Monday, June 04, 2012

I am so tired of having Diabetes

By LadyMagnolia1963 Thursday, July 31, 2008

Just venting here as I am completely frustrated! I have really been trying hard to watch what I eat,watching carbs, calories etc.. I am T2 and take 2,000 mg of Metformin and 45 mg of Actos daily. I have been a diabetic for 7 years this month.

 

But nothing seems to be working any more! My Fasting sugar this morning was a surprising 115. Since I can't eat grits or oatmeal and I can't eat eggs every day, I decided maybe a bowl of cereal would be ok. So I ate a bowl of Kelloggs Special K with dried berries-I had to use whole milk as we were out of 1%. I checked my sugar 2 hours later and it was a whopping 279!??

 

It's been like this for the last 6 weeks and I am sure longer. But 6 weeks ago I started a journal. I write all my daily sugar numbers-I check my sugar 6-8 times a day. My fingers feel like pen cushions! I write in my journal every single thing I eat, how I feel that day, what meds I take etc..

 

I have an appointment with my Dr. this coming Tuesday finally! I made the appointment over a month ago. The one thing I like about my Dr. is he has T1 and wears a pump, so he knows how it feels to be a diabetic, so I connect with him very well.

 

I am just so tired of trying to figure out what to eat, how much to eat and how will it affect my sugar. I even got to a point last week where I was just starving myself. I was afraid of eating anything. I found out that didn't work well at all-as my sugar increased from my stomach being so empty.

 

My sugars have been bouncing off the walls. My suagrs including morning highs of 161 and up and don't usually get any lower that day.

 

I know this is going to sound silly coming from a 45 year old but....

I am so tired of having diabetes! Trying to figure food out, pricking my figers and stressing terribly when my sugars are high.

 

All though this is an oxymoron I want to live and be healthy and learn to control my diabetes. Just right now I feel worn down and discouraged. Please tell me I'm not alone in feeling like this.

 

BTW we do not have medical insurance on me. Unless my wonderful Dr. gives me samples for some of my meds everything is out of pocket.

 

I take Effexor XR 300 mg a day. Xanax 2x day, Elavil 3x a day, Metfornin 1,000 mg 2x a day, Actos 45 mg 1x a day, Benicar 1x a day,Metoprolol 1x a day,Talacen for the Neuropthy 3x a day & Centrum Multivitamin/multimileral daily.

 

Right now I am also taking liquid Nystatin and antibiotic Cipro. Nystatin 4x a day for Oral Thrush. Cipro for an abcessed tooth.

 

Thanks for listening to me vent. I'm so glad that this website exist.

 

HUGS~Donna

I am still so stressed!
7/31/08 11:06pm

Hi Donna,

I know exactly how you feel. I would check my sugar late at night (11pm or later) & it would be in the 120's & wake up the next morning & it would be in the 170's. EVERY DAY! I have also been a diabetic for a bout 7 years (that I know of). I take 2000 mg Glucovance a day along with some other meds for high blood pressure & high cholesterol, Caltrate, iron pills & Salmon Oil. Anyway, this past week I just really got serious about reading labels & have tried to find different things that are way under 15gr carbs. I have eaten one really good meal for my lunch(which I always eat late) & smaller things throughout the day. Anyway, this morning my sugar was 139 & for me that's GREAT! I'm hoping to have it down lower in the morning. Also, we bought one of those pools at Wal-Mart & that has been fun execise for me just flopping about in it.

I'm sure you are under alot of stress with your toothache right now & that might be a contributing factor in your sugar running high. Maybe after you get that tooth fixed/pulled it will come down some? 

8/14/08 8:44pm

I am sorry about the delay in replying to your message. I am trying to get more rest and clear this darn oral thresh up. I too have just recently started reading all the labels and trying to make good choices on what I buy. I think since I have been on the meds for the thrush-my sugar fastings and daily sugars have come down quite a bit yay! I believe that me keeping a food journal and writing down everything I eat and my daily sugars have really helped allot for me.

it sounds like you are also getting a hold on your sugar Ü. It's so nice to see good numbers Ü.

