Monday, October 20, 2014
Monday, October 13, 2008 jerri koch, Community Member, asks

Q: is 50,000 iu of vitamin d once a week harmful to you - female age 58

My doctor precribed 50,000 iu vitamin d once a week due to vitamin d deficiency.  Is this safe to take?  Could it be toxic?

Female, age 58.  Take flosamax 75 mg and zoloft 100 mg.

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Answers (43)
6/ 5/14 11:06am

The dose that your physician prescribed is likely safe if used on a short-term basis. The Recommended Daily Allowance (RDA) for vitamin D is 600 IU for people less than 70 years of age. Vitamin D supplementation appears to be safe when taken by mouth in doses of 400 IU daily (for a total of 28,000 IU per week).  Some people choose to receive vitamin D through muscular injections (typically 300,000 IU up to 3 times a year).

 

When vitamin D deficiency is present, at least 1,000 IU of vitamin D per day is recommended. Some research studies have shown that high doses (up to 50,000 IU daily for six weeks) are effective for treating deficiency if used on a short-term basis.

 

Excessive vitamin D supplementation can have serious side effects. These include allergic skin reactions, a build-up of calcium in the arteries, headaches, muscle pain, kidney or urinary stones, and gastrointestinal problems (such as nausea, vomiting, constipation, and diarrhea). Vitamin D can also affect your blood sugar and blood pressure.

 

Your vitamin D levels should be monitored closely during this time of high-dose supplementation, particularly because you are also taking Fosamax. Any adverse reactions should be reported to your physician immediately.

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Edward, Community Member
10/14/08 10:46am

I hope so because I have been prescribed the same dosage. I am 68 and have kidney disease and diabetes, and have been taking this dosage for about a year, with no adverse effects. I am aware of the concerns about too much vit. D, and have been sensitive to any suspected symptoms such as tingling in the mouth, nausea, abdominal pain.

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Worried at 65, Community Member
10/ 8/13 11:30am

I am 65 and found out a month ago my Vit D level is 25 when the norm starts at 30 I thought. I was given the same high dose to take once weekly and 24 hrs after the 3rd dose my BP shot up to 178/108. My spasming muscles got so bad I ended up in the ER. Now I am back to normal, took the 4rth dose and notice the corner of my mouth is tingling. I'm not so sure about continuing with my refill. I think after reading some of what others wrote I feel better about coninuing but gotta keep an eye on my BP. Hang in there.

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Jerry, Community Member
10/13/13 11:02am

My Doctor told me to take D3 50,000IU once per week.  So apparently it is safe to do (just don't take that much daily).  She told me that if you live outside a certain latitutde-longitude, that you would be shy on D3, as the body does not produce it, it only comes from the Sun. When I started taking it I was 68 too.

 

My wife had diabetes and also told us to start using Noni Juice.  She is now off her diabetic medicine.  I have lost weight too.  She told us to use 1 teaspoon daily (the bottle will tell you to use Tablespoon).  It taste horrid.  I found if I get it to the tongue 1st, let it sit there less than 5 seconds, then swollow, that it is more tollerable.  My research on Noni revealed it was fermented (but not alcoholic), so that is probably why it tastes so rancid.

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Karin, Community Member
8/18/09 5:27pm

My doctor just gave me a prescription for 50,000 IU to be taken once per week.  When I had my blook tested for Vitamin D the normal range is between 30 - 100 but I ranked at a mere 12.  The 50,000 IU per week is not toxic and so far does not have any side effects. I have read that a deficiency in Vitamin D will also make you feel more fatigued and have joint/muscle pain.  I am hoping this prescription helps with that.

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cncharrell, Community Member
9/ 2/09 12:49am

I too have just been given a prescription for 50,000 iu's of D 2x a week. I am delighted!  I have very low thyroid, high blood pressure, constant fatique, and endless body aches and pains. On my first day of taking the Vit D, my aches and pains are about 50% reduced. So I am very hopeful that it is  only going to get better.  I only use a suncreen on my face that is in my skin care, and I only use a sunscreen on my body after about being at the beach for some time to avoid a burn.  I think it is SO wrong for people to use so much sun screen...it has to be toxic to your body and we need the sunshine to keep us healthy.  Living up in the state of WA is a challenge to get sun to keep healthy.

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Miracleladie, Community Member
3/ 5/10 6:47am

Thank you soooo much for your input. I was diagnosed with low d level too. I was skeptical about taking so much, the 50,000 once a week. But now I feel better with YOU sharing you part of it. Thanks again.

 

Miracleladie

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kitty, Community Member
3/26/11 5:22pm

I was just prescribed 50,000 iu three (3) times per week. I've only had one dose so, I can't give any indication of how well it is or will work. But, I'm hopeful. I've seen numerous people on your dosage. I'm not sure why mine is so much more  - but, my doctor is only doing it short term (2 months) for now. I'm only 47 but, was suspected of having MS almost 20 years ago. So maybe that has something to do with the difference in dosage amount. I hope you feel better soon.

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Kencould, Community Member
7/16/12 5:44pm

I've been taking 50,000 iu every day of the week for the past 2 years. My Vit D numbers run around 13.  Don't even remember what it was when I started taking the Vit D supplement.  No Side effects.  Actually I can say, No effect.  After 2 years I still insufficient in Vit D

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aamir siddiqui, Community Member
6/21/14 3:23am

hi you would need to take vitamin d shots, vit d tablets are good to maintain levels, they wont get you in the optimal range, injections would, and after 2 years your readings are still laguishing around 13 confirms you have absorption issues, go get your shots, low vitamin d would turn you crazy, get your readings close to 100 and than move to tablets 

good luck 

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Kencould, Community Member
7/16/12 5:44pm

I've been taking 50,000 iu every day of the week for the past 2 years. My Vit D numbers run around 13.  Don't even remember what it was when I started taking the Vit D supplement.  No Side effects.  Actually I can say, No effect.  After 2 years I still insufficient in Vit D

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Angelina, Community Member
7/11/12 2:50am

Wow  I felt the same as all of you 50,000ui of VitaminD once a week for 8 weeks scared me . Then my family members were horrified which didn't help!  I found this forum and I could see myself in most of the replys. I was so fatigued,my bones and muscles would ache and spasm. The mornings I was like a 120 year old. I went to my Internist and did some test with no answer. I even think he was sick of seeing me thinking I was obsessed with my health. I kept saying is this normal . I finally went for the annual female check up and told her about these muscles and joint aches. My bones felt like they hurt. I was depressed because I had gained weight and could not seem to lose a pound. All of these are addressed with Vitamin D def.  So I went to the pharmacy and picked up this massive dosage of Vitamin D. I could not believe it. I actually thought it tb be a mmistake. I am so pleaased to hear from you all regarding this. I am ready to bite the bullet and go for better health. I am starting this tomorrow in the am and i will check back with you guys after I see a results.....hopefully one as good as I have been reading. Thanks so much for the support. Smile

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Janis, Community Member
5/25/14 5:43pm

Hi Angela,

I was just put on Vit D too which was incorrect for me to be put on because I have the same symptoms, fatique, bone pain, muscle spasms, had them twice before, when i had 2 previous parathyroid tumors. Your Vitamin D is a sign because it goes low to try and level your calcium.Doctors think if you have parathyroidism that you must have to have a high calcium level. This is not true. Your calcium goes ups and down, thats what is causing the muscle spasms. Get a PTH bloodwork done to rule it out. (parathyroid Hormone Test). My first one was when i was in my 20's which was very young to get it, I was told because of that I had a defective gene and I would probably get another. The specialist was correct, I did get another 20 years later, now i have a 3rd one. We all have 4. they control the calcium level in our bodys. When one has a tumor all four do not work and it drains the calcium from our bones, teeth, nails into our blood. Good luck

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lazaradi, Community Member
1/20/11 1:56pm

I was just prescribed 50,000 of d once a week and am so nervous to take it! Seems like so much! I have Rheumatoid Arthritis and suffer from so much fatigue and deep muscle pain, maybe it will help. It is good to know that other people have taken the same amount with no adverse effects!

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Sharona DP, Community Member
3/30/11 3:25pm

I too was nervous before taking 50,000IU, but it was necessary for me because I had very bad burning muscle pains, especially in the evening when reclining.  I couldn't rest, the pains were so bad.  My Vit. D was very low and I've been on 50,000IU for probably three years now.  At first, I was taking it twice a week - now I'm at once per week and taking D3 supplements every day (I think 1,000IU?).  I'm no longer worried because it has worked so well for me with no side effects.

 

Best of all, my pains are gone and I feel healthier and happier. 

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jennifer, Community Member
2/27/11 7:20pm

I am Having good results  from 50,000 iu of vitimin D 2x a week!  I work the night shift and dont get any sun. I have had 3 doses so far and feel 100% better then I did. I had all over body aches. I felt 120 years old in the morning. My aches are gone. It,s a miracle.

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della, Community Member
11/ 5/09 2:30pm

Gosh it is good to hear someone else talk about this vitamin d deficiency issue. i was just diagnosed with that  and prscribed 50,000 of vitamin day once a week.  I have been living with these symptoms for so long and had on idea what was wrong with me.  I m 58 years old also. I truly hopes this helps some of the fatigue and muscle pain that I have been having. Hope it works for you too!  Good luck!

