Monday, February 13, 2012

Lots of Gripes

Written by

Brucie

Brucie

Sat, December 29, 2007

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It's depressing that there are so few support groups for std's and herpes in big cities. I only found one and it's not even in my home town. And doctors are not quick to point you in that direction since it isn't socially acceptable to talk of much less get help for it. This is one of my biggest peeves about having herpes. NO support!!! My family cares but don't understand it and are deathly afraid of it being transmitted to themselves now. I can't even use the same bathroom as my children and mate. Good thing we have two! I don't share towels, or any other personal items, I even wash my clothing separate just to be on the safe side. I hate that but I care about my family a lot.

The other gripe I have is how to handle social situations. So far I've blundered more than not so I just avoid people now. There is no way I can be comfortable with talking about this to aquaintances whom I don't wish to know of my disease at all. They don't have a right to know but once they do they can threaten you if you touch anything and later say, oh I got shingles or some such because you're the only person I know who has this disease! These things do happen. Lawsuits have happened. I don't want to have that happen to me and therefore affect my family but once the word is out herpes sufferers are or may be out of luck!

Anyone who says this won't control your life isn't being realistic! Reality may bite but shouldn't be glossed over or made smaller than it is. I really have a pet peeve with those dating sites as a result. You'll notice this in my comments I'm sure, so please bear with me. I don't mean to offend just defend the truth of it all.

12/31/07 11:35pm
I really appreciate your honesty.  I have had the same thoughts as you just covered.  No support groups exist.  I feel so isolated. I wish that medical students would research herpes rather than some stupid disease or something that affects no one. I am feeling so frustrated today.  Only my husband knows about my herpes.  I am sure that my family and his would disown me.  No many stereotypes and misinformation are out there. I never thoght this would happen to me and I hate that I am having to deal with it.  It really is making me mad.  Why are some days so hard?
1/ 3/08 9:03am
I hear you, totally. The isolation and possiblity of social shunning is astoundingly prevalent. The law can't defend you if people know you. I think there oughta be a law to protect std sufferers from litigation since there is so little we can do short of declaring a disability for any help to be had, and doctors don't tell you the legal aspects of having herpes, etc.. It's a nightmare, so if you feel like chatting here then feel free...

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