Sunday, February 12, 2012

E-mail received from the ADA

I could see the ADA employee (American Diabetes Association, to the un-initiated), resembling a young Harry Potter, sitting at a computer in a dark room. His face is highlighted from the glow of the computer screen as he comprises the e-mail that I received on March 9, 2009. This e-mail announced, and praised, President Obama for signing the order lifting the restrictions on federal funding placed on stem cell research in the United States.      

 

As I read the ADA e-mail that announced "Diabetes Advocates around the country are rejoicing ...;" and asserted "As Diabetes Advocates, we have long been at the forefront of efforts to end the restrictions...;" I kept thinking "You are not talking to me." I was really put out by this e-mail. Not just because it invited me to "click here" and thank President Obama for his actions, but for the assumption that all of us with diabetes (especially the Diabetes Advocates) are all a like, on the same page, and are in perfect agreement with the ADA's position.

 

So let me make it official: I, Travis Grubbs, being of questionable mind and diabetically compromised body, am not in favor of embryonic stem cell research. There, I said it! Whew, I have finally come out of the closet! It feels liberating to finally publicly join the minority of diabetics that oppose, or are not comfortable with, embryonic stem cell research. I realize that this can be a very emotional and controversial issue for both sides; which is why I have consistently avoided participating in discussion groups involving embryonic stem cell research. As far as I am concerned, we will have to agree to disagree on this particular issue.

 

As a Diabetes Advocate I spend my time educating people about the differences between type 1 and type 2 diabetes, as well as specifically discussing type 2 diabetes. I make it a point to inform the public that people with diabetes may respond differently to medications, foods, exercise, etc.; and that our condition cannot be treated with some "cookie cutter" type treatment. I normally stay away from discussing stem cell research because I am not trying to convert people to my side or change opinions. I am just trying to educate people about the risk and dangers of type 2 diabetes. 

 

I have come to learn that we (the type 2 community) are an independent lot. Check out the discussions at the various discussion groups. How about the testing? The number of times recommended for daily testing, by the type 2 community, varies widely. While I test twice a day, I have read others post that they test twelve times a day! How about alcohol consumption? Some folks post that they still consume alcohol. I, on the other hand, abstain from alcohol. How about taking Metformin? I take it and believe it has helped me, while others curse it. What about diet, low carb or low fat? What do you think of Dr. Bernstein, extreme or on target?     

 

We are individuals. We have our own ideas, beliefs, preferences, etc. which explains why we address our type 2 diabetes in various ways. And, just because we have diabetes, it does not rob of us our ability to have independent thoughts and compel us to run around chanting "We are the Borg." 

Anonymous
Avera
6/16/09 11:51pm

Enjoyed this article very much. It is refreshing to find someone who is not afraid to stand up. Please don't ever stop.

7/ 4/09 8:41am

Hi Travis,

I really enjoyed your post.  I am in favor of Embryonic Cell Research for many, many reasons.  BUT that does not mean it is the cure designed for everyone!  I have been head of outreach for my local JDRF chapter and believe wholeheartedly that improvements in management are individual and a cure will be too.  

 

I wrote a blog about taking a pump vacation and shortly after it was published I was asked to give the introduction for Dr. Zion of SmartInsulin.  I used my pump story as an example that while the artificial pump may be fabulous for some, a once a day injection that offers better control for any living with diabetes (type1, type2 and LADA) is also needed.  JDRF National had wanted me to talk purely about the artificial pancreas, so I advocate for both.

 

We have donors who specifically ask that funds not be given for embryonic stem cell research and JDRF honors that request.  

 

I think half our problem in this country is offering tolerance.  So here's an opportunity to embrace the differences!  

 

Bravo for a thought post!Smile

 

 

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