HUGS~Donna

Janis
Thursday, July 31, 2008 at 11:06 PM

Hi Donna,

I know exactly how you feel. I would check my sugar late at night (11pm or later) & it would be in the 120's & wake up the next morning & it would be in the 170's. EVERY DAY! I have also been a diabetic for a bout 7 years (that I know of). I take 2000 mg Glucovance a day along with some other meds for high blood pressure & high cholesterol, Caltrate, iron pills & Salmon Oil. Anyway, this past week I just really got serious about reading labels & have tried to find different things that are way under 15gr carbs. I have eaten one really good meal for my lunch(which I always eat late) & smaller things throughout the day. Anyway, this morning my sugar was 139 & for me that's GREAT! I'm hoping to have it down lower in the morning. Also, we bought one of those pools at Wal-Mart & that has been fun execise for me just flopping about in it.

I'm sure you are under alot of stress with your toothache right now & that might be a contributing factor in your sugar running high. Maybe after you get that tooth fixed/pulled it will come down some? 

 

8/ 2/08 10:38am

hi donna,

   first, venting is good.  it gets rid of all the pent up emotion that is hiding out inside of you.  that means you drop mr. stress down to a manageable level.  also just talking to someone else about how you feel, who knows what you mean, is satisfactory on another level.  you know then that you aren't alone.  sometimes i feel like i'm standing on a small hill looking out and there is no one there. that makes these forums so valuable.

   I am also a t2, four years now.  i take 2000 metformin, byetta 10, bloodpressure and trigliseride medicine, plus lyrica for neuropathy and requip for restless leg syndrome.  if i behave the night before, my fasting bs is around 120, instead of like this morning at 142.  

   i understand your frustration.  i'm 51 and wanting to have those golden years everyone talks about.  my husband left because of my diabetes and wants a divorce.  somehow my golden years seem to be slipping right out of my hands.  because of my neuropathy/restless leg syndrome(rls) i can no longer work and have just been awarded s.s.d..  how about that, i was awarded s.s.d., like it's a prise that everyone covets.  so i have the time to enjoy my golden years (i will be in constant pain, but....) and now no husband to enjoy it with.  i do have my two kids, with respective mates and three grandkids so i still have a life.  just not the one i expected. 

   so i do hear you.  just remember that it could be so-o-o-o much worse.  we are all here to help you through these times.  everyone needs vent time.  that's the best part about these forums.  we are hear to listen, comfort, syberhug, share, encourage, laugh with, and cry with.   we can understanad where others may not be able to, no matter how bad they want to.  don't be a stranger, let us know how your doing.

8/14/08 9:02pm

Hi Debb,

I wanted to thank you for your words of encouragment Ü. I did feel much better venting and sharing how yucky I felt. At the time I felt like I was just running in circles and getting no where. I completely agree about standing on the small hill. And yes thank God for these types of forums Ü.

Debb I am so sorry your husband left you because of the diabetes (((HUGS))). I know that was devastating! I am here if you even need to talk about it or vent ok.

 I too have neuropathy in both feet, & all my fingers. Having RLS is terrible-both Mark and myself suffer from this.

I take Metformin 2,000 mg a day, Actos 45 mg a day, 2 blood pressure meds, 2 anxiety meds, and Effexor XR 300 mg a day for my depression.

I am happy to here that you were able to get s.s.d. But I agree at how they make you feel. Like they are doing you a favor!

Thanks for listening Ü.

HUGS~Donna

 

Saturday, August 02, 2008 at 10:38 AM

hi donna,

   first, venting is good.  it gets rid of all the pent up emotion that is hiding out inside of you.  that means you drop mr. stress down to a manageable level.  also just talking to someone else about how you feel, who knows what you mean, is satisfactory on another level.  you know then that you aren't alone.  sometimes i feel like i'm standing on a small hill looking out and there is no one there. that makes these forums so valuable.

  

Anonymous
S Johnson
8/ 3/08 11:22am

Hi Donna!

 I stumbled across your vent while searching for that wonderful exchange outline for the diets. I had to comment...

