Saturday, May 26, 2012

DID THE WORLD SHUT YOU OUT WHEN YOU FIRST GOT ILL, HAS IT LET YOU BACK IN?

By sharon feldman Tuesday, August 10, 2010

I HAVE NOT BEEN HERE IN A VERY LONG TIME.  SADLY DO TO BEING ILL AND I DECIDED TO SAY HELLO TO ALL.  I TITELEDTHE TOP THAT WAY FROM CURIOSITY BECAUSE WHEN I FIRST BECAME ILL NOW THESE 19YRS AGO IT WAS ASTA LAVISTA BABY AND THAT HAS NEVER CHANGED BACK.  FAMILY WENT ONE WAY AND THE "?FRIENDS?" WENT IN THE OTHER DIRECTION.:)  I FOUND THINGS FROM WITHIN  THAT CAME OUT WITH THE HELP OF A *NEW FRIEND* AND BEGAN A WHOLE NEW WAY OF LIVING.  I FOUND OUT I HAD TALENTS WITHIN THAT WERE STORED UP JUST WAITING TO COME OUT AND SHOW THE WORLD WHAT THEY WERE MISSING ESPECIALLY ME .  YOU ALSO MUST PUT ALL YOUR ANGERS ASIDE AND GO INTO YOUR NEW WORLD THAT IS JUST WAITING FOR YOU AND ALL YOUR NEW TALENTS.


I SOLD THINGS THAT I PAINTED. I SOLD THINGS I MADE WHEN I WENT INTO MY SMALL CERAMIC BUSINESS FOR AWHILE.  I ONCE WENT INTO THE CHOCOLATE BUSINESS AND MADE MOLDED CHOCHOLATES AND DID A GOOD JOB SELLING THEM.  I MADE FROM LOLLIPOPS TO LIFESIZE PANTHERS.  WRITE ME AND DAY HELLO.  BYE FOR NOW

8/11/10 6:29am

dear sharon, i know i know i was and am fortunate to have the medical team i have my primary doc isnt afraid of meds, as i had a work up at out pain clinic

i struggle with depression but i am on the correct meds for that they work for me and the pain has calmed down, but friends? i was a highly train person in the medical field, i got sick cancer, and thepain has bee permenant i wish you lived here so many good pain specailist and havin physicians notify your hospital that if you come in , your not "drug seeking" they know what to do, its been so bad i have been admitted for rest, and pain relief, , the cancer was removed in 1997 yet the pain remained, i developed fibromyalgia, osteoarthritis, if i just bump into something my whole body is traumatied,yet i try to get outside of my self writing poetry, and i wrote to everyone who abandoned me when i no onger could drive due to pain and the meds,, i told them in plain but succint lanusage that will not allow them to call or be in contact, as i was abandoned during the cancer pell and i knew why, i was the mirror, and also inviting me for holidays and then being afraid that i will fall and sue them, my mum passed in 2008, my so called brother never believed her, lots of put downs, he is a control freak, her bone disease was so bad that she walked bone on bone  refusing to have the surgery, diabetes and kidney  failiure. he never lived away from her and cant do anything  for himself, he is worth 1.2 mil, wont help me and tried to take my inheritance away from me based on disability, doesnt work, just becasue i cant hike, bike take 2 hour walks, doesnt mean the gray matter is gone, for 2 years now he has pressured me i almost broke but i refused , i am placing my moey in a protective trust, moving to another area, across lake washington, going back to school to pursue an art degree. he "brother" hates that i am doing for myself despite him and that my disability will be protected. i have been very lonely at times, it is as suddenly i am set apart, the chromic fatigue, thats called laziness by some, they dont et it but they will in 20 years or before when arthritis sets in husbands die,

when they find themselves like me thinking of things to do , thinking of things to say,finding that bottom line.  I am sunshinegirl42@comcast.net write if you feel like it, some days i am too ill to move but i try and would love to write to you,

 

                                                  peace to you, sushinegirl

V, Health Guide
9/ 5/10 8:38pm

Hi, Sharon. Please don't feel alone in your situation. Some people are afraid of illness and that is why they act the way they do. Othes, I'm afraid, just don't want to be bothered. The best friends are the ones who take a real interest. I think that sometimes the best friends are made after we become sick. They didn't know us when we were well, so they don't have the expectation that we will bounce back to our old selves some day. Family, family, family......things that make you go hmmmmmmmmmmm.  My immediate family, except for my husband, God bless his soul, has no empathy or understanding of the pain some of us live w/everyday.  I actually have an elderly realtive who seems to be in competition with me. She is 20 years older than I and gets around better than I do. If I go to a doctor, she goes to the doctor. She asks me the name of the doctor I'm seeing and gets an appointment w/the same MD. So, I haven't given her the name of my rheumatologist and she doesn't even know I am seeing urologist and having tests done next month. I just don't want to deal w/her attention seeking behavior. It is aggravating...........and sad. I think health central does a great service to us all by providing this forum for us to "talk" to people who understand our situation.  There are a lot of caring, good people on this site. I'm thinking of checking out the arthritis chaper in this area to see if there are any support groups in the area or any exercise programs for people w/arthritis. The interaction w/people who are in the same boat might be just the ticket!  Wishing you peace, and many blesslings.........V

By sharon feldman— Last Modified: 12/20/10, First Published: 08/10/10