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felipa, Community Member
11/ 7/09 1:36pm

Is 50,000 iu of vitamin d once a week safe to take?

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felipa, Community Member
11/ 7/09 1:36pm

Is 50,000 iu of vitamin d once a week safe to take?

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Carolyn J Smith, Community Member
9/24/10 9:38am

I was just prescribed 50,000 IU of vit 2 x per week and have not started it yet due to concerns of it being toxic (put a call into my MD but have not heard back from her yet). I was taking 2000IU of vit d per day and was nauseas, so was told to cut it back to 1000IU. Then my vitamin D level went down again. I'm concerned this much will make me sick. But hearing everyone elses response makes me feel a bit better. I'll try it and see what happens.

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cvsk12, Community Member
9/24/10 10:06am

About 3 weeks ago, my rheumatologist informed me my Vit D level was 5.2 and explained 30 and up would be a more normal Vit D level.  Because of IBS, I was very concerned about taking 50,000 IU once-a-week.   I also explained to him I had never had success with over-the-counter vitamins, always a digestive reaction.  He said, no, you don't understand, this would be by prescription and he foresaw no problems for me because he felt my body was so low in Vit D my system would absorb it very well.  I chose Sundays as my "Vitamin D-Day" LOL and noticed a difference right away and did not encounter any negative response.  Was the 2000 IU over-the-counter or by prescription and was it taken with a meal?  Same question with the 1000 IU... O-T-C or prescription?  The Rheumatologist informed me he wanted to start me at 50,000 IU Vit D once-a-week for 7 weeks.  At that point, he is going to order another blood test to see the status of the 50,000 IU dosage on my Vit D level.  I am like you, I would be questioning 2X a week of 50,000 IU, too.  If your doctor is a Rheumatologist, then I'd feel pretty assured IF the 50,000 IU is by rx-only and not over-the-counter.  The doctor did stress the importance of taking the dose right after a comlete meal.  Take Care, let us know what happens

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Jeanne, Community Member
2/26/11 12:20am

My oncologist prescribed the 50,000IUs once a week.  He is a brilliant doctor so, I did not question this high dose.  I took it yesterday and I am amazed at how much better I feel.  The fatigue is almost gone and I did 20 minutes of straight excercise on the rebounder which I would never have been able to do before.  I am so excited to have the energy to actually lose the 50 lbs I need to lose.  I have not had the energy or will to do it before today.  I wish I had known about the results of low vitamin d before now.  Good luck to all of you that reads this.

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Smithj32, Community Member
10/ 3/10 6:31pm

I am a 27 year old male and I was prescribed  50,000 iu twice a week for fatigue.  I have been taking it for three weeks and have noticed a drtamitic increase in mood and energy.  I thought my doctor was crazy when she prescribed me vatiamin d, but I figured it was worth a shot.  Glad I tried it.  Hope it has the same effect for everyone that it had for me. 

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george moses, Community Member
10/ 5/10 9:37am

I have prescribed Drisdol 50,000 IU (1.25 mg) three times weekly to some people with no problems. Occasionally, some one will get some stomach up set or diarrhea with it, but I have not seen anything worse. Occasionally people get so much energy they have some insomnia when they first start it, but that is very rare. Normal level is 30-100, but 50 and up is thought by many to be the most beneficial. I had one lady that misunderstood the directions and took the Drisdol daily. Her level was about 128 when rechecked, but she had no adverse effects.

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danceportal, Community Member
10/14/10 9:05am

I am 22/female who has had constant EXTREME fatigue and muscle pain and leg stiffness for the past 6 months..I thought these were symptoms of my hypothyroidism until I went for a checkup last week. My Dr. called back with lab results and put me immediately on 50,000 IU once a week for 8 weeks and then come back for check ups...alongside this, I am supposed to take 1,000 IU Vit D daily...

 

After I took the first dose of 50,000 IU, I woke up the next morning and was SHOCKED how much easier i was able to carry myself around...my leg pains were there, but the fatigue was noticeably different..and this is only the first week..I'm excited to see what the future weeks will bring..

 

I read a few comments about people having GI upset with vit D....it is a fat-soluble vitamin, so it should NOT be taken on an empty stomach..(actually vitamins in general should not be taken on an empty stomach)..

 

Because Vit D is a fat soluble vitamin, it stays in the body longer and is stored in the liver as well...taking 50,000 IU with NORMAL LEVELS of vit D is toxic...however, because we all have a deficiency of it, the 50,000 IU per week will slowly build us up to a normal/higher, healthy vitamin D level in the blood, which is why most dr.'s will ask to do a blood check in 8 weeks or so...

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Daan, Community Member
10/21/10 9:48pm

I am excited to hear that I am not alone, I am 35 and just found out from my joint doc that my Vit D is way low so he RX'd me 50,000IU for 12 weeks and then will be rechecked.  I am eager to see if some of my symptoms are related to this Vit D loss.  Then again, I was born with several spinal diseases and have had 9 surgeries on my spine and it is totally fused along with three hip surgeries for bone grafts.  But the kicker is I just found out I have Sjogrens disease which means I must stay OUT of the sun from here on out and then on top of it to find out I have a low Vit D and cant go in the sun is frustrating.  Because of the Sjogrens my husband and I are having all the windows in the house replaced with UV protected windows and are putting up tinting as well next week.  So I guess I will be taking the Vit D at high doses for a while... Oh, and I am VERY allergic to seafood and shellfish so thats out too.  I'm curious to know if the low Vit D accelerated my spinal diseases.  My surgeons have always wondered why my spine/bones looked like a 90 year old woman.  Who knows how long this has been going on?  Hopefully this will slow down my spinal diseases some what.  My fingers are crossed.

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danceportal, Community Member
10/22/10 8:11am

Well Vitamin D helps absorb calcium. If you were very low on Vit D, then your bones were not utilizing the calcium you were consuming (well, only a small amount of Calcium)...so yes, hopefully this should help with calcium absorption.

 

Hopefully you are not lactose intolerant. Even if you can't get out in the sun or eat seafood, you can drink milk! Milk has plenty of Vit D (whole milk). That's how I've been catching up on my Vit D along with the medications.

 

Hopefully you'll see changes in the near future :) Good luck!

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Char, Community Member
11/15/10 12:28pm

I am a 64 yr old woman and I have just been told my Vit D level is 22.  My doctor 

has given me a prescription of 50,000 iu a week  I have been very scared to take

that much amount.  But after reading all of the remarks and testimonies I am more encouraged to take this.  Thank you all so much for if I had not heard from others with the same problem I would probably go buy some Vit D pills and take a lesser dose.  I praise God for others that can help others.  We all need each other.   

 

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cvsk12, Community Member
1/20/11 6:03pm

I'm 55 and was like ''duh''??? when informed my Vit D was 5.2 when a normal level is considered 30!!!  I was JUST like you when told to take 50,000 IU/weekly AFTER A FULL MEAL.  I told the Rheumatologist all the reasons I didn't think I could do it:  IBS, always have had a problem with over-the-counter vitamins causing me digestive problems...he said ''look, you're so low, it's not going to be an issue for you, you're body needs it so badly it's going to absorb it, all of it".  After 8-or-so weeks, was tested again, now it's 21.2 so they put me on another 50,000 IU/once-a-week, then they will test again.  His Nurse told me if my levels improve enough, I'll be switched to an over-the-counter form of Vitamin D...that bothers me, like I said, I never have done well with "O-T-C" vitamins.  Let us know what happens and I was so grateful too, to stumble across Vitamin D ''people'' like me!!!

We do all need each other.

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critic447, Community Member
1/30/11 12:16am

I am 39 and last week dr called back with lab results from physical and advised I am vitamin D deficient.  I had gone with complaints of feeling extremely tired, all the time. constant muscle weakness, shakiness, but no pain, other than periodic, severe cramps in toes. I had no idea that this could be the issue. Dr put me on 50,000iu per week x 12 weeks. I see others are only 8 wks. I too am concerned that this is too high, but it appears that this is the standard for vit d treatment. I took the first yesterday.  I don't know if it's just mental, but I wasn't expecting any positive result for at least a month..or more likely a negative reaction...but this morning I woke up and felt a warm, relaxed feeling in all my muscles and I felt like I had the best sleep in long time. I usually feel like I'm going to fall asleep if I sit still for even a minute, but I feel sooooo good today! Wow - I hope this is the answer!

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Heather5858, Community Member
10/19/12 3:24pm

When you were low on Vitamin D what all Symptoms did you have? I have something seriously going on with body shaking, muscles jerking, head tingling.. kind of feels like pins n needles. I had low vitamin D before and i was but on Vitamin D2 1.25 mg(50,000 unit) once a wk. Does this sound like what you had? This feeling is scary and uncomfortable so please let me know. Thanks Heather

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UT25mfan, Community Member
1/28/14 10:41am

I am 47 and I just found out my Vitamin D level was a 5!  Starting 50,000 iu once a week ASAP!  I have the exact same symptoms as you do.  Praying this is the answer I need.  Hope you are doing much better.

