I am normally very sceptical of new solutions and ideas to solve IBD, however recently my views have changed.
A family friend approached my wife and asked her to see if I would be interested in taking part in a clinical trial for a new product.
I really would recommend people to ask their Doctor about the product and/or visit the company's website I have put below.
The product is called Dicon and uses a herbal therapy and works with the body to help eliminate many of the symptoms of IBD. I am still taking the product but have been told that there are even benefits after discontinuing the use of it.
If you are interested why not visit their website http://www.diconds.com/ - sometimes I realised that being sceptical hasn't always helped me and for once trying something new made the difference.
I was recently told I had IBS. In January I went to the ER and they did NOTHING! I was told to followup with my Primary and he told me take some probotics and Nexium. Now I'm at the point of tears! My Gastro ran test CT Scan and another CTA which showed there was nothing wrong. After several telephone calls to my Gastro doctor they finally told me I had classic IBS. The only thing he advise me to do was take some Milk of Magnesia and some Beanos and stop taking Nexium.
I want to know what others are eating! I'm losing weight! I don't eat out or leave home anymore! I don't know what else to do!
HELP!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Missy, I know what you are going through. I realize that your request for help was months ago. How are you doing now? In 2007 I found out I had UC and I can tell you it took me almost a year for me to realize the changes I had to make to my life. My life style and especially my diet. Two months after I found out the reason for my symptoms was UC I ended up in the hospital to put it under control. I was there long enough for the head nurse to want to kick me out of my private room saying that they could not understand why my symptoms persisted and they needed the room because it seem I was going to be there for a while so they wanted to put me in a shared room. It did not work! Anyway back to your eating habits - I hope you are beginning to learn how to make meals for yourself and eating out can be challenging, but you can enjoy eating out and eating with the family without getting a flare-up. I am trying to write a cook book that is UC friendly. Over the past years I taught myself how to eat again. I too lost thirty pounds within a year of finding out. Last year January I was back in the hospital and I was told that I am starving myself. But that was because I ate out with friends months before and something in the food triggered a flare-up that lasted for a month and I became afraid to eat again. I am happy to say that I have been doing well since that last hospital experience and I started preparing my meals and noting them. You also need to surround yourself with people who understand your needs. If there is anything you would like to know I will be happy to help.
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Thanks for sharing your story, it's truly uplifting and enlightning. I know you are taking Asacol daily... but Asacol does not do well for me (lower back pains and achy joints). Do you take any supplements to help regulate or keep down inflammation? I have been using serovera, have you ever heard of it? Along with my modified diet, I have been experiencing well results. I think the most important aspect of it is that it comes wiht no side effects. Maybe I'm just sensitive to prescription drugs, who knows. I know I'm not scoping out the bog as much as I used to!
Hey Sergio,
Glad you found my blog. It sounds like you're doing great. I've not heard of the serovera but if it's working for you that's all that matters. I do take probiotics each day, zinc, a multi-vitamin, and keep to the diet that I know works for me. The hardest part of treating IBD is that we all react differently to different treatments. I don't do well with most Rx drugs, but for whatever reason I don't have any adverse effects from the Asacol, so I'm lucky and grateful.
Be healthy!
Elizabeth
I am 47 and started haveing IBD symptoms in my 20's. Originally was told I had anal crohns, when I had fistula repair surgery in my early 30's. For years, I was told that 12 cm of my sigmoid colon were involved . so I didn't suffer malabsorptive issues (not good for me I weigh almost 300lbs) and my biopsies came back colitis even though I still had fistulas. In 2007 my mother had a stroke and I had major stress dealing with her illness and death and family issues. the next time I had a scope I was told that the disease process was now 45cm of sigmoid. now biopsies came back posative for both crohns and colitis. untill my mom was ill I only had 1-2 flare ups a year. Asacol never worked for me, but during a flare up prednasone and Flagyl for a week or two put everything back into remission. starting in 2007 with my major flare up, I have tried Prednasone, Remicade, and Imuran with no theraputic response. I have been out of work for 6 months and have no insurance. I am due to start a new job next week, but I am is so much pain that I have to be horizontal for most of the day. I dont know what I am going to do
Hi,
I'm so sorry to hear about your problems with Crohn's Colitis. I have colitis and my first flare-up lasted for nearly two years. Many in the medical field are just now beginning to understand, or admit, that while our emotions and stress don't cause IBD, they can, and do, affect some people's symptom pattern and ability to heal. That said, I'm not surprised to hear that your symptoms worsened with the stress of your mother's death and all that that entails. My suggestion is to find some CD's or books or a small group that can help you to learn to meditate. I have found yoga and meditation to be immensely helpful.
It is also being agreed upon that diet can help some IBDers with their symptom profiles. You may want to read further through my Shareposts and find the one's where I talk about doing an Elimination diet (ED). It can be a bit hard, but if/when you find foods that you are reacting to negatively you really can begin to quickly feel better once you eliminate them from your diet. I did my first ED 10 years ago and at that time there were some very specific foods that I found made my colitis symptoms worse, but wheat/gluten was not one of them. In the past few months I've now found that I am in fact gluten intolerant and may even have Celiac disease as well. So, how our body reacts to food is an ever-changing thing.
Re: the prescription medications used to treat IBD, the big key with them is patience. IBD is a problem of the immune system and inflammation in the body and it can take some of these medications months to really have an effect. It was a good 3 months after I started taking the Asacol at the highest dose that I finally saw even the tiniest effect. And, if you are having a hard time paying for the Rx meds. you can go directly to the medication's manufacturer and see if they will give you the medication for free. Just google the name of the medication, go to their web site and there should be a tab that says something like, "if you can't afford your medication."
I'm sorry I don't have the magic answer. I wish there was one, but there isn't. It's a process and not an easy one at that. Your new job might be a god-send as I found/find that if I can keep my mind occupied with things other than my gut I actually feel better. However, I know that morning can be hard for many of us. I was fortunate when I was sickest to have an employer who agreed to let me work 10-6 instead of 9-5.
I hope this helps you in some way. If nothing else, just know that I'm empathetic to where you are right now and it can and does get better.
Peace,
Elizabeth
thanks for the response. I have actually been on Lialda (Mesalamine) for a little over 2 years and am now on Imuran for the second time. I also had no theraputic response to Remicade which I tried in 2007. I hope to try Humira after the insurance to the new job kicks in. I have been doing self hypnosis since I was in my teens for meditation. It helps during the meditation but unfortunately not the rest of the day. I dont feel all that stressed since my mom passed away and I moved to a new town to be with sons. I have been happily married for 26 years and have a lovely new home since Feb. Although I think stress was the initial trigger, the stressors have been resolved. I was lucky to find an allergist who helped me with the elimination diet about 10 years ago. For me legumes and coffee seemed to be less than helpful with IBD. I just wondered if anyone else had tried Humira for Colitis as well as crohns and with what results. I approached 3 surgeons last year but no one wants to do major reconstructice bowel surgery on a woman as large as I am. And needless to say malablsorptive bariatric surgery on a crohns patient would be irresponsible to say the very least. I am an RN and a board certified wound ostomy nurse, so I know more than your average patient. but I just wanted to hear from others who have tried the biologic agents and what thier responses were.