset of symptoms- that is what i was originally attributing them to..has anyone received any correct diagnoses since posts?

Caren,

I have had the same onset of symptoms since my divorce some 2 years ago and after significant weight loss.  The muscle pain and the popping in the joints is the worst!  The Doctors have found that my Thyroid is completely non functioning, and I cannot produce Testosterone as well.  After being supplmented with both Testosterone and Synthroid...I feel about 80% better.  Have you had any luck? 

Jason

I began reading the posts thinking I was in bad shape but, most of the responses are excrutiating just to read. I am a massage therapist that studies reflexology. I have pain in one thigh and my fellow, therapist does the body work on me to relieve these trigger points and it helps with the muscle pain then the pain and stiffness in the left leg only returns. Two things I tried for the pins and needles pain in my legs because last year I wasaa feeling symptoms of restless leg syndrome and I bought some tonic water and started drinking it,and the symptoms disappated, it contains quinine, it worked well. The other thing is I was diagnosed with severe vit. D deficiency and was treated, so now I get in the sun each day! I also had graves disease and had a partial hysterectomy at 47. I just stared iodine therapy don't do it without a doctor's approval! I do because I don't have health insurance or a doctor. Last night however the pain feels as though it is starting in my feet and it that s true with some of you e-mail me and I help you treat it with reflexolgy. The other possible remedy I am going to try is the alkaline water that I am going to drink because it has increased calcium ions and that will also help, it helped rats tested in Japan in the 90's, so I know it might help me! niseygermaine@yahoo.com

After many years of suffering and the last full year of the most intense pain I have ever experienced I finally found an answer to help me overcome my pain enough to get back into life and enjoy it again. The pain was real. It was severe a 10 out of a 10 on most days. I could not find a medication to touch the pain. It was the most horrendous period of my life. No work, no social life, no appetite and even watching TV hurt. I could not find a doctor that seemed to help me with my pain. It was try this and come back in 3 weeks and as I stumbled out of the office I could barely remember where the car was parked let alone drive it. BTW..I am a very self reliant individual who never took sick days even when I needed them when I was able to work. Anyway..Here is what I found and to me it was the miracle I was looking for. I began by reading a book called Fibromyalgia & Chronic Fatigue Syndrome 7 proven steps to less pain and more energy Fred Frieberg. It opened my eyes to my pain. Now I believe I have Fibro and have so for at least 20 years but I could never do anything about it other than to try to get enough rest. So here is what I did. I followed the suggestions in the book. I meditated. It was hard to do at first. But once I started to get the hang of it I found that my pain level would actually drop to a 6 or 7 for a short time before it spiked again. So I continued and I started seeing results. I added exercise. It was hell to do but I did not want to spend the rest of my life waiting for the pain to go away. Since I started to see improvement I continued. It was the hardest thing I have ever done. But it lead me to the relief I was looking for AND I was open to new ideas. Although this took a long time (couple of months) and I was not free from pain I was going in the right direction. What I found next is what changed my life. I tried acupuncture. I found a clinic that offered the sessions very reasonable and gave it a try. I could not believe how much relief I got from the first session. Since it is all based on the same idea as meditation I understood how the body could help heal itself. I was advised to come three times a week. Keep a positive attitude. DO not over do anything as I started to feel better and understand that I could move 3 steps ahead and slide 2 steps back on my road to recovery. And sure enough I was doing better and really believed I was conquering it and then one day I would wake up only to be faced with the 9 pain again. But the funny thing was the pain did not last at that level long. Once I returned for my next visit I was able to bring the pain level down again. I flip flopped up & down for about 2 months. But I stuck it out and after 2 months I was actually down to pain levels of 2 - 6. 1 month later I had reached a pain free day and I was elated. The pain returned slightly but I continued 3 x a week intil it actuall disappeared. I continued to meditate, exercise and do acupuncture. I am now pain free. Back to work and loving life again. So much so that I can't believe how good I feel. I thank god every day for my health but know I have it all to thank for my acupuncture guy. He saved my life. I continue to go once a week and probably will always go to make sure I take the time to destress and remember what it is like to be pain free. What I did not know about acupuncture is that it is helpful for so many things. All you have to do is explain your health problems and let them take care of you. But you have to believe it will work and give it the time to condition your body back to health. I have seen it work wonders on others in the practice I go to. I believe and am a walking testiment to how acupuncture saved my life. I hope that this helps anyone reading this. Call around and see if you can find a clinic that can treat inexpensively. Mine only charges $20 a session and the session lasts an hour. Good luck!

