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Saturday, November, 21, 2009
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Butting Heads With Your Type 1 Teenager

Beth McNamara
Beth McNamara
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Son living with Type 1 diabetes

I am the mother of three sons, Rob (13), Jeremy (11), and Duncan (7)....

Beth McNamara

Thursday, November 05, 2009
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With my son just one month short of turning fourteen, I feel like I now have entered a phase of on-going battles. Our relationship is solid enough, yet it is not filled with tranquility but instead is prone to raging storms followed by short interludes of calm. My husband and I sense that we are just...
  1. I can't agree with you more.
    Melissa
    Thursday, November 05, 2009 at 03:24 PM

    My son is a couple months away from turning 15 and I couldn't have said it better myself.  It is nice to know there are other "we's" out there dealing with the same frustrations that "we" are. I just have to remind myself that every day is a struggle for teenagers, let alone those with Diabetes.  Atleast, we, as parents, get a little break from the Diabetes when he is off at school or elsewhere, but he never gets a break. I know it is just a way of life that they have to learn, but I know that if it were me, I would want a day off too.  Of course that is not realistic when you want to have good control of your diabetes, but it sure does help to understand where he is coming from sometimes.  I will never forget when he asked me just a few months ago jokingly, but not jokingly, "Mom, how about I just not test tomorrow.  Would that be ok?"  Of course, I said that it wasn't ok, but I totally understood where he was coming from.  If only they could just get one day away from it.  Wouldn't that be a dream?!!

    Reply
    re: I can't agree with you more.
    Beth McNamara
    Saturday, November 07, 2009 at 04:52 PM

    Thank you for your comment.

     

    Yes, my son has struggled with burn out with the testing, as I indicated. One thing I offered him to help reward him for dealing with this ongoing D management was that he could have a day off from school to sleep in and do something special like watch a movie. The stipulation was that he had to keep his grades up, turn in all of his homework and keep track of his BG (test + record his levels).

     

    Alas, that carrot worked for the first five weeks of school until he had his first "reward day," and then he fell apart. We are now regrouping and assessing our next approach.

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  2. Untitled Comment
    Anonymous
    Friday, November 06, 2009 at 09:52 PM

    Wow, it is nice to know I'm not the only mother w/ a teenage son who doesn't control his diabetes well, but this article was otherwise completely useless. So what am I supposed to do? What advice is there? My son goes from 50 to 500 in a single day and is getting sores from his insulin pump all across his abdomen.

    Reply
    re: Untitled Comment
    Dr. Fran Cogen
    Saturday, November 07, 2009 at 01:51 PM

    Hi there: May I respectfully offer some advice?

     

    Controlling diabetes as a teenager as well as watching the teen trying (or not trying as the case may be) to control his blood sugars is fraught with anxiety, frustration and, on occasion, anger by all parties involved (see the the Power of We  on this website). The reality is that the only thing a caregiver can actually do is to control your own behavior. You can't make the kid test blood sugars 4-8 times/day, bolus with every meal, and change sites every 3 days. What you CAN do is set the limits. Teens are like toddlers developmentally: they push the limits and it is up to the caregiver to set them. There are some things the teens cannot control: hormones, illness, stress etc: all causing erratic blood sugars. However, you control the signature on driver's licenses, car keys, money, cellphones, and rules. Diabetes self-care skills are a chore (and a pain as we know), but they are necessary and as a caregiver you can only do the best you can and set limits.. and hope they make some bit of difference.  Sadly, no matter what you do with your non-adherent teen (if indeed, he is truly non-adherent), diabetes control will remain labile and all you can do is wait until they have the epiphany and come to the realization that they actually care about themselves and want to live a long productive life.  

     

    I see many patients like your son and it is frustrating for the kid, caregiver and diabetes healthcare team. Take advantage of having your son talk to a mental health care professional to help knock down the barriers preventing your son from being more adherent in caring for his diabetes. You, as caregiver, should also talk to a mental health professional, in order to validate your feelings in regard to the frustration of caring for a son that may( knowingly or unknowingly)be sabotaging his care.

     

    LASTLY, make certain, of course, that there is no medical reason for his fluctuating blood sugars by ensuring that your diabetes team has exhausted all medical explanations and not just assuming that going to 50-500 in a single day is due to inattention to self care skills. There may actually be a medical fix for the instability of his blood sugars.

     

    I hope I have addressed a least a fraction of your concerns and have been somewhat helpful.

     

     

     

    Reply
    re: Untitled Comment
    Beth McNamara
    Saturday, November 07, 2009 at 04:46 PM

    Hello:

     

    Since I've just started to deal with a teenager who is becoming rebellious about diabetes care, I've only begun to gather recommendations and pointers to share on how to deal with this maddening situation.

     

    The purpose of the post was to both create a sense of solidarity and most importantly foster discussion and recommendations from those within the community (other caregivers, medical practitioners, and those with diabetes) who have experience with teenagers with diabetes. Dr. Cogen has begun this dialogue, and I hope you find some of her points of use. Too, I hope others will chime in.

     

    Wishing you the best,

     

    Beth McNamara

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