Steely hair disease; Menkes kinky hair syndrome; Kinky hair disease
Treatment usually only helps when started very early in the course of the disease. Injections of copper into a vein or under the skin have been used with mixed results.
Most persons with this condition die within the first few years of life.
Calling your health care provider
Talk to your health care provider if you have a family history of Menkes syndrome and you plan to have children. A baby with this condition will often show symptoms early in infancy.