A few years ago, I signed up to Google news alerts to stay on top of diabetes news, and, in particular, diabetes research. For me, research is way of peeking at my future and an important reminder of why I need to not give up on keeping control, watching the carbs, and staying physically active. The better my body is doing, aside from the diabetes, the more opportunity for me to enroll in a trial for a new protocol for diabetes management.
But, the truth is what Google thinks is research is often not research, but snake oil! And for those new to diabetes who are terrified and searching for a miracle, this is frustrating, to say the least! So, I've decided to give a few reliable pointers for searching out diabetes research information and trials:
A few links to dedicated diabetes research:
Diabetes Research Institute: DRI is known for its great diabetes education programs and research efforts. It is an organization that has been around for 40 years helping fund diabetes research for a cure. But DRI also is engages in other diabetes research. Under their menu bar on the left they have a section on Diabetes Clinical Trials.
Trialnet: Trialnet has an incredible workhorse for screening and working toward finding ways to prevent, delay and reverse type 1 diabetes. Trialnet has locations all over the US and international sites as well. One program that has been a respite for many parents has been the Natural History Study which screens non-diabetic family members for the potential risk factors for getting diabetes.
JDRF Clinical Trial Connection: Juvenile Diabetes Research Foundation developed Clinical Trials Connection to offer a more direct route to finding clinical trials directed to your specific case. The site has several layers of information, from understanding what is involved in a clinical trial, to how to enroll. If you register and add in your personal information, the site will list clinical trials you may qualify as a participant.
Specifically, for Type 2 research, I had a hard time finding anything as inviting as the type 1 side! I think there needs to be better representation for both type 1 and type 2, but there is a government site that represents type 2 clinical trials. It seems odd to me since many of the complications are equally shared: kidney, eyes, neuropathy, retinopathy. The type 2 sites just do not do a collaborative effort for those trials.
One other resource that I love is the Diabtribe newsletter: Diabtribe is one of my favorite resources for both type 1 and type 2 diabetes information. Diatribe offers product reviews for type 1 and type 2, tips from experts in the field of diabetes, reviews on new management concepts and research updates. Simply said, this newsletter rocks!
If you have any additional resources, please leave us a comment to share with your fellow readers!