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sara ortiz, Community Member
3/23/12 10:33pm

Hello! Dance I'm not a doctor but, I do have a solution for the leg pain.  If it's

a cramp feeling just place anything that is c o l d on it and you'll see that it (will)

leave before a second.  I do get this as I wake up in the morning and boy do I run

looking for anything thats cold.  Like step on the floor (no rug) thats really cold.

It works.  Sara

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latasha, Community Member
12/15/13 11:23am

I just found out about this vitamin deficeny, I am also skepticsl about the high dose, I didnt get it yet. I, m going to get it tomorrow since I read these articles.actually I thought my doctor made a mistake. As far as leg cramps, I found if you eat 1 teaspoon of mustard, yellow or brown, like you put on your hot dog, the cramps and spasms will go away. Ihad spasms in my legs and feet where I couldn, t even stand, I ate the teaspoon of mustard and I was fine in like 2 minutes. I had a friend who used to keep a jar of mustard on her night stand for leg cramps and spasms at nite. Hope this helps others. 

 

 

 

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AuntieGodmothers, Community Member
1/31/14 12:04am

My husband's physical therapist told him about mustard for leg cramps...He did it during an in-home exercise session.  My husbands swares by it now.   He has had problems with leg cramps for years.  Now we make sure to keep mustard on-hand for him at all times!  Good Luck...Hope it helps you too!

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Debbie, Community Member
11/23/10 2:55am

My doctor prescribed 50,000 IU A DAY.  Doctor says it's ok, pharmacist said no way, dangerous.  Who to trust?!?!  Mine is 21.

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BABrown, Community Member
1/ 6/11 4:31pm

Well, My Family Doctor put me on 50,000 iu a week of vitamin D. My Oncologist thinks that is way too much. Which before I started taking my vitamin D the pharmacist called and told me to only take one a month. I didn't really notice until this (morning) that the bottle had stated take one pill every week. So, I called to my Doctor's office to see what to do, my Doctor's nurse told me she takes 100,000 iu a week.  I would think it would be safe. I do know the first one I took, I feel like I was 10 years younger. I am 64 yrs old, been fighting cancer..since 06, believe me I'm ready to start feel good. So, After taking one 50,000 iu a month. I'm going to start taking 1 a week. I will be back in here to let everyone know how I'm feeling...who knows I might be out dancing, soon LOL...LOL..

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cvsk12, Community Member
1/20/11 6:08pm

I'd say go to another doctor.  Seriously.  My level was 5.2 and the Rheumatologist placed me on 8-weeks 50,000 IU-once-a-week with strict instructions to TAKE AFTER A FULL MEAL.  (So I use it to ''cheat" LOL) and after 8-or-so weeks they retested me and Vit D level rose to 21.2, so I am on another 8-weeks schedule, then they will test again.  Don't take 50,000 IU/day.  No way.  If you feel comfortable with this, ask your doctor if you misunderstood, straight-out.  If the doctor still says ''once-a-day'', run, don't walk, to another doctor...it doesn't ''sound'' to me like you saw a Rheumatologist, did you???

 

Hope to see a follow-up from you and Take Care!

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William, Community Member
11/30/10 9:29pm

I'm glad to see this question.  I'm a 29 M and was diagnosed with a severe vitanim D deficiency (less then 4, which means they couldn't find any).  Apparantly, organic milk isn't fortified with vitanim D (whoops--good to know) and since I work indoors, I don't get enough sun to produce my own.

 

Anyway, I've been on the 50,000 once a week and 1000 MG of Calcium once a day that my Dr. said I needed to take with it (so that my body can absorb the Vitanim D), and I haven't felt as good as I feel now.  I have more energy, and hopefully this is helping me with other issues that could be related.  I just started my second week today, and have four weeks to go after that.

 

Also, the calcium I'm taking is fortified with 400 MG Vitanim D, and so far, no adverse reactions with this combo.

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cvsk12, Community Member
1/20/11 6:11pm

Thanks for bringing up the calcium question, I recall the Rheumatologist saying he was going to probably put me on a calcium supplement but he never followed-up ... the weird thing is, I AM lactose-intolerant, don't eat dairy let alone drink milk, yet my calcium levels are normal.  I should at least follow-up with him on this issue, and the best to you, thanks for posting very valuable reminder information about the importance of calcium for absorption of Vit D Smile

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Blessed, Community Member
2/10/12 8:27am

Thanks for the information.  My doc didn't tell me my score only that he put me on 50000mg once week for six months and told to take 1000 daily of vitamin D.  Been on it for three weeks now and do not see a difference.  I still feel tired and have muscle cramps sometimes.  I'll let you know if any thing changes.

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linda bonds, Community Member
1/28/11 12:18am

i have totake 50000mg twice a for8weeks iam 51yrs. old  female

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linda bonds, Community Member
1/28/11 12:27am

i would like to know is 50,000mg twice a week  for 8 week to much  iam 51 years old

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cvsk12, Community Member
1/28/11 10:54pm

Smile Hi, do you mind if I ask how low your Vitamin D level tested?  Also, was it a Rheumatologist or Internist that prescribed 50,000 IU of Vitamin D once-a-week to you???

Take Care,

ph

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mssuffer, Community Member
2/16/11 5:47pm

to the 51 yr old. it is way too much for you no matter what condition you are taking it for. it is deadly to the liver and kidneys and immune system. a much lower dose if you really need it at all. get sun and drink no fat milk.

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KriGregory, Community Member
2/20/11 8:16pm

I am a 35 yr old female with MS and my neurologist at John's Hopkins University Hospital just prescribed me a vitamin D regimen of 50,000 iu once a day for 10 days as a "loading dose" then once a week there after for at least 3 months for maintainence but gave me refills for the next year.  He plans to recheck levels every 3 months until my levels are well over 50.  My vitamin B12 was also very low.  Vitamin D is 19 and B12 is in the low normal range so a multivitamin that is OTC was recommended for the B12. I made sure the multivitamin did not contain any more Vitamin D so as to not take any more that the prescription.  My last neuro only had me on Vitamin D 600iu OTC for the last 2 yrs. but my levels were quickly decreasing on this regimen so my new neuro at Hopkins chose this way to get my D up.  I haven't heard anyone else say they were given the daily "loading dose" to start off the high dose treatment but if you can't trust a neurologist from John's Hopkins, who specializes in Multiple Sclerosis, what Dr. can you trust?  Please, any feedback on this extremely high daily dose of Vitamin D would be greatly appreciated!

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cvsk12, Community Member
2/20/11 11:25pm

First, I'm sad to hear the diagnosis of MS.  You state "Please, any feedback on this extremely high daily dose of Vitamin D would be greatly appreciated!" 

Your Vitamin D level was 19, mine was 5.2.  The lowest rate ''they'' want to see is: 30. 

Okay, so it's Johns Hopkins.  Look, I've been disabled with a diagnosis of FM since 1993.  IF YOU DON'T FEEL COMFORTABLE LISTEN TO THAT NOT FEELING COMFORTABLE.  No, I am not a physician.  Just 55-years-old, female, with loooong history of physicians and every single time I did not completely trust the physician I turned out to be correct.  Please listen to your concerns and act upon them.

Furthermore, I will straight-out disagree and say it is a warning sign that he already gave you refills for the next year.  The refills for the next year were already given to you despite not knowing your response level and according to what you have written you have not even had one blood test yet to follow-up your Vit D level.  Do not allow the name of the Institution to intimidate or impress you when it comes to medical care.  Instead, it is my recommendation you actually USE the fact it is Johns Hopkins to validate requesting  a second opinion from another neurologist AND furthermore I would see an actual Rheumatologist for the Vit D issue...in fact, it could be to your benefit to consult outside of John Hopkins if you would feel more comfortable with that decision.  Just ask for an initial consult, I would advise you not to mention Johns Hopkins nor the doctor in-question, in this manner you can relieve the physician(s) you consult with of being placed in a ''judgment'' position by just asking their opinion on the method of Vit D treatment being assigned to your case.  I DO NOT AGREE WITH NOT CHECKING YOUR LEVEL UNTIL A 3-MONTH PERIOD OF TIME HAS ELAPSED.  THIS IS NOT USUAL TREATMENT.  I was placed, at the level of 5.2, on 50,000 IU ONCE-A-WEEK for EIGHT WEEKS and then promptly tested for the new ratio of Vit D (22.1).  Do you see what I am saying???  From a once-a-week only dose of 8 my level rose from 5.2 to 22.1:  AND I was told once my level is in the normal range, THEN I will be placed probably on an o-t-c dose, but still be periodically monitored.  I also do not fundamentally agree with the term ''loading''.  I worked for a drug company for many years.

Will you kindly please respond to this posting?  I am quite concerned for you and would like to hear back on your decision of choice.  I considered the fact you have MS and wondered if for some reason that would somehow justify such a large dose, but after consideration of how carefully Vit D must be prescribed, am very concerned for you.  You are not the only individual to ''run into'' situations like this, I have learned myself I am not the only one, it is your life it is your right to advocate for yourself.  Please, Take Care.

