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Apert syndrome



Syndactyly
Syndactyly


Apert syndrome

Alternative Names:

Acrocephalosyndactyly
Treatment:

Treatment consists of surgery to correct the skull, mid-face and palate, after evaluation by a multispecialty cranio-facial surgery team at a children's medical center. To optimize treatment of hearing problems, see a hearing specialist.


Support Groups:

Apert Syndrome Pen Pals, (401) 454-4849


Expectations (prognosis):

The prognosis varies from child to child.


Complications:


Other congenital abnormalities may exist and should be evaluated on an individual basis.


Calling your health care provider:

Call your health care provider if you have a family history of Apert syndrome or you notice asymmetric growth of the skull in your baby.




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