Beckwith-Wiedemann syndrome

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Beckwith-Wiedemann syndrome Metopic ridge

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Beckwith-Wiedemann syndrome

In infancy, hypoglycemia may be treated with intravenous solutions. Enlargement of the tongue can cause problems with feeding and sleeping.

Defects of the abdominal wall may need to be repaired. In addition, affected children must be followed carefully for the appearance of tumors.

A support group for this syndrome can be found at www.beckwith-wiedemann.org.

Children who survive infancy do well, although there is no long-term follow-up information available. Mental function appears to be normal to very slightly decreased.

• Hypoglycemia
• Seizures
• Respiratory difficulties from obstruction due to large tongue
• Feeding problems
• Development of tumors

If you have a child with Beckwith-Wiedemann syndrome at home and any worrisome symptoms develop, call your health care provider immediately.

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