Monday, June 04, 2012

Is The Diabetes Online Community Becoming Just Big Business?

By Ann Bartlett, Health Guide Wednesday, October 12, 2011
Diabetes is a condition that requires time, money and commitment to succeed.  The number of people living with diabetes in the U.S is 25.8 million with 3-5 million type1, that leaves the majority with type2. Add to that 42.9 Million Americans living in poverty and it's not hard to see that many ...
November is Diabetes Month!
10/12/11 3:50pm

Thanks Ann.  I think I may have run into that site once or twice.  I stay away from it now and I understand why you don't want to give them any free advertising, I wouldn't either.

 

I am willing to give this site a plug URL = http://diabetesnavigator.aace.com/ and say that for a list of AACE vetted sites goto the About and the far right item under this for the current 15 approved sites.  I have been told more will be added as they are vetted.

Ann Bartlett, Health Guide
10/12/11 3:55pm

Robert,

Thank you for your comment and thank you for another great resource site!  Smile

10/14/11 7:02pm

Really, really great point. There are so many scams and dishonest offers and companies out there, it makes it hard for everyone. On one hand for the people themselves that are being bothered or even tricked by these scams, and on the other for new organizations that really do want to help fellow diabetics and offer free stuff. The organization I work for - the Juvenile Diabetes Cure Alliance, publishes free reports on the different type 1 charity organizations out there, so that people can see where the donated money is going, and who is using it most effectively. We also have a membership list and send out newsletters - but those are also entirely free, and only once a week at most. We are not spammers or have any alternative motives, but sometimes as a new organization it is hard establishing your credebility - no thanks to scam companies like that.

Ann Bartlett, Health Guide
10/14/11 9:35pm

I have read your posts on this site and I think it's great!  We need to be stewards for the good of everyone who has to live with diabetes.  

 

Glad you are out there to help!  And welcome to our community! Smile  

 

btw, November is around the corner, we will be doing lots of fun things on the site!  Stay tuned, we'd love to have you be one of the community voices!

Amylia Grace, Health Guide
10/18/11 3:45pm

Oh Ann, this kind of stuff drives me nuts! It is really depressing that sites like that exist and that folks capitalize on those of us who take it upon ourselves to be proactive and looking for support, community, resources, a friend, whatever it may be that brings one to the various sites. I have a feeling I know which site you're speaking of, and sadly, it is not the only one like this. Shame!!!

Ann Bartlett, Health Guide
10/18/11 4:43pm

I'm so glad to see you here!! It's been a while. Hope all is well with you Amylia!Smile

 

There are some things about a company, like this one, that may be advanteous to some patients who don't have insurance.  However, I feel that they clothe themselves as a social health site and that's where they loose transparency with me.  Tell it like it is!

 

A company that requires you to sign up in order to look at the site, which I had to do in 2009, and requests my address, phone, email, birthdate, etc is data mining and that has nothing to do with epowering patients.  Their business model is not based on the quality of content, it is based on the membership.  If they do not offer up transparency, they are not loyal to patients. I have gone back and trolled the policies, which are vastly different from when I first signed up, but unless you are checking, how would you know the new twist is calling people with specialized advertising.

 

Totally boggles my mind.

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By Ann Bartlett, Health Guide— Last Modified: 10/18/11, First Published: 10/12/11