Saturday, May, 17, 2008

Question
Not_A_Nut
05/01/08

Can someone have Temporal Lobe seizures and they don't show up on an EEG or a MRI?

I have been dealing with several problems for years now with no relief. I have been diagnosed with Major Depressive Disorder, REM Behavior Disorder, Panic Disorder, and ADD. Now, If all that wasn't enough to deal with, I also have been having very odd Seizure activity at times... My seizures follow all the symptoms of right temporal lobe seizures but the doctors can't find any sign of them when they do tests on me... The tests either come back inconclusive or no unusual brain activity. When i was a small child I did have Grand Mal seizures for a few years but grew out of them... A few years back I was on Phen/Fen for weight loss... after I stopped taking it I began to have panic attacks and then I had a car accident and was knocked unconscious... after that I began having the seizures. I had several cat scans and MRI's and have no brain trauma... Do have some trauma to my spine in my lower back and neck area. If anyone knows anything about Right Temporal lobe seizures then they know they are very strange... You see and aura beforehand... sort of a warning sign and you can see, hear, smell, and taste things that are not really weird... When you tell that to a doctor they tend to think you are psychotic, lol.. But, I know I'm not crazy. When it happens with me my vision is the biggest change... I see flashing lights or sometimes get tunnel vision or if it is a bad one then I can loose my vision for a moment or two.... there is a bright flash of light and then the light fades and my vision fades to black with it.... I have no head pain(not a migraine) and when these happen it is like the rest of me zones out.... I know it is happening but if someone trys to talk to me I cannot respond and I don't understand you... It's like they are talking a foreign language. Also, a lot of the times I get very nauseous and I repeat what I'm doing... For instance, my hand may jerk or I may sit and tap my leg over and over or make a repetitive motion with my hands like I'm a skipping record.... During these I also have various other symptoms as well, such as: a feeling of or dread, "Deja Vu", drooling, a feeling of pins and needles, and bad memory problems at times. I also have them more often when I am stressed out... The biggest problem is that I cannot get a doctor to believe me.... because they don't happen on a regular basis.... Sometimes I can have 2 or 3 or more in one month... sometimes i can go for several months and not have one at all... also when i have a seizure I am almost guaranteed to have a panic attack right afterwards... sweating, sometimes, But I can have panic attacks with out the seizures as well... A major problem with all the things they have diagnosed me with is that a lot of the drugs for one thing make another thing worse. Does anyone have any ideas about my seizures or about medications that may work or how I can find a doctor that won't just automatically think I am nuts?

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