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cvsk12, Community Member
2/21/11 1:38pm

REPLYING TO:  KriGregory

 

First, I'm sad to hear the diagnosis of MS.  You state "Please, any feedback on this extremely high daily dose of Vitamin D would be greatly appreciated!" 

Your Vitamin D level was 19, mine was 5.2.  The lowest rate ''they'' want to see is: 30. 

Okay, so it's Johns Hopkins.  Look, I've been disabled with a diagnosis of FM since 1993.  IF YOU DON'T FEEL COMFORTABLE LISTEN TO THAT NOT FEELING COMFORTABLE.  No, I am not a physician.  Just 55-years-old, female, with loooong history of physicians and every single time I did not completely trust the physician I turned out to be correct.  Please listen to your concerns and act upon them.

Furthermore, I will straight-out disagree and say it is a warning sign that he already gave you refills for the next year.  The refills for the next year were already given to you despite not knowing your response level and according to what you have written you have not even had one blood test yet to follow-up your Vit D level.  Do not allow the name of the Institution to intimidate or impress you when it comes to medical care.  Instead, it is my recommendation you actually USE the fact it is Johns Hopkins to validate requesting  a second opinion from another neurologist AND furthermore I would see an actual Rheumatologist for the Vit D issue...in fact, it could be to your benefit to consult outside of John Hopkins if you would feel more comfortable with that decision.  Just ask for an initial consult, I would advise you not to mention Johns Hopkins nor the doctor in-question, in this manner you can relieve the physician(s) you consult with of being placed in a ''judgment'' position by just asking their opinion on the method of Vit D treatment being assigned to your case.  I DO NOT AGREE WITH NOT CHECKING YOUR LEVEL UNTIL A 3-MONTH PERIOD OF TIME HAS ELAPSED.  THIS IS NOT USUAL TREATMENT.  I was placed, at the level of 5.2, on 50,000 IU ONCE-A-WEEK for EIGHT WEEKS and then promptly tested for the new ratio of Vit D (22.1).  Do you see what I am saying???  From a once-a-week only dose of 8 my level rose from 5.2 to 22.1:  AND I was told once my level is in the normal range, THEN I will be placed probably on an o-t-c dose, but still be periodically monitored.  I also do not fundamentally agree with the term ''loading''.  I worked for a drug company for many years.

Will you kindly please respond to this posting?  I am quite concerned for you and would like to hear back on your decision of choice.  I considered the fact you have MS and wondered if for some reason that would somehow justify such a large dose, but after consideration of how carefully Vit D must be prescribed, am very concerned for you.  You are not the only individual to ''run into'' situations like this, I have learned myself I am not the only one, it is your life it is your right to advocate for yourself.  Please, Take Care.

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kathy, Community Member
4/ 2/12 7:17pm

I was put on the same as you,for low vitamin d 50.000 units a week I have had the most terrible GI problems you can imagine. Diarreaha sorry could never spell that darn word. But its like dry heaves when vomiting but from the other end. Sorry to be so graphic but I need an opinion which is worse dehydration or GI probs.

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cvsk12, Community Member
2/21/11 1:34pm

REPLY TO LINDA BONDS:  noticed my typo in reply to you, no it is not usual to prescribe 2 doses of 50,000 IU a week...as another replier pointed out.

 

Anyone else find the format a little confusing on replys?  From now on, I'm specifying WHO I'm replying to...

 

Best to you, Linda

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Laura, Community Member
2/22/11 8:47am

I just got prescribed 50000 of Vit D 1x/week for 12 weeks.  I was at 8.3 and was told 50 was more of what they liked to see.  I am encouraged by what I read out here that it has improved mood & fatigue.  I had no idea I had a vit deficiency, but reading about the symptoms, I sure hope this is what fixes some of it. 

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cvsk12, Community Member
2/22/11 12:39pm

Smile THIS REPLY IS TO LAURA...I was at 5.2, took once-a-week 50,000 IU for eight weeks, was re-tested new level was 22.1, placed on another eight-week routine.  I was told the lowest they want to see is 30 and the highest is 50.  I didn't have any idea either, but I'm beginning to notice most of us who post have other medical issues, and in speaking only for myself, I stayed inside far more than outside (fibromyalgia,etc.).  I did notice an improvement in how I felt, it was actually kind of weird, I guess because of so maaaany years of feeling ''blah''.  YET, I've only taken two of the second go-around, can't figure out why.  Gotta get back on the wagon. 

I didn't notice any side effects except sometimes almost unnerving energy level for temporary periods of time and some big-time insomnia.

Take Care, would like to hear more feedback from everybody on how it works for them...

cvsk12

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Chicagogal, Community Member
2/22/11 10:24am

I'm not a doctor, but I agree with someone else who posted here to "listen to your gut."  Doctors are NOT always right.

 

I was prescribed 50,000 iu Vit. D and after the FIRST pill I got an excruciating headache, and horrible heartburn.  Additionally, I NEVER felt fatigued UNTIL I took the Vitamin D. 

 

I'm listening to my gut and plan an taking OTC vitamins at a dosage of about 2,000 IU per day. 

 

BTW...I'm a female, age 58.

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Chicagogal, Community Member
2/22/11 10:25am

Ooops.  Sheesh...I'm aging myself prematurely.  Meant to write I am a female age FORTY-eight! ;)

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cvsk12, Community Member
2/22/11 12:54pm

This is for 'chicagogal'...hi, I'm out in good old Waukegan, "Chicagoland".  Hey, you gave me a laugh Laughing with typo on age, but the really important thing is DID ANYONE TELL YOU IT IS REALLY, REALLY IMPORTANT TO EAT A FULL MEAL BEFORE TAKING THE VIT D???

The reason I'm asking is I have a sensitive stomach/digestive system (past ulcers, blah-blah) ... chicagogal, the doctor and pharmacist emphasized big-time to eat a BIG MEAL before taking a dose (so I used the opportunity to CHEAT)

I was real scared the first time.  I ate a big fat bagel with egg and cheese and steak on it and made myself gulp it down. 

Did complete the first-round of 8-doses once-a-week and when re-tested was from 5.2 to 22.1 ...

ANYWAYS JUST LETTING YOU KNOW ABOUT EAT EAT EAT BEFORE TAKING IN CASE NO ONE MADE THAT CLEAR TO YOU

Take Care!!!  Please consider updating at some point - oh - i did experience once-or-twice ''over-energy'' that was odd and one time insomia otherwise I was okay, which is saying alot for my system

SmileSmileSmile

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Chicagogal, Community Member
2/22/11 6:44pm

Thanks, cvsk12 for your response--I really appreciate it!  No, neither the doctor nor pharmacist informed me to eat a full meal beforehand. However, because I have had reflux issues in the past and vitamin supplements typically don't agree with me, I went online to some med site (I think it may have been WebMD, but I'm not sure) to do some research before taking the Vit D.  I read there to eat a "full, greasy meal" before taking the vitamin. So, like you, I used it as a license to "cheat" and at two pieces of pizza....YUM....before taking the Vit.D.  (Deep dish 'za to boot!Laughing )

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cvsk12, Community Member
2/26/11 12:39am

Hi Chicagogal!!!  I don't know if I told you I went from 5.2 to 22.1 and am on a second round of D...I thank you later on...WOW the surprise to me is what I eat when taking it is a McD's Steak, Egg and Cheese Bagel, it was instinctive and chance to cheat and NOW you're confirming: ''full, greasy meal"!!!  SCORE--ugh, I can't typically take o-t-c vitamin supplements successfully either, never worked long-term, but the 50,000 IU once-a-week w/full meal works.  THANKS BECAUSE I'M ON MY SECOND ROUND OF D AND HAD FALLEN OFF THE WAGON, BECAUSE OF YOUR POST, YESTERDAY I ''FORCED'' MYSELF TO EAT THE BAGEL AND TAKE THE D AND HAD A BURST OF ENERGY BUT STILL FELT TIRED (WEIRD, I KNOW). 

Keep me posted if you don't mind!!!  Take Care, cvsk12(Patricia)

 

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Vickiera, Community Member
1/30/13 8:16pm
Wow I'm running to the Kitchen now....when should you take it? Reply
KPAtl, Community Member
1/16/14 9:36am

I agree.  I am 49 yrs. old and just took my first dose 2 days ago.  I had eaten a big lunch so only ate lightly at dinner, at which time I took the 50,000 IU Vit. D pill.  Within 20 minutes my entire stomach and intestines were in pain with cramping and nausea.  I did throw up and still felt puny the next day.  I was never told by the nurse who called in the Rx or by the pharmacy tech to eat a big meal with this Rx as this type reaction might happen.  Glad I found this website.  Next week, I will know better and eat a large meal with my pill.  Best of luck to you!

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china, Community Member
3/26/11 8:41pm

it should be taken for a short term and the d level checked periodic for improvement then decreased according to the results.

 

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Carole, Community Member
4/18/11 11:03pm

My primary care physician prescribed 50,000 iu of vit D once a week when my lab results came back that I was deficient.  I got the prescription today and have not taken my first dose.   Have been researching and came across this forum.  I, too, have been concerned with the large amount being prescribed.  Interestingly, last month I was diagnosed with RA and fibromyalgia.  Have been on Prednisone for a months and have been off now a week.  I am wondering if the Vit. D deficiency is related. 