 January 22nd I took my mother to the ER here in our local town. She is 65, and had been complaining of a bladder infection, but hadn't quite gotten herself to the doctor. Just a few days prior to that she had traveled (alone) over to visit her parents which is about 3 hours away. Then a few days after that she took my kids to school and picked them up for me on a day I work without time to run them myself. That was a Friday. The following Tuesday was when I took her to the ER. She was gasping for breath, weak, disoriented and her heart was racing. I was at that time completely unaware of her situation. She was admitted with a blood sugar of almost 500, irregular heartbeat and dehydration which when they got her on fluids, her kidneys started cranking overtime. Very Scary! Especially when I know that she could have fallen into a coma at any time during that - and had driven my kids and herself within days...

 Seems that for the last year or so she had been trying to maintain her type II with diet alone. So, of course, she ate very little to keep that sugar down. She basically starved herself, to the point where her muscle tone was non-existent. (PLEASE do not stop eating because it might make your sugar fluxuate, my mom was a 6' tall woman with great strength)

 After getting her sugar back on track, heart doing well and so forth, she was sent to a convalescent hospital to gain strength and muscle tone back so she could go home. While there she developed some horrible pain in her sciatic nerve. Turns out that she has a staph infection that involved her disc, two vertebrae and the sciatic nerve. Spinal neurosurgery later, back to rehab. That particular rehab hospital didn't follow the surgeon's orders in having the case monitored by an infectious disease doctor, and it came back. Second surgery later, back in rehab (different facility) then sent home with 24 hour care. The going home happened only last week.

 Needless to say, she is taking 3 blood pressure meds for blood flow and heart, cumadin (because in one place she developed a clot in her leg, due to lack of excercise) Sulfa for the infection, along with a pic-line antibiotic, iron, keflex for the wound in her back (which has, amazingly enough, healed nicely), Reglan for stomach, several other things for the back muscles I think...she has a total of 11 pills over the course of the day, and then lumigan for her eyes and 17 units of Lantis at night.

 My mom wasn't in terrific shape, but she wasn't an invalid either. Seems that once my dad died (suddenly, in an home accident 6 years ago) she sort of floundered with her life and chose not to follow her diet/medications well.

 I guess this whole sob story on my part is to let you know that your Golden Years, with or without someone, will be what you make of them. As the only child of my mom and dad, with the only grandchildren she has, I am selfishly mad at her for thinking that her life is over just because my dad is gone. I lost him too, but I DON'T need to lose her now also. Please hang in there and make some grand plans for yourself. Golden Years are yours to enjoy somehow. Take a cruise, join a garden club, book club whatever. Become a social butterfly! You are definitely needed by someone in your life so please take care of yourself...

8/14/08 10:14pm

Hi S,

I wanted to thank you for sharing about your Mom. It humbled me and made me realize that Janis and Debb were right. It can be worse. I am sorry about all that your precious Mom went through, emotionally and physically. Including you and your son. How is every one doing now?

HUGS~Donna

S Johnson
Sunday, August 03, 2008 at 11:22 AM

Hi Donna!

 I stumbled across your vent while searching for that wonderful exchange outline for the diets. I had to comment...

 January 22nd I took my mother to the ER here in our local town. She is 65, and had been complaining of a bladder infection, but hadn't quite gotten herself to the doctor. Just a few days prior to that she had traveled (alone) over to visit her parents which is about 3 hours away. Then a few days after that she took my kids to school and picked them up for me on a day I work without time to run them myself. That was a Friday. The following Tuesday was when I took her to the ER. She was gasping for breath, weak, disoriented and her heart was racing. I was at that time completely unaware of her situation. She was admitted with a blood sugar of almost 500, irregular heartbeat and dehydration which when they got her on fluids, her kidneys started cranking overtime. Very Scary! Especially when I know that she could have fallen into a coma at any time during that - and had driven my kids and herself within days...

