Monday, February 13, 2012

Cardiomyopathy in the young

Written by

Rita Cohen

Rita Cohen

Sun, October 14, 2007

I was recently hospitalized with a pulmonary embolism and then again just to find out that I have idiopathic dilated cardiomyopathy, CAD, an EF of 10, mitral valve regurgitation, hyperlipedemia and was in full heart failure.  I am now home and have seen the cardiologist (alot) as well as my family doc and even a heart transplant specialist in Philadelphia.  I am a mother of 3 kids with a husband who drives truck so he is not home alot. I just returned to work full time and just am having a tough time with all of this.  Everyone at work keeps asking me how I feel, they don't understand that when all of this happens to you once the heart failure is under control and the embolism is gone, you feel ok.  I mean I never felt that bad.  I attributed all that I was feeling to having a job, kids and running all the time.  I am just having a hard time with allof this and cannot seem to find anyone my age who has been thru all of this.  I am also reading horrible things about dilated cardiomyopathy. 
10/15/07 11:35am

Ms. Cohen,

 

Thank you for joining our community and submitting a SharePost.

 

I am sorry to hear about your recent diagnoses and the trouble you've had finding information for younger women.

 

We have several resources and experts that may help you. 

 

These links have more information on cardiomyopathy:


Cardiac Enlargement: A Patient Guide

 

Dilated Cardiomyopathy Images 

 

One of our expert bloggers, Deanne Stein, suffered a stroke when she was just 31 and has recovered. She writes for us and volunteers with the American Heart Association. You can read her profile and send her a message at this link: Deanne Stein. 

 

You can also message Dr. Larry Weinrauch, an expert blogger and cardiovascular internist.

 

You can also find more information and support groups through The National Coalition for Women with Heart Disease. 

 

Please let us know what you find!

 

Best,

Joy Buchanan

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