Thanks to everyone who has posted.  I have a heart arrhythemia and take Verapamil 4 x day so I have a call in to my cardiologist regarding taking the Vit. D. 

If he feels there will be no drug interaction, I will be starting the Vit. D.

 

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cvsk12, Community Member
4/23/11 1:08pm

Hi Carol, I've been diagnosed (long time ago now) w/CFS w/FM, etc.  I've read, read and re-read your clear posting...and congratulations to you because you're handling it very well, in my opinion you have a natural gift towards logic and medicine!!!  If you do start the Vit D, it would be nice to know, people write-in with the most interesting questions and situations and then never follow-up! 

I'm on my second round, really I've completed it, of 8 weeks of Vit D 50,000 IU because the first round only brought the level up to 22.1.  Sometimes I get rapid heartbeat but they say it's nerves, I say you're smart to check it all out first.

Oh...if you do take the D, I found out it is literally absorbed better if you eat a larger meal than normal that actually contains fat, I have a sensitive stomach and never had any problems w/taking it unless I didn't eat a substantial rather high-fat meal first. 

The only other odd thing was at least twice I was insomniac from the burst of d, but still felt tired.  Weird.

Best of luck!

Marie

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Karam, Community Member
5/23/11 8:05pm

Well I am 50 Male : Vit D level (was 10 some 6 months ago and 15 today). The prescribed 50,000 IU resulted in so many adverse side-effects (feeling utterely thirsty, nauseated, sleepy during the day and not being able to focus at work - to name a few) that my doctor directed me to go for the otc 2000 IU 2ce a day. Almost two months of daily intake raised the level by mere 5 (10 to 15). I think I may not have taken the originally prescribed 50,000 IU AFTER A FULL MEAL, which perhaps resulted in the mentioned (and un-mentioed) side-effects. After reading so many positive testimonials, I am going to give it another shot; request my doctor to re-prescribe 50000 IU. At the current progress rate, it will take me forever to reach a level of 50 or so (which I believe is the optimal level - the minimum being 30). Will post an update here if I register any quicker progress with 50,000 once a week prescription.

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Gina E., Community Member
5/25/11 7:00am

I am glad to see this forum on Vitamin D is still active.  I am 63 years old, and thought I had no health problems other than arthritis and high blood pressure, for which I'm on one tablet a day.  My doctor has been sending me for blood tests once a year for a few years now, and she told me last year the Vitamin D level is too low, and I have osteopenia (pre-osteoporosis).   She put me on Ostelin capsules for six months, but the last blood test showed my Vit.d was still too low, so she prescribed the 50,000 IU once a month.  I had the same fears as everyone else here - would that be toxic?  Doctor and chemist both said no, but I've been holding off starting them until I learned a bit more.  Now thanks to this website I think I have - especially the bit about taking them after a meal.  Nobody told me that!

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cvsk12, Community Member
5/25/11 2:33pm

You sound like you're in great shape over-all, I'm 55.  Another thing I found out was that it's actually helpful to eat a meal with more oil in it than you would normally eat, like something fried, for example.  For some reason, not only does eating a good substantial meal help but also some oil in whatever form, the Vit D is absorbed more easily.

I am "on"  50,000 I.U. a week of Vit D.  The only thing I've ever noticed is sometimes I experience the oddity of feeling exhausted and energized at the same time (have FM & some other health problems) and once or twice some insomnia.

I don't know a thing about Ostelin but it sounds like your doc is being careful.  If it helps you at all, anything below 30 on Vit D is considered lower than wanted.

:):):)

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cvsk12, Community Member
5/25/11 2:42pm

First I am sorry for what you been thru.  The reason I knew to eat a full meal, a big meal, was because the pharmacy guy told me to AND put a big label on the bottle.  Ohterwise, no one mentioned it.  Someone in this forum said something about the fact that the Vit D is also better absorbed if the meal has items that are high in fat, the fat helps the Vit D to absorb. 

YES you are right low is considered thirty (30) high is considered fifty (50) re Vit D levels.  Mine was 5.2. went up to 22.3 then went down to 15 that's on one-a-week 50,000 IU a week but I not only dropped a couple sometimes I forgot to take it...OH that's another thing, I was told TAKE IT THE SAME DAY EACH WEEK IN THE A.M. [WITH THAT BIG SOMEWHAT GREASY MEAL-HAHA- A TICKET TO CHEAT]

 

So, I'm back on another round, this time still once-a-week 50,000 IU Vit D but for twelve weeks.  I'm kinda non-compliant sometimes but have heard it is not uncommon for it take quite awhile to get a low Vit D patient up to optimal levels.

 

In fact, I just remembered the dr's nurse said typically AFTER they get the patient to a high D level, THEN they put the patient on an over-the-counter "Maintenance Dose".

 

TAKE CARE SORRY you had to endure all the symptoms let us know how it goes for ya'???

Laughingmarie

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Karam, Community Member
5/25/11 4:35pm

Thanks a lot cvsk12 (or happy marrie) :), for all the inputs. I have begun to believe, you stand to benefit more from the like-boat-sailors than from the so called 'captains'. Doctors have limited knowledge when it comes to Vit D (B12 will fit right in this category - and I am (actually was) deficient there too) but the suffers seem to know more all about it. I got a call from my doctor's office prescribing 50,000 IU again. I have often wondered though - why is there such huge jump when it come to making these dosages? You either have 4000 IU or 50,000 IU; WHY NOT SOMETHING IN BETWEEN  - LIKE 10,000 OR 20,000? MAybe there is. More info anyone?

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cvsk12, Community Member
5/25/11 5:25pm

Hi Karam, i like the way you worded it about ''like-boat-sailors...so called 'capains'.  I have found it to be very true.  I actually fired a doctor on the same day I met him this week.  It was a first for me.  I finally recognized we must as patients look out for ourselves and have our needs met with respect. 

 

I, too, have wondered about dosages regarding all different kinds of medications.  Over the years, I asked alot of questions, both of pharmacists and doctors.  I am so hard-to-get-me-to-trust, I will even call several different pharmacists to see if their answers match!!!  I am straying off-track. 

 

The over-the-counter vitamin d's are formulated differently.  Of course, the brand and the formulation DO matter, in regard to both quality and absorption. 

 

The "O-T-C" formulations for Vit D are for those who only want to maintain what are considered normal levels.  Probably, plenty of people buy the Vit D O-T-C who don't even need it, which could be a mistake for their system.

 

Pharmaceutically, I was told 50,000 I.U. is the standard available prescribed dose.  "I.U." has something to do with ''units of measure" it was my impression the term "I.U." signifies liquid properties are involved.

 

Usually, most of us are used to prescriptions that are in ''mg' formulation. 

 

"They" say, for example, the milligram dosage for an antibiotic is based upon body weight yet the pharmaceutical companies rely on the physician to determine from their pharmaceutical selection the amount of tablets/pills/milligrams to take for the patient concerned, it is a judgment call for the physician to take the infection level and weight and other varying health factors into account and decide the milligram dosage.

 

When it comes to Vit D 50,000 IU once-a-week, I was literally at first terrified, because I also have digestive problems.  Immediately I questioned what sounded like such a tremendously high dosage. 

 

The physician explained everyone absorbs medications to a different rate specific to their own body system.  In the past, I have had physicians explain to me all human beings ''metabolize'' drugs at different rates.

 

A 10mg dosage of one drug could be safely and totally metabolized (absorbed) by their body system, while someone else might need 50 mg and only metabolize 30mg of the 50mg prescribed.

 

So, the doctor explained when it comes to Vit D, 50,000 IU is actually not a high amount.  Since then, I have learned it is common practice to direct the patient to take one dose ONCE-A-WEEK  (and we have already discussed what to eat).

 

The doctor assured me my Vit D level was so very low (5.2 at start) that my system would be so ''hungry'' for the Vit D he doubted I would encounter any problems whatsoever.

 

Again, tho, it was the pharmacist I have known for over 20 years who told me about meals and it was in this forum I was told about the importance of eating a large, substantial meal containing fat to help absorb the Vit D.

 

Pharmaceutically, I'm not sure they formulate Vit D in levels of 10,000 or 20,000, the reasoning being it is formulated differently than over-the-counter Vit D and is intended for those suffering very low levels of Vit D.

 

I suspect the thinking w/the Vit D goes right back to individual metabolism rates of usage, maybe I absorbed almost all of it but someone else would absorb only 30% of it...I hope I am being clear.  The 50,000 IU will not typically cause problems as long as the guidelines are followed. 

 

It was in the Spring or early Summer of last year I was prescribed by first go-around with the Vitamin D.  It was for eight weeks, once-a-week.  I ate a McDonald's steak/egg/cheese/breakfast bagel sandwich and then (I was scared, too) took the Vit D.

 

Nothing happened.  Later on I was glad to find out it was good to eat something with fat content to help absorb the Vit D. 

