By "no change" i mean i still have sleepiness ALL day, and nap attacks where i MUST sleep. Even if friends, family are over or it is my day off,etc. I 've stayed on the meds since i have read it is a trial and error process, like Judy said sone meds make things worse. I also now know i suffered from general anxiety my whole life. Now i don't go to work everyday worrying about being fired, so i can be more effective in that regard. I initially thought i had some poisoning because in a couple days timeframe i went from " me" to having NO memory, no thinking, plus muscle and joint pain, and the super mega need for sleep and ringing in ears. Then i recently red about the colitis and i do have a lot of mucus in stool. Eiher way i just started a new dr at cleveland clinic. I can't list all the tests we've done but the sleep study was kinda funny. I know they are looking for specific things but a sleep study for me is like going to the great lakes for a glass of water! I hear what you are saying about writing down sypoms and things tried so far, but since there is no definative test for CFS, well let's just say, it's been really difficult to deal with all the syptoms above and try to hold my job, and be a father and husband, and if a doctor thinks the problem is psycosomatic to start with, i can almost see "hypochondriac" in their eyes when i do take a list of previous test results and symptoms and they see that i've jumped from dr to dr when we get noWhere except "are you Talking to someone" My awesome wife now accompanys me to dr visits to help on that front. I never knew this downward spiral could exist! You loose your cognitive ability and then can't work effectivly, then get demoted which validates anxiety about performance, then doctors say Cfs has no cure or test, this then start the cycle ovet again. I have endoscope and colonoscopy coming up - i ' ll share anything that might help others.

right on, everything that MerelyMe said.  

 

I once wrote a log for myself - every day I wrote down about a dozen things, like amount of exercise, coffee, alcohol, bedtime, wake time, etc.  I think  I just had an old  calendar around and I found a month shaped like the current month and wrote in the squares.   More important to write down everything than how you do it.   This was for more than a month.  

 

Afterward (with a spreadsheet) I  figured out all sorts of  things  I couldn't have without, like, coffee improves my depression and my sleep (I thought it was bad for me!) and surprise, exercise does too.  YMMV.