Hi Wisconsin,
Gosh, you are having a rough time of it, aren't you? I'm so sorry. I really don't have much helpful advice for you as I'm not a doctor or nurse. I don't know what part of Wisconsin you're in but I grew up in Racine and had a great GI there who my parents still see. If you would like his name let me know and I'll forward it along to you.
If you feel you've exhausted your options with GIs it may be time to search out a different type of doctor. A D.O. or doctor of osteopathy could be helpful to you, or a homeopath, or holistic. These types of doctors tend to look outside the box and it may be another venue to try.
That's about all I can offer you but hope you find the help you need.
Cheers,
Elizabeth