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Well, it has come down to this

By Donna-1 Wednesday, April 25, 2012

I have spent most of the last 2 days in bed all day.  With the covers over my head.  Not even listening to music.  I'm starting to think I would just like to die...because there is no relief.  Everything is too difficult.  I'm just going through the motions.  No, I don't have plans to kill myself.  Just thinking it would be nice if I died in my sleep.  It feels like everything is wrong physically and mentally.  And I don't know what to do about it.  No one has an answer.  I don't feel good.  Next week I will have allergy testing to at least try to stop the incessant itching.  I have a pdoc appt next month and will be open to whatever he suggests.

 

And it's not like "I can't hold on any longer."  I've been there before...I'm not there now.   I just feel confused about everything.  My best friend rejected me last week and was extremely rude...it upset me.  There wasn't any reason for it.  I've been on this gluten-free and egg-free diet for about 3 weeks now and that is a big adjustment.  I thought my stomach was all-better, but then I was sick all night last night.  I made myself get up and about today, ran some errands, went for a blood draw to check my anemia, watched TV.  I only have $200 in my savings and live from day to day on disability checks...no extra money to get away.  But there are local things I could do...and don't.

 

Maybe I just feel worn out from being sick...and so now depression has set in and I find myself responding to it in familiar ways -- being reclusive, focusing on the wrong thoughts, not feeling like I can tell anyone what I'm going through.  Who wants to hear a depressed person talk about how they're feeling?  No one.  Even my pdoc said he is not a therapist or a counselor, to go somewhere else for that.  But if I go back to my old therapist she will blame it all on my mother again and I can't take care of my mother and listen to my therapist trying to stoke the fires.

 

Fortunately, my mother's teaching ends this week...for at least the summer.  That means I don't have to worry about her house being clean.  Her hair stylist broke her arm right below the shoulder yesterday, so maybe there will be some adjustment where she doesn't have to get her hair done every week.

 

I don't feel like I can handle all that life requires.

Suicidal Tendencies
4/25/12 11:27pm

Donna, it's no wonder you feel like you want to go to bed and not wake up.  Could you find another therapist to talk to, or could you tell the one you've seen before how you feel about her "blaming" your mother?  I know for myself that it's really hard sometimes to want to do anything for my parents because of what they put me through and, at least for now, I can minimize my contact with them.  But maybe there's a way you can work through that stuff and still help your mother adequately.  Maybe it's coming to the time when your mother might have to live in some kind of assisted living arrangement, even though that's not what she wants.  But you can't do it all yourself.  I have a cousin who has had to move to a semi-assisted living community because her back is fractured from osteoporosis and there's nothing they can do surgically, nor are painkillers enough and she's not minding it as much as she thought she would.  She's less depressed because she has to get dressed to get her meals and it gets her up and around, whatever little bit of time she's able to.  I can imagine just the thought of having to even get something like that arranged is overwhelming and when you're feeling sick, it makes it even worse.  I sure hope you feel better soon and find out what the itching is from.  I'm glad you're letting us know how you are.  I know what you mean about feeling like nobody wants to hear about feeling depressed - but that's what we're here for!

 

Take care, hope tomorrow is better.

4/25/12 11:39pm

Hi Donna,

 

I think I understand your feelings very well ....overwhelm.... under too much stress and worry...your health, your life, your mom...finances...

 

I do it too...like most of us...get in bed, pull the covers over...I did it this week too...for a while...then got up, did a little cleaning, back under the covers, then up again, cleaned some more, back under...you are not alone!

 

I guess we need to be gentle and loving on ourselves?...you are doing such a good job...it seems you need some more breaks...

 

and maybe break down what you have to do into mini steps?...countless people have told me that many times...and then do one or two tiny mini steps a day on each task...

 

if overwhelmed, I think it is ok if we get in bed for whatever time we need, for a rest...right?

 

 

I broke down crying for two days this week, thinking the very same thing....that life is just too hard to do....

 

 

It just seems like you need a little more help for your mom ...that you just don't have the energy to do all of it....is that really bad? 

 

You decided not to live with her after a lot of anguish right?  And it is the best thing for you right?

 

 

....does she possibly have insurance with medicare, where she can get a home aide just a couple days a week?  or a little extra money to hire anyone even one day a week?  Just a tiny bit more help than just you...is there any way?

 

I empathize....I know my  parents are getting older and I want to make sure everyone is comfortable and ok ....I am  just praying that I am healthy and we can all work together to make sure everyone is well...

 

 

well, right now, you are not feeling well physically and mentally  you said...

 

I made an appt. at a dentist again...and feel some relief...I imagine if you just start on the issue of the itching again...do something again...and the issue of feeling sick...do something again...small to address it...you may feel a little relief?

 

For me, cleaning is big too..if I can clean each day, and shower and keep the cat's fed and water clean, that can be enough some days..

 

I guess we need to be gentle on ourselves...that is what people have been telling me recently...give yourself a  break...you are doing really well with so much that you are handling right right now...

