Saturday, June 02, 2012

Dealing With the Reality of Diabetes

By Svati, Health Guide Monday, March 22, 2010
I recently attended a panel and discussion about “Accessibility and Disabilities” at my college. None of the six students speaking on the panel had diabetes, but I was surprised to find that I identified with many things they said. For instance, one guy talked about his struggle with a co...
Research Study Seeks Newly Diagnosed Type 1s
3/23/10 6:47am

This is so funny beacause just the other day I was testing my blood sugars in a taxi and the taxi driver said "Oh you have diabetes!",so he then asked me how I was dealing with it,and I said I do the best I can do but its not easy...then I said I realise there are far worse illnesses than diabetes but I wouldnt wish it on anyone.Then he said "oh I understand...not being able to have sugar in your tea must be a huge deal!" I felt soo angry(as if I care about sugar in my tea!).What I find difficult is that spontanaity causes problems eg.staying up later than usual,eating something new,doing exercise at a different time and getting a different result,or even waking up with an unfavourable bg and having to chase it all day and then you can get that awful weak shaky feeling,indicating a low bg at the most inconvienient of times!I also find diabetes very stressful and its tiring having to literaly carry out the endocrine function of your pancreas!Before I even get out of bed in the morning and start worrying about normal things like how will I get my homework done before class or whats on my social agenda I have already paniked about the number that will show up on my bg monitor,reacted to this(and hope for the best) and then try to anticipate the likelihood of los or highs(eg.extra exercise,stress)and take preventative measures!So I totally agree with syvati,we are not looking for sympathy but its not esay!

 

3/23/10 6:49am

Sorry just noticed I added a "y" into your name dont know why I did that....so sorry Svati!xx

3/23/10 5:31pm

Hello Svati, I joined this site today (3/23/10). I am 70 and have been type 1 for 64 years. Don't think for a moment that it is inappropriate to worry about your diabetes and your control. I have been concerned about my diabetes for so long now, and I will never stop being that way. I use very tight control and have very good health. I suspect you use tight control too. I think tight control, worrying about our diabetes and good diabetes health all go together very nicely. Keep on being the way you are, you will be just fine.

Anna, Health Guide
3/24/10 1:28pm

This is a great post.  I can totally relate to you.  I've been thinking a lot about this lately too, I think it comes from being around other kids at college all the time- you realize how many little things you do that other people don't have to worry about.  Recently, I have been sick a few times, and you can't explain to people that the worst part of being sick is actually dealing with blood sugar going crazy.  Hang in there- all the hard work it worth it. :)

Svati, Health Guide
3/24/10 2:46pm

Thank you so much for the feedback, everyone!

Anonymous
Anonymous
3/28/10 12:18pm

Your post articulates my constant frustration as a parent.  I watch my child (now college aged) deal with all the complexities of managing her diabetes and it breaks my heart that many people do not understand the disease and 24x7 effort required.  She makes it look "easy" to the outside world.  That absolutely shows her resiliancy and drive to not let diabetes stand in the way of her goals and dreams.  But it certainly doesn't help a society who prefers to see things as "easy" and "not so bad" understand the disease.  I really admire both you and her for taking the best care of yourselves - I just wish that there was more empathy for the seriousness of both the disease and day to day management.

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By Svati, Health Guide— Last Modified: 06/18/11, First Published: 03/22/10