After many years of suffering and the last full year of the most intense pain I have ever experienced I finally found an answer to help me overcome my pain enough to get back into life and enjoy it again. The pain was real. It was severe a 10 out of a 10 on most days. I could not find a medication to touch the pain. It was the most horrendous period of my life. No work, no social life, no appetite and even watching TV hurt. I could not find a doctor that seemed to help me with my pain. It was try this and come back in 3 weeks and as I stumbled out of the office I could barely remember where the car was parked let alone drive it. BTW..I am a very self reliant individual who never took sick days even when I needed them when I was able to work. Anyway..Here is what I found and to me it was the miracle I was looking for. I began by reading a book called Fibromyalgia & Chronic Fatigue Syndrome 7 proven steps to less pain and more energy Fred Frieberg. It opened my eyes to my pain. Now I believe I have Fibro and have so for at least 20 years but I could never do anything about it other than to try to get enough rest. So here is what I did. I followed the suggestions in the book. I meditated. It was hard to do at first. But once I started to get the hang of it I found that my pain level would actually drop to a 6 or 7 for a short time before it spiked again. So I continued and I started seeing results. I added exercise. It was hell to do but I did not want to spend the rest of my life waiting for the pain to go away. Since I started to see improvement I continued. It was the hardest thing I have ever done. But it lead me to the relief I was looking for AND I was open to new ideas. Although this took a long time (couple of months) and I was not free from pain I was going in the right direction. What I found next is what changed my life. I tried acupuncture. I found a clinic that offered the sessions very reasonable and gave it a try. I could not believe how much relief I got from the first session. Since it is all based on the same idea as meditation I understood how the body could help heal itself. I was advised to come three times a week. Keep a positive attitude. DO not over do anything as I started to feel better and understand that I could move 3 steps ahead and slide 2 steps back on my road to recovery. And sure enough I was doing better and really believed I was conquering it and then one day I would wake up only to be faced with the 9 pain again. But the funny thing was the pain did not last at that level long. Once I returned for my next visit I was able to bring the pain level down again. I flip flopped up & down for about 2 months. But I stuck it out and after 2 months I was actually down to pain levels of 2 - 6. 1 month later I had reached a pain free day and I was elated. The pain returned slightly but I continued 3 x a week intil it actuall disappeared. I continued to meditate, exercise and do acupuncture. I am now pain free. Back to work and loving life again. So much so that I can't believe how good I feel. I thank god every day for my health but know I have it all to thank for my acupuncture guy. He saved my life. I continue to go once a week and probably will always go to make sure I take the time to destress and remember what it is like to be pain free. What I did not know about acupuncture is that it is helpful for so many things. All you have to do is explain your health problems and let them take care of you. But you have to believe it will work and give it the time to condition your body back to health. I have seen it work wonders on others in the practice I go to. I believe and am a walking testiment to how acupuncture saved my life. I hope that this helps anyone reading this. Call around and see if you can find a clinic that can treat inexpensively. Mine only charges $20 a session and the session lasts an hour. Good luck!

I am 33 and amazed to see so many people suffering with a ton of the same issues that I have. I am a mother or 5. I have a medical education that I can not use because of my health. I find myself very weak at times. Not a lack of ambition but an actual lack of physically being able to move. I had so many drs telling me that I was depressed so I had a forensic psycologist test me for everything. I have been diagnosed with anxiety but he feels like it is due to the pain and no clear understanding of what is happening to me. Anxiety meds make me feel like I am not all there and not clear headed so I rarely take my meds because my mind is nearly the only good thing I have left.... Most times. My problems all started with the basic fatigue... almost like being sick all of the time, but no real illness. So I pushed harder too more vitimin C and B and pushed on. I was going through a divorce, putting myself through school and working so I figured it was normal to feel "Wore out". Then the pain in my back started. I took advil. I rarely took meds so this was a huge deal for me. I don't do drugs or drink, nor have I ever. After about 2 -4 weeks of extreme pain, it got so bad that I couldn't walk. So I went to the hospital then was refered to a neuro surgeon. I was diagnosed with early degenerative disc disease almost immediately. My L4 & L5 are nearly completely gone, I had a buldging disc and an anual tear. Guess that was enough for my legs to not want to work. I was put on pain meds, given shots in my spine, and told that I have to have back surgery but they wanted to wait until I just can't take it any more because I was so young. I was 27 at the time. Its a degenerative disease so the sooner I have surgeries the more I will have to have later :( CRAP! THen I found out that the shots can cause EDDD, so I quit getting those not to mention they really didn't help. I had a cryo procedure done on one of my nerves in my back and while I was, of course, the rare case with the slow dying nerve... it hurt BADLY for a month then it dyed and is a little better. Next, I had a pelvic prolapse.... I had to have it tacked and my bladder too at 28. The idiots suspended my guts to the degenerative part of my back, the ligiment snapped on side of my guts dropped and landed on my intestines. They were already slightly prolapsed even after 2 surgeries, and got worse with the pressure of my other organs laying on it. SO 6 weeks later I had a foot and a half of my intestines removed because they came out of my body. Lucky me... lol I am too scared to go back yet and have my pelvic cavity tacked back up, because they may very well accidentally kill me and my babies need me. Then I started experiencing wide spread pain. Like most of you I have been diagnosed with Fibro too. I think its bull shit. You can argue a dr down, but they are so over whelmed that they dont go out of their way to find out whats really wrong. I have chronic persisitant asthma and was diagnosed with lung cancer.... they were wrong there too. I have calcified cysts in my lungs not cancer. Then they diagnosed me with Multiple Sclerosis, and said that I have other sypmtoms that are not typical of MS. Then my nerologist said she doesn't see the MS the Neuro Surgeon sees... I mean it is a never ending cycle of nothingness. Meanwhile I am in pain and I dont feel like I am living to my full potential. Now all of my joints hurt. I can't sit in one spot more that 5-10 minutes at a time with out my bones locking up... Not normal ligament pops... These are grinding sounds and painful. To stay in constant motion is so tiring. To sleep is painful and I have bruised my ribs sleeping? Who does that!? If I dont get up and move at night the pain is excrutiating. The drs say that my insides are that of a 65 year old woman and that was at 28 I am not willing to see how old they think I am inside now. I have refused my back surgery to have the dead peoples bones screwed into my back until I just cant walk period, or until they find out what the problem really is.

