Monday, February 13, 2012

Blood Glucose Envy

On July 14th, tudiabetes had a Test-In, a timed blood sugar check, to celebrate their membership of 14,000 in the tudiabetes community.  At 4pm EST, I checked my blood sugar, which was 188, and then posted my reading on the site to go public on tudiabetes.    Many people posted perfe...
7/29/09 12:42pm

Ann,

We were having a similar conversation in the TuDiabetes admin team last night. I think the more we share numbers when/if they are out of range, and acknowledge that sometimes we are out of range in spite of our focus to stay in the range, we will see more and more people becoming comfortable with coming out of the diabetes closet, whether that means being comfortable sharing their levels or sharing the diabetes altogether.

7/29/09 2:58pm

Thanks for reading Manny!  I read your blog about how much we are reaching people with diabetes.  Sharing is so personal with regard to diabetes & the numbers.  I hesitated for years about getting actively involved, until I needed to find help and could not find a diabetes community for adults! I'm grateful to sites like Tudiabetes, Health Central and Diabetes Daily that designed for this issue!

 

I think it will be a slow change.  One problem I see, that adds to BG envy, is yesterday the news was tighter control means less complications.  You have a bad diabetes day and you think you have signed your "complications contract!"  There needs to be an effort to figure out how to help those who feel they aren't near perfection, realize they may be closer than they realize. This will give a great sense of comfort and encouragement, and sharing a day full of wonky numbers doesn't seem so embarrassing or threatening.  Instead it is part of the process!

 

Let's brainstorm on this very important diabetes point!

Anonymous
Faye
7/29/09 1:25pm

great post! i've, thankfully, been having readings in my target range for the past few days, except yesterday, when i shot to 439 for no apparent reason. i thought it was a bum omnipod, but even after changing and bolusing accordingly, i was still at 404 an hour later. in a last-ditch effort, i went on to inject FIFTY units of novolog (not a brute force method i support, but hey, i was getting desperate!). finally, 2 hours later, i was at 132 and stable.

 

so yeah, blood glucose envy...sometimes i envy myself on other days for having "normal" levels!

7/29/09 3:05pm

Faye!

Boy can I relate!  I am still on my pump vacation, because I felt like I needed fewer variables for a while and it has helped!  But believe me, I still have those days when I feel like a deer in the headlights!  And then those days of feeling like your own personal diabetes hero.. I could use a few more of those!  lol Smile

Anonymous
Anonymous
7/30/09 12:23pm

That was like reading about my self!AWESOME!

8/ 3/09 2:10pm

Thanks Ann for the great article!  Reading this makes me feel less alone in this sometimes lonely and frustrating challenge we live with!

8/19/09 9:27pm

Big D!  

 

You finally visited me!  You, my dear, are never alone!  Thx for coming into the folds of my life!  Looking forward to our October fun with JDRF at Health Central!

 

Kiss

Big A

Anonymous
Mariela Lauria
8/18/09 10:10pm

As most of other readers felt, after reading your post, it´s a great relief to see that ups and downs are a common point in all of us, diabetics. In my case, I´m now 42 years old and I´ve been under this condition since I was 19 (too many years!!).

And must remark your post, sometimes you feel great and dominating this illness, but others you hate the fact you are doing everything you can to be almost normal, and nothing behaves as expected. Just driving the situation as you said, if b.sugar is high... more insulin, if it is low... eat more carbs or have sth.sweet ( or coke which is the quickest!). Frustration sometimes can be hard, but persons like me, that have been in this condition for too long, also learns how to handle them.

To make this long story short, your comment is GREAT. Pure reality, nothing is too controlled nor undercontrolled... don´t you agree. Just need to keep testing.

Thanks a lot for sharing.

Mariela, from Argentina.

8/19/09 9:23pm

Hi Mariela!

 

You and I are close in age, I turn 45 in a couple of weeks.  I couldn't agree more, that over time you learn to deal!  My husband suffers more frustration for me then I do during a situation like crazy blood sugar numbers!  Poor guy!

 

and you are right hang in there, better days can be around the corner!  That's why we need communities like this one!  

 

Thanks for reading.. all the way from Argentina!  By the way, I love some of the wines from your country! Wink

 

Stay in touch!

Anonymous
Mariela Lauria
8/19/09 10:03pm

Hi Ann!!

I´m so glad that somebody has read my post!! Never thought of having an answer!!

By the way, how long have you been having this disease? I know how your husband would suffer your ups and downs!! It´s not death but this illness can be very unfair and that is when I become a rebell (just for a few hours, but I do.... l.o.l).

I inject low doses of insulin because I´m very active but sometimes I go through h.BG. passages and I feel I´m leaving my heart in what I do everyday to mantain averages, and that can´t do more for it. I usually, or better I never, try to put some of this weight on my family shoulder. They keep asking about my sugar but I tell them everything´s ok. I often go on like if nothing was happening but sometimes my mood changes a lot. I know that if that happens I´d sound a bit ironic or angry so I let them know in order to avoid their sadness or preventing them from feeling I´m mad at them...( I´m very concious about that...). But, well, I´m handling it and have been doing this since my nice 19!!

