Thanks Laura for bringing this news to our community's attention. It must be an awful time for her family. Maybe sharing some of the information will help others who struggle with this or similar conditions.
Here are some related stories are readers may be interested in reviewing:
Congenital heart disease may go unrecognized
Amniotic Stem Cells Offer Hope Against Congenital Heart Defects
People With Congenital Heart Disease Living Longer
Hope this helps and all the best, sue
Hello,
Do you know if any information has been released on the type of congenital heart defect Christine Durbin suffered from? As a mother of a daughter with a congenital heart defect, I cannot help but wonder.
Thank you,
Michelle
Hi Michelle,
No specific information has been released on Christine's condition. From what I can gather the family is very private and wants to share minimal details publicly.
In an email communication with Dr. Davis, he hypothesized - based on her young age - that the condition most likely had someting to do with a repaired Tetalogy or Fallot, or a transposition of the great vessels. Again, no specifics are known and this is merely an educated guess.
Thank you for your response. My daughter has a repaired partial AV canal. Because it's considered rare in terms of congenital heart defects, I have not come across adults who are living with this condition - although I know that they are out there!
Hi Michelle---You read my mind, which is how I came to this site--my daughter has a CHD as well, repaired pulmonary atresia w/VSD. The news about Sen. Durbin's daughter hit very close to home, so sad.
Jill