 

just do the best you can each day ( I have this on my mirror in the bathroom)

 

 

It seems we all just want to know that we are ok, and will be...and all our loved ones too...and that we can handle what life gives us...and have some joy in it too..

 

your best friend will likely forgive /or you forgive him or her and things will be fine...that's how good friends are :)

 

 

sending a hug and encouragement,

 

 

Marishka

 

 

 

4/25/12 11:41pm

Oh, you did say you made another appt. for the itching and with the psychiatrist!  so that is one thing to cross off the list! :)

5/ 4/12 8:06am

Hi Donna,

Sorry you're feeling so bad. Did you find out what was causing the itching? I'm glad you're fighting it and trying to get out and about - it's a bit of a spiral isn't it when you want to rest and then you get more depressed cause you're not doing anything and that just means you have even less impetous to do something...

 

I find the best way to get yourself up and doing something is to find something that you really want to do. Even if it is to read a certain book - only allow yourself to do it out at a park, perhaps. Or something arty or gardening or going for a walk around a nice area... I know you said there are things near you that you could be doing but you can't seem to find it in yourself to do it... perhaps you could build up one of those things in your mind slowly. Like before you go to bed think about the activity and what the benefits would be. When you wake up go over it again and see if you can't build on the positives of doing it. Whenever your mind wanders over it during the day consider how much you might prefer the activity to what you are doing now... maybe over time you'll get more excited about the concept and then find that it is harder not to do it then to find the energy to do it. Just an idea.

 

I really hope you're feeling at least a bit better now. Hold in there.

5/ 4/12 3:06pm

I saw an allergist Wednesday.  I think the doctor was kind of p.o.'d to find out I didn't have a referring doctor.  I told him I was desperate to find out what was causing the itching, and referred myself!  All my primary care doctor did was to give me a cortisone shot and a sedative.  (The sedative, I take it, was because the word "schizophrenia" is on my chart.  She doubtless thought this was all in my head."  After talking to the allergist, it was his opinion that it is definitely not a food or chemical allergy, but that it is caused by the last medication I started taking in August 2011.  That would be Latuda, the only antipsychotic that hasn't turned me into a weight-gaining zombie.

 

He said it won't hurt me to keep taking the Latuda, I would just have to bear the side effects (itching, coughing, anxiety, insomnia.)  I had really known in my heart that it was probably this medication.  Because all the symptoms started shortly after I began taking it.  I just didn't want to believe it...because you know how hard it is to find a medication that makes you feel better.

 

But only way my psychiatrist will know is if I tell him.  I didn't give the allergist his name.  Do I tell him and risk almost certain return to olanzapine, which is the land of the living dead?  Or do I keep it a secret and suffer the side effects?  I see my pdoc on the 15th of May so I have a few days to decide.  I also have pretty severe anemia and that can be a "rare" side effect of Latuda.  If that is the case, then I will have to find another medication.  I just hate bringing it up becaue I don't need to work through any med changes right now.

 

I had to go to the hospital last Friday in the middle of the night because of my first full-blown panic attack.  I called an ambulance because I woke up out of a sound sleep having breathing problems, chest pains, weakness. I thought I was having a heart attack.  You guessed it -- they took me to the hospital and gave me a sedative...and a anti-nausea shot.  My sister met me there and drove me back home.  It is a choice between the better of two evils.  Side effects or being a zombie with a 24x7 appetite.  I'm leaning toward just living with the side effects and taking iron supplements for the anemia.

5/ 4/12 9:50pm

Hi Donna,

It sounds to me like you're trying to talk yourself into staying on this medication even though it is doing terrible things to you because you hated the way you were when you were on the other one so much... is there no chance of some other type of medication that you could try, rather than return to the zombie one? It's just that if the medication you are taking now increases your anxiety it could be the cause of your panic attack, too - that along with the whole stress of this issue. Either way I think you should discuss it with your psychiatrist - he cannot make you take something that you don't want to, but he could help you sort through what is the best for you or maybe even come up with some sort of alternative.

 

I really hope that you sort it out soon, because it sounds like you're going through a really awful time. Wish there was some way I could help.

5/ 5/12 8:51pm

Donna,

   I certinly feel for you and your delema with your medication.  I can relate.  The symptoms may suck. The old drug was worse and it may not be the most wize decision to keep it from your pdoc.  But sence you know it is not life threatening to continue the way you it is certinly understandable why you would not want to say anything about it.  I think I would try to live with the side affects a little longer.  I agree if they put you on something new it will difficult.  Changeing meds is so tireing and confusing and scary.  If you are already mentaly exausted it would be risky to your already strained state.  Can you wait and hope for an inprovementin mood so that meds can be changed when you are more ready to handly the new meds?  Not knowing how things work for you though, I know some folks moods don't lighten on there own, then medical intervention is necessary to get over that hump.  Once your more functional more rational options become availiable.  

     If it makes you feel any better I can pray for you.  I don't understand why God allows this to happen to us.  But I know he hears us and loves us and will never turn his back on us. 

                                               Praying For You.

                                                         HONEY

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By Donna-1— Last Modified: 05/05/12, First Published: 04/25/12