Love that u like Argentine wines... they´re almost the best, aren´t they???

See if I can send you some.... l.o.l.

Thanks for your attention,

Best wishes!!

Mariela

 

8/19/09 10:19pm

Mariela,

I always read my comments and usually respond.  We all do here! 

 

I have been living with diabetes since I was 5, diagnosed Easter weekend 1970! Remember Easter well that year!

 

Do you know about DESA, Diabetes sports and Exercise Association? http://www.diabetes-exercise.org/  They are a wonderful organization for those of us who are active and involved with our diabetes management!  I'm about to write a blog about them, which should be ready in a couple of weeks.  

 

Figuring it all out is beyond me, and I keep a CDE who is an exercise physiologist on contract! Really!! It makes the differnce between my biting off my husband's head and leading a civil life!!Laughing

 

My family has been great, very hands off unless I ask them.  I know what you mean, it's hard enough to deal with diabetes, but then when family, who doesn't have it, gets involved, it makes for a rough relationship!

 

Let's chat Argentinian wines for sure!!

 

Always here feel free to send me an email!  If you sign up and make a profile for yourself you can be directly connected to me. There is no spamming from this sight, so don't worry that you will get tons of email for signing up.   

 

Look forward to staying in touch!

A

 

 

8/18/10 1:36pm

I AM NEWLY DIAGNOSED AS LADA. AFTER TWO YEARS OF METFORMIN AND A TYPE 2 DIAGNOSIS. I AM PETRIFIED EVERY TIME I CHECK MY SUGAR EXPECTING HIGH NUMBERS. HIGH FOR ME IS USUALLY AROUND 250 . I TEND TO GET THIS AFTER EATING AN ORANGE?? AND INTENSE EXCERCISE. I AM FIT AND TRY TO EAT HEALTHY ALL THE  TIME -EVEN MORE SO NOW. MY FASTINGS ARE USUALLY AROUND 73 BUT POSTPRANDIAL EVEN AFTER EATING GOOD IS LIKE 170 160  ETC.I AM ON 3 UNITS O FLEVIMIR AT NIGHT AND 1 UNIT HUMALOG BEFORE EACH MEAL . ANYONE HAVE ANY ADVICE???

8/18/10 3:29pm

Hi GabbyGoose!

 

Actually your numbers sound great!  Postprandial number is awesome!!  The target for type 1 is usually around 180, so yours are perfect.  250 is high, but try to work back to figure out what the issue might be, like cold or flu or fructose can create a high blood sugar, but it's knowing how to count the carb to adjust for the insulin need.  

 

High blood sugar is common with intense exercise.  Check out Ginger Vieira, she is a powerlifter and type 1 and also a diabetes coach.   she writes both on the adult site, but also on the teen site called Diabeteens.  The teens we have are also exercise savvy with strategy, Anna is another one to check out!

 

Keep us posted we'd love to hear about your progress.  

 

Also another friend of ours is Cherise Shockley who was diagnosed with LADA, her site is Diabetic iz me 

8/19/10 9:47am

THANK YOU SO MUCH FOR YOUR REPLY. IT WAS SO NICE TO HEAR FROM SOMEONE WHO COULD GIVE ME A LITTLE INSIGHT.I DID POST TO THE OTHER WEBSITE AND HOPE TO HEAR FROM THEM SOON.I WILL MAKE SURE TO STAY IN TOUCH ..I AM DEALING WITH SOME PRETTY WEIRD EMOTIONS. EMBARRASSMENT DEPRESSION ETC.... HAVE YOU FELT THIS?

8/19/10 4:37pm

LADA is very hard to diagnose and patients often feel like they were fooled or they were a fool!  LADA is trickier and more deceptive the a type 1 or type 2 diagnosis and it simply takes time for the body to play out these patterns for you and your doc to see!  But you're on it and doing a great job and there is no need to feel embarrassment!

 

I would love for you to consider blogging this journey for us!  I've been hoping that we could find someone to share their story because of exactly what you have said, it's been emotional as well as physical!  For many of us with type 1 or type 2, the emotional component is a different because the diagnosis is more straight forward.  Not many on the internet have blogged the emotional journey through a LADA diagnosis and I think it is an important topic.

 

As for depression, diabetes can often bring that on, but you also have to consider it's been a roller coaster for you and depression is very justifiable! If the depression continues to linger, you should consider talking with your doc to get prescription.  If it helps you to get on top of this, it's all for the good!  Here's some info on diabetes and depression:

 

http://www.healthcentral.com/diabetes/c/691244/93133/connection

 

http://www.healthcentral.com/diabetes/c/17/47271/depression-diabetes

 

http://www.healthcentral.com/diabetes/c/17/96686/diabetes-depression

 

Please feel free to contact me if you need support!  We have a great site, I happen to be a community leader with David Mendosa and have really loved getting to know everyone here!  It's been an awesome supportive group for me! Ginger, from the teen site, just came and spent a weekend with me and my family!  Hard to believe I have this wonderful close friendship that started because of blogging here!  

 

Here are some thoughts to embracing your diabetes!  http://www.healthcentral.com/diabetes/c/9993/88986/friends-diabetes

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