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Osler-Weber-Rendu syndrome

  • Alternative Names

    Hereditary hemorrhagic telangiectasia; HHT


    Treatment

    Treatments include:

    • Surgery to treat bleeding in some areas
    • Electrocautery or laser surgery to treat frequent or heavy nosebleeds
    • Endovascular embolization to treat abnormal blood vessels in the brain and other parts of the body

    Some patients respond to estrogen therapy, which can reduce bleeding episodes. Avoid taking blood-thinning medications.

    Some patients may need to take antibiotics before having dental work or surgery. Ask your doctor what precautions you should take.


    Support Groups

    HHT Foundation International -- www.hht.org


    Expectations (prognosis)

    People with this syndrome can live a completely normal lifespan, depending on the parts of the body where the AVMs are located.


    Complications
    • Heart failure
    • High blood pressure in the lungs (pulmonary hypertension)
    • Internal bleeding
    • Shortness of breath

    Calling your health care provider

    Call your health care provider if your child has frequent nose bleeds or other signs of this disease.