clearly, the doctors have not figured out the problem. How frustrating for you! Are you seeing an endocrinologist? You need to see someone who specializes in the endocrine system!
I asked a diabetologist friend if there were any thoughts that came to mind on this issue and the response was they need to rule out non-ketotic hypoglycemia vs ketotic hyperglycemia (usually this is seen in children). If nothing else one more farfetched possible is insulinoma.
Here are a couple of links to information about Ketotic hypoglycemia for an adult.
Keep us posted! I would love to know what they discover!
Thank you for that information.
I saw an Endocronologist and they did tests for Addisons Disease. I was told that the blood levels then were 2.9, 3.4 and 4.2, so they are not concerned about the blood sugar levels - however, I understood from one of the nurses that was doing the testing that they could not do a glucose tolerance test because the stuff used for the Addisons test has glucose in, so now concerned that the readings may be false.
I then was told by the endocronologist that there are people who have low blood sugar and they never know why and I would just have to accept that I was one of those people.
I asked the gastroentorologist if the frequent bowel movements could be casuing the low blood sugar - he referred me to the dietician. When I saw the dietician, she told me that I was reactive hypoglaceamic and that this would be controlled via my diet so have to eat more carbohydrates and startchy ones.