 Seems that for the last year or so she had been trying to maintain her type II with diet alone. So, of course, she ate very little to keep that sugar down. She basically starved herself, to the point where her muscle tone was non-existent. (PLEASE do not stop eating because it might make your sugar fluxuate, my mom was a 6' tall woman with great strength)

 After getting her sugar back on track, heart doing well and so forth, she was sent to a convalescent hospital to gain strength and muscle tone back so she could go home. While there she developed some horrible pain in her sciatic nerve. Turns out that she has a staph infection that involved her disc, two vertebrae and the sciatic nerve. Spinal neurosurgery later, back to rehab. That particular rehab hospital didn't follow the surgeon's orders in having the case monitored by an infectious disease doctor, and it came back. Second surgery later, back in rehab (different facility) then sent home with 24 hour care. The going home happened only last week.

 Needless to say, she is taking 3 blood pressure meds for blood flow and heart, cumadin (because in one place she developed a clot in her leg, due to lack of excercise) Sulfa for the infection, along with a pic-line antibiotic, iron, keflex for the wound in her back (which has, amazingly enough, healed nicely), Reglan for stomach, several other things for the back muscles I think...she has a total of 11 pills over the course of the day, and then lumigan for her eyes and 17 units of Lantis at night.

 My mom wasn't in terrific shape, but she wasn't an invalid either. Seems that once my dad died (suddenly, in an home accident 6 years ago) she sort of floundered with her life and chose not to follow her diet/medications well.

 I guess this whole sob story on my part is to let you know that your Golden Years, with or without someone, will be what you make of them. As the only child of my mom and dad, with the only grandchildren she has, I am selfishly mad at her for thinking that her life is over just because my dad is gone. I lost him too, but I DON'T need to lose her now also. Please hang in there and make some grand plans for yourself. Golden Years are yours to enjoy somehow. Take a cruise, join a garden club, book club whatever. Become a social butterfly! You are definitely needed by someone in your life so please take care of yourself...

8/12/08 6:05pm

Hi, Donna. I am a newly diagnosed diabetic aged 36...never married and no kids and now of course any chance of that has disappeared. At first I was scared and depressed especially since when I was diagnosed my BG was over 500 I thought perhaps this was the end, but now, just 2 months later even though I have yet to have a reading under 100  and have to take so many pills daily that I have to keep a scheduler, I do feel healthier than I have in years.

 

So I choose to find happiness in just that healthy feeling, my friends and family NOW and stop worrying about the future because tomorrow I could get hit by a bus.

8/15/08 12:21am
Hi Ana, Thank you for your post and sharing a little bit about yourself and family. I would like to encourage you that you can still marry and have children. Your young Ü. I have a friend who didn't start her family until she was 36. Now she has a beautiful boy & girl. This can be you also Ü. I understand your fears and depression. I have been right there it seems like a thousand times. {{{HUGS}}}. I know that it could be worse for all of us here. But when it's something like diabetes it's hard at first to wrap you head around it. So along with that comes so many emotions. I was in the ER 7 years ago this past July. I thought I was having a heart attack! They ran blood test and told me I was a diabetic with sugar up in the high 300's. I was scared and devastated. I can't imagine how you must have felt with sugars in the 500's!! Thank God you are all right Ü. It's nice to hear that you feel better than you have in years. I too am getting there. My sugars are mostly normal now-and it has not gotten in the 200's. I contribute this to my extensive food journal. I write in it daily. I write my fastings and all my sugar test through out day, all my foods for the day as well as how I feel. After all this I to am now feeling better as well, and a little more confident in my choices of food If you would like to have an accountability friend to share your ups and downs with I'd be happy to help Ü. We don't have to do this alone. None of us do. My e-mail is LadyMagnolia1963@aol.com I also have Yahoo Instant messenger/ my name on yahoo is magnoliablossom40 Hope to hear from you again. HUGS~Donna
Anonymous
Anonymous
1/29/09 5:46pm

drugs, dang women. no wonder why you crazy...        crazy...

2/17/11 6:27pm

try managing diabetes 24/7 365 days a year for the last 53 years and please count your blessings. nobody is perfect, take care of yourself please, cut yourself some slack you are probably doing a better job at this than you think

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By LadyMagnolia1963— Last Modified: 10/26/11, First Published: 07/31/08