My 3 month old son died of Ventricular Septal Defect

By Cathe Tuesday, December 30, 2008

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My third son Jacob was born on February 28, 2008. He is my third child. Right from the beginning I knew something was wrong, but I did not know what. He did'nt take to nursing, his coloring seemed a little blueish, low weight gain, fussiness, fatigue, and the list goes on. I kept taking him to the Dr. over and over. I even took him to emergency. They told me he was just fussy. The last Dr. appointment, they heard a heart murmer. I've had the same pediatrition for 13 years and trusted him. He did'nt send Jacob for any further testing. On May 26, 2008, which was Memorial Day, I woke up and Jacob was blue and was'nt breathing. I am angry because it was overlooked. Jacob could of had a surgery and very possible a normal life. I know God took him from us for a reason, but negligence on the Dr.'s part played a big role in his death. I just want to share with you my experience with a child with a Ventricular Septal Defect.

Comments (4) | Add comment

christine

1/ 7/09 10:56am

My heart cry's for you..poor little chap may have lived if the drs were more clued in. I had a ASD when i was 30 they also missed it for all those years and now i have permanant AF AS A RESULT, bloody Drs are clue less on Heart defects. God Bless your family and Jesus will look after him x Chris UK

Anonymous

3/11/09 9:02pm

My little sister was born a blue baby. The doctor's caught on real quick and she had open heart surgery at 3 to replace the valve. Seven years later she died from spinal meningitis. It was the same year she would have had to have another open heart surgery to put an adult size valve in. So it really is all in God's hands. We could have been like you and given the run around and lost her earlier, but we didn't have that problem. I'm a firm believer in the fates. Because although she was operated on and all we still lost her to something else. And whose to say what will or won't happen. When she was in the hospital the last time I saw her she was totally blind and in a great deal of pain.

cathe

4/18/10 11:52pm

Thank you for the response to my sharepost. I am sorry it is so late that I am responding. The response from you is one of the first I have ever had, so I havnt checked them very often. I was very happy to see your story. Not happy at the situation, but happy to have someone to talk to. I started this website looking for support groups or something similar and got no where. The medical examiner also gave me a number of a lady who helps mothers deal with the grieving and I suppose helps if you need someone to talk to. Well about six months after he passed away, I finally felt I could deal with talking about it and did need some support. My family was not there at all. I felt so alone. I even posted something for information on any support groups that any one knew of and still no responses. I guess I just want to say Thank You. It really felt heart warming to know someone took the time to write me back. I am so sorry for your loss. Its a terrible thing, but I also think it is all in God's hands. If you know of any websites or something similar, please let me know. I'll pray for you and your family. Thanks bunches.

Cathe

beverly cantey

4/20/09 1:35pm

I am so sorry to hear about your loss. My son will be 2 yrs. May 3rd, he's had 4 open heart surgery. He was born with a heart defect called an unbalanced av canal. I found out when I was 5 mos. pregnant. But he's doin good now ,but he's going into the hospital in May for another surgery. I wish you and your family the best, may GOD bless you and your family. And your little angle is watching over us all.

My 3 month old son died of Ventricular Septal Defect

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