Today :-)

Another busy day. Funny I quit school and within a couple of weeks life has gotten better. I was accepted to get services at DRAIL (Independent Living Center). They are going to teach me money management and one on one cooking skills, they are going to come out to my house for the cooking and I think money management. My parents seemed pleased with that idea...and I think my Mom believes I'll be able to cook dinner for her more often so she doesn't have to after a long day at work (she's a special ed teacher)

Today I got the FISH test to see if I have a 22Q Deleation (VCFS). I'm trying not to get my hopes up but I really do want it to be that, that I have the 22Q Deleation or VCFS. It would answer so many questions. My parents and sister plus extendend family have been very supportive of me over the last 31 years. If it comes out that I do have VCFS or something like it my mom and I are going to try to start a local support group. In a city of a little over 300,000 there's gotta be a few others out there with this. I also am going to try to go to the conference that is in Salt Lake City if it turns out that I have this VCFS. I want to help people become aware of this. It baffles my mind that what 1 in 2,000 people are born with this and hardly anyone has heard of it? Crazy. If I do have VCFS I feel as though I have a responsiblity to those with young children who have it who don't know what to except when their children to get older they can see that their children will in some way be able to live a full productive life with support from family, etc.