Saturday, June 02, 2012

My doctor thinks I am diabulemic

By Roxy Thursday, February 05, 2009

I recently had an appointment with my endoc, she was a little busy with another patient so she sent in the nurse to take down my info, like my weight, blood pressure, and record what my blood sugars are.

 

The nurse kept flipping the pages in my file back and forth from my last appointment in November comparing the info from then to now.

 

She mentionrd that my blood sugars are much lower now than they were at my last appointment.

 

I told her that I don't eat processed food very much anymore, I make make most of what I eat homemade, and I get up earlier in the morning to do yoga or pilates, and I do cardio 20-45 min a day.

I also told her that I notice my clothes are getting a little bigger.

 

She flips back and starts comparing my weight from my last visit and tells me I have lost 7 pounds since November.

Naturally as anyone would be I am happy, Im not too worried about my weight as I am about my health, although I would looove to get rid of the flubber around my waist.

 

My doctor comes into the room and sits down. the nurse starts telling her the info she took from me. S he tells the doctor that I have lost weight and my blood sugar is much.

My doctor looks at me and tells me that is good news.

The nurse says '' I don't think she is eating, she's lost some weight and her blood sugars are low''

 

I lost 7 pounds in 3 months! That is not alot for 3 months, I am not even trying, I am pretty comfortable with the shape of my body, my only concern is the muffin top!!!!

I am lazy when it comes to ab workouts so I give up on them.

 

I am following the meal plan from my dietician.

 

I am not spending hours in the gym punishing my body, I am taking it slow and working my way up.

 

I am so angry at that nurse, my doctor took her side after she told me I was doing good!

I am confused, my blood sugars are in a good range, I am eating healthier, I still have alittle chocolate when I get the craving and had pizza for lunch yesterday.

 

I tried to tell this to both of them but for some reason whe I said I don't eat processed food they heard I dont eat food,

and I want to lose the fat on my stomache, they heard I want to lose weight, I am fat.

 

I spoke to my dietician down the hall after that appointment and told her what had happened, she has been working with me closely on my diet and exercise plan,

she did not agree and explained that this nurse thinks all young girls with diabetes must have an eating disorder, she knows this because this nurse goes to her all the time with concerns with other diabetic female patients of a certain age group.

 

My dietician looked over my log book(we also comunicate through email) and told me I was doing good, and not to let this discourage me.

 

I hope at my next appointment I wont have to see that nurse, I will refuse to speak to her if she is just going to hear what she wants to hear.

 

 

2/ 5/09 2:18pm

I thought that diabulimia was when you skipped insulin and let your bloodsugars run high, not low in order to lose weight. It looks like you're doing all the right things to get in shape, maybe your doctor misunderstood?

2/ 5/09 2:24pm

I guess I should rephrase- Diabulimia is when a person skips insulin in order to have excessively high bloodsugars in order to lose weight.

 

*** this is NOT healthy! See previous post:

http://www.healthcentral.com/diabeteens/c/27511/55832/weight-insulin

 

I'm sorry your doctor misunderstood your efforts to become healthier as being an eating disorder- I can understand your frustration! Perhaps next time you talk to that doctor or nurse, specify with them that you didn't mean that you don't eat ANYTHING, just that you have altered your eating habits to be healthier, not disordered.

 

But for the meantime,

Congratulations on lowering your bloodsugars, exercising, and eating healthy! As we all know, exercising regularly and watching what we eat are both important in managing our health as humans and especially as diabetics.

 

Keep up the good work, I hope you can talk again with your doctor to sort out the misunderstanding.

Ginger Vieira, Health Guide
2/ 5/09 4:03pm

Hey Roxy,

 

I don't understand your nurse, either. Mary is correct that if you were practicing diabulimia, you would have really high blood sugars and you would NOT feel good! It would show easily in a blood test because your A1C would be so high.

 

If you're taking your insulin, eating well (and make sure you're eating enough), exercising and checking your blood sugars, I'd say it makes perfect sense that you lost 7 pounds. And I think that is great!

 

Do YOU feel concerned about your weightloss or do you feel that it has been healthy and you feel in control of it?

 

Ginger

Ginger Vieira, Health Guide
2/ 7/09 3:00pm

Roxy,

 

I was thinking more about your post and I realized I totally forgot to tell you about the doctor I met with just five months ago, an endocrinologist, who essentially accused me of lying about whether or not I ever forget to take my insulin!!! He didn't even ask me about it, he just kind of told me this! I couldn't believe it. I hadnt given him any reason to think I would lie about this or that I have forgotten (which I really never do! I think I've forgotten my Lantus three times in the past 9 years).

 

What this means, though, is that we've gotta be our own advocate. YOU are paying the doctor to work WITH you. They aren't superior to you just because they've been to medical school. While we should respect their knowledge and their committment to helping us, they should also respect the challenges of the disease.

 

Don't be afraid to speak up!

 

Ginger

2/10/09 8:52am

Roxy,

If I had the time, I could share my endocrinologist horror stories.  We all have them!  This nurse was out of line and I don't know about how the doctor feels, but I would write a letter and document the experience.  Send it to both the doctor's office and a copy should go to the Cheif Medical Officer of the hospital, they are the people in charge of all medical personel.  Here in the US that behavior would be grounds for probation or dismissal, b/c it was flatly wrong and misleading. 

 

There is NO QUESTION that you are doing well learning to manage your diabetes.  She should learn to manage her patients as well!  Over the years, I've learned that part of being responsible is setting the boundaries for getting the most out of medical team.  Here's a post I wrote about the controls I have in place to help me: Being Your Own Best Advocate.

 

Don't give up, learn to play your own game!

Ann

By Roxy— Last Modified: 12/19/10, First Published: 02/05/09