I've had C.O.P.D. for 15 years and was told I have end stage. I've been on o2 oxygen for 15 years. Sats drop into low 70's upon standing or walking even just to the bathroom.
I've had C.O.P.D. for 15 years and was told I have end stage. I've been on o2 oxygen for 15 years. Sats drop into low 70's upon standing or walking even just to the bathroom.
Hi There,
Unfortunately, the lung damage caused by COPD is irreversible, but, with treatment, symptoms can be controlled and quality of life improved. Also, there is a lot you can do for yourself to improve your exercise tolerance, so you don't become so breathless when you walk just a short distance. Nutrition and daily exercise is vitally important. With exercise, you start with a short walk, say 5-10 minutes a day. If you can't do it all at once, then start slowly and work your way up to 30 minutes. If you can't walk, then start with chair exercises, anything to get moving. And, I hope you are not smoking, as that is a sure way to make your COPD much worse, much quicker.
Although the term "end stage" is rather obsolete, I am assuming you are in Stage IV, very severe COPD. Don't let the term "end stage" allow you to feel like there is no hope. There are many people who function just fine in Stage IV and continue to exercise on a daily basis, in spite of their limitations. Breathing exercises will also help which include pursed-lip breathing and diaphragmatic breathing. Of course, following your doctors orders is also going to help. If you could do it, pulmonary rehabilitation would be great for you, but not sure if you have done it. If you could insist upon it with your doctor, I would try, as it will dramatically improve your exercise tolerance and your quality of life, as well.
Hope this helps at least a bit.
Kind Regards,
Deborah Leader RN, BSN, PHN
About.com Guide to COPD
www.copd.about.com
Unfortunately, end stage is not reversable. The damage that has been done to your lungs is permanent. However, end stage is simply a medical term. It does not define how much longer you will live. You don't say how many liters of O2 you are on, so you may want to speak to your doctor about increasing it. Take as good of care of yourself as you possibly can. Best wishes.
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Dear Deborah,
Thank you so very much for your input!
I feel like really working on my exercise routine after hearing from you!
Thank you so very much. Maybe I can make the Boston marathon.
tee hee
Ron B