 

I did notice, sometimes, I would experience the oddity of feeling exhaustion (I ''have'' FM) yet energy at the same time after a dose.  Lack of Vit D causes so many problems to our bodies. 

 

I also noticed a couple of times I had insomnia, but I already tend to have insomnia anyways, what was different was it felt like ''energy-related'' insomnia.

 

So, I learned to take it EARLY as possible in the a.m. as is reasonable.

 

My ''pills'' are liquid inside with a ''jelly'' feeling-like outside and they are a kind of greenish-blue colour. 

 

I am sorry this is so long yet I identify so much with your concerns I wanted to try to address them adequately.  It is not fun to be a patient and it is wise to check things out...just one more thing:  if you don't totally trust your doctor and can change, then do so if you want, if you can't change doctors, try to change the relationship with the doctor. 

 

It sounds maybe a little bit like your doctor visits are very fast and/or the doctor is not available for questions thru his or her nurse.

 

Let me know what happens, I want things to work out for you and all of us!!!

Take Care,

Marie

Smile

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cvsk12, Community Member
8/ 1/11 12:06pm

Hi, I received notice there was a new reply but the only one I find is yours dated back in May!!!  I can't say I agree with the formatting of the forum, yet I have no control over it.

I myself became curious and called the pharmacy and discovered 50,000 IU is the standard pharmaceutical and ONLY dose available by prescription.

Otherwise, I have been told once my levels are normal I will be swithced to OTC over-thecounter Vit D...the Vit D is a bit of a challenge as I did make the connection in my case of it (Vit D) sometimes causing me severe insomnia and a strange form of energy combined with exhaustion at the same time, rather odd sensation to say the least.

 

Good Luck!!!

Marie

cvsk12

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redhart, Community Member
11/29/11 8:34am

My doctor prescribed the same amount of 50,000 IU, but when you convert it to milligrams like most prescriptions that I have taken in the past, it's only 1.25mg.   (IU of Vitamin D equals 0.025 μg (microgram - one millionth of a gram). 

50,000 × 0.025 = 1,250 μg. So, 50,000 IU is about 1.25 mg. 


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lisa, Community Member
1/ 2/12 3:39pm

My Dr. just prescribed vitamin d 50,000iu once a day. I din't see anyone else taking that much is this normal. my pharmacist even called him to make sure ? I am very concerned !

 

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Kimmydee2, Community Member
1/24/12 1:20am

Im scared.....my endocrinologist put me on 50,000 of D 3 x week M-W-F. I had my thyroid removed and my parathyroids either came out or don't function anymore. My vitamin D level is 42, but my calcium ranges between 7.6 and 8.1 (8.5-10.5 normal range). I am soooo afraid to take the D for fear of being toxic since my D range is pretty normal. But I suffer tetany to my muscles with the poor calcium absorption and am miserable. This forum has helped me to see that if I just get over it and take one and wait and see what happens....I may feel okay.....but I need some extra encouragement and reassurance here......Thanks!

Kimmy

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Celeste, Community Member
3/28/12 11:12am

Kimmy...I too had my thyroid removed back in Sept 2011 due to thyroid cancer. A few years ago, I had gastric bypass and have trouble with absorption. After my TT, I only have one parathyroid working correctly.

 

My endo told me that I am Vitamin D and Calcium deficient. I take 2 Calcium pills daily and a 2000 of D3. On M/W/F, I take 50,000 of D3. i have only taken 2 doses of the 50,000 so far and do feel a bit better. i will take it for 4 weeks. My endo called it a Vitamin D booster.  he will do bloodwork and then lower the dosage as needed after 4 weeks.

 

I can't wait to feel better. I have been so fatigued and am sore all over.

 

I am female age 39.

 

I hope you feel better.

 

Celeste

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Kimmydee2, Community Member
1/24/12 1:23am

Im scared.....my endocrinologist put me on 50,000 of D 3 x week M-W-F. I had my thyroid removed and my parathyroids either came out or don't function anymore. My vitamin D level is 42, but my calcium ranges between 7.6 and 8.1 (8.5-10.5 normal range). I am soooo afraid to take the D for fear of being toxic since my D range is pretty normal. But I suffer tetany to my muscles with the poor calcium absorption and am miserable. This forum has helped me to see that if I just get over it and take one and wait and see what happens....I may feel okay.....but I need some extra encouragement and reassurance here......Thanks!

Kimmy

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LJL, Community Member
3/18/12 8:59pm

Kimmy D:  I have been prescibed Fifty thousand K IU twice a week for 3 months.  No problem so far.

 

Len

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Josephine, Community Member
2/ 7/12 6:29pm

Hi I'm 37 and I too have been prescribed the 50000 IU per week for 6 months last year after my doc saw that my level is at 6.0.  At first I was really worried about aking such a high amount, but after the first dose, I felt so much better.  After the 6 months, did another blood test and my level went up to 26!  We decided to stop the vitamin D supplements and after 2 months, I dropped back down to 16.  I am now back to the 50000 IU per week for another 6 months and was instructed to take 2000 IU daily after the RX is gone.  So I guess what I'm saying is, after you finish your prescription, make sure to keep on top of your vitamin D by taking OTC supplements to maintain the correct level. Hope that helps. 

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Judy Bachleda, Community Member
2/16/12 4:03pm

I'm sorry to say that I am on 50,000 iu of d once a week and it has really excelerated my artherites in my fingers.  I get up and feel like my fingers are asleep.  Also the joints in my fingers are beging to mold so that I can't straighten

them out.   

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Tara Leigh, Community Member
2/25/12 2:22pm

I am 36 years old and have been diagnosed with adrenal and vitamin D insufficiency.  My vitamin D level is 4 and my endrocrinologist prescribed 50,000 iu of vitamin D 2x a week for a month and a recheck them.  I am a type A personality Cool, absolute perfectionist as well as, hyper.  Surprised  God love my husband!  At any rate, I have been bone weary and suffering joint pain from my neck to my toes with no arthritis or any diagnosis for it despite MRIs, c-sans, ultrasound.. you name it.  I just received my presciption yesterday and will pick it up from the pharmacy in a little bit.  Vitamin D is really an essential vitamin and insufficiency has numerous side effects... including cancer!  I live in Florida  and am literally exposed to to the sun from morning until the sun goes down.  We have dinner on the deck in full sunlight and I am still deficient.  I do use sunscreen every day on my entire body.  The endocrinologist told me all I need to do is let my legs get 15 minutes of sun a day which I have already done this morning.  I am in hopes the vitamin D supplement will have me feeling better and make an improvement prior to my recheck on March 23, 2012.  Good luck, everyone!!  May this work for us all.

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DC, Community Member
2/29/12 4:44pm

If you had started to take a D suppliment and had taken it for 2 to 3 weeks before you were tested, would that make a difference in the results?

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TroySMA, Community Member
3/22/12 5:11pm

I took 50,000 IU vitamin D after having a low blood test for it (wasn't told what my Vit D level was).  After 4 weeks on Vitamin D I had acute appendicitis, requiring an appendectomy.  Not sure if it was related but I stopped taking the Vitamin D.

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Lee, Community Member
4/11/12 5:19pm

WOW, it was incredible to read everyone's stories. Thank you for sharing!   I have never shared in this type of format on the internet, but felt the need after going through a major unexplained change in my mood, diet and energy.....which by the way I gained about 20 pounds over the last year and even after a food diary they had no clue what was wrong, because it was not my food intake.

 

I too have been diagnosed Vitamin D Deficiency after being exhausted, aches, pains, feeling depressed and weight gain amongst other symptoms.  I had a blood test and it determined my level was at 11 and my doctor told me normal range was between 50-100.  I prescribed Vitamin D2  1.25mg which is 50,000 units at 1 pill per week for 6 weeks and I must admit that I feel drastically different and more like my old self after the 2nd week of taking the pill.  I am on week 5 now and will continue with over the counter vitamin d 1000 unit after next week.

 

Lee

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Heather5858, Community Member
10/19/12 3:37pm

What all Symtoms do you have with Vitamin D? I am Having head pin needle feelings, body numbness, fatigue, legs shake, arms and legs jerk from muscles and i feel confused somtimes in my head like i am lacking something and tight muscles in mainly in neck and shoulders but can be different places to. I am a Vegetarian and i don't eat right at all. I eat mainly cheese, bread, lettuce, onion, salads, junk/candy and drink water. I have 2 children and i want to be good and Healthy for them. Please write me back and let me know cause these feelings are uncomfortable. Thanks Heather

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DrMichaelDO, Community Member
5/ 3/12 12:01pm

If your vitamin D level is low the 50,000 iu weekly for 8 weeks will refill the system.

You should continue to take Vitamin D3 1,000 iu daily after you complete the Vitamin D2 50,000 iu weekly.  I would not take the 50,000 iu for longer than 8 weeks unless your doctor checks you Vitamin D, 25-OH level.

Hope this helps!

