Like me, my dad has UC. When I was a child I never really knew about his gut problems. I did know that he spent a lot of time in the bathroom. And that he always had a small plastic box filled with little white pills (Lomotil) conveniently tucked into a shirt or pants pocket, and would occasionally p...


Hi Elizabeth:
Just so I'm clear, I didn't know you had ulcerative colitis. I thought you were diagnosed with microscopic colitis, as documented in your book. Did the doctors find out it was ulcerative colitis instead?
Mary Lee
MaryLee,
Haha, good for you for catching that.
Truth is, I was first Dx'd with MC in '98, then a couple of years later when bleeding became a part of things I was Dx'd with UC, and just this year a new GI thinks it may actually be Crohn's.
Personally, I don't get too hung up on the name of what I've got. So far, the treatments for me have been the same no matter what anybody calls it. My main goal is managing the symptoms and living life.
Hope this helps.
Elizabeth
Hi Elizabeth
Sorry to hear about the complications! I was recently in the hospital again for severe belly pain - GI doc found a ulceration in my small intestine - ? H. Pylori vs. Flare of my Celiac Disease vs. ? Have to go to the Pain Clinic on October 7 for a celiac plexus block. It is a procedure whereby radio frequency is used to destroy nerve endings that feed into the epigastric area. It is quite painful to have done but is effective. Then, a followup colonoscopy and repeat endoscopy before the end of the year. So far, I'm just MC - hope it stays that way.
Glad you are plugging along (as we all are!)
Mary Lee