Thank you for this article, which brought a little hope to us suffering from type1. Is it possible to participate in the clinical triars if you live in Denmark? Is tihis product the nearest one to cure/help diabetes1 and to be available to the public? Looking forward to your answer.
Dear Phillippa,
I am glad to give hope. That's just about my primary mission in life. My guess is indeed that INGAP peptide, probably together with one of the immune modulators, will be the greatest thing for people with diabetes since 1921.
We all need to know what I mean by "1921." It was the year that Drs. Banting and Best made insulin injections possible.
My guess for you is that while it would not be impossible for you to participate in the clinical trials in Canada, it would not be easy. As I wrote in my article, it looks like you would "get 30 days of the study material and have visits at baseline, and then at 30, 60, and 90 days..." Still, it's a great idea, because even if you had to fly to Canada four times, I'm sure they would treat you free -- a lot less expensive than the up to $20,000 that CEO Lisa Jansa expects it to cost when -- and if -- it becomes available.
Still, Lisa said this about participating in the clinical trials when I asked her: "As for a contact for patients interested in participating in the clinical
trial - my preference is that we wait until after the first of the year when
we will emerge with an expanded corporate image. This will prevent
confusion for patients and provide the right context for on-going
communications."
Good luck,
David
David,
I have been following this company for about a year. I emailed Lisa about 6 months ago and she was very nice and responded very timely. I tried getting back with her to get some updates on the trial a few times in the last two months with no such luck. Do you think this therapy will be a breakthrough?
Gary
Type 1 (34 years and counting)
David,
What I found intriguing and not that it conveys anything official is the "Exsulin.com" link they added to the Kinexum Metabolics website which gives the outsider the impression they actually have a therapy. This one Faustman, LCT and Smart Insulin are high on my list as valid treatments. LCT being the most advanced right now but I think the main problem with that in the end may be cost. Not only do we need something that works but we need something affordable. Keep us informed with the Ingap as I am eager to hear some positive news.
Thanks,
Gary
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David,
Thanks for bringing this news and raising hopes that a meaningful idea is being pursued to help millions of Diabetics. This "cure" seems to be in the realm of possibility for diabetic patients.
However one related query: if the immuen modulator is used and arrest the loss of insulin secretion and if the pancreatic islet cells can be regenerated for producing insulin with other pancreatic hormones, is this not a cure for all evils that a diabetic face today?
Thanks
Venkat
Dear Venkat,
It could be -- but isn't yet. As I wrote, it is still several years off. Don't hold your breathe! Keep controlling your diabetes with diet, exercise, and medication.
David