Saturday, May 26, 2012

But You Don't Look Sick

By Rebecca Fortunato Saturday, October 09, 2010

Is that supposed to be a compliment?  I guess it depends upon who you're talking to.

 

It's hard for me to express my true feelings when the inevitable response is, "But you look so good!"  Ummm, thanks?  I sometimes wonder why people bother asking how I am.  Apparently I look fantastic!  That being said, I guess I can't fault them.  After all, the people in my life must care about me; otherwise they wouldn't keep asking how I'm doing. 

 

I appreciate their concern, I really do.  It's just sometimes I wish my condition showed; like a broken arm in a cast. 

 

 

Get The Balance Right

Having a chronic condition that no one can see presents a very unique challenge.  It's a situation many people face; not only those with heart disease, but also those who suffer from other chronic conditions, such as fibromyalgia.

 

Like anything, there must be a positive side to having an invisible illness.  After all, it's completely up to you how much you divulge as to how you are feeling.  That's a definite plus.  Some days I just don't feel like dealing, you know?  Other days, when my closest friends surround me, I feel more at ease to talk at length about this stupid disease.

 

Of course, as mentioned at the outset, there is a flip side.  I guess what's important is striking a balance unique to your situation.

 

Is Seeing Believing?

Not when it comes to heart disease; but that's ok.  Perhaps at this point I should quit worrying about what other people think and focus more on helping them understand.  Perhaps this will work:

 

Dear Friends and Family;

Just because you can't see it doesn't mean it doesn't exist.

Love, Rebecca

 

Rebecca Fortunato

http://rebeccasheart.wordpress.com

 

11/15/10 10:06am

Hi Rebecca

 

Very familiar advice for all with heart disease or other invisible chronic diagnoses. Sometimes I think it would be ever-so-handy if our cardiologists distributed neck braces or crutches or some other external sign that even though we apparently look fabulous, we do indeed have something very serious going on!  More on this at:  "You Look Great! And Other Things You Should Never Say To Heart Patients"

 

Christine Miserandino's website www.butyoudontlooksick.com should also be a must-read for all with a chronic and invisible illness.  Although Christine blogs there about lupus, her classic "Spoon Theory" essay is appropriate for all heart patients too.

 

Cheers,
Carolyn 

 

4/ 7/11 3:34pm

i completely understand where you're  going with this rebecca,i can relate to you what i'm going through, i had to be rush to the hospital for a variety of times of health problems right now.and one of them has not really been diagnosed,so i have to continue getting test.especially when it comes to your heart. so i am really going forward with this, thanks to your message. sincerely, BlonethaKiss

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By Rebecca Fortunato— Last Modified: 04/07/11, First Published: 10/09/10