Friday, May 15, 2009 elise asks

Q: I've just had my second 'accident' and am feeling really down - any tips?

Hi there, I am a 29 year old woman, I was diagnosed with UC in 2007 as I had a severe flare up which involved me losing a lot of weight and having a couple of months of no appetite frequent bloody stools, high bp, raised heart beat and general malaise.. the usual. Since then I have been taking asacol and occasionally using mezalazine supposotries and in that time I have had a baby girl who is now 7 months old. Whilst my colitis has always been there it has been controlled and I haven't worried too much about it. However in the last month I have had increasing problems with urgency and have had two 'accidents'. I am not suffering from diarrohea the stools are well formed but on the 2 occasions where I have lost control it has felt as though my bowel has taken over and I couldn't hold on. I have read about the bowel squeezing too strongly and that sounds right. The second accident was yesterday and today I feel really weepy, depressed, alone and fed up. I feel like a rubbish mother and wife and I just don't want my life to be like this and to be ruled by my bowel. Fortunately I have been on my own with my daughter on the two occasions but I am so scared of it happening again when I am out with friends. I have found solace in reading online others experiences so I know I am not alone, but I would love some advice as to techniques to employ and medication that helps. I am seeing my consultant next week, but it is hard in the 10 minute slot to ask all you need to and also to get all the information you want . I am also going on a family holiday (on a plane) in a months time and I am petrified of what that is going to mean. I already hate flying without the added stress of fear of having an accident. Thanks in advance for your time in reading this.
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Answers (1)
Elizabeth Roberts, Health Guide
5/15/09 6:06pm

Hello Elise,

 

I am so sorry. This disease stinks, there's just no two ways about it. I've been where you are and while it might seem trite to say it, it will get better. My accidents were when I was having a flare-up with diarrhea (D) and I just didn't make it. I always say, when I have the urge to go I have about 15 seconds to find a bathroom.

 

When I'm having D Imodium helps me a lot when I have to go out in public or fly on an airplane, etc. But, if you aren't having D taking Imodium can be risky in that it could stop you up too much.

 

Definitely talk with your doctor - before you get there write down your symptoms as well as your questions and make a copy that you can give to him or her. Then they can "see" what you're going through and what your questions are. I've had 3 doctors tell me lately how much they appreciate this.

 

Something like Bentyl or Lomotil might be helpful for you as well. Again, talk to your doctor about these medications. The Bentyl helps calm the gut and the Lomotil is a anti-diarrheal but less harsh than OTC ones.

 

Have you looked at your diet? stress? tried things like yoga? meditation? I know you're busy with a 7 month old but you have to take time for yourself, especially with UC. While stress don't cause IBD it can make our symptoms worse.

 

If you're intersted, I've written a book about my experience of learning to live with UC, its title is" Living with IBD & IBS - www.ibdandibs.com, it might give you some ideas of how to go about seeing if any foods are making your symptoms worse, and learnign more about stress relief.

 

Having IBD does not make you a bad mother or wife or woman. It's a hard disease for anybody to live with and it's even harder because it's not really something that's easy to talk about with just anyone. Be kind to yourself and know that you are doing very well, even though you had a bad day yesterday. You can't change yesterday, you can only live in today.

 

Hugs,

Elizabeth

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By elise— Last Modified: 12/24/10, First Published: 05/15/09