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Shelley, Community Member
5/24/12 10:15pm

I too have been prescribed 50,00iu of vitamin d once a week.  I was unaware that my doctor was testing my vit d levels when she sent me for blood work.  I have many medical issues from thyroid, depression, cancer hystory osteoarthritis.  I am not sure why she would test for this.  She is sending my the results in the mail but called me and wanted me to start on the vit d asap.  If this makes me feel better I will be so happy.  I have been living in pain and agony for so long.  Not knowing if its the depression or the pain that is causing me to just be so tired all the time.  I have just become so accustom to it I never brought it up to any of my doctors.  It just became a way of life.  I do know that the level that the prescribed me is not unusual.  My mother in law was given it by injection.  She had altzheimers and was homebound.  I look forward to checking back and letting you know how well it has worked for me.  I hope everyone does well with it.  God Bless and stay well.

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Andrea, Pennsylvania, Community Member
6/ 8/12 6:32pm

I am a 42 year old female who suffers with extreme fatigue and I am soooo hoping that this Vitamin D supplement can help with this. It's so encouraging to read how many of the posters here got relief from their fatigue once they started taking it. I too was concerned about the high dosage of 50,000 iu weekly. I never have heard of such a thing - it sounds so high. Thank God for the internet and the ability to connect with people in similar circumstances and even 2 doctors posting on here as well. I feel a lot better now about going ahead with it - in fact I just took my first of 4 capsules (my doc only prescribed me 4 to be taken over the course of 4 weeks and then a re-test of my blood after 8 weeks). My bloodwork showed my current level is 18. Oddly enough my 12 year old son was diagnosed with a low Vitamin D level of 11 by his pediatrician a month ago. He is taking an OTC 2,000 iu daily dose for a total of 2 months before he gets re-tested as well. To not feel exhausted after only an hour or so of being awake even after a good night's sleep would be like a miracle to me. I've felt this way for so long. I will update with any good results and hope that all of you will do the same. Thanks and good luck to everyone.

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Marianne, Community Member
8/ 7/12 1:50am

I have been in the sun a lot this summer and have a great tan. Last week my doctor took blood tests of me because I was telling her of my hair getting very thin and was wondering if I was low on any vitamins. Got a call from her telling me my vitamin D level was low. (didn't tell me the level) but she prescribed 50,000 iu of D vitamin for 6 weeks. Does vitamin D have any effect on your hair? And why would I be low on vitamin D if I have been in the sun a lot this summer? Would love to hear from someone that could give me some answers. I was also afraid of the high dosage.

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marie, Community Member
10/19/12 11:49pm

Just an opinion:  if you used sunblock at all times, the sunblock would also block the absorption of the Vitamin D.  xxx 

 

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marie, Community Member
10/19/12 11:49pm

Just an opinion:  if you used sunblock at all times, the sunblock would also block the absorption of the Vitamin D.  xxx 

 

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Danni, Community Member
12/16/12 1:27pm

Hi there,

Yes it does effect your hair. It has affected mine- clumps falling out, thinning, and this is the first time in a long time my hair is long. :( Until now, I couldn't figure out why this was happening. I'm getting better taking Vit. D. I also got a lot of sun this summer- guess it wasn't enough.

I was prescribed the 50000 IU but haven't taken it- due to some stomach issues. My regular doc was out so I saw another- when I talked to my doc about it- he said to take 2000iu a day and that's what I have been taking. It's helping so far with the hair along with Calcium.

I also eat fortified everything and drink milk to help.

When he rechecks in a few months- he will decide if I need to go higher but for now I'll stick with what I'm doing.

Hope this helps!

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Kevyn, Community Member
10/20/12 1:31am

Have any participants here vomited after taking the 50,000 IU Vitamin D?  I am supposed to start taking it but I am phobic about vomiting and find it an unacceptable side effect.  I have not vomited for any reason since I was a kid.

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xxaimsxx, Community Member
11/28/12 4:46pm

My mom was on 50,00iu as well and on some vit C ones but I don't remember the dosage on it.

 

I was just diagnosed with Vit D Def as well and I'm just about to turn 29, lol and I have a bunch of problems that I'm just finding out. I have really bad hypothyroidism that hasn't been controlled in a good while.

 

Just found a dr that does more of a hollistic approach and am going to have her redo all my blood work if I do not get my labs in the mail by tonight since my appt is tomorrow. Hopefully she will prescribe the vit D prescription as well, if not, I will have my mom's prescription refilled and take that in the mean time.

 

After a couple of weeks on the 50,000iu, her lab results came back normal. Now she's just on a daily Calcium and D supplement regimen. She also had a histerectomy which is her reason for being deficient.

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xxaimsxx, Community Member
11/28/12 4:50pm

Oh and my level was 9.6

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CuteWishes, Community Member
12/28/12 6:15am
Hi...I am a 41 yrs old Female. I thought that being under the sun would give me my Vit D but I was wrong. My primary doctor told me that I had the same deficiency as all of you. I think he said I was a 5 or 7...anyways I also was prescribed the 50k I.U. I took it after dinner on Fridays....just to make sure that if I had any side effects it would be during the weekend. But to my surprise I had none....only GREAT feeling! Since I was a toddler I had felt tired, fatigue, pains, lack of energy and etc.... I thought that was natural...but now my lifestyle has changed. I am more energized. I hardly ever get sick anymore....I don't get severe colds like I use to. If I do get the bug...it doesn't keep down for more than 24 hours. By the way, I am also diabetic....my sugar level also came down (not drastically but enough to lower the dosage of my diabetic pills). I am now off my Vitamin D regimen but I will continue with Vit D3 everyday which I heard is much better than the D2. Good luck All! Reply
Paul B, Community Member
1/ 7/13 11:11pm

54 YO male - 6' 200# pretty sedintary life, long hours sitting with little sun for past 5 years.

Just went in for check up and placed on 50,000 IU once per week.

It's been 5 weeks - taken every Friday - regardless of stomach fill, I get a bit queasy with slight nausea but that soon passes.

However,

Stomach has turned into  Acid manufacturing plant. Burning that worsens as the day wears - nightime I awken with bile in mouth. I drink copious amounts of water, and don't like antacids, but I sleep witha bottole of Pepto on the night stand now.

 

By Thurdsday of each week the acid starts to subside but on Saturday - it re-appears with a vengence.

 

Aches and pains in joints have dissappeared through! (about 2 years ago I took some antibiotic called Cipro -something and it left me with a terrible pain in my left shoulder and elbow such that I could only lift about 20 lbs. ).

This alone is worth the acid pain, but I am getting worried that I am screwing up my eshophogeal lining and even my dentist has warned me that acidic bile will destroy my teeth.

 

Aside from the blood test indicating a D deficiency, there was no other reason (at least mentioned to me) why I needed the D.

 

I have 6 pills left - should I:

Save my stomach, throat and teeth from acid and not take them?

Take them but gulp down the Pepto?

Take them and endure the stomach pain (it is NOT just your ordinary acid indigestion - it's refluxing and a burning from the sternum to the lips.

 

 

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cvsk12, Community Member
1/30/13 9:15pm

