IBD Statistics...

SW Living With It I have ulcerative colitis (pan colitis) Send Message Subscribe: SW

Saturday, November 08, 2008
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I found these statistics about IBD on the NDDIC website (http://digestive.niddk.nih.gov/statistics/index.htm). I didn't know it was this rare... Inflammatory Bowel Disease Incidence:Ulcerative colitis: 8 new cases per 100,000 people per year (1984-1993) Crohn's disease: 7 new cases per 100,000 peo...

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Interesting
Ali
Wednesday, November 12, 2008 at 02:04 PM

I didn't realize it was that rare either... but I guess I am the only person I know who has it, and I had never heard of it before I was diagnosed! I also have pan-colitis, and had a similar experience to yours before I was diagnosed. I'm glad to hear that you are feeling better! Feel free to send me a message if you ever need to complain or anything!!

re: Interesting
SW
Sunday, November 16, 2008 at 09:58 PM

Thanks! It's "nice" to know that someone else understands what all of this is like! I'm still trying to get into remission. Unfortunatly it seems like now the more I decrease the steriod dosage the more my symptoms start to come back. Oh well- at least I've had some temporary relief so far.

re: re: Interesting
Ali
Wednesday, November 19, 2008 at 03:58 PM

The same thing happened to me... I ended up being on the prednisone for over 6 months because my doctor kept drawing it out. I know that the steroids can have some bad side effects (and I definitely noticed that my face got rounder while I was taking them), but they really did help my symptoms. I wish there was something that worked as well without the bad side effects! Good luck!!

re: re: re: Interesting
SW
Wednesday, November 19, 2008 at 06:07 PM

Yes, my face is getting pretty round lol- but as you said, it's worth it to get some relief for my colon! Did it make you feel like you were hungry all the time? Even when I'm full my brain thinks that I need more food- something I never had before the prednisone. I sure hope that I don't need it for 6 months- I'm supposed to go for a month- I guess we'll see!

Thanks!

re: re: re: re: Interesting
Ali
Saturday, November 22, 2008 at 05:55 PM

Yeah, I did eat a lot, but somehow I don't think I gained any weight... other than in my face. My skin did get a little broken out though. BUT my hair got really healthy looking. So weird! Anyway... how have the past couple days been?