I'm a teacher in Japan, an nlp practitioner, and a storyteller. Once upon a time, well back four years ago, I weighed 305 pounds and I was diagnosed diabetes 2 (A1c=12.8). I dieted low carb and pool walked for six months and lost 50 pounds(A1c=5.3), then I had a bariatric surgery in Brazil (biliopancreatic diversion with distal duodenal switch) and my diabetes 2 miraculously "went away" the second I woke up after surgery and ate my first sugary jello with no blood glucose "flight"(A1c=4.8). I lost a bit more weight over the next few years and became much more mobile. Then I leveled off at 180 as in this picture. I had some malnutrition issues because I let up on the protein shakes and vitamin supplements, unwisely. Hair fell out, bone density got so bad I broke a rib just picking up a box, got bitot spots, night blindness, loss of color, dizzy spells. Had a bad fever volunteering with orphans in India which culminated, I think, in my immune system attacking my pancreas. Suddenly my weight was on a broken elevator plunging down three and more pounds per week no matter how much I ate. I went through a period of drinking pickle juice like an addict trying to stop the nasty taste (probably ketones) in my mouth, until finally the doctor here in Japan discovered I had diabetes one(A1c=11.2). Childhood diabetes for an old wrinkled lady of 57, was he ever surprised! At 132 pounds I was skeletal and horrible looking, you don't want to see a photo of that time; but thanks to insulin and good support from the internet diabetes sites and good diet and insulin books, I have my weight up to a more livable 150 now. (A1c=4.6). Thank God! Since I cured one diabetes with an operation, I'd love to do it again. Does anyone on this list know much about pancreatic transplant operations for diabetes 1? Personal experiences and advice would be greatly appreciated.
I'm a teacher in Japan, an nlp practitioner, and a storyteller. Once upon a time, well back four years ago, I weighed 305 pounds and I was diagnosed diabetes 2 (A1c=12.8). I dieted low carb and pool walked for six months and lost 50 pounds(A1c=5.3), then I had a bariatric surgery in Brazil (biliopancreatic diversion with distal duodenal switch) and my diabetes 2 miraculously "went away" the second I woke up after surgery and ate my first sugary jello with no blood glucose "flight"(A1c=4.8). I lost a bit more weight over the next few years and became much more mobile. Then I leveled off at 180 as in this picture. I had some malnutrition issues because I let up on the protein shakes and vitamin supplements, unwisely. Hair fell out, bone density got so bad I broke a rib just picking up a box, got bitot spots, night blindness, loss of color, dizzy spells. Had a bad fever volunteering with orphans in India which culminated, I think, in my immune system attacking my pancreas. Suddenly my weight was on a broken elevator plunging down three and more pounds per week no matter how much I ate. I went through a period of drinking pickle juice like an addict trying to stop the nasty taste (probably ketones) in my mouth, until finally the doctor here in Japan discovered I had diabetes one(A1c=11.2). Childhood diabetes for an old wrinkled lady of 57, was he ever surprised! At 132 pounds I was skeletal and horrible looking, you don't want to see a photo of that time; but thanks to insulin and good support from the internet diabetes sites and good diet and insulin books, I have my weight up to a more livable 150 now. (A1c=4.6). Thank God! Since I cured one diabetes with an operation, I'd love to do it again. Does anyone on this list know much about pancreatic transplant operations for diabetes 1? Personal experiences and advice would be greatly appreciated.


Hi Linda!
Wow what an incredible life you've had!! I did some looking around on the site, and David Mendosa had a posting back in March of 2006 talking about the Pancreatic islet cell transplants, and while this procedure helps the diabetes, you then must be responsible for taking the medications to prevent rejection of the transplant. You can read more about that in his posting located here.
Quoting loosely from David Mendosa's posting: "A woman named Deb had this procedure and now considers herself a former diabetic. She has written a book called 'Showdown with Diabetes.' In the book, Deb's physician, a man named David Sutherland writes that pancreatic transplants 'cannot cure diabetes.' "
As David says in his posting, there is no known cure for diabetes...yet. But there are strides being made every day to work towards a cure.
In the meantime, there are many resources here on healthcentral.com to help you deal with the challenges of living with diabetes. I am listing a few of them here.
Here is a link to the database that will give you useful information to will help you ask informative questions of your doctor. Included in the database are symptom information, treatments, medicine information and interactions.
This link will take you to the specific page that discusses the transplant options, pros and cons.
As always, you should consult your doctor before making any changes in your routine or treatment. The information located here can help you make those choices with your doctor.
Stay in touch and let us know how you're doing!
Vicki
Dear Vicki,
Thanks for your quick, kind, and link filled comment. In a recent lifetime, were you a librarian?!
I see that you are a D2, so my question might not have been of such personal interest, but you generously found me all that info...thanks! I see that you often write to several people as generously as well. Wow! And you always end with "Keep in touch" or "Let us know..." and I wonder if people do get back to you? I wish I had the time to be as good a correspondent but until the end of the school year next month, I'm frantically busy. I wish you the very best with your own life with diabetes. I read somewhere that 6.0 on HbA1c really isn't to be considered safe any more, but I guess it all depends on your lab's norm range. Anyway I wish you and I both low numbers to fend off complications until a true cure is found. Fingers crossed...bloody frequently poked fingers, naturally.
Hugs, LindainJapan
Hey Linda, thanks for writing back!
I don't always hear from folks I respond to, but occasionally I go back through posts and reread them. There was a posting in the allergy forum about garlic that I responded to with another posting I found from earlier in the year. When I checked it this week, it had 25 responses!! WOW! 12 or 15 people who all had an allergy to garlic who found each other. How special is that!??
take care of you and your fingers!!! 4 pokes a day does not make mine happy! :(
Hope to hear more from you on the site when the school year is over. Till then,
Take care my friend!
Vicki M