Post Herpetic Neuralgia / Neuropathy or Herpes Nerve Pain

Sam Community Member September 17, 2009
  • Hi, I just wanted to let everyone know that I was diagnosed with Post Herpetic Neuralgia with is Chronic, and constant Nerve Pain in one's vagina or sacrum. In the past year I have struggled with this and have learned ways to minimize my constant pain thought Hatha Yoga everyday and also through other homeopathic remedies. Please, I would like to help anybody who is struggling with pain management. I ve tried medication, accupunture, etc... so I ve already learned through trial and error what the things that minimize my pain. Please, feel free to send me a message through this site and I will try to let you know all the things I have learned throughtout my post herpetic neuralgia Journey.  May God bless you...  

6 Comments
  • Anonymous
    Jenn
    Jan. 21, 2011

    So, could you let me know what you did for the pain.  I've been in search for a diagnoses for 6 years and just this week we started talking about a Neuropathy autoimmune disease.  This is the first I've ever heard of this and now I looked it up and it fits me perfectly. 

     

    So, just wondering what you've done for the pain and fatigue. ...

    RHMLucky777

    Read More

    So, could you let me know what you did for the pain.  I've been in search for a diagnoses for 6 years and just this week we started talking about a Neuropathy autoimmune disease.  This is the first I've ever heard of this and now I looked it up and it fits me perfectly. 

     

    So, just wondering what you've done for the pain and fatigue.  Thank you for being so open and honest about your life.  Through others we can learn with eachother.  I sure don't trust very many doctors anymore.  The one I haver now is a God send. 

     

    downtownjennibrown@gmail.com

    • Sam
      Sam
      Jan. 22, 2011

      Hi Jenn.  I was diagnosed with post herpetic neuralgia at age 33. I was fortunate that within a month of my first outbrake my gyn was able to figure it out.  I will explain the treatment I received to manage post herpetic neuralgia, which is a neuropathy i felt in which the nerves are damaged due to the virus travelling through them.  Some people...

      RHMLucky777

      Read More

      Hi Jenn.  I was diagnosed with post herpetic neuralgia at age 33. I was fortunate that within a month of my first outbrake my gyn was able to figure it out.  I will explain the treatment I received to manage post herpetic neuralgia, which is a neuropathy i felt in which the nerves are damaged due to the virus travelling through them.  Some people experience numbness with neuropathies, but I experience pain as if i had constant needles in the genitals. I was so depressed and so debilitated from the pain, i only found relief when I slept.  I had to get on an antidepressant for 9 months, (lexapro 5mg, then 10mg, and worked my way to 20mg). Before the lexapro kicked in, I took some klonopin, which is a sedative and an antianxiety medication to be able to calm down and sleep. Sleep is necessary for a strong immune system. Basically i tried so many things. For the pain,  I tried an anticonvulsion medication called lyrica which is used for people with fibromyalgia who feel nerve pain in their entired bodies. The dosage started low and then it increased. While lyrica took my pain away temporarely, it would take the pain away for 4 hours then it would make me "high" and sleepy at work.  I did not like that because i have never done any drugs and did not like that feeling. This was prescribed by my gyn and it is a controlled substance. Then he also made me a lidocaine ointment that would numb that area of my vagina at times as well. I tried accupuncture, but while that took the pain away temporarely it would always come back and then it ultimately leads to outbrakes because the same nerves where the virus travels are relaxed and also stimulated with the needles, so in the end it was counterproductive. MY BIGGEST RECOMMENDATION WOULD BE SIVANANDA OR HATHA YOGA FOR 1 HOUR WITH 30 MIN OF RELAXATION poses in between. So basically a total of 90 minutes of yoga was the only thing that truly helped me manage and even take the pain away completely.  I guess it helped me because it must have regenated the nerve endings that were damaged by the virus when it travelled. Since yoga also helped my blood circulation it must have nourished those nerves and regenated some of them. That is the only biggest advise i can give you.  Also, contact christopher scipio on line. I take his remedies too. He is the one that told me about yoga and he can give you great advice.  Google his name. But do the yoga like i said to take away the pain from the post herpetic neuralgia. 

    • Anonymous
      godzilla7
      Apr. 11, 2013

      How often did you do the yoga?

    • Sam
      Sam
      Apr. 13, 2013
      5 days a week for 90 minutes
    • Sam
      Sam
      Apr. 13, 2013
      90 min each day. 5 days a week
  • Anonymous
    Apr. 16, 2010

    I do not like taking drugs.  I get some relief from my TENS/EMS Unit; not wearing much clothing; and not having my body parts touch the parts where the effected nerves.