I find it hard to believe that one person can be diagnosed with so many issues and there not be one thing that is causeing it all. There has to be a treatment. We just have to find out what the hell we have wrong with us to get the treatment we need. My body is KILLING itself. I really do think that. I fight it with every fiber in body and encourage all of you to do the same until we get answers. My insurance has lapsed now and I cant afford more insurance and all of my little diagnosis arent enough to get disability, even if I wanted to apply for it. My most recent issue is severe headaches that act like strokes. The dr said that they are not strokes even though I cant move certain parts of my body on one side or speak at times. Its rediculous and I feel so retarded. I was a very bright person with a huge vocabulary, and spunk... Now its all in my head because my damn body is on strike. SO frusterating. The headaches are called complicated migraine disorder. You dont say?! Really doc! Does it have to be complicated! I used to never have any head aches.

So now my diagnosises read:

Chronic Persistant Asthma

Early Degenerative Disc Disease

Severly low Vitimin D

Multiple Sclerosis ?? (I am still sketchy with the drs on that crap)

Fibromyalgia

ADD (By the way the ADD meds do help with what they call Fibro fog ?? I call it not being able to sleep)

Arthritis (but not rheumatoid)

Stigmitism

Pelvic Nerve damage

Hemroids ( no girls diagnosis is every just peechy til you have that! lol)

IBS ( I think thats because they have no idea why my guts keep prolapsing)

Partial Hystorectomy

Endometriosis (because the dumbasses couldnt just take the whole thing. I was 24 when I had to have my hyso due to prolapse)

Now I have some kinda weird unidentified rash.... YAY! :/

There are theories with my neurologist that I have Lupis... but the blood work does not show that yet.... Too easy.

I mean really!? I refuse to believe that I have all of these things wrong with me. There has to be one thing that is causing all of the symptoms that are used to diagnose the above illnesses. I really think that we have something rare they just haven't diagnosed yet. I do have muscle pain but most of my pain is bone pain. There is a difference.

Maybe I will start a forum and have people list just their symptoms and what they are diagnosed with and see what things we have in common then take that crap to a University to have them study us. I look normal on the outside. In fact, I look younger than the 33 years that I have lived... I am so tired of drs looking at me and talking to me like I am crazy. They are going to drive me to a depression if I dont get answers and relief soon. I will say a prayer for all of you.

I am a very sarcasitic person, hope ya'll dont mistake my little comments as depressed.... lol dispite all that is wrong with my I think I do pretty good to lift my head and smile often.

If one of you have any answers please feel free to email me. I would appreciate any theories at all that might get me closer to what ever is wrong with me. Its not in my head... I just know it isnt. daisiesNdenim@gmail.com

Daisy,

Please go to lymediseaseassociation.org.  Also, check out sunridgemedical.com/lymedisease and http://lymeproject.com

I hope you find some answers.

After almost 2 weeks of antibiotics the symptoms have not gone away.  In fact, they seem worse than ever.  We are still searching for answers.

My husband is on a different antibiotic, now, and he's being treated for Lyme Disease.  He is also taking mega-doses of Vitamin C (self medicating) which seems to be helping, too.  He is getting better every day!  I can actually see some progress.  I hope all of you find answers. 

Osteoarthritis sems to be the modern Doctors get rich quick scheme.  Schmorals nodes for those who've had back MRI's?  Seldom noted as DDD?  Look alittle further!  I'm a male and since 20's had problems.  Carry a tape recorder to your Dr's visits...  See how quick they change their tune...

I am 48 and 3 weeks ago the same symptoms hit me, that night I ended up in the ER due to the pain being so bad. My PCP has done numerous tests and everything is fine. Has anyone received an answer of what this could possibly be from their doctor? I am a very active person in the K-9 Search & Rescue area & this has really made it hard to work my dogs.

Please pardon my many typos. Tablets are not ideal for typing.

Get documentation from all your doctors and apply for SSI and Medicaid. It takes them forever to make a decision, but if you get SSi, you automatically get Medicaid, which will cover any treatment deemed medically necessary by a doctor and is not covered by your primary insurance. Serious meds for pain and depression are expensive, as are all the specialists. As long as you file the paperwork, they'll also reimburse you for most medical expenses you had to pay for while they were making a decision. When that comes in a lump, if you're not buried in medical bills, you should consider investing in a hot tub or paraffin spa. Those things can help with joint pain immensely if you use them regularly.