She won't go into detail but could this mean she faces years of surgery and ill health or can it be controlled with medication
She won't go into detail but could this mean she faces years of surgery and ill health or can it be controlled with medication
Hello Worried,
You haven't given me much detail to go on. But since you checked the Ulcerative Colitis (UC) category I'll assume that is what you're daughter is dealing with.
It's is quite common for people with UC to have to try more than one medication to find the one that works for them. Even though we may have a common diagnosis, there are no 2 UC patients that have the exact same symptoms, or react to a medication the exact same way, etc.
Surgery is not typically done for UC patients unless it is to remove the entire colon. And typically, this option is only considered after all other treatment options have been exhausted.
It can take months or years to figure out the right treatment plan for each UC patient. And there will be times of active disease and then remission for UC patients. So, your daughter will have to learn to live with her UC, but it doesn't mean she will always have active disease. And, some people are able to control their disease with medication alone, like my dad. But others, like me, find that a combination of things like medication, diet changese, and stress reduction, are what help keep symptoms better controlled. It's all very individual and with time and experience your daughter will figure out what works best for her.
Since you are concerned but not getting much information form your daugther you might find my book, Living with IBD & IBS, informative to read - www.ibdandibs.com. I would also recommend allowing your daughter to talk about her UC at her own pace and in her own time. Do not force the subject. This is a hard disease to hear you have and it will take her time to come to terms with it from a treatment stand-point as well as a quality of life stand-point. Give her some space and time and she'll come around to talk about it. Be supportive, but not overly-so.
Kind Regards,
Elizabeth
I have UC. I am currently seeing a naturopathic doctor as my GI was less than helpful and only wanted to cut out my colon or put me on a dangerous drug (at least for me; I lack the ability to metabiloze it--according to tests).
UC, I am told can be controlled with the following medications; Asacol, Prednisone or Cortisol (ask about cortisol, as it has fewer side effects. Most GIs do not mention it because it is used mainly in naturopathy), Remicade, Imuran, Lialda.
BUT GIs often do not turn to naturopathic nutrition, otherwise known as nutritional therapy. It requires the elimination of certain foods (that naturopathic doctors will test you for) to lower inflammation and the use of dietary supplements and enzymes to help digest food. It helped me an awful lot. I felt healthier, my pain was less, and I was able to get out of bed and not use the bathroom like mad.
I also take special probiotics and other supplements now to help other problems caused by my UC. Probiotics are very good...Shaklee has quality ones. I would also look into the following; omega 3 fatty acid capsuls, and castor oil. Omega 3 is good for inflammation and overall health, and when rubbed onto the abdomen followed by a heat source, castor oil helps sooth inflammation, and stimulate the lymphatics
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