In my opinion, here's my thoughts for you to consider:  first, my level of D was five (5) when tested, the lowest level the doctor had seen, but I am disabled with FM and CFS, known as "ME" in Europe. As in I'm disabled.  So, I wasn't too surprised at the low level but had concerns about how important Vitamin D is showing to be to our entire body system.  Nobody bothered to tell me to eat a literally greasy meal before taking the Vitamin D.  For me, that meant trying a McDonald's Steak Egg and Cheese Bagel, made properly with the sauce.  When I ate one and then took the Vitamin D, I didn't experience the same acid production.  (I've had two ulcers in past, both non-bacterial, ulcers ''run'' in the family).  Then, I started hearing and reading Vitamin D, in order to be properly absorbed, need other ingredients.  To work with the basic D for proper absorption.  In addition, my Vitamin D rate was not going up as it should have, I was not absorbing properly, according to the physician, and this fit-in with my IBS problems.  The medication you likely took was called "Ciprofloxacin", a higher-line of antibiotics derived from penicillin.  Recently, I was placed on a course of "Bactrim DS", an antibiotic that normally gives me no problems, yet was told I had to take it an extended period of time.  The stomach pains began again and so did the acid production as you describe.  EXCEPT this was after I had finished my pharmaceutical grade Vitamin D and had completed another form of Vitamin D.  I became literally fed-up with the gastric response to the pharmaceutical grade Vitamin D because it was at least 8 ''courses'' of four 50,000IU a week and still my level had only risen to 13.  I purchased from a company I trust their Vitamin D and the day before I had blood panels done took my last Vit D from the 60-count bottle.  The reading that came back???  25.  This proved once-and-for-all at least to me other ingredients are necessary for proper absorption of the Vit D.  Regarding your drinking copious amounts of water, be warned:  never exceed 16.9 fluid oz water within a 90-minute timeframe.  You are at risk of water over-intake and this can result in very serious health problems including death.  Back to me taking the antibiotic:  I finally called two different all-night pharmacies and was told by each pharmacist I could take one-to-two Zantac, that's ZANTAC otherwise known as the generic "rantidine", usually they come in the 75mg or 150mg dose.  Each Pharmacist said to take the medication about two hours before any of my other medications. You don't mention if you're on other medications.  If you are, check with your own pharmacy or a branch (I called, for ex., two different locations that still had access to my different meds on computer).  The Pepto is the wrong product to be taking for acid and bile production.  You need an acid neutralizer.  One pharmacist also mentioned "Pepcid".  Except I had recalled not liking Pepcid when I had the active ulcers, back when both Zantac and Pepcid were prescribed drugs.  Now, you say ''every Friday - regardless of stomach fill," and go on to describe the symptoms from taking the Vitamin D.  Were you advised to take it in the morning after breakfast?  I had to discover,on my own, to take it (Vit D) with a greasy meal:  the grease, I am sorry to say, aids in the absorption of the Vitamin D pharmaceutical grade.  Now, again, this is only my opinion:  you're eating the wrong sort of meal at the wrong time combined with the harshness of the Pharma grade Vit D, comprised of only Vitamin D.  I gave-up and switched to Tri-Vita Vit D and took one a day in the mornings afer a regular breakfast, not a greasy breakfast, and had no problems, completed the 60-count bottle had blood panels taken and by the way I took only one capsule a day, containing only 3,000mg of Vit D YET WITH OTHER INGREDIENTS FOR BETTER ABSORPTION:  and my Vit D shot up to 25 from 13.  If you do decide to switch to this product, the website begins with the usual www followed by trivita.com make sure you use that website or else you could end-up at a 3rd party website where the product could cost you more---I now discontinued the additional Bactrim DS the physican wanted me to take as she turned out to be in error on her diagnosis and am still having to take the Zantac twice daily to keep the night-time bile and painful stomach pains at bay.  Vitamin D is a necessity now.  It prevents many significant illnesses and our bodies need to keep a steady rate as you stated you noticed a decrease in pain.  I am going to continue on the Vit D from the company stated and their price per bottle was less than what the pharmacy was charging me anyway and no I didn't even bother to tell the doctor because the doctor would not listen when I kept saying okay I know I have malabsorption but isn't there supposed to be more to it than just the straight D for absorption???  The answer was yes on the net but doctors overall aren't that familiar with vitamins.  Sleep with your pillows higher up if possible and refrain from taking the Vit D any other time but in the morning.  Cut your water intake to 1/2 an ounce per pound of your body weight.  Stop drinking about 4 hours before you go to bed or just start sipping and again check with a couple pharmacists about timing of Zantac to neutralize stomach acid yet not affect your medication intake.  Guess what?  You'll probably need to take the Vit D at a lower dose the rest of your life anyway.  That's right.  Just at a lower dose.  That's another reason I opted to switch to the product I mentioned to you.  Please don't accuse me of attempting to sell because for one thing my name isn't given and I don't have any investment with the vitamin company.  I just know their Vit D was gentle and absorbed by me and in my case the pharma grade D was doing to me the same as to you, then also with the antibiotic, the same thing,acid and bile.  Couldn't keep living that way.  
Let me know what happens.  Good luck and Take Care.  Save the Pepto for another day...that's not the right product for your problem.  Take Care.  

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cvsk12, Community Member
1/30/13 9:20pm

I want to make it clear by stating at least eight course of four 50,000IU a week I meant:  at least 8 times I took one 50,000IU a week for four weeks.  Just once a week was causing problems until finding out I should have been taking it with a ''greasy'' meal.  Then discovering straight Vit D just doesn't cut it as far as absorption rate, at least not for me.  Like I said, my levels only went from five to 13 during all those rounds of Vitamin D.  Once I switched to a lower-level amount with added ingredients, my Vitamin D shot up to 25.  Of course I'm going to stay with the Vit D from the company I mentioned.  Not going to take the pharma grade it was just straight Vit D and no I never had success with over-the-counter vitamins either.  Everyone's different.  Hope this info helps and would like to hear your take on it.  Good Luck Again. cvsk12

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Lacy, Community Member
4/26/13 9:42pm

I am tottaly worried about taking this high dose of vitimin D 50,000 ui.. im a 23 year old female what can i do to not worried and just take it lol i know i need it im just so worried... Frown

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cvsk12, Community Member
4/26/13 10:25pm

Hi I can understand your concerns.  I was prescribed the same without any further instructions.  I learned:  you have to eat a somewhat greasy meal prior to taking the Pharmaceutical Grade 50,000IU on a weekly basis.  The reason is otherwise you stand a high chance (like me) of having stomach pain.  This is my own experience.
I also experienced about 8-rounds of pharmaceutical Vit D and only went from five to 13.0 so I switched to a reputable vitamin company.  My D level shot up to: 25. Then, I started experiencing as if my meds were not working. It was the blend of herbal ingredients interfering with my medications. So, back to the drawing board. I can actually feel the difference I am more tired and lethargic.  Someone located liquid over-the-counter Vit D that the pharmacist approved.  I'm like you:  another experiment.  I want to learn how to get about 3,000 units a day, because that is what the former vitamin product contained.  Make any sense to you?  If you don't have any stomach or digestive issues, you will see your Vitamin D shoot up rapidly.  If you have any absorption problems, you'll find out.  The only other info I know to tell you per my pharmacist is it is alright to take ZANTAC for the STOMACH IN WHATEVER DOSE, EITHER 75 MG OR 150 MG, AT LEAST TWO HOURS BEFORE ANY OTHER MEDICATION.  According to my Pharmacist this will allow your stomach to have protection yet for the medications to also work.  Good luck to you.  Don't be too afraid. Like I said, if you don't have any stomach/digestive issues, you should not have problems. As long as you eat what you consider a ''greasy'' meal before taking the Vitamin D. Know how I found that one out?  The internet. Yeah.  Take Care. cvsk12 

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mattyfanboy, Community Member
5/22/13 3:45pm

I have been on 50 mu for about two weeks now, I was experiencing chest and muscle pain. The first day I took the pill my pain decreased almost instantly. Since then the pain is almost gone. I haven't experienced any side effects. Buy from what I hear most are subtle and not so bad. If your doctors has prescribed you something the benefits outwieghs the risk. 

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Linda, Community Member
8/ 1/13 11:21am

I am 63 and I have been taking 50,000 Iu for a year. My doctor told me that low vitimin D would make you feel tired and ache all over.  That was one of the reasons I went for a check up.  I almost never get sick and just did not understand why I was feeling so bad.  I work 50+ hours a week at a job I love (management). I tried coming off for about a week of it to see if it made a difference.  My whole body started aching, I had no energy and felt horrible. Started back on it a few days ago and feel wonderful.  No more aches and pains.  I am a very active 63 yrs.  I have red hair and light skin and DO NOT under any circumstances sit in the sun.  People who do not have this type of skin do not realize how the sun actually feels AWFUL on your skin.  So I definitely need the supplement.  So far I have had no adverse reactions to that much,  only good ones!

 

 

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Evy, Community Member
9/27/13 9:58pm

I just recently started taking vitamin D3 50,000 IU, the blood work results came in at a 3 and normal range is 30 +. I'm 50 years old and thus far I have not had any side effects. I really don't know how fast these pills will raise my levels back up to normal, but I hope I don't have to take them for years.

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UT25mfan, Community Member
1/28/14 11:57am

Hellow, Evy.  I see your post is one of the most recent.  I'm 47 and have just been diagnosed with low Vitamin D at a level of 5.  Just wondering how you are doing now and if you are still taking supplements.  My symptoms are muscle pains, tremors, joint pain, tingling, mild light-headedness.  Hope to hear from you soon and hope you're feeling better. 

 

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fonny19, Community Member
5/ 2/14 11:27am

At first i wasnt worried and from reading this i see it a lot of older people 60+ prescribed this. I am 29 and my vitamin D level is a 6 with a normal ranhe 30-100. Am i to young to take such a large dose (50,000 iud) a week? I do have a history of brittle bones since age 4

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keyaa, Community Member
5/ 7/14 8:22pm

My D level is at a 4.  I have hyperparathyoidism (HPT).  My calcium level is at a 11.8 and PTH of 270.  First of all if you are thirsty then you need to drink water. My disease causes symptoms like a diabetic excess thirst and peeing and many many more symptoms.  I am 57 and feel like I am an old old lady.  I was prescribed Ergocalciferol 50,000 IU. once a day for 7 days and then once a week for 8 weeks.  I have surgery next week to remove the rotten parathyroid that is messed up.  I too was so afraid to take the vitatmin D.  Since it can cause calcium levels to increase.  After pill 3 I am feeling nothing but tired.  A body does not need extra vitamin d unless you are found to need it.  I have learned that if you are healthy you body regulates your levels of everything.  Get checked before you start taking vitamins etc.  IF your levels are low then your Dr. will prescibe what you need.  Don't be self medicating just because they are "Just vitamins". 

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jasmine Selaf, Community Member
6/ 6/14 1:06am

are there any dangers associated with taking 50 000 iu of vit D once a week for six months?

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contara, Community Member
7/20/14 4:48pm
This prescribed dosage has caused diarreha after 5 Weeks and having stopped after 8 weeks with continual diarreha. I will be consulting with my physician to get answers. I believe I am overloaded with V-D and it is adversely affecting my entire digestive system. Reply
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By jerri koch, Community Member— Last Modified: 07/20/14, First Published: 10/13/08