The New Face of COPD: Eileen

What is life like for you today?
I still have low endurance and fatigue (following a fractured shoulder and hip and months of inactivity) but not on the level that I did before I finally surrendered and got honest with everyone. Pulmonary rehab, good medical care, support, education and quitting smoking all helped to make this happen. It still takes me a while to get ready to go anywhere but with planning and pacing, I am able to do things better and smarter.

I used to be able to shop and walk through a mall without any problem. Now short trips to stores where I can pick something up and carry one or two bags is my limit. I used to work full time and now I do better just part time. I can no longer go places where there are a lot of people for fear of catching something that could affect my health, which means I miss some weddings and gatherings. I used to be able to dance but now I just sway (smile).

How is your health now, compared to when you were first diagnosed?
It is definitely better. I have learned so much about breathing and coping and ways to make my life better and easier. My blood pressure is under control, I eat better and am losing weight. Overall my health is good with the exception of my lungs. My last PFT (pulmonary function test) showed only a minimal decrease (FEV1 from 29% to 26%) in the past 10 years.

Do you use supplemental oxygen?
I use 2L at rest and 4L with activity.

Do you take inhaled medications?
Yes. Advair, Spiriva and Albuterol.

Do you exercise regularly?
My usual routine is to go to a Pulmonary Rehab maintenance class twice a week. After a recent fall, I try to do at least 30 minutes of exercises at home 4 -5 times a week and will continue that until I'm able to go back to rehab.

What has been most surprising in your journey with COPD?
That life is still rewarding despite my limitations. I have found a job teaching that I never would have thought of had I not had COPD. I also help others with support and information through the BreathingBetterLivingWell website. I am also surprised that I am able to accept help from other people and be gracious about it.

What has helped the most?
Finding that I can still give back and feel my life is meaningful, even with this.

If you had to give one piece of advice to somebody with COPD, what would it be?
Don't give up because life can still be good with a diagnosis of COPD; it's not a death sentence.

Do you have a personal philosophy?
I believe that keeping a positive attitude has helped me to overcome most challenges that I have had. Instead of dwelling on negatives, I will find positives even if I have to search deep some days. Things will never improve with a negative attitude.

I have always been fairly spiritual, and that helps me to keep things in focus. I know I'm not on this path alone and He will help me if I ask. It also helps to share with others what's going on with me and when I do that, I know I am not the only one dealing with chronic illness.